Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ongoing fatigue and stomach pain


Catherine pearl

Recommended Posts

Catherine pearl Rookie

Hi everyone ,not really sure these days how I feel ,diagnosed coeliac 4 years ago and follow gluten .free diet  however over last few months symptoms are much worse ,brain fog ,fatigue ,stomach pain, nausea and wondered if anyone else experienced anything like this, scheduled for a sigmoidoscopy soon as doctor baffled as to what's going on ,also been diagnosed subclinical thyroidism recently feel at my wits end with all this its so depressing and debilitating any ideas or thoughts appreciated 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

I'm really sorry to hear that you're feeling this way. It sounds incredibly frustrating and overwhelming to deal with worsening symptoms despite following a gluten-free diet. Here are a few thoughts and suggestions that might help:

Cross-Contamination: Double-check your diet and kitchen practices to ensure there's no accidental gluten exposure. Even small amounts can cause significant symptoms for some people.

Other Food Intolerances: Sometimes, people with celiac disease can develop additional sensitivities or intolerances, such as lactose or FODMAPs. It might be worth exploring this with your doctor or a dietitian.

Check Nutrient Levels: Celiac disease can lead to deficiencies in vitamins and minerals like iron, B12, and vitamin D. Your doctor can check for these and recommend supplements if needed.

Subclinical Thyroidism: Your recent diagnosis of subclinical thyroidism could also be contributing to symptoms like fatigue and brain fog. Make sure your thyroid levels are being monitored and managed properly.

Gut Health: Other gastrointestinal issues, such as SIBO (Small Intestinal Bacterial Overgrowth) or IBS, can mimic or exacerbate celiac symptoms. Discuss these possibilities with your gastroenterologist.

Support and Mental Health: Dealing with chronic illness can take a toll on mental health. Don't hesitate to seek support from a counselor or support group. Sometimes, just talking about it can make a big difference.

I'm glad you're scheduled for a sigmoidoscopy, as it's a good step towards finding out what's going on. Hang in there and keep advocating for your health. You're not alone in this, and I hope you find some relief soon. Take care!

Catherine pearl Rookie

Hi Scott, thank you for your reply ,as its provided some more information for me ,I'm making another appointment with my doctor to discuss if maybe I have nutrients deficiencies and as its over a year since I've saw a gastro doctor this is well overdue too ,really hoping that my sigmoidoscopy shows what's wrong as still have pain fatigue etc every day though at same time kind of dreading it too in case it's something more serious though a recent scan showed nothing malignant except an uncomplicated colon change however as I'm not sure what that means I will ask at my scope also got a letter from doctor saying that I have very high thyroid antibodies however as my hormone levels are still within normal limits there's no treatment ,this is frustrating as I'm desperately looking for answers ,thank you for this forum and for your support you take care too 

Scott Adams Grand Master

Please let us know what you find out.

Catherine pearl Rookie

Hi everyone  ,I posted a few days ago about going for a flexi sigmoidoscopy and I've now had my results so thought I would all let you know  I've been diagnosed with diverticular disease ,only advice was to follow a high fibre diet to try to control symptoms ,think this might be hard to do along with having coeliac as any fibre I've eaten in past causing stomach upset ,seeing my own Dr tomorrow to ask if they have any advice as to management, anyone else have this horrible condition and any tips on fibre intake etc ,is welcome ,take care everyone 

Scott Adams Grand Master

The articles below offer info on how to get more fiber into your gluten-free diet:

 

 

 

  • 2 weeks later...
Catherine pearl Rookie

Hi Scott thanks for your reply and thanks for all the information


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Insomnia help

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      My journey is it gluten or fiber?

    3. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,362
    • Most Online (within 30 mins)
      7,748

    Jac3
    Newest Member
    Jac3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I do believe that people are under so much pressure up have a sleeping  pattern ,  with working and how households work these days , but in reality there is no wrong or right at to sleep , I believe your neighbour showed this with such a long life , I do exactly the same  at night many times so I hope I live into my nineties also , I have found one thing in life your body knows what's best so good to listen to wat it needs however unconventional that maybe 🤗
    • knitty kitty
      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference.  Thiamine HCl uses special thiamine transporters to get inside cells.  I take it myself.   Tryptophan will help heal the intestines.  Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner.  I take mine with magnesium before bedtime.
    • Known1
      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.