Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

International Walk For Celiac Disease


lisaemu

Recommended Posts

lisaemu Contributor

Not sure which message topic to put this in...but anyone doing the walk for celiac disease? Its may 21st in Michigan, but it seems like theres a few in other places around the country.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IronedOut Apprentice

I'm walking in Baltimore!!

I am way over the top with excitement about this and my family and friends are all tired of hearing about it. I am thrilled to feel well enough to do it. :P

Good luck to you up north. :D

Rusla Enthusiast

It is also in May in Calgary, Alberta.

Guhlia Rising Star

Oh my GOSH!!! When's the one in Baltimore?!?!?! Where in Baltimore?!?!?!? Is there a website?!?!?! Please please please, more info!!!

IronedOut Apprentice

Open Original Shared Link

Edit - Hit the post button way to fast on that one!!

Here is the info on the walk in Baltimore. Hope to see you there.

moonunit Apprentice

It's in San Diego on May 20th. I plan to be there and bring as many friends and family with me as I can get!

Lauren M Explorer
I'm walking in Baltimore!!

I am way over the top with excitement about this and my family and friends are all tired of hearing about it. I am thrilled to feel well enough to do it. :P

Good luck to you up north. :D

I'm doing the one in B-more too! I'm team Celiac4Life (which currently only consists of myself and my Mother haha). I was actually going to post on here to see if anyone would like to (pretty please) sponsor me.

You can sponsor by going to this site:

Open Original Shared Link

And if there are any individuals who would like to join my team, let me know!

- Lauren


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mart Contributor

No walk going on here :( . I think we're the only people with Celiac in Miami!

Rusla Enthusiast

I would like to do the walk here but I am not in my former race walking shape.

flagbabyds Collaborator

i wish i could do the one in san diego, but i have a major all cali soccer tournament that and the next weekend.

Lauren M Explorer

For anyone who wants to walk but can't, remember that you can still donate for the cause ;)

Open Original Shared Link

Sorry to keep pushing it, but I'd appreciate whatever you can give, we're all working together! My goal is $2000 - help me achieve it! :blink::P

- Lauren

Corrine Rookie

Rusla,

When is the one in May? I hope to be visiting Calgary May 12th-16th. And thanks for the info on Moxi's. My daughter was happy to hear that.

Corrine

carriecraig Enthusiast

Anyone walking in the Metro NYC one on June 4th?

Lauren M Explorer
For anyone who wants to walk but can't, remember that you can still donate for the cause ;)

Open Original Shared Link

Sorry to keep pushing it, but I'd appreciate whatever you can give, we're all working together! My goal is $2000 - help me achieve it! :blink::P

- Lauren

THANK YOU to whoever sponsored me! ;):D

- Lauren

plantime Contributor

I have a bone to pick with the quiz on your website, Lauren. One of the questions is true or false: you have to have an intestinal biopsy to confirm diagnosis of celiac disease. The answer is FALSE!! The biopsy is the gold standard, but it is not the only way to diagnose celiac, nor is it required for confirmation.

Rusla Enthusiast
Rusla,

When is the one in May? I hope to be visiting Calgary May 12th-16th. And thanks for the info on Moxi's. My daughter was happy to hear that.

Corrine

Corrine, unfortunately I just saw on the site that it has been postponed until 2007. I guess that gives me time to get in shape for it. I am glad it made your daughter happy. They don't have a big selection but they had somethings and it was good.

Lauren M Explorer
I have a bone to pick with the quiz on your website, Lauren. One of the questions is true or false: you have to have an intestinal biopsy to confirm diagnosis of celiac disease. The answer is FALSE!! The biopsy is the gold standard, but it is not the only way to diagnose celiac, nor is it required for confirmation.

Sorry, but that's not really "my" site - ie I didn't write that. That's the generic webpage for people who are participating in the walk, and I just added my name and a couple personal touches. I couldn't change everything though. Sorry for the confusion.

- Lauren

plantime Contributor

I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

Lauren M Explorer
I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

hehe, yes I know better than to put that answer! I wonder who made the quiz? I actually haven't looked at it, I hope it doesn't have any other inaccuracies!

And thank you!

- Lauren

carriecraig Enthusiast
We didn't know about it.

Where can I get more information about it? We're interested!

Postd by Julia's Husband

Hi Julia's husband,

Here is the link for the NYC walk: Open Original Shared Link

Rusla Enthusiast
I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

Make him walk in it and sponsor him.

  • 4 weeks later...
Becky6 Enthusiast

Belle and I will be walking at the one in MN!

  • 3 years later...
hsm123psu Newbie

I'm doing the one in B-more too! I'm team Celiac4Life (which currently only consists of myself and my Mother haha). I was actually going to post on here to see if anyone would like to (pretty please) sponsor me.

You can sponsor by going to this site:

Open Original Shared Link

And if there are any individuals who would like to join my team, let me know!

- Lauren

is there a link that shows groups/teams for the Baltimore event? Thanks!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,826
    • Most Online (within 30 mins)
      7,748

    Martis
    Newest Member
    Martis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.