Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gene Testing

Smitten

Recommended Posts

Smitten Rookie
Smitten
Posted

Hello,

My physician has ordered a test called HLA Class 2 Genotype. Has anyone heard of this or had this done? If you have, did your insurance company pay for the test. I did call my insurance and they stated it was paid for but I would like to know what others have experienced with this. Any info would greatly be appreciated.

Thanks!

Shelly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

After much fighting my HMO did pay for the DNA testing.I think it costs around $500 to 800 for the testing through insurance. I just had mine completed. I have the HQ2 but I do not have the HQ8 gene.ANd just because you have a gene doesn't mean you have celiac's, but my report back from the testing stated 95% of celiac's have the HQ2 gene......

mamaw

Smitten Rookie
Smitten
Posted
  • Author

Thanks for that info! I called and my insurance company does pay for it. But, I don't know whether I'm going to do it or not. I may just go on the diet and see if I get any results.

I have five immediate family members that have celiac. My blood tests were normal but my endo biopsy indicated my villi were blunt. My symptoms are bouts of diarrhea, dry scaly patches on my legs, hypothyriodism, mood swings and anxiety. With that all said......I just don't know if I'll get the expensive blood test and like you said just because you have the gene doesn't mean I have celiac (but my gut feeling is that I do).

I have some thinking to do!

Thanks for sharing :)

mamaw Community Regular
mamaw
Posted

Your symptoms sound very familiar..... plus if your relatives are immediate I would go on the diet pronto...Plus with the blunt villi, sure sounds like it to me..If your ins. will pay for the test and you don't have to foot the bill I would get the DNA done. It is nice to know if you have both HQ2 & HQ8 or one of them or none of them.

good luck

mamaw

slpinsd Contributor
slpinsd
Posted

BLUNTED VILLI?? To my knowledge, that's the first stage of Celiac. Given your genetics and family incidence, looks like you have Celiac.

  • 3 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

:o OUCH! $500.oo -- Is it really that high?

What labs do it? How do we find them?

What test code do we ask for?

tiredofdoctors Enthusiast
tiredofdoctors
Posted

LabCorp does it. They do HLADQ2 and DQ8. My doc asked for DQ1, but they weren't able to do it. You usually have to have a prescription by a doctor to have it done. Don't know yet how much it costs-- actually, don't know yet my results, either. I had the SpinoCerebellar Ataxia panel done -- it was done by Athena labs. They wanted to "ensure that my co-pay would be no more than 20%", so they told us that they would give us a break by allowing us to pay $1,290 in full up front. I told them to cancel the test. If that was the co-pay, can you imagine the full cost??????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mmaccartney Explorer
mmaccartney
Posted
LabCorp does it. They do HLADQ2 and DQ8. My doc asked for DQ1, but they weren't able to do it. You usually have to have a prescription by a doctor to have it done. Don't know yet how much it costs-- actually, don't know yet my results, either. I had the SpinoCerebellar Ataxia panel done -- it was done by Athena labs. They wanted to "ensure that my co-pay would be no more than 20%", so they told us that they would give us a break by allowing us to pay $1,290 in full up front. I told them to cancel the test. If that was the co-pay, can you imagine the full cost??????

$500 ?!?!? That seems expensive. I had my genetic testing through Enterolab, their cost was $149 and my insurance still covered 80% of that!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,559
    • Most Online (within 30 mins)
      7,748
    Valerie Ensor
    Newest Member
    Valerie Ensor
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.