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Vomitting When Glutened?


Megan

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Megan Rookie

anyone vomit when they get glutened??

Doctor said I need to remain glutened...I feel awful and I have a paper due by midnite tonite that took backseat to my final sha-bang case study also due tommorow. I can't think, I can't sit up, my back hurts, my stomach is ready give birth at any time...and now I feel the need to vomit on top of it all...

someone just make me feel better.... :(


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Rusla Enthusiast

Is your doctor bloody daft? Why do you need to remain glutened? No, you need to remain unglutened. I almost vomited the last two times I was glutened, one which was yesterday. Gluten can make your back hurt. I get kidney pain with it along with other things and leper face.

Guest BERNESES

Gluten makes me vomit as well. If you can get your hands on some ginger see if that helps. Are you doing a gluten challenge? Or like Rusla said, is your doctor crazy?

Megan Rookie

well he is a looney but I am on gluten for the testing, although people can't see me for three weeks....

I don't think i can pull this off....

Guest BERNESES

I gave up ten days into a 2 week gluten challenge. Just wasn't worth it.

Ursa Major Collaborator

Megan, if it makes you THAT sick, that should be all the evidence needed! You obviously can't tolerate gluten at all. Do you really need an 'official' diagnosis from a dumb doctor? Is it really worth it?

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    • trents
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      Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my  TTG levels to settle to normal levels in  blood tests.  I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened (or nearly glutened whilst eating out  - like regular bread being served with a gluten-free meal ).  Even eating in chains that Coeliac UK were recommending as safe for coeliacs.  So I gave up eating in restaurants for a while.  My blood tests normalised.  But here's the thing:  the lowest my TTG readings ever got to were 4.5 (10  and under being my local lab's normal levels) and now that I am eating out again more regularly, they've gone up to 10 again.  I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset.  My next coeliac blood review is in September and I mean to give up eating out a few months before to see if that helps my blood results get back on track. It seems to me that there are few restaurants which really 'get it' - and a lot of restaurants that don't 'get it' at all.  I've found one restaurant in Somerset and a hotel in East Sussex where they really know what they are doing.    The restaurant in Somerset hardly uses flour in any of their dishes; the hotel in East Sussex takes in trainees from the local college, so they are teaching best standards.   But it has taken a lot of searching and trial and effort on my part to find these two places.  There are certainly others in the UK, but it seems to me the only real way to find them is trial and error, or perhaps from the personal recommendation of other strict coeliacs (Incidentally, my coeliac hairdresser tells me that if a Michelin star restaurant has to have a separate food preparation so she has never been glutened in one - I can't say I've ever eaten in one!) For the rest, I think we just have to accept that gluten may be in the air in kitchens, if not on the surfaces, and there will always be some level of risk wherever one dines, unless the restaurant cooks exclusively gluten free dishes. Cristiana  
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      Welcome to the the celiac.com community @colinukcoeliac! I am in the USA but I don't think it is any different here in my experience. In some large cities there are dedicated gluten free restaurants where only gluten free ingredients are found. However, there are a growing number of mainstream eatery chains that advertise gluten free menu items but they are likely cooked and prepared along with gluten containing foods. They are just not set up to offer a dedicated gluten free cooking, preparation and handling environment. There simply isn't space for it and it would not be cost effective. And I think you probably realize that restaurants operate on a thin margin of profit. As the food industry has become more aware of celiac disease and the issue of cross contamination I have noticed that some eateries that used to offer "gluten free" menu items not have changed their terminology to "low gluten" to reflect the possibility of cross contamination.  I would have to say that I appreciate the openness and honesty of the response you got from your email inquiry. It also needs to be said that the degree of cross contamination happening in that eatery may still allow the food they advertise as gluten free to meet the regulatory standards of gluten free advertising which, in the USA is not more than 20ppm of gluten. And that is acceptable for most celiacs and those who are gluten sensitive. Perhaps you might suggest to the eatery that they add a disclaimer about cross contamination to the menu itself.
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