Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ida From Nova Scotia,Canada

Ida Oldford
 Share

Recommended Posts

Ida Oldford Rookie
Ida Oldford
Posted

I am awaiting for the results from recent bloods tests for diagnosing celiac disease. Wondering if anyone has these symptoms. I have severe pain across my rib cage under my breasts and in my belly button. This appears to be radiating to my back. It starts as soon as I get up in the morning and by supper time I can no longer sit and have to lay down on my side to get any comfort. Standing or walking  by the end of the day is very painful as well.I have had this issue for about 3 months and it is getting worse. I started a gluten free diet a couple of days ago. Wondering if anyone else had this painful issue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted
(edited)

Welcome to the forum, Ida!

The blood tests are normally only the first stage of testing for celiac disease. Your physician may very well wish to order an endsocopy with biopsy to check for the damage to the villi that line the small bowel. This damage is the hallmark of celiac disease. So, I would caution you against beginning the gluten free diet until you know whether or not the physician will want to order this second stage of testing for confirmation. If celiac disease is your problem, then starting a gluten free diet ahead of the completion of further testing will invalidate the testing since it would allow for healing of the villi to begin. Go back on regular amounts of gluten until you can discuss this with your physician. If your serum antibody test scores are high enough, the physician may wave the endoscopy with biopsy. In any event, an endoscopy is probably in order to check for upper GI problems related to the pain you describe which is atypical for celiac disease. Do you have other symptoms that prompted the blood antibody tests to check for celiac disease?

Edited by trents
Wheatwacked Veteran
Wheatwacked
Posted
(edited)
4 hours ago, Ida Oldford said:

I have severe pain across my rib cage under my breasts and in my belly button.

Other possibilities are endometriosis or ovarian cancer.  Is the gluten free diet helping? It is a shame on our medical systems that doctors don't consider quality of life while they try to prove you are not sick from gluten.  Even if not Celiac, it could be Non Celiac Gluten Sensitivity but that diagnosis requires ruling out Celiac first then seeing if the gluten free diet improves symptoms. If you do continue to eat gluten free you will need to do a Gluten Challange for 2 weeks if your doctor wants a biopsy.

"On the other hand, recent studies have demonstrated that the risk of colon cancer, ovarian and breast cancer is low in patients with celiac disease. It has also been demonstrated that a strict GFD exerts a positive effect in reducing the cancer risk." https://www.spandidos-publications.com/10.3892/ijfn.2022.25/download#:~:text=Women with celiac disease have a,developing female hormone‑related cancer.

“Wheat, rye, and barley can be harmful to women with endometriosis,” Hartung said. “Going gluten-free is often recommended for women with endometriosis. Gluten can cause hormone imbalances and inflame organs.” Here are ten foods Hartung recommends endo women should stay away from:

Edited by Wheatwacked
Ida Oldford Rookie
Ida Oldford
Posted
  • Author
3 hours ago, trents said:

Welcome to the forum, Ida!

The blood tests are normally only the first stage of testing for celiac disease. Your physician may very well wish to order an endsocopy with biopsy to check for the damage to the villi that line the small bowel. This damage is the hallmark of celiac disease. So, I would caution you against beginning the gluten free diet until you know whether or not the physician will want to order this second stage of testing for confirmation. If celiac disease is your problem, then starting a gluten free diet ahead of the completion of further testing will invalidate the testing since it would allow for healing of the villi to begin. Go back on regular amounts of gluten until you can discuss this with your physician. If your serum antibody test scores are high enough, the physician may wave the endoscopy with biopsy. In any event, an endoscopy is probably in order to check for upper GI problems related to the pain you describe which is atypical for celiac disease. Do you have other symptoms that prompted the blood antibody tests to check for celiac disease?

Weight loss, no appetite,constipation.fatigue and the back pain and rib pain.One dr told me the rib pain could be Coscochondritis . I went for a pancreatic CT scan but nothing showed.

knitty kitty Grand Master
knitty kitty
Posted

@Ida Oldford,

Costochondritis can be caused by a deficiency in Thiamine Vitamin B 1.

Weight loss, no appetite (anorexia), constipation, fatigue and pain are all classic symptoms of Thiamine deficiency.  These are all symptoms I had when I was Thiamine deficient prior to my Celiac diagnosis.

Since Thiamine deficiency is usually seen in alcoholics, doctors don't realize nor recognize that Thiamine deficiency can occur in Celiac Disease. Because Celiac Disease damages the small intestine where vitamins are usually absorbed, patients should be checked for vitamin and mineral deficiencies.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

I corrected my Thiamine deficiency with over the counter Thiamine supplementation.  Thiamine Hydrochloride, Benfotiamine, Allithiamine and Thiamax (TTFD).

Hope this helps!

Wheatwacked Veteran
Wheatwacked
Posted
20 hours ago, Ida Oldford said:

One dr told me the rib pain could be Coscochondritis

 Coscochondritis: inflammation of the cartilage that joins your ribs to your breastbone 

Thats just giving a name to a specific spot of inflammation, a subset of all your other inflammations.  I don't believe each of your complaints is triggered by separate causes. The GFD and thiamine may resolve most of them without other interventions, other than malabsorbtion deficiencies.  Lots of thiamine and vitamin D, to modulate the autoimmune response and improve your outlook on life, is a good place to start.

 Vitamin B1 and Auto-Immune Conditions "“Thiamin or Vitamin B1 may be the missing link to treating autoimmune disease and autonomic dysfunction... Debilitating fatigue is one of the most common complaints" 

Keep the Faith. Have a good New Year.

 

 

Ida Oldford Rookie
Ida Oldford
Posted
  • Author
12 hours ago, knitty kitty said:

@Ida Oldford,

Costochondritis can be caused by a deficiency in Thiamine Vitamin B 1.

Weight loss, no appetite (anorexia), constipation, fatigue and pain are all classic symptoms of Thiamine deficiency.  These are all symptoms I had when I was Thiamine deficient prior to my Celiac diagnosis.

Since Thiamine deficiency is usually seen in alcoholics, doctors don't realize nor recognize that Thiamine deficiency can occur in Celiac Disease. Because Celiac Disease damages the small intestine where vitamins are usually absorbed, patients should be checked for vitamin and mineral deficiencies.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

I corrected my Thiamine deficiency with over the counter Thiamine supplementation.  Thiamine Hydrochloride, Benfotiamine, Allithiamine and Thiamax (TTFD).

Hope this helps!

 

Tks for the information 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Ida, several of your symptoms point to some kind of systemic inflammatory process going on. Has your doctor run tests for such, like CRP and ESR?

Ida Oldford Rookie
Ida Oldford
Posted
  • Author
12 hours ago, Wheatwacked said:

 Coscochondritis: inflammation of the cartilage that joins your ribs to your breastbone 

Thats just giving a name to a specific spot of inflammation, a subset of all your other inflammations.  I don't believe each of your complaints is triggered by separate causes. The GFD and thiamine may resolve most of them without other interventions, other than malabsorbtion deficiencies.  Lots of thiamine and vitamin D, to modulate the autoimmune response and improve your outlook on life, is a good place to start.

 Vitamin B1 and Auto-Immune Conditions "“Thiamin or Vitamin B1 may be the missing link to treating autoimmune disease and autonomic dysfunction... Debilitating fatigue is one of the most common complaints" 

Keep the Faith. Have a good New Year.

 

 

Tks so much for sharing this helpful information. 

Wheatwacked Veteran
Wheatwacked
Posted

I just remembered watching a podcast by Dr Mark Hyman in which he in passing mentioned successfully using activated charcoal on a patient to absorb toxins and sweep them out. Found this link for you, there are many more. In the ER they use it instead of vomiting for caustic poisoning.

Natural Peptic Ulcer Relief

Ida Oldford Rookie
Ida Oldford
Posted
  • Author
21 hours ago, trents said:

Ida, several of your symptoms point to some kind of systemic inflammatory process going on. Has your doctor run tests for such, like CRP and ESR?

I am not sure but I am hoping as I told him about my Coscochondritis.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,798
    • Most Online (within 30 mins)
      7,748
    maylynn
    Newest Member
    maylynn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bronwyn W
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Bronwyn W · Posted

      Thank you so much, Scott. I find it incredibly daunting navigating this celiac space and I find comfort in your wealth of knowledge. Thank you 🙏🏻
    • Scott Adams
      Make up. Is Mary Kay gluten-free?

      By Scott Adams · Posted

      I am not sure about that brand specifically, but this article may be helpful:  
    • Scott Adams
      New onset constant gas

      By Scott Adams · Posted

      First, I’m so sorry you’re dealing with this—constant bloating and gas can be incredibly frustrating, especially when you’ve been so diligent with your gluten-free diet. Since nothing obvious has changed in your routine, a few possibilities come to mind: 1) Cross-contamination or hidden gluten (have you introduced new brands, eaten out more, or tried processed GF foods with questionable ingredients?), 2) New food intolerances (dairy, FODMAPs, or even GF grains like corn/rice can sometimes cause issues over time), 3) Gut dysbiosis (an imbalance in gut bacteria, possibly triggered by stress, antibiotics, or diet shifts), or 4) Non-celiac triggers (like SIBO or fructose malabsorption). You may also want to take choline supplements, as this helps some people. It might help to keep a detailed food/symptom log and try an elimination diet (e.g., cutting dairy or high-FODMAP foods temporarily). Probiotics or digestive enzymes could also offer relief while you investigate.
    • Scott Adams
      Gluten free and oat free bars not sugary?

      By Scott Adams · Posted

      Finding gluten-free and oat-free bars that aren’t overly sugary can be tricky, but there are some great options out there! For your little adventurers, consider GoMacro Kids bars (many are GF/oat-free and lower in sugar), 88 Acres Seed Bars (sweetened lightly with fruit), or The Good Crisp Company’s protein bars (grain-free and not too sweet). For homemade ideas, try simple nut/seed bars with dates, almond butter, and chia—no baking needed! Packaged snacks like Chomps meat sticks, Simple Mills almond flour crackers, or seaweed snacks also work well for hikes. If they like savory, roasted chickpeas or lupini beans are protein-packed and easy to carry. Hope this helps—happy trails!
    • Scott Adams
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Scott Adams · Posted

      Using anti-inflammatories for symptom management after inadvertent gluten exposure can be a helpful short-term strategy, particularly for reducing discomfort like inflammation, pain, or swelling. However, it shouldn’t replace strict adherence to a gluten-free diet as the primary treatment for conditions like celiac disease or gluten sensitivity. While NSAIDs (e.g., ibuprofen) or natural anti-inflammatories (e.g., turmeric) may provide relief, they don’t address the underlying immune response or intestinal damage caused by gluten. Additionally, long-term or frequent use of NSAIDs carries risks, such as gastrointestinal irritation. It’s best to consult a healthcare provider to tailor an individualized plan, which may include digestive enzymes, hydration, rest, and probiotics alongside anti-inflammatories when needed. This article, and the comments below it, may be helpful:    
×
×
  • Create New...