results from 13 day gluten challenge - does this mean I can't have celiac?

[catnapt]

20 minutes ago, knitty kitty said:

Yes, that's the same dismissive medical professional attitude I encountered.  

Too bad.  

I'm sorry Knitty kitty but you have to admit having someone who does not have access to your medical history and who is not really paying close attention to what someone is telling them but is intent on tossing out theories, diagnosis , and advice for tests etc etc- you have to expect that no thinking person  is going to blindly accept the word of a random stranger on the internet

Come on be real here! 

you have education in a certain select field but that does not make you a dr. It does make you a valuable resource for looking at other options and possible treatments etc that the mainstream medical system does not endorse or even care about, due to the lack of a profit motive

 

I'm not dismissing YOU or your knowledge, but your application of it to my life and "case" as it were- I find somewhat offensive (YOU decided that YOU have eliminated celiac disease in my case...? seriously??? can you put yourself in my place and imagine how you'd feel if someone on the internet started telling you what THEY think your problem is

as if they are some sort of authority

you are NOT.

 

I'd love to continue chatting with you, you do have some interesting and valid insights but when it comes to ME and MY BODY-

I'll tell you the same thing I tell my drs- they may have the schooling but NO ONE knows my body like I do

discounting or dismissing or even misreading what I am saying about MY BODY is disrespectful and not helpful to a working relationship.

 

My drs records are FULL of mistakes that they refuse to correct!
 

but when I see a new dr whose word to they take? the old drs inaccurate records and not mine

 

we have been in the same places, lets not hurt each other ok?

any more than we have already been hurt

sorry If I came off in a way that was hurtful but - you're not really listening to me, either.

 

[knitty kitty]

39 minutes ago, catnapt said:

you do have some interesting and valid insights

Discuss them with your doctor and dietician.

Edited yesterday at 06:41 PM by knitty kitty
Clarification

[knitty kitty]

@catnapt,

You would do well to get a DNA test done.  You could be seronegative Celiac.  

[trents]

@catnapt, as you already know I believe, a DNA test cannot be used to diagnose celiac disease but it can be used to rule it out. That might be helpful to you in distinguishing between celiac and NCGS. If you don't have the celiac genes, you can put to rest any and all suggestions to undertake a gluten challenge.

[Wheatwacked]

On 2/6/2026 at 12:40 PM, catnapt said:

She also appears to be inexperienced and unsure of herself.

You can help her lead the way.

[Wheatwacked]

Hello @catnapt,

8 hours ago, catnapt said:

NO ONE knows my body like I do

That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.

 

You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.

 

So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare?

There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me.

We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone.

Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue.

Vitamin D, Calcium and Iodine are closely interactive.

It is not uncommon for postmenopausal women to have insufficient intake of Iodine.  

Quote

The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis in areas where iodine deficiency is endemic.   https://pubmed.ncbi.nlm.nih.gov/28953213/

(RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals

You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.

Edited 17 hours ago by Wheatwacked

[Wheatwacked]

Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas.

It is not https so browsers may flag a security warning. There is nothing to send or receive.

http://doodlesnotes.net/index3.html

I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41

to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.