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Gene Testing

Smitten

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Smitten Rookie
Smitten
Posted

Hello,

My physician has ordered a test called HLA Class 2 Genotype. Has anyone heard of this or had this done? If you have, did your insurance company pay for the test. I did call my insurance and they stated it was paid for but I would like to know what others have experienced with this. Any info would greatly be appreciated.

Thanks!

Shelly

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mamaw Community Regular
mamaw
Posted

After much fighting my HMO did pay for the DNA testing.I think it costs around $500 to 800 for the testing through insurance. I just had mine completed. I have the HQ2 but I do not have the HQ8 gene.ANd just because you have a gene doesn't mean you have celiac's, but my report back from the testing stated 95% of celiac's have the HQ2 gene......

mamaw

Smitten Rookie
Smitten
Posted
  • Author

Thanks for that info! I called and my insurance company does pay for it. But, I don't know whether I'm going to do it or not. I may just go on the diet and see if I get any results.

I have five immediate family members that have celiac. My blood tests were normal but my endo biopsy indicated my villi were blunt. My symptoms are bouts of diarrhea, dry scaly patches on my legs, hypothyriodism, mood swings and anxiety. With that all said......I just don't know if I'll get the expensive blood test and like you said just because you have the gene doesn't mean I have celiac (but my gut feeling is that I do).

I have some thinking to do!

Thanks for sharing :)

mamaw Community Regular
mamaw
Posted

Your symptoms sound very familiar..... plus if your relatives are immediate I would go on the diet pronto...Plus with the blunt villi, sure sounds like it to me..If your ins. will pay for the test and you don't have to foot the bill I would get the DNA done. It is nice to know if you have both HQ2 & HQ8 or one of them or none of them.

good luck

mamaw

slpinsd Contributor
slpinsd
Posted

BLUNTED VILLI?? To my knowledge, that's the first stage of Celiac. Given your genetics and family incidence, looks like you have Celiac.

  • 3 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

:o OUCH! $500.oo -- Is it really that high?

What labs do it? How do we find them?

What test code do we ask for?

tiredofdoctors Enthusiast
tiredofdoctors
Posted

LabCorp does it. They do HLADQ2 and DQ8. My doc asked for DQ1, but they weren't able to do it. You usually have to have a prescription by a doctor to have it done. Don't know yet how much it costs-- actually, don't know yet my results, either. I had the SpinoCerebellar Ataxia panel done -- it was done by Athena labs. They wanted to "ensure that my co-pay would be no more than 20%", so they told us that they would give us a break by allowing us to pay $1,290 in full up front. I told them to cancel the test. If that was the co-pay, can you imagine the full cost??????

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mmaccartney Explorer
mmaccartney
Posted
LabCorp does it. They do HLADQ2 and DQ8. My doc asked for DQ1, but they weren't able to do it. You usually have to have a prescription by a doctor to have it done. Don't know yet how much it costs-- actually, don't know yet my results, either. I had the SpinoCerebellar Ataxia panel done -- it was done by Athena labs. They wanted to "ensure that my co-pay would be no more than 20%", so they told us that they would give us a break by allowing us to pay $1,290 in full up front. I told them to cancel the test. If that was the co-pay, can you imagine the full cost??????

$500 ?!?!? That seems expensive. I had my genetic testing through Enterolab, their cost was $149 and my insurance still covered 80% of that!

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