Omg...i Might Be On To Something

[rinne]

I know. LOL

[Green12]

I really need to work on chewing slowly...I have always been a fast eater...I do almost everything fast...walk, talk, eat, shop, lol. My mom and I were talking about this the other day...we both eat so fast, and frankly sometimes I barely chew my food! I think I've known for a long time that chewing longer would be sooooooo beneficial for me, but habits are so hard to break sometimes.

Donna, so true. As a society we do everything fast, quick, right now- our eating habits included.

It's been some time but I thought I did oil of cilantro, or some kind of cilantro extraction. Don't quote me on that though. I definitely took a lot of chlorella. I know Dr. Mercola has a lot of info and references regarding this.

[Rachel--24]

Hi Rachell

are you still on histamine restricted diet?

what about diary? did you have any reaction to ice cream?

we reintoduced cream cheese and we are going to have some blood test soon.I have heard of so many people here in Norway that they can eat some diary and some bread,after a long time of eliminating them.

elisabet

Elisabet,

For the most part I'm still on the histamine restricted diet....however I did have a banana, an avocado and I also bought a plum (havent eaten yet). I spaced them out though.

I did have reactions to store bought ice cream. I was making my own and sometimes I'd react and other times I wouldnt. I couldnt use sugar in the ice cream at all. My doctor told me to stop eating dairy cuz it would be worsening my sensitivities...so no more ice cream.

I don't blame you feeling a little emotional about the little old lady at work.Heck,I probably would have felt a bit tearful and would want to invite her home for a cup of tea!!

I feel the same as you about old people (or kids,or anyone really who is a bit vunerable)

It doesn't take alot of effort to show a bit of patience and compassion.

I dont think I was always this patient or compassionate. I think it was one of the good things that came out of getting this illness. I was oblivious to alot of things before I got sick. Its changed me in so many ways.

[Rachel--24]

I don't know that there are answers for everything, for example I think that there may be related co-infections for Lyme that have not been identified yet and I have read that others also think that. So it might be possible to have it and have no positive test result.

Rinne,

I dont doubt this....but I think Igenix covers everything that is "known" at this time. I've never actually *seen* a tick in my life....I'm not in an area where Lyme is prevelent although I know there are cases that turn up everywhere. Because I'm not usually in area where ticks would be found I'd probably not pursue treating Lyme if the tests were negative. I'd hope the Dr. would then really start focusing on the mercury possibility since that is something I definately was exposed to and had alot of problems with.

I only know of one person who has Lyme Disease. He suffers from alot of neurological symptoms and is now unable to work. I dont know him personally but from what I was told he got it somewhere on the east coast...I think from going hunting. When I was trying to get tested for it the doctors told me there werent very many cases of Lyme in our area and they only would test if there was significant reason to believe Lyme could be possible and only the infectious disease specialist could determine that.

I'm sure its not rare by any means but probably not as common as in some other areas.

[rinne]

Rachel, I have only heard very good things about Igenex and in fact just got off the phone with a clinic in Calgary that does their testing through them. All that I am suggesting is that there are some of us, hopefully not you that may have to live without diagnosis. I realize I was an idiot now for suggesting that Igenex might not provide accurate testing for you. Sorry.

I was inspired by your talking about finding a good doctor to pursue the lead I got from Igenex, there are only a few doctors in Canada that use that lab. I arranged a phone consult and will email the doctor my health history prior to the call, they are sending out a 40 page questionaire and then I will fly out to Calgary for a 1 hour appointment and blood draw. They have treated a number of people with Lyme. He is a western doctor who has studied alterative medicine and practices integrated medicine, there is a naturapath in the clinic also.

Thank you for sharing your persistence with us. I find it very encouraging as clearly others do, I think we could be heading for a Guiness World Record in forum threads.

[rinne]

A warning along with a little scientificness. A friend recommended a French Green clay, it supports detoxing by binding the toxins and moving them through the intestinal tract. I went looking for it and could only find a product called bentonite at the health food store, the package says Hydrated Healing Clay, so I bought it but since I am slowly getting smarter about so called natural supplements I went lookingon the net. I discovered that because the nature of the clay is to literally pull from its' environment when it is packaged in plastic by the time you purchase it it has pulled chemicals from the plastic into it.

I'll be taking the clay back and I will be talking to the manager. I will tell him or her I am disappointed that I cannot trust that the products that are carried in their store are of the safest quality for consumption.

Christine it was you talking about heavy metals also that made me think to look, thank you.

It reminds me of Rachel's discovery about gelatin caps and health food supplements.

That is one good thing about Celiac, it is teaching me to be vigilant about everything that I consume.

[Green12]

A warning along with a little scientificness. A friend recommended a French Green clay, it supports detoxing by binding the toxins and moving them through the intestinal tract. I went looking for it and could only find a product called bentonite at the health food store, the package says Hydrated Healing Clay, so I bought it but since I am slowly getting smarter about so called natural supplements I went lookingon the net. I discovered that because the nature of the clay is to literally pull from its' environment when it is packaged in plastic by the time you purchase it it has pulled chemicals from the plastic into it.

That is one good thing about Celiac, it is teaching me to be vigilant about everything that I consume.

Thanks for the warning rinne. I would have never thought about the clay absorbing the chemicals from the plastic/packaging materials. Makes sense though when you think about it.

[AndreaB]

Mitch has been rescheduled for next Wednesday morning.

Thank you all for your thoughts and prayers.

[Judyin Philly]

Hi All--Reading about Lyme's on here so decided to post this--

today went to chiro and she's so happy with my leg. Mentioned the salt/ thingy and lymes. She thinks there is a really good chance with all the gardening and hiking (jim and i did birding etc) she's pretty sure I had it.

I mentioned all your guys were talking about the neuro. side effects and she was thinking not gluten ataxia but Lymes..hummmmm. had the bullseye awhile ago and did the doxy so not sure if the drunken way, clumsy, dropping things could be this. going to do a cut and paste and put on the Rachel OMG thread. that's whrere it is isn't it.???

Called the Lymph pump people today and they are coming tomorrow to ck it as it's been hurting since i dropped it..grrrr. anyway the guy said he had a compression Circ_Aide T3 Eze velco wrap he was going to bring tommorw to try only cost $79.00 (It's now 509.00 I've spent out of pocket to for compression stuff not covered by insurance.) any way asked him if he had a name of MLD PT and he did and i called them today. He'd heard only VERY BAD THINGS ABOUT THE PT I WENT TO..SOMEHOW MADE ME FEEL BETTER.

sTILL CLEANING TO BED ROOM BETTER GET BACK TO WORK.

HUGS AND LOVE

JUDY

[Rachel--24]

I realize I was an idiot now for suggesting that Igenex might not provide accurate testing for you. Sorry.

Not at all Rinne....I didnt even take it that way. I understood what you were saying about co-infections and even though I dont know much about Lyme yet, I'm sure its no different then all the other diseases out there that we still dont know everything about.

Judy,

I didnt know you'd had the bullseye and had taken antibiotics for Lyme??? Was that a long time ago....are they gonna test you for it? Yeah...I suppose that could cause the neuro symptoms if they never got the Lyme with the antibiotics.

Sheeeesh....so much info about Lyme lately....its like an explosion.

Maybe we're getting somewhere??

Mitch has been rescheduled for next Wednesday morning.

Thank you all for your thoughts and prayers.

Andrea...sorry you guys still have to wait.

Will send more prayers your way next week.

[Judyin Philly]

rachel, yes i was tested but came back neg..chiro says..if it walks and quacks like a duck ...it's a duck ..what more do you need to know.

so dont' know any more since it's been probably 2 years i guess just didn't know about the neuro stuff your talking about sacrey!!!

Andrea..sorry for the wait. hang in there with our prayers and hugs.

judy

[rinne]

Rachel I am glad you didn't take it that way.

I came across an amazing site today "www.lyme-diagnosis.org.uk", it gives directions for examining blood to see the spirochetes. There is a video attached that shows the spirochetes. It seems that blood tests are done by computerized equipment these days and they are programmed to see certain things and if they are not programmed to see something they won't therefore even though these critters can be seen with a microscope the equipment doesn't see it. Go figure.

I also spoke with my friend from Colorado who was diagnosed with Lyme about 5 years ago, she was treated and has been well since. I stayed with her and her husband when I visited there and he also has Lyme. She didn't know about the co-infections nor what particular form of Lyme she had. She said the tests all came back negative and then someone in the little local lab thought to look at her blood and saw the spirochetes!!!

Whoops, wanted to say I'm sorry your husband has to wait, not easy to do.

Judy, mixed that up, reading the above, what do you think?

[Rachel--24]

Rinne,

Interesting scientificness about the tests....I really wanna start researching this. I havent yet because I was gonna wait till I get the results from Igenix but I dont know if I can hold out that long.

Was your friend very sick before she was treated or did they catch it early on? If I have it I've been sick close to 4 years now so I'm sure that makes it harder to treat but I believe I would still have a good chance for recovery. I'm just saying that cuz thats what I always believe...that I'll get better.

Everyone around me is positive too and always telling me I'll get better....its hard not to believe it when so many people are saying it'll happen. I guess I have alot of faith.

[rinne]

Rachel, my friend was very ill for at least a year with what she believed was Chronic Fatigue Syndrome. It was only that she kept being drawn to the Lyme board that resulted in her being tested. She believes she was bitten as a child and she is now 67. There are many Lyme people who feel that they have been infected for many years.

I think there is a much better prognosis if it is only four years. I'm tracking this current crisis to a rash in Colorado three and a half years ago but I really question whether or not I might have been bitten as a child. I think the idea that Lyme is prevalent in certain areas is a fiction. The Manitoba government has now admitted there is Lyme here and we are nowhere near the areas designated as high risk.

[Guest Robbin]

Hi, I had to jump in here with an interesting fact I learned-not only ticks carry the infection/parasite -green head flies, and I also read somewhere that possibly fleas and other insects. I do know that some people get what is known as rocky mountain spotted fever and it is related to Lyme. Like celiac disease, I think we are seeing just the "tip of the iceberg" with the Lyme.

When I first was dx, I felt so much better and thought wow, the searching is over-let the healing begin. I realize now that there is more to it for me and am doing the vit c/salt as well. I know I have been bitten by a tick at least twice in my life-once as a child and once as an adult. I also had a nasty, nasty, green-head fly bite that caused cellulitis. I got that bite on a beach in NJ. Who knew?!

Also, does regular parsley have the same qualities as cilantro? Just wondering since I have a large parsley plant --anyone know? Cilantro is a species of parsley-maybe it has more beneficial properties?

I certainly have become more compassionate since being so ill. I was in a hurry too much when I was younger -perhaps that is the greatest "silver lining" of this gray cloud. That, and the friends we make here .

Andrea, hope hubby is doing better soon. That can be really serious, I know. I had a friend who had surgery for that and suffered so much.

Everyone-have a good night and thanks so much for the great info, once again.

[AndreaB]

Robbin,

I don't think parsley and cilantro have the same properties (at least not to my tongue I don't like eiter but far prefer parsley over cilantro).

I'm sorry everyone is going through possible lyme infections. Wow, seems like everyone came to the same conclusion around the same time.

My dad is home and needs to go through dialysis 3x a week for 4 weeks and then will be reevaluated. He's also been put on a restricted diet and isn't too happy about it.

[lindalee]

Andrea, so sorry about everything going on with you and your loved ones. I pray for us all everyday and now especially you.

Rachel, was at the office late and then another bd celebration so I hope I can get to Becky tomorrow.

You did the SCD awhile, didn't you. Did it help?

Robbin, I think some of the scd people do the salt and vit.c also, not sure. I keep more on celiac it seems.

Good night all. Be well

[AndreaB]

Lee,

Sounds like you've been busy lately. Make sure you take the time to rest and take care of yourself.

[CarlaB]

Andrea, sorry about your dad. I cant' stand cilantro either, but parley is fine.

[lindalee]

Andrea, sorry about your dad. I cant' stand cilantro either, but parley is fine.

Me too, Andrea.

Carla, it is strong isn't it? They say if if tastes good-----SPIT IT OUT!

[AndreaB]

Me too, Andrea.

Carla, it is strong isn't it? They say if if tastes good-----SPIT IT OUT!

I haven't heard that. What if you are one of the ones that likes it...wouldn't it taste good to you?

[lindalee]

I haven't heard that. What if you are one of the ones that likes it...wouldn't it taste good to you?

Andrea, that is good you like it. I guess I use to much and that is why is tastes strong. How do you use yours?

[AndreaB]

Andrea, that is good you like it. I guess I use to much and that is why is tastes strong. How do you use yours?

I don't like it and don't use it. Maybe I should try to get used to using a little know and then. Don't need the baby getting any more than he already does though. My husband doesn't mind it and neither does my mom.

[lindalee]

Lee,

Sounds like you've been busy lately. Make sure you take the time to rest and take care of yourself.

Thank you

[Green12]

Andrea, sorry to hear about your dad, that has got to be tough to go through.

I love cilantro, I guess I am in the minority here . I make a lime cilantro rice that is so yummy, one of my favorite things to eat. And it tastes great with chicken too.