Fatigued and sleeping

[Lotttieelis]

 

Hi I have been diagnosed with celiac for around 3 years now. I've been dieting well and been gluten free. I was taking vitamins and the beginning and stopped about 2 years ago. Around a month now I've been feeling really fatigued, no energy, sleep most of the time. I seem to be ok at work when I get home and the weekends I feel so drained and also been having the odd stomach cramp. I've been eating out healthily and in gluten free restaurants. I have booked to have a b12 jab and a blood test. Could anyone help or  had similar symptoms. 
 

Thanks 

[trents]

Welcome to the forum, Lottieelis!

These "glute free" restaurants you reference. Are they dedicated gluten free restaurants or those that just list gluten free menu items?

What made you decide to quit taking vitamins two years ago?

What kind of blood test will you be getting? Do you mean a general blood workup like CBC/CMP or one specifically for celiac antibodies? A B12 jab? Do you mean an injection of B12?

[Lotttieelis]

2 hours ago, trents said:

Welcome to the forum, Lottieelis!

These "glute free" restaurants you reference. Are they dedicated gluten free restaurants or those that just list gluten free menu items?

What made you decide to quit taking vitamins two years ago?

What kind of blood test will you be getting? Do you mean a general blood workup like CBC/CMP or one specifically for celiac antibodies? A B12 jab? Do you mean an injection of B12?

Hi thanks for the reply... the restaurants just list gluten free and for the vitamins I thought I would of been ok to stop taking them once my gut started to repair and start absorbing properly again. My dietician didn't tell me to much to be honest and only just stumbled across this website which everyone seems educated and friendly. 
I'm getting a cbc done and yes the b12 injections.

 

thank you 

[trents]

The problem with restaurants that are not dedicated, that is to say they also offer gluten containing food, is the great potential for cross contamination. The food you order may indeed by naturally gluten free but if it's cooked on the same grill, in the same pots and pans, stirred, turned and sliced with the same equipment as the gluten things, you are still getting some gluten.

Studies have shown that most people who claim to be eating gluten free are actually eating low gluten and the #1 sabotaging agent is eating out.

Have you had a follow-up biopsy to check for healing of the gut villi?

Also, are you still consuming oats (even gluten-free oats) and dairy products?

Edited July 16, 2022 by trents

[Wheatwacked]

For the most part once you have healed the malabsorption improves. Unfortunately the western diet itself is often nutrient deficient because so many calories are spent on carbs with little nutrional value.

Other tests to ask for:

• vitamin D - high enough levels can moderate the autoimmune response. "The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.   The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
• homocysteine - while homocysteine is usually only looked at as an indicator of vascular disease, if it is above normal and it can be in Celiac Disease (Are Vitamin Supplements Effective In Celiac Disease Patients?), it could be an indication of not enough B1, B6, B12, folate and or choline.

[cristiana]

Hello Lottie

Gluten could well be getting in.  However, other causes of fatigue might be to do with thyroid issues, or even blood sugar issues, but I imagine your doctor will be ordering tests to cover these eventualities.

I do hope you get some answers soon. 

Cristiana

 

 

[Kate333]

An updated TTG/IgA blood test is a good starting point for pinpointing the cause of your recent symptoms.  (And as you move forward, you should be getting that test at least once a year to ensure your continued healing and return to and maintain a "normal" level of gluten antibodies for the rest of your life.)   If you recently had one which showed normal gluten antibodies, then gluten exposure (GE) is unlikely the cause of fatigue/excess sleeping. 

That said, if you are frequently dining out or buying carryout from restaurants, you are probably 99.9% getting GE either directly or by CC.  Trents is absolutely right about the high risk of GE when eating out--even in so-called "gluten-free menu" restaurants.  In reality, VERY FEW restaurants are TRULY gluten-free (either exclusively gluten-free or has dedicated, separate facilities/equipment to prevent cross contamination).  IMO many eateries (like processed food manufacturers) market themselves as such to boost sales, attract younger, more health-conscious customers who consider gluten-free eating the latest dietary trend (not medical necessity). 

In addition to Cristiana's note, I want to add that poor sleep/fatigue/daytime sleepiness are classic symptoms of chronic anxiety/depression and low serotonin (the chemical which regulates/affects so many things in our bodies, including central nervous system, sleep, and mood).  Also interesting is the fact that 95% of that hormone is made in the GUT, not the brain).  If the small intestine is inflamed by Celiac/GE damage, not only would it be unable to absorb vitamins/minerals normally, but it also would be unable to produce adequate levels of serotonin, thus triggering serotonin deficiency and these kinds of symptoms. 

Regardless of your symptom causes, you might benefit from a referral for possible counseling/low-dose antidepressant.  I hope you feel better soon!

[Posterboy]

Lottie,

I have been busy with other things in life.......I thought Knitty kitty might answer this question but I see she hasn't yet so I will en devour too.

Both Magnesium (glycinate or Citrate) and Thiamine as Benfotiamine has been shown to be helpful for Chronic Fatigue Syndrome.......you might have Anemia as well......which can lead to low energy levels as well...

I have been YOU.......taking Magnesium Citrate with meals really helped me and now I know why!

Here is an article about it that might help you.

https://www.hormonesmatter.com/case-classic-beriberi-america-thiamine-deficiency/

Low Magnesium levels have now been shown as a critical regulator of our Circadian rhythms.

This research was discovered 5+ years ago and still people are suffering from a Magnesium deficiency.

See this research entitled "Daily magnesium fluxes regulate cellular timekeeping and energy balance" IE our Circadian rhythms.

https://pubmed.ncbi.nlm.nih.gov/27074515/

I took Magnesium first......then I found out about Thiamine.....but they should be taken together....

They work synergestically in the body for you to make energy!   And you won't be able to make enough energy to keep you from being Chronically fatigued without them...

Taking them with meals are best!

As I am fond of saying “To Educate is to truly free!” Where there is a free exchange of knowledge there

is health and peace for one’s soul and body!

I hope this is helpful but it is not medical advice.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the grace of God,