Our bodies functions differently

[Bernade]

Dealing with Celiac for 6 months now at first I felt fine and thought it’s a bunch of nonsense it’s not going to make much difference if I have gluten or not I could deal with it how bad could it be??? I try now very very hard to not even smell gluten it is such a very very misunderstood issue.But honestly there are days I feel great then others feeling horrible like body aches headaches and nausea and I just don’t know why I do not eat it I read everything is it airborne can there be other things we just don’t know about yet is there a medication we need to take or should??? Anyone have the same issues???

[trents]

Welcome to the forum, @Bernade!

There are a couple of possibilities here what is causing your up and down experience since being diagnosed with celiac disease and beginning the gluten free journey.

One is that you are not yet consistent in avoiding gluten. It is easy to avoid major sources of gluten such as bread and pasta but to arrive at a completely gluten free state on a consistent basis is much harder and involves a real learning curve. Gluten is found in some many food products that you would never expect to find it in. Just a couple of examples: soy sauce and canned tomato soup (most canned soups, actually). Gluten can be in medications, pills and supplements as a filler. And if you are still eating out at restaurants you are very likely getting "glutened" by cross contamination even when you have ordered foods that are naturally gluten free.

Another is that you have other food intolerances in addition to gluten. This is very common in the celiac community and the most common culprits are dairy, oats, soy, eggs and corn. Some foods have proteins that resemble gluten closely enough so as to cause a celiac reaction for some celiacs.

 

[Bernade]

2 hours ago, Bernade said:

Dealing with Celiac for 6 months now at first I felt fine and thought it’s a bunch of nonsense it’s not going to make much difference if I have gluten or not I could deal with it how bad could it be??? I try now very very hard to not even smell gluten it is such a very very misunderstood issue.But honestly there are days I feel great then others feeling horrible like body aches headaches and nausea and I just don’t know why I do not eat it I read everything is it airborne can there be other things we just don’t know about yet is there a medication we need to take or should??? Anyone have the same issues???

[Bernade]

2 hours ago, Bernade said:

Dealing with Celiac for 6 months now at first I felt fine and thought it’s a bunch of nonsense it’s not going to make much difference if I have gluten or not I could deal with it how bad could it be??? I try now very very hard to not even smell gluten it is such a very very misunderstood issue.But honestly there are days I feel great then others feeling horrible like body aches headaches and nausea and I just don’t know why I do not eat it I read everything is it airborne can there be other things we just don’t know about yet is there a medication we need to take or should??? Anyone have the same issues???

 

[trents]

I see you tried to post a reply twice but both times it just contains the text from your original post and no new information. Are you having trouble with using the forum? If you need help, send me a personal message and I'll try to give you some direction. There is a forum tool for sending personal messages to members. Just click on my user name and you will see the Message button. Click on it. Or, just scroll down the page below this post and your will see "Reply to this topic" and click in the window to add another post with new content.

Edited March 2, 2025 by trents