Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gene Testing

Smitten

Recommended Posts

Smitten Rookie
Smitten
Posted

Hello,

My physician has ordered a test called HLA Class 2 Genotype. Has anyone heard of this or had this done? If you have, did your insurance company pay for the test. I did call my insurance and they stated it was paid for but I would like to know what others have experienced with this. Any info would greatly be appreciated.

Thanks!

Shelly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

After much fighting my HMO did pay for the DNA testing.I think it costs around $500 to 800 for the testing through insurance. I just had mine completed. I have the HQ2 but I do not have the HQ8 gene.ANd just because you have a gene doesn't mean you have celiac's, but my report back from the testing stated 95% of celiac's have the HQ2 gene......

mamaw

Smitten Rookie
Smitten
Posted
  • Author

Thanks for that info! I called and my insurance company does pay for it. But, I don't know whether I'm going to do it or not. I may just go on the diet and see if I get any results.

I have five immediate family members that have celiac. My blood tests were normal but my endo biopsy indicated my villi were blunt. My symptoms are bouts of diarrhea, dry scaly patches on my legs, hypothyriodism, mood swings and anxiety. With that all said......I just don't know if I'll get the expensive blood test and like you said just because you have the gene doesn't mean I have celiac (but my gut feeling is that I do).

I have some thinking to do!

Thanks for sharing :)

mamaw Community Regular
mamaw
Posted

Your symptoms sound very familiar..... plus if your relatives are immediate I would go on the diet pronto...Plus with the blunt villi, sure sounds like it to me..If your ins. will pay for the test and you don't have to foot the bill I would get the DNA done. It is nice to know if you have both HQ2 & HQ8 or one of them or none of them.

good luck

mamaw

slpinsd Contributor
slpinsd
Posted

BLUNTED VILLI?? To my knowledge, that's the first stage of Celiac. Given your genetics and family incidence, looks like you have Celiac.

  • 3 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

:o OUCH! $500.oo -- Is it really that high?

What labs do it? How do we find them?

What test code do we ask for?

tiredofdoctors Enthusiast
tiredofdoctors
Posted

LabCorp does it. They do HLADQ2 and DQ8. My doc asked for DQ1, but they weren't able to do it. You usually have to have a prescription by a doctor to have it done. Don't know yet how much it costs-- actually, don't know yet my results, either. I had the SpinoCerebellar Ataxia panel done -- it was done by Athena labs. They wanted to "ensure that my co-pay would be no more than 20%", so they told us that they would give us a break by allowing us to pay $1,290 in full up front. I told them to cancel the test. If that was the co-pay, can you imagine the full cost??????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mmaccartney Explorer
mmaccartney
Posted
LabCorp does it. They do HLADQ2 and DQ8. My doc asked for DQ1, but they weren't able to do it. You usually have to have a prescription by a doctor to have it done. Don't know yet how much it costs-- actually, don't know yet my results, either. I had the SpinoCerebellar Ataxia panel done -- it was done by Athena labs. They wanted to "ensure that my co-pay would be no more than 20%", so they told us that they would give us a break by allowing us to pay $1,290 in full up front. I told them to cancel the test. If that was the co-pay, can you imagine the full cost??????

$500 ?!?!? That seems expensive. I had my genetic testing through Enterolab, their cost was $149 and my insurance still covered 80% of that!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,864
    • Most Online (within 30 mins)
      7,748
    Jojo3
    Newest Member
    Jojo3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.