Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

International Walk For Celiac Disease

lisaemu

Recommended Posts

lisaemu Contributor
lisaemu
Posted

Not sure which message topic to put this in...but anyone doing the walk for celiac disease? Its may 21st in Michigan, but it seems like theres a few in other places around the country.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IronedOut Apprentice
IronedOut
Posted

I'm walking in Baltimore!!

I am way over the top with excitement about this and my family and friends are all tired of hearing about it. I am thrilled to feel well enough to do it. :P

Good luck to you up north. :D

Rusla Enthusiast
Rusla
Posted

It is also in May in Calgary, Alberta.

Guhlia Rising Star
Guhlia
Posted

Oh my GOSH!!! When's the one in Baltimore?!?!?! Where in Baltimore?!?!?!? Is there a website?!?!?! Please please please, more info!!!

IronedOut Apprentice
IronedOut
Posted

Open Original Shared Link

Edit - Hit the post button way to fast on that one!!

Here is the info on the walk in Baltimore. Hope to see you there.

moonunit Apprentice
moonunit
Posted

It's in San Diego on May 20th. I plan to be there and bring as many friends and family with me as I can get!

Lauren M Explorer
Lauren M
Posted
I'm walking in Baltimore!!

I am way over the top with excitement about this and my family and friends are all tired of hearing about it. I am thrilled to feel well enough to do it. :P

Good luck to you up north. :D

I'm doing the one in B-more too! I'm team Celiac4Life (which currently only consists of myself and my Mother haha). I was actually going to post on here to see if anyone would like to (pretty please) sponsor me.

You can sponsor by going to this site:

Open Original Shared Link

And if there are any individuals who would like to join my team, let me know!

- Lauren

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mart Contributor
mart
Posted

No walk going on here :( . I think we're the only people with Celiac in Miami!

Rusla Enthusiast
Rusla
Posted

I would like to do the walk here but I am not in my former race walking shape.

flagbabyds Collaborator
flagbabyds
Posted

i wish i could do the one in san diego, but i have a major all cali soccer tournament that and the next weekend.

Lauren M Explorer
Lauren M
Posted

For anyone who wants to walk but can't, remember that you can still donate for the cause ;)

Open Original Shared Link

Sorry to keep pushing it, but I'd appreciate whatever you can give, we're all working together! My goal is $2000 - help me achieve it! :blink::P

- Lauren

Corrine Rookie
Corrine
Posted

Rusla,

When is the one in May? I hope to be visiting Calgary May 12th-16th. And thanks for the info on Moxi's. My daughter was happy to hear that.

Corrine

carriecraig Enthusiast
carriecraig
Posted

Anyone walking in the Metro NYC one on June 4th?

Lauren M Explorer
Lauren M
Posted
For anyone who wants to walk but can't, remember that you can still donate for the cause ;)

Open Original Shared Link

Sorry to keep pushing it, but I'd appreciate whatever you can give, we're all working together! My goal is $2000 - help me achieve it! :blink::P

- Lauren

THANK YOU to whoever sponsored me! ;):D

- Lauren

plantime Contributor
plantime
Posted

I have a bone to pick with the quiz on your website, Lauren. One of the questions is true or false: you have to have an intestinal biopsy to confirm diagnosis of celiac disease. The answer is FALSE!! The biopsy is the gold standard, but it is not the only way to diagnose celiac, nor is it required for confirmation.

Rusla Enthusiast
Rusla
Posted
Rusla,

When is the one in May? I hope to be visiting Calgary May 12th-16th. And thanks for the info on Moxi's. My daughter was happy to hear that.

Corrine

Corrine, unfortunately I just saw on the site that it has been postponed until 2007. I guess that gives me time to get in shape for it. I am glad it made your daughter happy. They don't have a big selection but they had somethings and it was good.

Lauren M Explorer
Lauren M
Posted
I have a bone to pick with the quiz on your website, Lauren. One of the questions is true or false: you have to have an intestinal biopsy to confirm diagnosis of celiac disease. The answer is FALSE!! The biopsy is the gold standard, but it is not the only way to diagnose celiac, nor is it required for confirmation.

Sorry, but that's not really "my" site - ie I didn't write that. That's the generic webpage for people who are participating in the walk, and I just added my name and a couple personal touches. I couldn't change everything though. Sorry for the confusion.

- Lauren

plantime Contributor
plantime
Posted

I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

Lauren M Explorer
Lauren M
Posted
I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

hehe, yes I know better than to put that answer! I wonder who made the quiz? I actually haven't looked at it, I hope it doesn't have any other inaccuracies!

And thank you!

- Lauren

carriecraig Enthusiast
carriecraig
Posted
We didn't know about it.

Where can I get more information about it? We're interested!

Postd by Julia's Husband

Hi Julia's husband,

Here is the link for the NYC walk: Open Original Shared Link

Rusla Enthusiast
Rusla
Posted
I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

Make him walk in it and sponsor him.

  • 4 weeks later...
Becky6 Enthusiast
Becky6
Posted

Belle and I will be walking at the one in MN!

  • 3 years later...
hsm123psu Newbie
hsm123psu
Posted

I'm doing the one in B-more too! I'm team Celiac4Life (which currently only consists of myself and my Mother haha). I was actually going to post on here to see if anyone would like to (pretty please) sponsor me.

You can sponsor by going to this site:

Open Original Shared Link

And if there are any individuals who would like to join my team, let me know!

- Lauren

is there a link that shows groups/teams for the Baltimore event? Thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
    4. trents
      - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes.
    5. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??

      @Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.