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Does Anyone Just Have Celiac Only?

Moongirl

By Moongirl
in Coping with Celiac Disease

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MallysMama Explorer
MallysMama
Posted

Before discovering this website - I, too, would have never thought myself to be "lucky" to just have Celiac. Now, however, after reading many other's stories - I am lucky to have been diagnosed so early in life. I hope to avoid so many of the other life threatening troubles that can plague our unhealthy bodies.

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TCA Contributor
TCA
Posted

I think my son only had Celiac. He used have an intolerance for dairy, but that seems to have gone away now that he's been gluten-free for a while. Hopefully he won't develop any problems since we caught it.

My daughter is a whole different story. We've yet to figure out all of her problems. Hopefully her problems will improve and she won't develop any more.

I'm sooooo thankful to have found the Celiac. It's so hard to watch your kids suffer. I'm praising God for the diagnosis! :)

num1habsfan Rising Star
num1habsfan
Posted

i only wish I have just Celiac itself!! But like a lot of us in this post said, we went too long before being diagnosed. I have over 80 different problems that I didnt have before I got celiac and went gluten-free. and the list always seems to be growing!

maybe they should just come up with a cure for everything else, so we can finally all say we have just celiac :lol:

~lisa~

ebrbetty Rising Star
ebrbetty
Posted

I wish... I have Fibro, chronic Fatique, discord lupus, 3 herniated disks in my neck, hypothyroid, gerd, Dyspepsia etc :blink:

luvs2eat Collaborator
luvs2eat
Posted

I seem to only have Celiac... altho a year or so after diagnosis, my ANA blood level came back just high enough that my doc had me tested for Lupus. No symptoms or anything... just a tiny raised blood level that I get checked every year. Other than that... nothing but Celiac for me! (knocking on wood over here!!)

LaurieAnn13 Newbie
LaurieAnn13
Posted

So far, it's only celiac for me also.... Thank God!!!

I was diagnosed when I was 21, sounds like that is fairly young?!

Carolita Rookie
Carolita
Posted

I was told I had Candidysis one year before my celiac disease test came back +. I suffer from allergies and Raynaud's as well. My iron levels came back very low a few days ago (when my celiac disease test came back +) and that is making me feel miserable. I hope I don't see anything else coming on though, I think my nerves have been affected some as well since I'm always very jumpy and stuff (very nervous about everything).

I have a question. Have some of you gotten worst after going Gluten free then? I thought the damage was reversable. Now I'm really scared. I don't want to feel even worst.

Carol :(

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Lauren M Explorer
Lauren M
Posted
So far, it's only celiac for me also.... Thank God!!!

I was diagnosed when I was 21, sounds like that is fairly young?!

I was diagnosed at 21 also! I'm thankful it was at a fairly young age, and I think it was triggered only a couple of years before. At 21 I was old enough to take the diagnosis seriously, but young enough to (hopefully!) not have permanent damage.

- Lauren

par18 Apprentice
par18
Posted

Was Dx'd at 55 and as far as I can tell based on the positive diet results that is all I have.

Tom

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      how much gluten do I need to eat before blood tests?

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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