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    • badastronaut
      Thanks so much for your replies! no danger of overdosing on the stuff? or having the other B levels going out of whack? I do take a multivitamin with all te other B vitamins at the RDA level. I have bought the HCL version of Thiamine. How long do you need to use the Thiamine? a short periode on high levels and then back to a maintenance dosage?
    • knitty kitty
      Kudos for trying thiamine! On the ingredients label it should say if it's thiamine hydrochloride (thiamine HCl) or thiamine mononitrate or something else.   Thiamine mononitrate is shelf stable and not easily utilized in the body.   Yes, go ahead and try a whole 100 mg tablet.   Take with a meal.  Don't take close to bedtime.  Tomorrow take a 100 mg tablet with two meals. The next day take two 100mg tablets at one meal and 100 mg at second meal.  Keep increasing in this manner as long as you notice improvement.   When I first started with thiamine hydrochloride, I felt like the lights in my head were being turned on floor by floor like in a tall skyscraper.  It's just the brain working properly with sufficient thiamine.  I worked up to 1000 mg a day.  Lots if tablets.  Benfotiamine and TTFD are stronger and are utilized easier, so not as many milligrams ate needed.   I'm happy to answer any further questions!  
    • lizzie42
      Hi, My 3 year old was diagnosed a couple months ago. We went gluten free, very strict, and everything improved. Energy, no more meltdowns, bad rash is mostly gone. She's doing great. Except she complains every day of stomach pain. She describes it as squeezing. Any ideas from anyone?  We cut out oats and it didn't make any difference. She doesn't drink milk, though she has cheese. It doesn't seem to coincide with the cheese. She says it hurts when she wakes and then other random times during the day.  We are SO strict with her food. We don't eat out, out whole house is gluten-free. I make everything from scratch. She eats very healthy. She's not picky and we do tons of fruit, veggies, meat, etc. we don't do a lot of processed food. 
    • badastronaut
      Ok so I couldn't find the thiamine you suggested but I was able to buy a bottle of 'standard' thiamine (100 mg). Should I just try half a tablet to see if I notice any difference? If it turns out it does have effect I can always buy the more expensive stuff. Or is that not a smart idea?
    • knitty kitty
      @cristiana, Yes, I found high carbohydrate meals would trigger mine as well.  I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine.  Heart palpitations are a symptom of thiamine insufficiency.  Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy.  The more carbs one eats, the more Thiamine is required to process the additional calories.  500 mg more Thiamine is required for every additional one thousand calories.  This is named "High Calorie Malnutrition."  Sufficient calories are being consumed, but not enough of thiamine to burn the carbs for energy.  Instead to ration out the small supply of thiamine, the additional calories are stored as fat.  It takes less thiamine to burn fat than to burn carbs.    Do read Dr. Lonsdale' article here... Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
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