pre testing protocol

[KitRivers]

Good morning, I am new here. I am 60 years old, female and have a 31 year old coeliac son, diagnosed as a teenager, (also an adult anaphylactic daughter). I seriously do not want to be coeliac...I love to bake and love homemade sourdough bread. I can bake Gluten-free of course, but I really dont like Gluten-free food. Anyway, ...sorry if this is TMI but I have suffered with bleeding haemorrhoids for years. Over the last few months I have discovered I can turn this on and off by eating/not eating gluten. It wasn't apparent at first because it takes 2-3 days to switch over but what identified it was when my son took me away for a short holiday. The bleeding stopped and resumed a few days after I got home. I experimented and discovered I can turn the bleeding on and off reliably with/witholding gluten. I also get huge short-lived blood blisters in my mouth, but I haven't tagged these to gluten as reliably. I have a number of other symptoms (anaemia, joint pain, fatigue etc) but as I am post menopausal and ageing, I assumed it was just this.

Anyway, reluctantly, I have decided to get tested. I only want to do this once! I stopped eating gluten 2 days ago because I have an event at the weekend that I seriously do not want a bleeding bum for. Once that is over I have a quiet few months and can eat gluten again, and just put up with the bleeding haemorrhoids for a bit (extra iron pills of course!) But as I only want to do this the once to rule gluten in or out, what is the best gluten protocol, I have read so many different amounts of gluten and length of time before testing, and I wondered if people here had worked out a 'gold standard'.

Thank you

Kit.

 

[trents]

Welcome to the forum, KitRivers!

The Mayo Clinic pretest gluten challenge guidelines are as follows:

• For the serum antibody testing, consume an amount of gluten daily equivalent to two slices of wheat bread for 6-8 weeks.
• For the endoscopy/biopsy, the same amount of gluten for 2 weeks.

IMO, being gluten free fro a couple of days prior to the serum antibody testing probably will not have much effect on the results. Maybe more effect for the two weeks leading up to to the endoscopy/biopsy.

[Wheatwacked]

4 hours ago, KitRivers said:

short-lived blood blisters in my mouth,

B vitamin deficiencies, which is common in Celiac Disease. Vitamin C deficiency causes scurvy.  Everything you need to know about scurvy

Clinical efficacy of vitamin B in the treatment of mouth ulcer: a systematic review and meta-analysis "In summary, both vitamin B alone or vitamin B combined with pantothenic acid are effective in treating mouth ulcers. In addition to its effectiveness, vitamin B also significantly reduces the possibility of recurrence, accelerates ulcer healing, and shortens the course of treatment. Collectively, vitamin B has a high clinical value in treating patients with mouth ulcers."

Edited May 8, 2022 by Wheatwacked

[KitRivers]

thank you Trent for the guidelines, and wheatwacked re the blisters. I seriously had not considered vitamin deficiency...which was rather silly of me considering I have had anaemia for years....

 

This is a great site, so much information. I wish I had found it years ago when my son was first diagnosed.