Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Christine - 10 Advils are WAY too much. The maximum you should take in at one time is 4 -- that is 800 mg, what the doctor's prescribe. You can only take that safely three times per day.

Do you have a bite guard? Have you seen a dentist who specializes in TMJ? That can prevent a lot of arthritic changes in itself. If you have rheumatoid, it's difficult, but it does help. If it is simply osteoarthritis, then it would DEFINITELY help. Both of my kids, after getting their braces taken off, suffered with TMJ dysfunction . . . they went to a dentist who made impressions of their teeth, put them on a special axis, then found the optimum bite for them . . . he gave them a bite guard which, at first, was just a HUGE chunk of plastic, it looked like! Then, they went in 1 time per week for 24 weeks, and he slowly ground down the bite guard until they were at their perfect bite. He then gave my son a night guard for teeth clenching and grinding.

Also, don't want to imply that anything is "in your head", because it IS NOT. However, have you thought about seeing a physician (even psychiatrist) about anxiety issues . . . most often, that's what grinders have. Clenchers tend to be worriers. It was funny --when I was practicing, I could tell by the jaw muscles which patients were clenchers vs. grinders.

Has anyone taught you self-release techniques for the muscles in your jaws? There are positional release techniques that are FANTASTIC for TMJ. In fact, when I first took the course, I was a student and thought it was "out there" . . . it was the stuff that I used the most. Even if you can't find someone to teach you, you can order books on positional release through amazon .com . . . some used ones pretty cheaply. It is difficult to do it yourself -- -I will tell you that. If you can go to a MANUAL physical therapist who works with TMJ, they will be able to teach it to you well.

Good luck to you . . . please take care of yourself. . . . Lynne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
nikki-uk Enthusiast
nikki-uk
Posted

Oh,good googly moogly I have succesfully done my signature!!

:lol::lol::lol:

dlp252 Apprentice
dlp252
Posted
Oh,good googly moogly I have succesfully done my signature!!

:lol::lol::lol:

Yay!!!! :lol:

AndreaB Contributor
AndreaB
Posted
Oh,good googly moogly I have succesfully done my signature!!

:lol::lol::lol:

Yiiiiippeeeeeeee! :lol::lol:

Green12 Enthusiast
Green12
Posted
Yep,it's Tenerife (it's an island that belongs to Spain,but is off the coast of Africa)

Hubby is very content in his Oh so magical place now :lol:

Nikki, how fabulous Spain. I am so jealous. You will have to share every detail with us when you get back. So sorry about hubby's back, glad he is experiencing some relief from the pain in La La Land.

Susie, I am so sorry you are feeling dreadful. I seem to do ok with the Nut Thins, don't eat them all that often, but when I have I didn't really notice any ill effects. Do you have delayed reactions or immediate most of the time? Had you eaten something the day before suspect? Is the chicken you ate a roasted chicken? I have heard sometimes they change the recipe without warning for the marinade that they inject and baste the roasted chickens with. Just a thought. Broccoli tends to upset my stomach, but it wouldn't make me feel the way you describe. Of course, we all are different.

Please take good care of yourself and know you are in all of our thoughts :)

Donna, steaming the corn tortillas takes great precission and skill, focus. It's an art. Oh who am I kidding I mess it up all the time, but I'm getting better at it :lol: I figured out I let the water boil and then turn it way down, or even off, and let the steam come up through the steamer basket, then once the water has stopped boiling and it's just steaming I put the tortilla in and put the lid on. Effort, yes but they taste so good.

dlp252 Apprentice
dlp252
Posted
Donna, steaming the corn tortillas takes great precission and skill, focus. It's an art. Oh who am I kidding I mess it up all the time, but I'm getting better at it :lol: I figured out I let the water boil and then turn it way down, or even off, and let the steam come up through the steamer basket, then once the water has stopped boiling and it's just steaming I put the tortilla in and put the lid on. Effort, yes but they taste so good.

Oh good...I am no Julia Child in the kitchen, so definitely though it was ME, lol. Seriously though, toasting it in the toaster oven was a happy accident...it was sooo good.

Green12 Enthusiast
Green12
Posted
Oh good...I am no Julia Child in the kitchen, so definitely though it was ME, lol. Seriously though, toasting it in the toaster oven was a happy accident...it was sooo good.

Don't you just love those happy accidents :lol:

Hey, I am wondering, if anyone might know, can Claritin be made at a compounding pharmacy without the added ingredients????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Okay, so since joining this thread on page 15 or so I've been trying to figure out what causes the almost unbearable itching I have on my legs...sometimes it's barely noticable and sometimes it's just horrible...also through the course of this thread I've thought it might be corn, histamine, chicken, auxigro, sugar and air. My latest, CHOCOLATE. Oh dear God please don't let it be the chocolate, lol. Anything but the chocolate. The itching was so bad on Friday that I finally made an appointment with a dermatologist (not that I think it will do any good because I've seen one before and it didn't help)...coincidentally, last week, especially Friday, I was eating a bunch of chocolate. This weekend I wasn't around chocolate much so didn't have much and the itching was at a minimum...today...WORK happened and I am surrounded by chocolate once again. Arggg...not the chocolate. What's the world coming to. :blink::lol: Or....maybe I'm just allergic to WORK, lol. :lol::lol:

DingoGirl Enthusiast
DingoGirl
Posted
Donna, steaming the corn tortillas takes great precission and skill, focus. It's an art. Oh who am I kidding I mess it up all the time, but I'm getting better at it :lol:

:lol::lol::lol:

V. funny.

Thanks Julie....it WAS a roasted chicken, teh same kind I eat all the time, I checked the ingreds. but am going to call the store. Am just starting to feel a bit better now but still - - spinached. ugh. not getting much done today and in very much fog.

I have to tell you guys what I thought was so funny - - yesterday, while driving down from the mountains - lots of time to think and pray, which I love - - love goign with people up to elevation but also dearly love going with just the dogs. So anywho...I"m thinking of and praying for the usual people in my life - - friends, family, loved ones - and thinking of my own issues, of course (they are legion :o:lol: ), and I realized with a chuckle that a portion of my time was spent thinking of the people in Rachelville - - like, holy moly, Rachel needs to grow her own vegetables, and, I hope Cecile feels okay today, and how was Lynne's wedding, etc. etc.....and how some of my friends are usign the word SPINACHED now...ha ha.....

Anyway it just cracked me up because there's now a whole TOWN that I have to worry over.... :lol::lol::lol:

dlp252 Apprentice
dlp252
Posted
Anyway it just cracked me up because there's now a whole TOWN that I have to worry over.... :lol::lol::lol:

:lol: Yep, funny how that works. B)

DingoGirl Enthusiast
DingoGirl
Posted
Arggg...not the chocolate. What's the world coming to. :blink::lol: Or....maybe I'm just allergic to WORK, lol. :lol::lol:

no, no, NOT the chocolate....it's work, definitely it' s WORK your'e allergic to...quit your job, keep the chocolate! so sorry about the itching, that must drive you nuts.

and BTW how do people actually go to REAL JOBS if you get so miserably sick from gluten? Can't imagine. Am vaguely looking for a real job but am thinking of just supporting myself as an artist again (albeit a starving one) as I have done in the past, and continuing to work part-time for the writer. I simply know that I couldn't show up and be efficient anywhere today, would have had to call in sick. ugh.

Green12 Enthusiast
Green12
Posted
Anyway it just cracked me up because there's now a whole TOWN that I have to worry over.... :lol::lol::lol:

:lol::lol::lol:

Glad you are starting to feel a little better Susie Q. Do call the store and see if they might have changed the formula. Get some rest and worry about everything later when you feel better!

OMG, I forgot to address something I read yesterday. Rachel asked who Amber Frey was. NO! Are you joking Rachel? She who reads the tabloid covers everyday as she walks by and as she checks out all of the customer's groceries??? I am thinking you were joking, but if you don't know I am surprised given you live in Cali and it was all over the news for years.

Jean-Luc Rookie
Jean-Luc
Posted
and BTW how do people actually go to REAL JOBS if you get so miserably sick from gluten?

:lol::lol::lol:

I am a lawyer! So, I guess I do not have a real job!

:lol::lol::lol:

jerseyangel Proficient
jerseyangel
Posted
Hey, I am wondering, if anyone might know, can Claritin be made at a compounding pharmacy without the added ingredients????

I don't know for sure, but I would think it could. The unfortunate thing is that Claritin has both milk and corn ingredients. I've stopped it along with my milky vitamins!

I did a search yesterday to try and find an antihistimine that used potato starch. No luck--

dlp252 Apprentice
dlp252
Posted
no, no, NOT the chocolate....it's work, definitely it' s WORK your'e allergic to...quit your job, keep the chocolate! so sorry about the itching, that must drive you nuts.

and BTW how do people actually go to REAL JOBS if you get so miserably sick from gluten? Can't imagine. Am vaguely looking for a real job but am thinking of just supporting myself as an artist again (albeit a starving one) as I have done in the past, and continuing to work part-time for the writer. I simply know that I couldn't show up and be efficient anywhere today, would have had to call in sick. ugh.

I may not have to worry about quitting, lol...they keep talking about "outsourcing" my department, so I'm sure the point will all be moot at some point. Anyway, it was really hard when I was at my sickest, but fortunately I have a fairly flexible employer and fortunately I was able to take some half days off...I also think my gluten intolerance hadn't done so much damage yet that it totally knocked me out, but I think if I hadn't figured it all out soon it would have.

:lol::lol::lol:

I am a lawyer! So, I guess I do not have a real job!

:lol::lol::lol:

:lol::lol::lol: And I work FOR lawyers so I guess I don't have a real job either, lol!!! :lol::lol:

OMG, I forgot to address something I read yesterday. Rachel asked who Amber Frey was. NO! Are you joking Rachel? She who reads the tabloid covers everyday as she walks by and as she checks out all of the customer's groceries??? I am thinking you were joking, but if you don't know I am surprised given you live in Cali and it was all over the news for years.

Pretty sure it was a joke because there were lots of laughing smilies after it. :lol:

DingoGirl Enthusiast
DingoGirl
Posted
And I work FOR lawyers so I guess I don't have a real job either, lol!!! :lol::lol:

I am the spawn of a lawyer...still in recovery.... :lol:

dlp252 Apprentice
dlp252
Posted
I am the spawn of a lawyer...still in recovery.... :lol:

:lol:

DingoGirl Enthusiast
DingoGirl
Posted
:lol::lol::lol:

OMG, I forgot to address something I read yesterday. Rachel asked who Amber Frey was. NO! Are you joking Rachel? She who reads the tabloid covers everyday as she walks by and as she checks out all of the customer's groceries??? I am thinking you were joking, but if you don't know I am surprised given you live in Cali and it was all over the news for years.

:lol::lol::lol::lol: that did also crack me up...but remember when it all happened, at that time I think our President was in a gluten coma, she may not have been working at that time and was permantly spinached to her bed....must have been quite a coma as it was EVERYWHERE for so long..... :o:lol:

Jean-Luc Rookie
Jean-Luc
Posted
I am the spawn of a lawyer...still in recovery.... :lol:

:lol::blink::lol:

Green12 Enthusiast
Green12
Posted
Okay, so since joining this thread on page 15 or so I've been trying to figure out what causes the almost unbearable itching I have on my legs...sometimes it's barely noticable and sometimes it's just horrible...also through the course of this thread I've thought it might be corn, histamine, chicken, auxigro, sugar and air. My latest, CHOCOLATE. Oh dear God please don't let it be the chocolate, lol. Anything but the chocolate. The itching was so bad on Friday that I finally made an appointment with a dermatologist (not that I think it will do any good because I've seen one before and it didn't help)...coincidentally, last week, especially Friday, I was eating a bunch of chocolate. This weekend I wasn't around chocolate much so didn't have much and the itching was at a minimum...today...WORK happened and I am surrounded by chocolate once again. Arggg...not the chocolate. What's the world coming to. :blink::lol: Or....maybe I'm just allergic to WORK, lol. :lol::lol:

Chocolate=Histamine Release

...sorry to be the bearer of such bad news :ph34r:

I don't know for sure, but I would think it could. The unfortunate thing is that Claritin has both milk and corn ingredients. I've stopped it along with my milky vitamins!

Patti,

Even the RediTabs? The info on my box only says citric acid, gelatin, and mannitol as additional ingredients. What is the milk source? This is not good.

I might talk to a pharmacist and see if something can be prepared.

dlp252 Apprentice
dlp252
Posted
Chocolate=Histamine Release

...sorry to be the bearer of such bad news :ph34r:

I think I was in denial! :ph34r::P

Hey, but it's been almost two weeks since I've had a bumble bar! :lol:

Green12 Enthusiast
Green12
Posted
Hey, but it's been almost two weeks since I've had a bumble bar! :lol:

Progress!

One day at a time Donna, one day at a time.....

:lol:

jerseyangel Proficient
jerseyangel
Posted
Chocolate=Histamine Release

...sorry to be the bearer of such bad news :ph34r:

Patti,

Even the RediTabs? The info on my box only say citric acid, gelatin, and mannitol as additional ingredients. What is the milk source? This is not good.

I might talk to a pharmacist and see if something can be prepared.

Julie--I've not checked on the Redi Tabs as I've not ever used them. I was talking about the regular Claritin pills. Maybe the Redi Tabs are better? Would the citric acid=corn? I'm so confused :blink:

I hate to hear such things about chocolate :angry: Dumb histamine :angry::angry:

tiredofdoctors Enthusiast
tiredofdoctors
Posted
:lol::lol::lol:

Anyway it just cracked me up because there's now a whole TOWN that I have to worry over.... :lol::lol::lol:

Yeah, during a wedding reception try having your husband tell his relatives about all his wife's "friends" without calling it Rachelville . . . . and then . . . . his sister has a tin of Altoids on the console of her truck . . .

dlp252 Apprentice
dlp252
Posted
Yeah, during a wedding reception try having your husband tell his relatives about all his wife's "friends" without calling it Rachelville . . . . and then . . . . his sister has a tin of Altoids on the console of her truck . . .

:lol::lol::lol: Oh my! :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    2. knitty kitty
      0

      Vitamins I Take

    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run...
    5. pothosqueen
      - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,993
    • Most Online (within 30 mins)
      7,748
    Tchudi
    Newest Member
    Tchudi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      Mallorca Guide

      By hjayne19 · Posted

      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.