Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Momma married a bread baker


Jane878
Go to solution Solved by trents,

Recommended Posts

Jane878 Newbie

 

My mother married a bread maker when I was 4 years old. Within a year, I started experiencing full-blown migraine headaches. I would lose my eyesight, vomit, and be nauseous for days, needing to be shut in my room in complete darkness. I was so sick. At 17, during my first year in college on a swimming scholarship, I developed Meniere's disease. Despite the challenges, including swimming on Valium, I became an All-American in swimming, even as I suffered hearing loss and dizzy spells throughout my college years. Diagnosing my condition was a struggle; I was allergic to everything—soy, yeast, wheat, and dairy.

My life became a mess, with multiple surgeries on my ears, knees (from soccer), and nose due to Celiac disease. I eventually became allergic to NSAIDs and Aspirin, suspecting that my body was overreacting to other allergens because I didn't know I had Celiac. My mother rarely took me to the doctor, preferring to save money for her "family cabin." During all this time, I was being sexually abused by a family friend while my mother pursued her master's in social work.

When we discovered I had Celiac, my mother and stepfather were inconvenienced by my need for a special diet, particularly on Thanksgiving. My mother openly complained, asking if I was going to ruin Thanksgiving Dinner. They didn't change anything for me until my little cousin was diagnosed with Celiac and they finally bought gluten-free flour.

Now, with both my biological parents deceased, my brother inherited the family house instead of us sharing it, as my mother had promised. I loved that house and had helped build the heirloom garden, which my brother has since destroyed. He threw away our mother's and grandmother's heirloom jewelry, not knowing where they were hidden. I was devastated when my house burned down. My brother acts like everything is his and even changed the locks, barring me access to things he doesn't care about, like all the books.

My stepfather ignored my health issues, and my mother prioritized saving money for her "family cabin." With her Alzheimer's diagnosis, my stepfather anticipated I'd also develop the disease and dismissed my health concerns. After my mother's death, all the money went to the upkeep of her dream cabin, leaving me without support. Despite my contributions and sacrifices, I received nothing while my brother inherited a $1.7 million home.

I'm now living with my ex-husband because my stepfather changed the will. I need legal advice but have no money or support. I hope someone reading this can help. I've lost hearing in my right ear and suffer from multiple health issues, all stemming from my undiagnosed Celiac disease and the neglect I faced. I just want what is fair.

Thank you, Jane Donnelly 

PS I apologize for the rough draft


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Solution
trents Grand Master

Welcome to the forum, Jane!

A very sad story! Thanks for sharing.

Is there something we can help you with or did you just feel a need to unburden? Unburdening, by the way, is certainly okay and we all need to find safe places to do it once in a while.

Scott Adams Grand Master

I'm sorry about your financial issues, and unfortunately we can't offer any legal advice here, but at least you've figured out that you have celiac disease, and have hopefully lead a more healthy life as the result. 

Jane878 Newbie
On 12/10/2024 at 11:48 AM, trents said:

Welcome to the forum, Jane!

A very sad story! Thanks for sharing.

Is there something we can help you with or did you just feel a need to unburden? Unburdening, by the way, is certainly okay and we all need to find safe places to do it once in a while.

Thank you for your kindness. I have just begun CPTSD treatment & it's so hard to go through all this history realizing I could have had a healthier life had my mother had my best interest as she did her own needs and desires. I often thought she had kids to work for her. She did the bills and the laundry. She wore the pants in the family, I knew that & I know my stepfather was elated to tell me no. He had no interest in taking care of me ever. And he doesn't even understand that he caused these horrible health issues of my mothers and myself. His ignorance is bliss. He said he didn't want to hear about my health issues. Thanks again for being here and responding. It gives me a place of safety and understanding I haven't had for years. thanks, Jane

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,363
    • Most Online (within 30 mins)
      7,748

    NAC
    Newest Member
    NAC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...