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Poll: How Many Had Elevated Liver Enzymes?

trents

By trents
in Related Issues & Disorders

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trents Grand Master
trents
Posted

How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

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Jenn2005 Contributor
Jenn2005
Posted

My husband has elevated liver enzymes. His weren't elevated before dx or even right after but they were at this last visit. He was dx last August. His doctor tested him for Hepatitis and he had Ultra Sounds and CT Scans to check for other things going on and since everything else was negative he said its from the Celiac and he'll monitor the levels and they should go down once he's healed more.

Jennifer

Guest Robbin
Guest Robbin
Posted

Count me in on that crazy symptom, too. Have had this off and on for ten years and was tested for hepatitis, and was told it was fatty liver disease common in diabetes, but I don't HAVE diabetes, so the drs. are stumped (of course) :)

angielackner Contributor
angielackner
Posted

my liver enzymes are slightly high...i had them tested when i was being tested for PCOS (which I have)...they had to test me before i could do any kind of fertility treatment...and we have not been able to figure out why they were slightly elevated...celiac had never occured to me...i dont have an "official" diagnosis of celiac...but i do most likely have it...or at least for sure a gluten intolerance...i'll have to bring this up with my GI doc when i see him next.

angie

Bonnie Explorer
Bonnie
Posted

I kept waking up in the morning with a yellow face and eyes. Also incredibly nauseous. Had bloods tests which revealed I have very high billirubin (liver enzymes). Doctor says that I have Gilbert's Syndrome. Have I? Who knows - these quacks talk a lot of rubbish.

Yvonne

zakismom Newbie
zakismom
Posted

Before diagnosis my liver enzymes were all over the place, some were too high others were too low. My GP sent me to a liver specialist gastroenterologist- who of course checked for everything else first.

ravenwoodglass Mentor
ravenwoodglass
Posted
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

Mine were slightly elevated at times. My twin however had his liver deteriorating since birth. We have no way to know if this was celiac related as he passed away at 15, at that time his liver had been totally destroyed. Please be aware that you should not drink or take tylenol if your enzymes are elevated. Especially if you are young and still growing liver damage can be greatly accelerated.

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pturse Apprentice
pturse
Posted

My liver enzymes were elevated too. It was not the case my entire life though, only during a certain period. Went on the diet when first diagnosed (after the whole Hepatitis testing blah blah). Liver was okay after that. Went OFF the diet for a period of 6-8 months and felt absolutely fine but I ran a marathon and I guess that was too much for my body to take and my liver started acting up again and I lost some weight and the color in my face. Started back on the diet in Feb. 06 and have gained a bunch of weight back (ugh), have the color back in my face and I think my enzymes are fine. We shall see, I am donating platelets this weekend and I can ususally tell how my levels are doing by my iron tests during the donation period. I know that isn't a "scientific" way of judging but is a good indication for me.

jenvan Collaborator
jenvan
Posted

pturse-

Why did you end up going off the diet?

plantime Contributor
plantime
Posted

My liver enzymes were in the very low end of the normal range last time they were tested. Doc said it was perfectly normal, but I started taking herbs to treat sluggish liver, and I feel much better!

  • 2 weeks later...
Guest snowy
Guest snowy
Posted
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

I was diagnosed with Gilbert's syndrome about 10 years ago. My bilirubin was 3x higher than normal.

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

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      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
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      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

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