Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osto,, What?

Kim UPST NY

Recommended Posts

Kim UPST NY Apprentice
Kim UPST NY
Posted

ok Help Ugh!!! what the hell!! I am 34 and I just was Diagnosed Jan, 15 Now just last week I get a bone scan, Mind you I am 90 pounds Pretty active and 5'2" So my Dr. calls me to tell me I have Advanced Ostioprosis in my Spine and hip WHAT? I was stunned I go back April 14th for treatment What treament what the hell does this mean? Will I get better? Now I know what the pains from darned it Why has my body turned against me. This could have started when I was 15 THANKS CELIAC and thanks Medical intitutions for over looking all us misdiagnosed souls!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jen H Contributor
Jen H
Posted

Hi Kim,

Totally understand how you feel! I"m 28 and found out I have osteoporosis in January. I was diagnosed with celiac last August. The good news is that that diet will help repair your bones somewhat (at least that's what my endocrinologist told me). I am on calcium supplements and have been encouraged to exercise 4-5 days per week and will be reevaluated in a few months. If I show a decline, I may have to go on medicine, but hopefully I will continue to rebuild my bone.

I was pretty upset when I found out I have osteoporosis too. You'd think it would be something easy to detect, but I guess it's not. Because we haven't been receiving all the nutrients we should be, our bones are suffering. One suggestion I have is to see a specialist about your osteoporosis. I see an endocrinologist who follows my case and reevaluates me every 6 months with blood tests and bone scans. He had a lot of knowledge to offer as well. I'm not sure if you've read this book, but Celiac Disease: A Hidden Epidemic is an excellent read. There is a whole chapter on osteoporosis.

Rusla Enthusiast
Rusla
Posted

I am going to my doctor tomorrow for a bone density referral because both my aunt and mother have Osteoporosis and I have back calcification and massive hip problems. My aunt and mother both have shrunk considerably.

Ursa Major Collaborator
Ursa Major
Posted

Kim, I am really sorry to hear about your osteoporosis. The good news is, that at your age your bones can recover somewhat.

Jen, are you only taking calcium? In order to repair your bones you really should be taking magnesium and vitamin D as well. Has your vitamin D level been tested? Without vit. D, your body can't even use the calcium, and taking the magnesium is almost more important than the calcium to repair your bones (again, if the right balance isn't there, the calcium you take will be useless).

Jen H Contributor
Jen H
Posted

Hi Ursula,

Oops, forgot to mention vitamin D and magnesium. My supplement is a Calcium/Magnesium supplement and I get plenty of Vitamin D from all the Tropicana OJ I drink. I had my blood levels checked recently and they were all normal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,538
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.