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High school and starting a 504plan in FLORIDA


Ballerinagirl4

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Ballerinagirl4 Newbie

Hello,,

Our daughter is a new diagnosis and I have requested a 504 plan to help her navigate her condition.  What are some accommodations people have requested and how are your students doing?  For example we have high school professors that do not allow students to use the restroom more than 3 time a semester? What happens if your student has a unsuspected gluten "episode" are they able to leave school to recover with out jumping through hoops like doctors appointments while she recovers AND the absence is excused.

Thanks so much


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Scott Adams Grand Master

Navigating a new diagnosis and setting up a 504 plan in Florida can feel overwhelming, but you’re taking such an important step for your daughter! Common accommodations for students with conditions like celiac or gluten sensitivity include unrestricted bathroom access (with no arbitrary limits), permission to leave class or school abruptly if symptoms flare, excused absences for recovery days without requiring immediate doctor notes, and access to safe snacks or a designated eating area. Some families also request preferential seating near the door for easy exits, extended time on tests if fatigue is an issue, or the ability to keep medication/food in the classroom. As for strict bathroom policies, a 504 plan overrides those rules—your daughter’s medical needs legally take priority. It might help to specify in the plan that she requires ‘as-needed’ bathroom access or the ability to go home without penalty during a reaction. Many students thrive with these supports in place, but clear communication with teachers (and a backup advocate, like a school nurse) is key. Wishing your daughter a smooth transition—you’re already doing great by advocating for her!

Scott Adams Grand Master

This is an older article, but may still be helpful:

 

Ballerinagirl4 Newbie

Thank you!

 

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      Thanks for the reply. 
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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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