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kessea

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kessea Newbie
:D Hi I am new here and just getting started. I am so happy there is a support group!

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carriecraig Enthusiast

Hi, and welcome! Look forward to speaking with you through this board.

jerseyangel Proficient

Hi Kessea--Welcome! So glad you found us. Hopefully, you've had a chance to read through some posts, and come away with some useful information. This board is an absolute wealth of info. on everything from the gluten-free diet to dealing with friends and family about the disease. Feel free to jump in with questions or suggestions--there's a great group of people here and there's not much we don't discuss! :)

Rusla Enthusiast

Hi Keesea,

Welcome to the board. This is a great place to learn and not feel alone. Great support here we are like an extended family who know what you are going through.

RoseNNJ Apprentice

Welcome Keesea! And Welcome to anyone else I missed :):)

mouse Enthusiast

Welcome Kessea. You will gain a lot of useful information to help you along this gluten-free path. We also consider that there are no dumb questions. Sometimes we have a kind of sick humor and that is how so many of us cope with this so hopefully you will not be offended. Again, WELCOME.

KaitiUSA Enthusiast

Welcome to the board...I am sure you will find everyone very kind and helpful. Feel free to email me with any questions...nothing is too dumb to ask. It gets so much easier when you learn the ropes.


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TCA Contributor

Welcome! This board is a LIFESAVER, as you will soon find out. Let us know what you need!

whitball Explorer
:D Hi I am new here and just getting started. I am so happy there is a support group!

Welcome kessea! I am new also and I have found alot of valuable info on this site. The support has been awesome!

Tara

Stardust Valerie Newbie

Hi I am a new member too. I have been reading this board for a while. There is wonderful information and support here.

My husband and children were diagnosed with celiac disease and mine is an intolerance. We were diagnosed March of this year.

tiredofdoctors Enthusiast

Welcome Kessea and Stardust Valerie! I know you will be so happy that you found this forum. I have not had my computer for awhile, and I didn't realize how much I relied on this group for support, information, lots of laughs, you name it! This is a group of truly amazing people. Just wait, you'll see . . . . . ! Lynne

flagbabyds Collaborator

Welcome, we might seem a little weird in some posts, but this is a very good resource.

Sis Rookie

Welcome. I am new to all of this as well. look forward to talking with you on th board.

Sis

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    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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