Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Idea - How About A gluten-free Convention


Nantzie

Recommended Posts

floridanative Community Regular

Well I was thinking if we did it in DC (free museums you know) we could march on the mall and get some news coverage for our cause but I guess we can try and get the coverage no matter where were are. Now is it Maryland everyone is thinking about now? Sorry I'm confused after skimming the posts so fast.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 89
  • Created
  • Last Reply
Lollie Enthusiast

I just started reading this thread- But I love all this!!! I would take ChelsE on!!!! It could be a Tx, show down!!!!!! Hey we could travel together! I would definantly go where ever this wound up being.

And seriously, it would be nice to meet everybody in person!

My DH is in advertising, He might be able to help with some of this as a pro bono type situation.

Lollie

Suezboss Apprentice
I just started reading this thread- But I love all this!!! I would take ChelsE on!!!! It could be a Tx, show down!!!!!! Hey we could travel together! I would definantly go where ever this wound up being.

And seriously, it would be nice to meet everybody in person!

My DH is in advertising, He might be able to help with some of this as a pro bono type situation.

Lollie

I just started reading this also.. but all these ideas sound WONDEFUL!! I can help in any way needed!

:D

  • 1 month later...
Guest arnelwendy

iN november columbia univeristy is having a 3 day conference. for average joe or medical prof Averge joe it is about 200 not including room but it includes food that is gluten free the event should not be missed.

NY IS A LOVELY CITY TO VISIT AND GOOD DEAL OF CELIAC FRIENDLY RESTURANTS.

I WAS TOLD IT SHOULD HAVE OVER 2000 PEOPLE. THEY TOLD ME IT COSTS THEM 600 PER PERSON

taz sharratt Enthusiast

we have something like that in the uk, its run by allergy uk and its a 3 day evevt, tickets are £9 and you get free goodie bag, make over ( gluten free), talks, new gluten-free food taisters, compotitions the works !! i had an email sent to me last week about it and i really wanted to go but it was so short notice for me as the date was this w end, ive never been to one of these things brfore it would have been really interesting!!!

Guest Robbin
:) I was just thinking of this thread today and wondering if anyone was still interested. I would love to meet everyone :)
utdan Apprentice

This is really great! One of the best ideas I've seen on this forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



watchthestars Rookie
iN november columbia univeristy is having a 3 day conference. for average joe or medical prof Averge joe it is about 200 not including room but it includes food that is gluten free the event should not be missed.

NY IS A LOVELY CITY TO VISIT AND GOOD DEAL OF CELIAC FRIENDLY RESTURANTS.

I WAS TOLD IT SHOULD HAVE OVER 2000 PEOPLE. THEY TOLD ME IT COSTS THEM 600 PER PERSON

do you know the name of this conference? (so i can google it.)

TinkerbellSwt Collaborator

I just read this thread too... I would be in also. I would do whatever I can to help. I would hope to have it something within a drive of my state, like previously mentioned Washington DC or something. Keep this idea going, I am in!!!!

utdan Apprentice

I have a question, is everyone trying to meet at an existing convention like the University of Baltimore or trying to create a new convention? Who would organize it?

  • 2 weeks later...
jayhawkmom Enthusiast

I just saw this thread...and thought it would be AWESOME!!

In my area, in August, they are having a gluten-free picnic, sponsored by the Cel Kids network, for all the little gluten-free kids in the area. I was told that last year, companies came out of the woodwork to donate stuff and that all families in attendance went home with a huge bag full of products.

It would be awesome to have that type of "convention" -- food, families, and fun. In a safe environment for those who are touched by Celiac and Gluten Intolerance. I'd SO be there if I had ample opportunity to plan for it!

  • 2 weeks later...
eLaurie Rookie

Count me in, wherever, I'll be there!

I'm new to all this, but wondered about getting Annalise Roberts involved ...good promotion for her cookbook, maybe contacting OSI Restaurant Partners, Inc. for sponsorship. Most of their restaurants have gluten free menus on their websites. Again, great exposure for them.

Open Original Shared Link

From OSI's site:

Headquartered in Tampa, Florida, it was founded in 1988 and today operates 931 Outback Steakhouses (domestic and international), 209 Carrabba's Italian Grills, 108 Bonefish Grills, 41 Fleming's Prime Steakhouse & Wine Bars, 22 Roy's, 35 Cheeseburger in Paradises and four Lee Roy Selmon's restaurants. The company has restaurants in all 50 states, and Outback Steakhouse restaurants are open in 21 countries.

(I'm so excited to know about all their chains! I knew about Outback and Bonefish, but didn't know Carrabba's and Fleming's. Yum!, Memphis has these!)

Thx4noticingMe Newbie

I realize this is late but it gives information about a gluten free convention that happens annually. They go to different cities each year but here is the itinerary and contact info for the next year. I was invited to attend with a friend, but was unable to attend this year. I do plan on making the next year.

Gluten Intolerance Group®

31214 - 124 Ave. SE

Auburn, WA 98092

National Education Conference, Salt Lake City, Utah

June 9-11, 2006

WHAT: Gluten Intolerance Group National Education Conference

WHERE: Sheraton City Centre Hotel, 150 West 500 South Salt Lake City,

UT 84101

WHEN: June 9-11, 2006

WHO: 15 international, national, and regional experts to present

including:

* Dr. John Zone, Professor of Dermatology, University of Utah

Health

Sciences Center. Keynote topic: skin health for people with celiac

disease.

* Dr. Carol Fenster, author/consultant, The Savory Palate, Inc.

Topic:

baking cream puffs, tea sandwiches and other delights with alternative

grains.

* Dr. Alessio Fasano, Co-director, University of Maryland Center

for Celiac

Research. Topic: advances in celiac research.

* Executive Chef Aaron Flores, DoubleTree Hotel, Illinois. Topic:

cooking

naturally gluten-free.

* Registered Dietician Shelley Case, Case Consulting. Topic:

Gluten-free

diet basics and advanced.

* Dr. Janet Harnesburger, Pediatric Gastroenterologist. Topic:

Raising

children with celiac disease.

Auction:

The Saturday night banquet will include an auction to raise funds in

support

of the programs of the Gluten Intolerance Group. Donations of items to

be

auctioned are appreciated. Contact GIG.

Exhibits:

More than 40 exhibitors with products and services related to celiac

disease

and the gluten-free diet. Attendees may place orders and buy products on

site. Authors of gluten-free living books on site to autograph their

books.

Health Screenings:

* Free cholesterol, glucose, blood pressure, and body mass

analysis by

Registered Nurses.

* Bone density testing available for a reduced fee.

Cost:

* Early bird registration by May 20 is $190 for GIG members. After

May 20 is

$238 for GIG members. Non-members pay $240 prior to May 20, or $312

after

May 20.

* Kid's Day Camp (ages 5-15) ranges $85-150.

* Child Care (age up to 4 years) ranges $40-113

* Family discount rate and one day rates available.

Registration: Sign-up online at www.gluten.net or call (206) 246-6652

to

request a registration form.

News Media Contact:

Barb Shelley, Gluten Intolerance Group, (801) 673-7837,

shelleycomm@comcast.net

Event Calendar For Immediate Release

Today's Date: March 5, 2006

For more information, contact:

Gluten Intolerance Group of North America

31214-124 Ave. SE

Auburn, WA 98092

Phone: (206) 246-6652 or send email to info@gluten.net

KerriAnne Rookie
do you know the name of this conference? (so i can google it.)

The Columbia Univeristy Celiac Disease Center Symposium in Nov 2006:

Open Original Shared Link

jayhawkmom Enthusiast

There is a conference at Stanford - in September. Danna Korn is speaking!

Saturday, September 16, 2006

GENERAL PROGRAM

8:30 a.m. to 9:00 a.m. Registration & Gluten Free Continental Breakfast

9:00 a.m. to 9:15 a.m. Welcoming and Opening of Conference - Eric Sibley, M.D., Ph.D.

9:15 a.m. to 10:00 a.m. Peter Green, M.D. – Celiac Disease– The Basics

10:00 a.m. to 10:45 p.m. Gary M. Gray, M.D. – World-wide Research and Overview of CSRF Progress 2006

10:45 a.m. to 11:15 a.m. Break with the Vendors

11:15 a.m. to 11:45 a.m Gail G. Pyle, M.D. – Management of Celiac Sprue

11:45 a.m. to 12:15 p.m. Melinda Dennis, RD - Gluten free diet

12:15 p.m. to 2:00 p.m. Gluten Free Lunch & Beer Tasting

1:00 p.m. to 2:00 p.m. Office Hours – Meet with speakers; ask those questions

2:00 p.m. to 2:30 p.m. Jenny Stadler, Ph.D. – Resources for Gluten Free Products

2:30 p.m. to 3:00 p.m. Ann Whelan – New food labeling laws

3:00 p.m. to 3:30 p.m. Raffle drawing, Break with the Vendors

3:30 p.m. to 4:30 p.m. Danna Korn - Live -and LOVE -- the gluten-free lifestyle

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.