question? are my symptoms alike ?

[Rebeccaj]

I have been diagnosed from celiac disease 4 years ago . when around flour cooking its hard to breathe also having to overdose on fexofenadine and inhaler and coffee also body goes into shock with allergies to foreign bodies. my symptoms are swollen tongue , swollen oesophagus , difficulty breathing, and chest pain along with bloating , and shock, rumination ,anxiety and obsessive compulsive disorder along with panic and then gluten ataxia ,vertigo, dizzy ,pins and needles and loss of speech, unable hear completely deaf, and almost suffocation unless fexofenadine and inhaler , haven't been diagnosed with epi pen as I would of been on ground from when had flour so fexofenadine has saved me once again and orange juice and water and rest .

[knitty kitty]

Welcome to the forum,

Sounds like you may be having an allergic reaction to wheat.  Some people can have a wheat allergy as well as Celiac Disease, producing swollen tongue and esophagus, and difficulty breathing.  

After gluten exposure, I got gluten ataxia, panic disorder, vertigo, pins and needles (parathesia), loss of speech and hearing.  I found taking B Complex vitamins helped tremendously.

Before diagnosis, malabsorption due to intestinal damage and inflammation from celiac disease can cause deficiencies in the eight essential B vitamins, Vitamin D, and important minerals like magnesium and zinc.  Changing to a gluten free diet can also result in vitamin and mineral deficiencies because the gluten free diet can be low in vitamins and minerals, in addition to the ongoing malabsorption.  

I took vitamin and mineral supplements to boost my absorption of these essential nutrients.  

Vitamin D helped my vertigo, but extra Thiamine Vitamin B 1 really improved my vertigo, panic attacks, and corrected my hearing loss and speech.  Thiamine also improves asthma.  Other B vitamins, Cobalamine B12, Pyridoxine B 6, Folate B 9, helped with the pins and needles.  

The brain uses lots of Thiamine.  Hearing loss, vertigo, and speech problems are symptoms of a Thiamine deficiency disorder.  I took 500 - 1500 mg of Thiamine in the forms called Allithiamine (TTFD) and Benfotiamine.  These are safe, nontoxic forms of Thiamine that increase brain function (goodbye ataxia) and promote healing. 

Supplementing with vitamins and minerals is beneficial since nutritional deficiencies go hand in hand with celiac disease.  Discuss supplementation with your doctor and nutritionist.  

Hope this helps!

[plumbago]

Check with your doctor - sounds like your allergies are life-threatening and you should be prescribed an epi pen. (I didn't understand the sentence you wrote with "epi" in it, fyi.)

[Rebeccaj]

  On 1/31/2024 at 11:06 AM, plumbago said:

Check with your doctor - sounds like your allergies are life-threatening and you should be prescribed an epi pen. (I didn't understand the sentence you wrote with "epi" in it, fyi.)

Expand Quote  

Thank you I have had allergies test on skin and come back fine that was the skin not Airbourne or actually near flour . But like epi pen isn't prescribed because it's a disease not allergy but wheat and flour and gluten is derived from one and Airbourne is a reaction so Airbourne avoid all together for 12 hours . Are you a celiac ?

[Rebeccaj]

  On 1/31/2024 at 10:14 AM, knitty kitty said:

Welcome to the forum,

Sounds like you may be having an allergic reaction to wheat.  Some people can have a wheat allergy as well as Celiac Disease, producing swollen tongue and esophagus, and difficulty breathing.  

After gluten exposure, I got gluten ataxia, panic disorder, vertigo, pins and needles (parathesia), loss of speech and hearing.  I found taking B Complex vitamins helped tremendously.

Before diagnosis, malabsorption due to intestinal damage and inflammation from celiac disease can cause deficiencies in the eight essential B vitamins, Vitamin D, and important minerals like magnesium and zinc.  Changing to a gluten free diet can also result in vitamin and mineral deficiencies because the gluten free diet can be low in vitamins and minerals, in addition to the ongoing malabsorption.  

I took vitamin and mineral supplements to boost my absorption of these essential nutrients.  

Vitamin D helped my vertigo, but extra Thiamine Vitamin B 1 really improved my vertigo, panic attacks, and corrected my hearing loss and speech.  Thiamine also improves asthma.  Other B vitamins, Cobalamine B12, Pyridoxine B 6, Folate B 9, helped with the pins and needles.  

The brain uses lots of Thiamine.  Hearing loss, vertigo, and speech problems are symptoms of a Thiamine deficiency disorder.  I took 500 - 1500 mg of Thiamine in the forms called Allithiamine (TTFD) and Benfotiamine.  These are safe, nontoxic forms of Thiamine that increase brain function (goodbye ataxia) and promote healing. 

Supplementing with vitamins and minerals is beneficial since nutritional deficiencies go hand in hand with celiac disease.  Discuss supplementation with your doctor and nutritionist.  

Hope this helps!

Expand Quote  

Have you ever stopped breathing like what's the worst your attack has been also are you in environment with flour as we are to avoid all together.

[plumbago]

  On 1/31/2024 at 11:24 AM, Rebeccaj said:

Are you a celiac ?

Expand Quote  

Yes.

[knitty kitty]

  On 1/31/2024 at 11:26 AM, Rebeccaj said:

Have you ever stopped breathing like what's the worst your attack has been also are you in environment with flour as we are to avoid all together.

Expand Quote  

No, I've never stopped breathing.  I don't have asthma.  I'm a lifelong Celiac.  My symptoms when exposed are throat tightening, difficulty breathing, feeling faint.  Feels like I'm drowning, can't get enough air even if forcefully inhaling.  It's scary, I agree.  

I can react to airborne gluten while walking past the bakery aisle at the grocery store or near restaurants. 

I also react to highly scented things like air freshener, scented candles, even someone wearing clothes with scented fabric softeners and perfumes.  These may not have gluten in them, but they do contain Sulfites, and I have Hypersensitivity Type Four to Sulfites.  So I also avoid the laundry detergent/cleaning products aisles.

Part of the immune response to allergens and gluten is the release of histamine.  In the lungs, histamine release contributes to asthma and accumulation of fluid in the lungs.  

Our body can make histamine (it's an important neurotransmitter that causes alertness).  We also ingest histamine in our food.  Some foods contain higher histamine levels (fermented, aged, and processed foods and alcohol). 

Following a low histamine diet for several weeks allowed my body time to clear excess histamine.  Vitamins like Cobalamine B12, Pyridoxine B 6, Folate B 9, Riboflavin B 2, and Thiamine B 1 are needed to get rid of histamine.  Supplementing with all eight essential B vitamins (in a B Complex plus extra Thiamine in the form Benfotiamine) is beneficial in healing the intestines and lowering histamine levels.

Thiamine is important in oxygenation of the blood.  Thiamine is needed for red blood cells to carry oxygen around the body.  When I was low in vitamins, I had more severe scary reactions where I couldn't breathe well.  My body's thiamine demands increased when I was exposed to airborne gluten and Sulfites.  Since increasing my intake of Thiamine as Benfotiamine and the B Complex vitamins, I don't react as severely, although I still avoid the bakery and cleaning products aisles. 

Thiamine is important to brain function.  Our brains can use as much Thiamine just thinking as our muscles use running a marathon.  Thiamine insufficiency can result in ataxia, anxiety and panic disorders.  Obsessive-compulsive disorder happens in Thiamine and Pyridoxine B 6 insufficiencies.  Dysphagia (difficulty swallowing) and voice problems (hoarseness and mutism), hearing problems and deafness can also occur in Thiamine insufficiency.  

@Beverage has asthma.  Perhaps she will join us.  Thiamine has helped her asthma.  

 

[Scott Adams]

  On 1/31/2024 at 11:24 AM, Rebeccaj said:

Thank you I have had allergies test on skin and come back fine that was the skin not Airbourne or actually near flour . But like epi pen isn't prescribed because it's a disease not allergy but wheat and flour and gluten is derived from one and Airbourne is a reaction so Airbourne avoid all together for 12 hours . Are you a celiac ?

Expand Quote  

You can have both celiac disease (autoimmune disease) and a severe wheat allergy at the same time, which might fit your description. I recommend that your doctor run some allergy tests on you so that you can get the allergies diagnosed, along with getting an epi pen prescription.

 

[Rebeccaj]

Yes.