Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm A Celiac For Attention

IntensePort

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

A lot of my family still wont believe how sensative I am to gluten, and still dont even believe I have Celiac, even tho both have been true for over 3 years already. They tend to rub it in my face, and offer me food they know I cant touch, or give me a huge lecture about something.

Wish we could all convince the whole world it exists and is real and we arent lying when we have it!

~lisa~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


schuyler Apprentice
schuyler
Posted

I'm lucky that my family believes me (it took a few weeks for my dad to believe-at first he thought that I just didn't want to eat). Initially, only my mom understood how serious it was, but after a severe reaction to gluten in toothpaste at my dentist's office, they all understood!

My friends are a whole different story. They are convinced that I have an eating disorder(s). Right after I was diagnosed, my friends invited me to a small get together that they were having. I went, but since it was a last minute thing, I didn't have time to grab some of my gluten-free food. When I declined all of the food at my friend's house, they all started telling me that I just use vegetarianism and celiac as an excuse to not eat. Yea right! I was like, don't you guys remember how sick I was before and how I was eating all the time and loosing weight? They had no answer. A few friends were even with me after my first glutening after going gluten-free, and they actually had the nerve to tell me that I was faking the pains and nausea, so that so that I could vomit all of the food that I had just eaten, and no one would suspect that I had an eating disorder. So, according to my friends, I am both anorexic and bulimic! Some people are just crazy! I'd hate to see this ruin relationships, but they are just driving me crazy (everytime I have seen my friends recently, they have brought it up). I'm not giving up on it yet; I think that they just need time to come around. It's so frusterating when people don't believe you!

Danielle

whitball Explorer
whitball
Posted

I have friends, family and co-workers who think that I am a whimp. I have had "mysterious" symptoms for years. Lots of pain, lots of sick days. My friends laugh and say "oh, do you have another ailment?". Makes me mad as H---. My boss has muscular dystrophy and uses a wheelchair and is tough as nails. She does struggle every day, but it doesn't mean that I don't struggle too. So, now, I do not say a word to them about how crappy I feel. It's not worth the frustration. Tara

IntensePort Newbie
IntensePort
Posted
  • Author

Well, I'm happy to know that I'm not the only one. It doesn't get to me as much as it used to, as I'm getting more and more used to eating gluten-free.

2Boys4Me Enthusiast
2Boys4Me
Posted
My BIL is a pharmaceutical buyer for a large HMO, so he KNOWS that drugs are the best way to treat anything. He has argued with me and says that it's ridiculous to have to be that careful with any food. Last time we ate at his house (he does most of the cooking) he swore up and down that the meat patties he was making just had "ground turkey, onions, garlic, salt and pepper". I ate one and before I got up from the table had a horrible stomach ache and ended up with D for 3 days. My SIL later told me that you can't make that recipe without bread crumbs and she knows he put them in. This is the same BIL that argued with me about changing my diet to treat my horrible psoriatic arthritis. He insisted that without the medication I'd still be doing damage to my joints, that feeling better was just in my head. Ten years, 13 triathlons and 4 years of coaching basketball later he just treats me like I'm a hypochondriac, so I avoid him most of the time. And I will NEVER eat a bite of food at their house again.

Why the heck didn't your SIL tell you about the bread crumbs!? She's just as bad.

lonewolf Collaborator
lonewolf
Posted
Why the heck didn't your SIL tell you about the bread crumbs!? She's just as bad.

She's the "other" sister-in-law, not married to that BIL, and she was at work and missed the party. The SIL who's married to that BIL (this is all hubby's family) is dingy enough that she believed him when he told me he didn't put in the crumbs.

2Boys4Me Enthusiast
2Boys4Me
Posted
She's the "other" sister-in-law, not married to that BIL, and she was at work and missed the party. The SIL who's married to that BIL (this is all hubby's family) is dingy enough that she believed him when he told me he didn't put in the crumbs.

Okay then, I'll forgive her. THIS time. :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 months later...
Fayt Newbie
Fayt
Posted

I think it's really rediculous how people think you made it up or something. Like you want to have to go through all of that pain if you get glutened. I mean you wouldn't give a person with diabetes a big pound of sugar and tell them "It won't kill you." It's rediculous with some people. Gah I'm sry but ignorant people just make me really mad.

Guest Norah022
Guest Norah022
Posted

I have a mixed reaction..Luckily for me my dad has celiac's (was diagnosed 7 years ago) so when i tested positive in may my parents and my siblings already knew what to expect.

My boyfriend who I started dating at the end of July has stomach problems as well so he can understand some of what I go through. In fact, I am home for break from school this week and got to see my boyfriend for the first time in 2 months so he planned a romantic day. He researched restaurants that had enough gluten free stuff on their menu (we went to outback) then bought mouthwash to rinse out his mouth so i wouldnt get sick from what he ate. So he is INCREDIBLY understanding.

Some of my friends at school support it, others think i have an eating disorder, and some think I exaggerate my disease and make it too big of a deal...

tiffjake Enthusiast
tiffjake
Posted

Its so funny that this thread was pinned today, b/c I recently found out that a (now ex-) friend has been talking about me behind my back and saying that I "diagnosed myself" and "googeled" everything and "made it all up with no proof" and I just can't believe it!

Yes, after my Lame Advertisement, EnteroLab, Celiac Panel, googeling, and arguing with my doc, I was diagnosed. Yes, I looked things up online. If I had not, I WOULD HAVE NEVER KNOWN WHAT TO TALK TO MY DOC ABOUT! Obviously they don't know everything (docs) or I would have been diagnosed many, many years ago.

Anyway, I no longer talk to her. Anyone who thinks I would volunteer to eat gluten-free just for kicks is down right nuts, and can bite me. No one needs friends like that.

  • 3 months later...
Liz92 Rookie
Liz92
Posted

Is there ANYONE besides myself and maby three other people that are under than 20? When I was like 12(this was like 2-3 years ago), I found out I was Celiac, not officially diagnosed, but I knew I was anyway, my brother, who IS a celiac, was telling all of his friends that I was only pretending to be Celiac for attention, When in my opinion was the worst part of being Celiac, and some of his friends had younger siblings who were my friends, so eventually one of my friends came up to me and asked me if it was true, I was really ticked off then but now I'm Happy that she asked me becuz I wuld much rather have that then her always wondering if i was an attention freak. I was diagnosed Just a little bit later. But, ya, life's just fine and DANDY!!! :rolleyes:

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted
She's the "other" sister-in-law, not married to that BIL, and she was at work and missed the party. The SIL who's married to that BIL (this is all hubby's family) is dingy enough that she believed him when he told me he didn't put in the crumbs.

I would have faked such big cramps, that I would have thrown over the table with the food and then puke all over it. I'm sorry, but I hate people like that :blink: .

I had one good friend being suspicious. She never told me to my face, that she thought I was lying, but her strange reaction gave me the feeling, that she thought, I was lying. I killed her with friendliness and invited her to a dinner at Outback Steakhouse. When we entered I emphasized the importance that I needed a glutenfree menu. Later on I asked the server, if she knew what I was talking about. She said 'yes, I would need the glutenfree menu, because I can't have gluten, because of several reasons. I'm either allergic to wheat or I'm a celiac.' When my friend heard that, she turned from pale to yellow to green to blue. No comment or stupid looks from her anymore, ever. Problem solved! :P

tarnalberry Community Regular
tarnalberry
Posted
When my friend heard that, she turned from pale to yellow to green to blue. No comment or stupid looks from her anymore, ever. Problem solved! :P

How sad is it that your friend had to hear this from some random wait-person at a restaurant that she had no knowledge of before she believed it?!?!?! :angry:

Liz92 Rookie
Liz92
Posted

ctually,now that I think about it,I seriously have no clue of what ur all talking about... The real reason II don'teat gluten is well... Iguess just for kicks..... :P

Ps, my other comment was by ma friend.... :rolleyes:

  • 2 weeks later...
starvedartist Newbie
starvedartist
Posted

well, my mom and I both have are celiacs, and some of my "friends" dont believe me b/c they dont understand...but a lot of my family members are hicks, and dont really understand it either...and I am having a really hard time w/ peer pressure...just the other day I went to a friends house, and she made a cake...and it was so tempting...I had two pieces and was sick for a week......but yeah...a lot of my family members think that it is all made up...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748
    melindakathleen
    Newest Member
    melindakathleen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...