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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator
Yeppers!! The infected earings in the ears is a sign <_< .... I get that too when I've been glutened.

Really?? What an odd symptom to get from gluten. :huh:

My ears started bothering me on Monday...the same day I had the reaction....seems like they're getting a little better already though. Weird. My ears/skin have been sensitive since I was a teenager....I cant wear junk jewelery for more than a day...not even bracelets or necklaces. I can only wear real gold and it never bothers me till I had that reaction.


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Rachel--24 Collaborator

Miamia,

I found this thread about the crackers.

Open Original Shared Link

dlp252 Apprentice
Yeppers!! The infected earings in the ears is a sign <_< .... I get that too when I've been glutened.

Hum, I'll have to try wearng mine again. I had to stop wearing even my 14kt stuff because my ears would get weepy, but I haven't really tried wearing earrings since going gluten-free. I LOVE earrings, lol, I have 4 holes in each ear and it kind of irked me that I couldn't wear them anymore, lol. :rolleyes:

jerseyangel Proficient

This is weird, but my ears react to jewelry when I'm glutened or am having a reaction to another food I'm intolerant to. When I was reacting to the dried fruit/Lara Bars a couple weeks ago, my ears were sensitive to my 14k gold earrings. As soon as I put them in, they weren't comfortable. This is something I'm seeing more now than when I was first gluten-free. Is there no limit to what food can do to us? :o

Green12 Enthusiast

I also can also react to jewelry when I am hyper sensitive to metals.

Rachel, it concerns me that you are still having ovary pain. Mine would usually subside after a day or two at the longest. Can you call your doctor and let them know you continue to have pain??

Fiddle-Faddle Community Regular
Yeppers!! The infected earings in the ears is a sign <_< .... I get that too when I've been glutened.

Fiddle-Faddle,

Did you make the bread? I was wondering if you liked it and how it came out. :)

Planning to make it tomorrow!

I started a thread a while back about being allergic to metal, but I can't find it. I gave up on earrings and necklaces years ago--I can only wear my wedding ring (I think it's 24 carat). I never thought of trying jewelry again since going gluten-free. Hmmmm...

Fiddle-Faddle Community Regular

You're a GRANDMA??!! I thought that was your baby in the photo :blink:


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Mango04 Enthusiast
Didn't the guy who lives with the bears actually get killed by them too? I remember reading that a long time ago..both him and his girlfriend. It was really sad.

I could totally be the dolphin lady though. :D

Hey I watched that movie a few days ago. It's called "Grizzly Man" It was crazy! The guy lived with the bears every summer for 13 years. You find out early on that he gets eaten during the 13th year. He videotaped so much stuff too....it was a cool movie. Sad that he got killed of course, but the documentary was really well done.

I am soooo afraid of gators OMG Rachel I can't believe you swam in that lake!

I feel like I should say something related to corn or msg or ovaries...but I've go nothin' B)

Rachel--24 Collaborator
This is weird, but my ears react to jewelry when I'm glutened or am having a reaction to another food I'm intolerant to.

I guess alot of us have this problem....I was thinking it was just me. :blink:

I wonder why it happens though. I guess my body gets hyper sensitive cuz I'll react to more foods, chemicals, and even my good earrings. <_<

Rachel--24 Collaborator
Rachel, it concerns me that you are still having ovary pain. Mine would usually subside after a day or two at the longest. Can you call your doctor and let them know you continue to have pain??

Yeah it concerns me too. :(

Is it even possible to have ovary pain for months and months without anything drastic happening? I've been having the pain a long time now...I've gotten used to it. I was mistaking it for my intestines though.

I did tell the doctor it was hurting bad both when I was in her office and when I spoke with her on the phone. She doesnt take me serious at all and she shows no concern. She's like all my previous docs...always assuming I'm a hypocondriach. It makes me mad....the first time I saw her was when I was weighing only 94 lbs. She actually said that was normal weight for me and not to worry about it. :blink:

That is NOT normal and on every chart I looked at for my height 94 lbs. is underweight.

She's my mom's doctor and my Mom thinks shes the greatest. I think she sucks. My Mom doesnt understand because she's not sick. She thinks its great that her doctor discusses hair color, vacations and other non-medical stuff with her. I on the other hand dont wanna spend my appt. time making small talk...I'm sick and I want to get better. Thats why I'm there. My Mom and I argue about this because she doesnt see what I see...its annoying. I want to find a doctor that cares.

The doctor did agree to refer me OBGYN after I kept complaining about the pain but the first available was 4 weeks from now.

So your pain only lasts a few days? I still dont know much about this but I guess I figured since the cysts are suppossed to be there until the period comes and goes that I would feel it until that time and then maybe if it does go away a new one starts up and the whole process starts over. So I figured I'd never really stop feeling it cuz there is always a cyst either growing or shrinking. Is this not right? :unsure:

Ha Donna... you sound like me :P I have 4 holes in one and 3 holes in the other ear and... (now don't anyone faint, remember I live in Florida, this is common) I have a belly button ring. :o Hee hee, not very grandma like huh??

Thats pretty cool that you have a belly ring!

I used to want one but then I chickened out.

I have 3 holes in one ear but only one in the other...I'm just lopsided. :P

Hey I watched that movie a few days ago. It's called "Grizzly Man" It was crazy! The guy lived with the bears every summer for 13 years. You find out early on that he gets eaten during the 13th year. He videotaped so much stuff too....it was a cool movie. Sad that he got killed of course, but the documentary was really well done.

I didnt know there was a documentary...I love watching that stuff. Is it gonna be on again? What channel did you see it on? If it was Animal Planet or Discover Channel they sometimes repeat the same shows.

I am soooo afraid of gators OMG Rachel I can't believe you swam in that lake!

Me either!! I just believed what I was told...that the gators leave people alone. I'm glad nothing happened to me though cuz I was actually skinny-dipping (I was young and it was fun) and if I'm gonna be killed by a gator I at least wanna have clothes on when they find me. :ph34r:

I feel like I should say something related to corn or msg or ovaries...but I've go nothin'

:lol::lol:

Its good that we have other stuff to talk about cuz sometimes I've got nothin' too.

Fiddle-Faddle Community Regular
I guess alot of us have this problem....I was thinking it was just me. :blink:

I wonder why it happens though. I guess my body gets hyper sensitive cuz I'll react to more foods, chemicals, and even my good earrings. <_<

I'm still wondering if this ties in somehow with vaccines, and the preservative thimerosal, which used to be in most vaccines and is still in the flu shot, the chicken pox shot, and probably some others. It is 50% mercury--a heavy metal/b] --and there is speculation that it is involved with leaky gut...I've had interesting reactions to thimerasol in eye drops (before it was banned) and vaccines. I got little red bumps all over the whites of my eyes (doesn't that sound charming?), and with the vaccines, I would get a huge (from the size of an orange to the size of a small grapefruit) red, hot, swelling at the injection site. Anybody else ever have this?

Mango04 Enthusiast
I didnt know there was a documentary...I love watching that stuff. Is it gonna be on again? What channel did you see it on? If it was Animal Planet or Discover Channel they sometimes repeat the same shows.

Surprisingly, I found it at Blockbuster. The film was sooo interesting. Here's the website:

Open Original Shared Link

tarnalberry Community Regular

I have gotten that sort of reaction to a vaccine which does NOT have thimersol in it. (The preservative used in the pneumovax that gave me that reaction is phenol.) That sort of immune reaction can happen to the vaccine itself. It's something to make sure to tell your doctor, of course, so it can be noted for future vaccinations.

Rachel--24 Collaborator
Surprisingly, I found it at Blockbuster. The film was sooo interesting. Here's the website:

Open Original Shared Link

Ooooh cool! I can rent it. I'm gonna have a blockbuster night :D Without popcorn. :(

I wonder if all the Blockbusters have it though...guess I'll find out. Thanks!

AndreaB Contributor
I'm still wondering if this ties in somehow with vaccines, and the preservative thimerosal, which used to be in most vaccines and is still in the flu shot, the chicken pox shot, and probably some others. It is 50% mercury--a heavy metal/b] --and there is speculation that it is involved with leaky gut...I've had interesting reactions to thimerasol in eye drops (before it was banned) and vaccines. I got little red bumps all over the whites of my eyes (doesn't that sound charming?), and with the vaccines, I would get a huge (from the size of an orange to the size of a small grapefruit) red, hot, swelling at the injection site. Anybody else ever have this?

I didn't recall varicella having mercury in it. They are now trying to make sure every pregnant woman gets the flu shot. Just one more way to mess up the developing fetus as far as I am concerned. I just with I had learned about vaccines years ago. Oh well. I'm pretty much against them but realize that it's each persons individual choice. I got my son the chickenpox vaccine because I had read CDC's site about how bad it can be. What they didn't say is when it goes around the household it is stronger and can cause fatality. My daughter had already had chickenpox when she was 11 months. I now wish I hadn't gotten it for him but I can't take it back out. Now they have to start making all these boosters because a person doesn't have permanent immunity and many of these diseases are appearing in adulthood.

Mango04 Enthusiast
Ooooh cool! I can rent it. I'm gonna have a blockbuster night :D Without popcorn. :(

I wonder if all the Blockbusters have it though...guess I'll find out. Thanks!

You will have to make it a blockbuster night with...jam...and auxigrow-free carrots (maybe not mixed together though) :D

Green12 Enthusiast
Yeah it concerns me too. :(

Is it even possible to have ovary pain for months and months without anything drastic happening? I've been having the pain a long time now...I've gotten used to it. I was mistaking it for my intestines though.

I did tell the doctor it was hurting bad both when I was in her office and when I spoke with her on the phone. She doesnt take me serious at all and she shows no concern. She's like all my previous docs...always assuming I'm a hypocondriach. It makes me mad....the first time I saw her was when I was weighing only 94 lbs. She actually said that was normal weight for me and not to worry about it. :blink:

That is NOT normal and on every chart I looked at for my height 94 lbs. is underweight.

She's my mom's doctor and my Mom thinks shes the greatest. I think she sucks. My Mom doesnt understand because she's not sick. She thinks its great that her doctor discusses hair color, vacations and other non-medical stuff with her. I on the other hand dont wanna spend my appt. time making small talk...I'm sick and I want to get better. Thats why I'm there. My Mom and I argue about this because she doesnt see what I see...its annoying. I want to find a doctor that cares.

The doctor did agree to refer me OBGYN after I kept complaining about the pain but the first available was 4 weeks from now.

So your pain only lasts a few days? I still dont know much about this but I guess I figured since the cysts are suppossed to be there until the period comes and goes that I would feel it until that time and then maybe if it does go away a new one starts up and the whole process starts over. So I figured I'd never really stop feeling it cuz there is always a cyst either growing or shrinking. Is this not right? :unsure:

The pain that I have when I am ovulating is usually a day, never more than two. This is called mittelschmertz, a term to denote midcycle pain associated with ovulation, a very common phenomenon. It is usually on one side (the side that's ovulating that cycle) and is sharp and short-lived, lasting only a few hours. Most women would not consider mittleschmertz to be excruciating (we've talked about so much I don't remember if this was brought up?) This is what I found about cysts:

"Ovarian cysts can also cause midcycle pain. Some ovarian cysts happen as a consequence of a small glitch in the normal process of ovulation, when the egg would normally be released from its follicle (the tiny pocket on the ovary in which the egg develops). Sometimes the egg fails to break out of the follicle on schedule, and instead the follicle fills with more and more fluid -- this is a cyst. Or sometimes a blood vessel in the follicle tears, and the follicle fills with blood, forming what we call a hemorrhagic cyst. Both types of cysts may cause pain and may eventually rupture, which is even more painful. Often, after a cyst ruptures, the pain will go away gradually over the course of a few days, without any other treatment."

I am wondering since you have had prolonged pain (other than midcycle pain) if it isn't something like endometriosis? This is what I found on endometriosis:

"Endometriosis itself, in which uterine lining tissue grows outside the uterus, is classically associated with pelvic pain. Although the pain may vary from person to person, the typical pattern is pain beginning midcycle and escalating through the period. There may be associated symptoms such as pain with bowel movements or diarrhea and pain with intercourse."

This is a suggestion that is made on a health website for OB/GYN issues for long term pain:

"If you have been having excruciating pain for a while, you may need to talk to your doctor about having a laparoscopy. Together you and your doctor can decide which course is best for you. If the pain persists, ask your doctor for a full workup including imaging studies. It may help determine what is causing the pain."

That would be great if you could find a doctor who will take you seriously and work with you on this, sounds like you haven't had much help from your current one. I hate it when they don't take our word for anything, I mean we know our bodies best and it gives us signs and signals all the time that things aren't right/out of balance and that fact is totally ignored in western medicine approaches.

That's my grandbaby, Ana... :D and I LOVE YOU... :lol:

She was born March 20th, she's now 3 months old.

I too was totally shocked you were a Grandma Floridian! I thought you had young kids!

I didn't recall varicella having mercury in it. They are now trying to make sure every pregnant woman gets the flu shot. Just one more way to mess up the developing fetus as far as I am concerned. I just with I had learned about vaccines years ago. Oh well. I'm pretty much against them but realize that it's each persons individual choice. I got my son the chickenpox vaccine because I had read CDC's site about how bad it can be. What they didn't say is when it goes around the household it is stronger and can cause fatality. My daughter had already had chickenpox when she was 11 months. I now wish I hadn't gotten it for him but I can't take it back out. Now they have to start making all these boosters because a person doesn't have permanent immunity and many of these diseases are appearing in adulthood.

This vaccine business scares me. I want to have kids and I don't want them to get vaccines, are there rules that you have to? How can they force us to put this poison into our bodies? It's like we don't have a say over anything.

miamia Rookie
Miamia,

I found this thread about the crackers.

Open Original Shared Link

Thanks Rachel-

I've started making my own crackers and think I ma gonna stick to it plus whole foods carries these casava crackers by gluten fortitiude that I seem to be alright with. The only ingredient in the plain ones is casava pulp. I love things with one or two ingredients!!

Miamia

Rachel--24 Collaborator
Thanks Rachel-

I've started making my own crackers and think I ma gonna stick to it plus whole foods carries these casava crackers by gluten fortitiude that I seem to be alright with. The only ingredient in the plain ones is casava pulp. I love things with one or two ingredients!!

Miamia

Casava crackers? I dont think I've ever seen them at my Whole Foods. Are they with all the other crackers or somewhere else? I love anything with one or two ingredients too...that why I went for the rice snaps. Only 2 ingredients...unless you count the gluten...then theres actually 3. :lol:

Rachel--24 Collaborator
The pain that I have when I am ovulating is usually a day, never more than two. This is called mittelschmertz, a term to denote midcycle pain associated with ovulation, a very common phenomenon. It is usually on one side (the side that's ovulating that cycle) and is sharp and short-lived, lasting only a few hours. Most women would not consider mittleschmertz to be excruciating (we've talked about so much I don't remember if this was brought up?) This is what I found about cysts:

Thanks for all that info. Julie. :)

The thing is I wouldnt call my pain excrutiating at all. Its just more of a dull pain that comes and goes throughout the day. I feel it more depending on how I move...like if I bend over. The pain doesnt escalate as I get near my period either....it stays the same. Its probably at its worst when I'm ovulating. I actually had written this in my journal 2 years back. I wrote that whenever I ovulate I get worse symptoms and bad abdominal cramps.

When I spent the first 2 years at endless doctor appts I never brought up the abdominal pain because it was at the bottom of my symptom list as far as pain goes. I just never really paid alot of attention to it because other symptoms like head pain and blurred vision were far worse.

AndreaB Contributor
This vaccine business scares me. I want to have kids and I don't want them to get vaccines, are there rules that you have to? How can they force us to put this poison into our bodies? It's like we don't have a say over anything.

Julie,

Currently state have religious or someother kind of exemption. (Exemption is not the right word) I'll have to look it up. The vaccine makers are behing the law makers trying to take away our right. That very well may happen someday because of a lot of greedy people but that isn't the case right now. I don't know if you believe in God or not but the bible is clear on the wickedness of men becoming more and more prominent. Don't let the possible laws prevent you from having children though. Children are such a blessing!

mouse Enthusiast

Rachel, when I was a High School Senior, I started getting terrible stomach pains. They would send me home and a few hours later, they were gone. Finally my parents took me to a quack who said they were just growing pains. Of course, by then all of my friends thought I was a hypochondriac. After my Senior year we moved to Florida and I got a job. They pains had still come and gone. Sometimes lasting for a day or so. I was on the job 6 days, when the pains started at lunch. I did not want to lose my new job and so I toughed it out. I had to drive home with all the windows down as the pain was so bad I thought I would pass out. I went to bed. That night my Dad wanted to call a doctor and I would not let him as I had no insurance yet. By the next night he called the doctor anyway and the doctor came to the house (Yep, they used to do this). He shot me full of Morphine, saw me the next morning and operated the next day. I had pre-cancerous tumors on my ovary and appendix. He did not understand how I had stood the pain for so long. He also told me that if I had not died from a rupthered (sp) appendix in a year, I would have developed Cancer by then. I was 19. They took out my ovary and appendix. I am not trying to scare you, but I really think continued ovary pain should be definately looked into. Please consider an MRI. I sincerely hope that you feel better real soon.

Fiddle-Faddle Community Regular
Julie,

Currently state have religious or someother kind of exemption. (Exemption is not the right word) I'll have to look it up. The vaccine makers are behing the law makers trying to take away our right. That very well may happen someday because of a lot of greedy people but that isn't the case right now. I don't know if you believe in God or not but the bible is clear on the wickedness of men becoming more and more prominent. Don't let the possible laws prevent you from having children though. Children are such a blessing!

You can have a religious or medical exemption. You can have a medical exemption for the MMR if you are allergic to eggs, for example, as the MMR is egg-based.

Rachel--24 Collaborator
Rachel, when I was a High School Senior, I started getting terrible stomach pains. They would send me home and a few hours later, they were gone. Finally my parents took me to a quack who said they were just growing pains. Of course, by then all of my friends thought I was a hypochondriac. After my Senior year we moved to Florida and I got a job. They pains had still come and gone. Sometimes lasting for a day or so. I was on the job 6 days, when the pains started at lunch. I did not want to lose my new job and so I toughed it out. I had to drive home with all the windows down as the pain was so bad I thought I would pass out. I went to bed. That night my Dad wanted to call a doctor and I would not let him as I had no insurance yet. By the next night he called the doctor anyway and the doctor came to the house (Yep, they used to do this). He shot me full of Morphine, saw me the next morning and operated the next day. I had pre-cancerous tumors on my ovary and appendix. He did not understand how I had stood the pain for so long. He also told me that if I had not died from a rupthered (sp) appendix in a year, I would have developed Cancer by then. I was 19. They took out my ovary and appendix. I am not trying to scare you, but I really think continued ovary pain should be definately looked into. Please consider an MRI. I sincerely hope that you feel better real soon.

Armetta,

Thank you so much for sharing your story.

You were very lucky that your dad had that Dr. come to your house. I'm glad it worked out for you.

You've definately given me something to think about. I dont have excrutiating pain so far...probably the worst day I ever had with the ovary pain was last week but ususally I can deal with it....it doesnt prevent me from doing anything. Can an MRI see something that the ultrasound couldnt see? Does anyone know if my appendix could also be seen on that ultrasound? Nobody ever mentioned anything about my appendix so I assumed it looks good. :unsure:

dlp252 Apprentice
Ha Donna... you sound like me :P I have 4 holes in one and 3 holes in the other ear and... (now don't anyone faint, remember I live in Florida, this is common) I have a belly button ring. :o Hee hee, not very grandma like huh??

I almost got a belly piercing, but one of my co-workers got one around the same time and she had trouble with hers to I chickened out, lol.

<------ old lady, 44 yrs old ^_^ ....I know you guys are just buttering me up (no pun intended) you want me to open a gluten free bakery and distributing center :lol::lol:

NOT OLD!!! I'm older than you so that would make me ancient, lol. I'm going to be 51 in a few days!

Okay, I finally figured out that I DO get mouth blisters. Got one this morning (or at least noticed it this morning). It definitely wasn't there yesterday...guess what I had yesterday evening...BUMBLE BAR! I know I've said on this thread before that they give me bowel noises, but I keep trying them thinking it's all in my head. I had just finished showering this morning and happened to feel it, so ran to look in the mirror--usually when I get these I'm not near a mirror so by the time I get to one, it doesn't look like a blister anymore. This one wasn't black and was hardly white, but it was definitely blister-like.

The next thing I want to test is chicken. I haven't had any in over a week and oddly enough I haven't had any leg or heel itching since then, so I want to test to see if THAT is what has been causing my itching. I've been using coconut oil on my legs for about the same amount of time, so it could be that, but I've tried lotions and creams and even vaselline before and nothing has stopped the itching, so this will be interesting.

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      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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