Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Help! How Do You Convince Someone?


Mango04

Recommended Posts

Mango04 Enthusiast

I know a woman with Celiac disease (actually she's a friend of a friend of my mom's and I've never met her). Anyway, I'm a bit worried about her. She has *never* been on a gluten-free diet and *is* symptomatic. She also has a young daughter who supposedly suffers from stomach aches all the time. They both eat tons and tons of gluten.

She emailed requesting advice, so I'm going to send her all sorts of information. What would you say to someone in this situation to try and convince them they need to stop eating gluten? I know the question is kinda dumb but I want my email to her to be as helpful, informative and persuasive as possible (and of course I'm going to send her to this board). I get the sense that she knows very little about Celiac and has absolutely no idea how to eliminate gluten from her diet.

Any advice would be appreciated! Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I would basically tell her to go to her doctor. Most people would think that it is a real way to get a diagnosis, which would make her more convinced to take it seriously. JUst tell her the name of a doctor that you either went to who is knowledegable about celiac, Then if she can get a firm diagnosis, you can talk to her about the diet and the way to help it. That is probably the best way to help her, once she gets a firm diagnosis, then you will be the person that she will turn to once she is diagnosed.

Mango04 Enthusiast

Well I believe she already has a firm diagnosis, that's the thing. She just doesn't know how important it is to be on a gluten-free diet. I just want to help her out without scaring her or sounding too harsh or overly bombarding her with information (which I could easily do :))

Pegster Apprentice

It's pretty hard to convince someone to change their diet even if it's necessary! I have a relative (by marriage) who is VERY ill with Celiac and absolutely won't hear of changing his diet. I just about passed out when he said, "Yeah, I've got that wheat thing, too" as he was chugging a beer and wolfing down a sandwich. I talked to him and to his wife for hours about how they can stick to the diet. They just shrugged and mumbled that it sounded too hard. It's hard for me to tune them out when they whine about his health, but it's really in their hands. They say that the doctors can't cure him and are absolutely disinterested in following the diet. Unless someone chooses to follow the diet willingly, they're destined to cheat. I agree that you should link them to this web site right away. I learned more on this site than from any doctor or dietician. If they are intelligent people, a few posts into this site should convince them to go gluten-free for life.

Carriefaith Enthusiast

I think that you should give her the link to this message board. Also, maybe provide her with gluten free product lists, recipes, and meal ideas. You can send her some of my recipes as well: Open Original Shared Link

You could also send her a list of the complications of celiac disease: Open Original Shared Link

Many people feel overwhelmed by the gluten-free diet, she just may need some encouragement and support and like you said, she may not know how to get rid of all the gluten.

tarnalberry Community Regular
I know a woman with Celiac disease (actually she's a friend of a friend of my mom's and I've never met her). Edit: she has firmly diagnosed Celiac disease. Anyway, I'm very worried about her. She has *never* been on a gluten-free diet and *is* symptomatic. She also has a young daughter who supposedly suffers from stomach aches all the time. They both eat tons and tons of gluten.

She emailed requesting advice, so I'm going to send her all sorts of information. What would you say to someone in this situation to try and convince them they need to stop eating gluten? I know the question is kinda dumb but I want my email to her to be as helpful, informative and persuasive as possible (and of course I'm going to send her to this board). I get the sense that she knows very little about Celiac and has absolutely no idea how to eliminate gluten from her diet.

Any advice would be appreciated! Thanks!

She already knows that she has celiac disease, so I think the key is to let her know, in a very upbeat and positive way, that the diet is really definitely doable and not all tha bad. Give her all the information on how to succeed on the diet, and then all the reasons to do so - all the good things that have improved since going on the diet.

Rusla Enthusiast

My sister scared the pants off of me. She told me about one of her Celiac friends who had colon cancer because of the disease and now has to walk around with his waste in a bag. She also told me about another friend who ended up having stomach cancer from it and he died. That is what prompted me to do something about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

Thanks for the suggestions. I just hate to think about this woman who suffers so much because she's afraid to change her diet. Hopefully she'll come here and we can all help her out.

Nantzie Collaborator

I agree that it's the idea of it that is worse than the actual living with it. Other than hidden gluten and cross contamination it's WAY less restrictive than even the Atkins diet. My husband is on Atkins, and I have to go without rice, potatoes, sugar and even some veggies for dinner. I just think that the gluten-free diet sounds harder and more overwhelming than it actually is, as far as when you're preparing your own food.

I think your friend would feel so much better coming here and talking to other people who get it. With some of the stories about doctors, etc., I'm guessing there are a lot of diagnosed celiacs who are still suffering because the doctor didn't really push it or the nutritionist gave bad info, or the information given was out of date or incomplete.

I hope she joins us, even just to lurk and read the archives. Theres so much information here, and EVERY question has been asked at least once.

Nancy

gfp Enthusiast
It's hard for me to tune them out when they whine about his health, but it's really in their hands.

Don't bother tuning them out tell them they are getting what they deserve and you don't want to hear about their whining, they really have no right to whine about being ill if they don't even want to change.

Unless someone chooses to follow the diet willingly, they're destined to cheat. I agree that you should link them to this web site right away. I learned more on this site than from any doctor or dietician. If they are intelligent people, a few posts into this site should convince them to go gluten-free for life.

Agree strongly on #1

But on the rest I know lots of MD's who smoke, people who trust polititians and even some people that enjoy McDonalds and I really can't see how an intellegent person could do any of these yet ... millions do!

In this case she is asking for advice so that's a good start....but I have learned that worrying too much about others killing themselves is bad for your own health. You end up worrying for them, these people are what I call emotional leaches.

They want to take the beer and pizza and let you do the worrying.

StrongerToday Enthusiast

If she lives in your area, I'd suggest offer to take her shopping too. If you attend a local meeting group then invite her along. Invite her over for a tasty meal so she see we're not just eating twigs and berries. I think the hardest part of starting a gluten-free diet is knowing what you can and can not have - having a mentor would be so helpful.

gfp Enthusiast
If she lives in your area, I'd suggest offer to take her shopping too. If you attend a local meeting group then invite her along. Invite her over for a tasty meal so she see we're not just eating twigs and berries. I think the hardest part of starting a gluten-free diet is knowing what you can and can not have - having a mentor would be so helpful.

What, noone told me.... (actually very good point, I know quite a few peope who have seen a nutritionist who come away scared to eat fresh fuit and vegetables because they are not labelled gluten-free)

Guhlia Rising Star

Maybe buy her a gluten free recipe book as an "I care" gift. Surprise her with it on a fun outing that includes a spectacular gluten free meal. Gluten free can be completely tasty and I think that's probably what she needs to see in order to help her make the decision to stick to the diet. I know, for me personally, the dietary changes were very hard at first. I was a pizza/pasta addict.

You may also want to supply her with the names of a few local shops that carry some gluten free specialty foods as well as a list of mainstream manufacturers that will clearly list gluten (ie: Kraft, General Mills...) I know when I first started the diet I couldn't find ANYTHING that I thought was safe and I got glutened all the time. I wish I would've found this website much sooner and had the support and knowledge of all these wonderful people here.

You're a great friend for being so concerned about her. I really hope that she opens her eyes and makes an effort to get better. Good luck!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

    4. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    5. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Her results only showed greater then 100 which over 10 is considered positive.  But American standards still recommend the endoscopy to confirm.  And the Dr explained to us both the European and American standards and asked us what we wanted to do.  We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it
    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.