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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor

Well, I do like to be informed. It's a matter of wading through everything and trying to figure out who's telling the truth. <_< That's what I hate.

Ignorance is bliss sometimes though isn't it.

I did find a dentist in eastern washington that does cavitat's which is a special imaging that they use to detect cavitations. He also does extractions so I may just go to him for that part of what I need to have done. I asked about his other prices to. Hopefully I'll hear back tomorrow. I emailed him.


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Fiddle-Faddle Community Regular
Here's a link to root canals and cancer for anyone interested.

Open Original Shared Link

I know my doctor has told me they have been implicated in women with breast cancer as well.

There is another good site which I think Rachel already linked.....tuberose.

:blink: "Eye-opening" doesn't quite say it all...

Rachel--24 Collaborator

Okay...I made a decision after reading this stuff....even though I didnt want to read it. :ph34r:

Root canals is not a problem for me...amalgams are out. I need to detox but before I go through months of it I gotta look into everything.

My head is very toxic....dunno why but something is making it a breeding ground for Lyme and other bugs. :unsure:

Cavitations...this is a new one for me. However....it could apply to me. I keep seeing mention of the wisdom teeth....breeding ground for bacteria...cavitations...Lyme.....this area can be very toxic with or without the wisdom teeth in place....etc.

Sooo...I got my 4 wisdom teeth pulled as a teenager. I would bet money on infection here. I think I cannot ignore this after what I've read over the past two days.

Re wisdom teeth: If the site was not cleaned out well years ago when your wisdom teeth were removed, you will find a million Lyme critters and associates in there. The same disaster if it was cleaned out recently and it was not done right - it is the playground for all the microbes of all kinds.

Even existing wisdom teeth (and surrounding area) that are still in your mouth can be home

to these bugs.

Apparantly theres only a handful of LLMD's qualified for identifying and treating it. Its HARD to diagnose. You gotta get the x-rays to one of these guys and if the infection is there...they know how to find it.

I think I know where I wanna go...

I feel like there is ALOT of significance here. My Lyme is only in my head and theres gotta be a reason for that. <_<

This would be the most likely area of infection....it would explain alot. Remember Dr. Amy found all of the stress was in my head...ALL of it. From the shoulders up.

Kidneys and Liver also...but that would be from the toxins...no doubt.

I'm gonna get this looked at before I do all the chelation...it might be the most important piece that I've missed thus far. It cant hurt to look into it...it could only hurt to ignore it.

There is pain and swelling in this area since the onset of symptoms. <_<

I read that a 38 year old women became ill after having a root canal. It turned out her underlying cause was cavitations where the wisom teeth were pulled at age 12. A breeding ground for bacteria...the toxins from the root canal must have pushed her immune system too far.

It could be the case for me??? :unsure:

Scott posted this on LymeNET awhile back....

This is from Dr. K.....saying that there are 3 categories of patients that he sees...

20% do not have Bb

50% have Bb but Bb or co-infections are NOT the cause of their symptoms

30% have Bb and co-infections that are the cause of their symptoms.

I'm almost certain I'm in that 50% range. Its there....but not the cause of my sickness.

Then there is this post...

All I can add here is that I have watched Dr. K. in action for many years. If he said 50% of the patients he treats and has treated over the years have Bb, but Bb or co-infections are not the cause of their symptoms, he is putting it at the very low end.

When I listen to him in person and in a private setting, the number is much, much higher. Since he basically treats only chronic disease, literally everyone that walks in turns up with Lyme along with others as below.

I have yet to run into or meet any patient with a chronic disease who does not have Bb and co-infections that either show up right away or show up after they have been treated for a variety of other toxic infections, such as mycoplasma, herpes 6, Trichomonade, chlamydia pneu, toxoplasmosis, rickettsia, leptospirose, mutated strep, tuberculose, shiggella, lamblia and others.

Parasites. Ususally, and that is the most common, it starts with chemical and heavy metal toxicity, followed in short order by dental infections that eventually cause the cavitations (holes in jawbone). The latest toxicity that he finds in more and moare patients recently is plastics!!!!!!!!!! Avoid them!

It is difficult to distinguish between all these different infections; in order to decide who opened the door for which one. It is possible that borrelia open the door to the immune system which are then followed by a variety of opportunistic infections. Often the secondary infections are diagnosed, but the borrelia is overlooked. It could be the other way around.

I dont know what opened the door for what in my case but I'm getting the x-rays and getting this ruled in or out. My bet is this is where my Lyme is living. :o

If this area is riddled with infection...and it gets cleaned out....no doubt my body is gonna detox a whole better...my immune system is gonna be a whole lot stronger and the pain is gonna be a whole lot less. :)

This stuff doesnt seem to come to me for no good reason.....so far it seems like everything comes to me because its a piece of the puzzle. Weird....but true. :huh:

Thanks to all who brought up more of the dental issues and pushed me into this direction. :)

If nothing comes of it at least I'll end up pretty knowledgeable about dental infections. :P

AndreaB Contributor

Rachel,

In that quote do you know if it was plastics, like tupperware, etc. or was it referring to the composites.

The dentist I found in eastern washington knows about cavitations.

I have a dentist on the list my doctor gave me that you can send xrays to and he'll tell you whether you have cavitations. I can pm it to you if you are interested. I think checking this out would be a good thing.

I would suspect between my wisdom teeth removal, amalgams and root canal that the ball has started rolling. I'm determined to take care of what I can which won't be nearly enough, but it'll be a start.

NoGluGirl Contributor

Dear Rachel,

Get this! My mother, who has triglycerides and cholesterol levels in the 300s and high BP says she does not think I have Lyme, Babesia, or Celiac. As you can tell by her record, she knows so much about health. Did I mention she has diarrhea everyday unless she takes Levsin, Levinex, Promethazine, and Ammodium AD liquid stuff? :rolleyes: Talk about BS.

She really makes me angry! :angry: God I want to strangle her! Some people are so lucky murder is both a crime and a sin! :P I told her, every time I listened to her or Dad about my health, that ended up bad. She told me I did not have gallbladder disease, too! If I would have listened to her, I would have ended up with that thing rupturing inside me, and God knows what else!

Sincerely,

NoGluGirl

Fiddle-Faddle Community Regular

Fascinating info on cavitations. Rachel.

Okay, I know this is too simplistic--but what about those antibacterial dental rinses? Wouldn't they kill microorganisms in the mouth? Or would they just make a select few of them stronger?

miamia Rookie
Andrea....I read the link you posted.

I had read about the testing on rabbits in one of the posts on LymeNET.

I just cant believe I never knew any of this stuff was so toxic or harmful. It blows my mind. :blink:

On the one hand I sort of feel fortunate to be learning...so that I'm informed and dont end up causing more harm to myself down the road.

And then on the other hand I just want to put my hands over my ears and eyes and just walk around going "La -la-la-la-la-la-......I cant hear you...I cant see you....La-la-la-la" :ph34r:

Yeah...I just wanna block it all out and go back to normal when I didnt know anything and I wasnt sick...and I could eat all kinds of garbage...and I was just a normal fast food eating citizen who'd never heard of a neurotoxin. :huh:

Anyone else??

Rachel-

I feel this way alot!!!! I wish sometimes someone could suck the knowledge out of me. I was always healthy before I got sick. I ate well but now I look at the ingredients and I know what everything means and I wonder if it is really "healthy" I am happy with some of the stuff of learned but I think I know alittle too much. It is hard not to become a hypochondriac with all the stuff we know now.


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Rachel--24 Collaborator
Okay, I know this is too simplistic--but what about those antibacterial dental rinses? Wouldn't they kill microorganisms in the mouth? Or would they just make a select few of them stronger?

Alison...antibacterial rinse wont work for a cavitation. I'm pretty sure the infection is in the bone with cavitations....the infections would have to be surgically removed I think. The cavitations can be there...but not necessarily pain...just chronic illness.

I think if I have cavitations they most likely started seriously affecting my health when I had the dental work done which exposed me to alot of mercury.

Andrea...in the post it was plastics in dentistry which they were referring to.

Rachel--24 Collaborator

Interesting...

Lyme Disease and Bartonella affect the jaw very strongly, especially the first molar area. These are accompanied by viral and fungal infections, because microorganisms live in colonies. You try to wipe out one with abx, the other one takes their place. It is a merry-go-round - not very merry for the patient that has to suffer through all this.

The doctor who helped us get well states readily that he has not seen a Lyme patient with a healthy first molar. Open your mouth - first molar defective - next stop - Lyme infection.

The surgeon that removed my cavitations stressed that the procedure would not cure Lyme. However, riding the body of the hugh toxic load, along with a detoxing regimen, will greatly aid one in the ability to overcome this disease.

In some patients improvement has been remarkable

This just makes alot of sense for me because I know that I have alot of imflammation in my head....I know I have fungal colonies here (candida) as well as Lyme, Babesia and other bacteria.

Andrea I already found the Dr. I want to send my X-rays to.....he's highly recommended for this...and not far from me (driving distance). There's two top recomendations and the other guy is in New York. So I'll take the one who's near me. :)

I'm gonna try to contact his office today.

dlp252 Apprentice

Okay, I'm finding the discussion on cavitations interesting. I've read a little bit about it on the mercury boards, but somehow didn't associate it with my situation, but reading some of the stuff posted here, now I'm not so sure. I also had all my wisdom teeth out when I was a teenager. I don't remember that being a turning point or anything, but then, I'm not sure I would have because I didn't pay attention to much back then, lol. At least now I TRY to keep a shabby little journal for my health.

Anyway, with those on top of the two root canals and given the fact that many of my symptoms are in my head as well, I wouldn't be surprised if these were contributing factors. I'm confused about this...

If the site was not cleaned out well years ago when your wisdom teeth were removed, you will find a million Lyme critters and associates in there.

Is that in people who are ALREADY infected with Lyme at the time of the removal? Or are they saying something else?

I think the Valerian may be the trouble. I know it gave me difficulty. The morning supplements should not be a problem. However, the 5-HTP could be the source. My father said it could do that, too. He used to work for an herbal company. Anyway, those are two possibilities.

I just started taking the 5-HTP, but it certainly could be contributing, lol.

And then on the other hand I just want to put my hands over my ears and eyes and just walk around going "La -la-la-la-la-la-......I cant hear you...I cant see you....La-la-la-la" :ph34r:

...

Anyone else??

Oh yes...I feel like this a lot these days. :lol:

Well, I do like to be informed. It's a matter of wading through everything and trying to figure out who's telling the truth. That's what I hate.

Me too. It's really hard to know what true sometimes, but after seeing some improvement over the last few months I think I'm getting a clearer picture though. It doesn't sometimes stop me from doubting either though.

Apparantly theres only a handful of LLMD's qualified for identifying and treating it. Its HARD to diagnose. You gotta get the x-rays to one of these guys and if the infection is there...they know how to find it.

I think I know where I wanna go...

Sometime in the future I MAY be asking for this one too. :lol: I can't rule out the dental issues. I've had dental issues my entire life. I wouldn't be surprised if this is a big factor for me as well.

Scott posted this on LymeNET awhile back....

This is from Dr. K.....saying that there are 3 categories of patients that he sees...

20% do not have Bb

50% have Bb but Bb or co-infections are NOT the cause of their symptoms

30% have Bb and co-infections that are the cause of their symptoms.

I'm wondering if that puts me in the 30%...according to Scott, my main problem was the lyme?????? definitely :unsure: He said he saw metals, but they seemed to be taken care of by the chlorella and other supplements. He said candida didn't seem to be a big stressor, probably because I've been doing the diet and starving the little guys out and using some natural anti fungals. Thyroid was my major organ affected and that was due to lyme??? :unsure: I'm just dumbfounded by this whole saga, lol. :lol:

This stuff doesnt seem to come to me for no good reason.....so far it seems like everything comes to me because its a piece of the puzzle. Weird....but true.

This is sort of how I feel about my whole life. Even when bad things happen, it usually turns out that something good comes from it or it leads to something good.

CarlaB Enthusiast
WTH?? :unsure:

I did not know this about Doxy....you cant take it during the summer?? :huh:

With doxy, NO sun at all. I thought that tetracycline was okay in the sun. I know there are "cyclines" that are okay in the sun.

Thank you for all the happy birthdays!

CarlaB Enthusiast
I was reading some lymenet posts over the weekend and read a post that reminded me of what you said regarding your lyme situation... saw the name was sixgoofykids and the location was ohio so I'm assuming that's you, right?

That's me.

I'm not posting/reading much there anymore .... I realized that it wasn't helping me, only getting me down .... there are so many there who never seem to get better ... that gets me down .... it was a help at first, but this thread is more supportive/hopeful. :)

Oh, and those are four of my goofy kids in my avatar!

CarlaB Enthusiast

Cavitations is interesting. I had my wisdom teeth out AFTER my first bout with Lyme symptoms. It was that summer that the Lyme symptoms went away. I got a lot of rest, lost weight that I had gained, exercised a lot, got lots of sun, spent time lots of time with a guy/friend-only (I had a bad broken heart before that) ... that's all I did and the symptoms went away. So, I don't *think* that cavitations are an issue for me. At least I hope not!

All my molars have fillings. They all had amalgams in it until I had them removed. So, I guess they're all bad. One in the back will require a cap next time it needs replacing because it's so bad ... are caps a problem? I would get a porcelain one.

AndreaB Contributor
Andrea...in the post it was plastics in dentistry which they were referring to.

I'm assuming that would include the sealants they use now as well as composites?

I don't know what composites are made from.

Given amalgams or composites I would think the composites would be better for you. Seems like trading one evil for a lesser evil.

The doctor in eastern Washington does compatability testing, so that's another plus for him.

Carla,

You could always have xrays taken and send them into someone who can try to read them. From what I've heard it's difficult but not impossible.

Rachel--24 Collaborator
I'm confused about this...

Is that in people who are ALREADY infected with Lyme at the time of the removal? Or are they saying something else?

No you dont have to already have Lyme at the time that teeth are extracted and cavitations start forming.

Lyme and (the other critters) can find their way into the places which are most desireable for them. Basically the weakened and most toxic areas of your body. So in my case...if I have cavitations....especially where the wisdom teeth were...I think it was just an inviting place for Lyme to hang out.

I read that Lyme likes the jaw area...ALOT. I'm assuming its because this is a toxic area for alot of people...mercury vapors from amalgams tend to settle into the jaw tissue. Then you've got root canals, bacteria, etc. Where theres mercury theres always gonna be some "unwanted guests".

I think the jaw area sort of gets ignored alot.....but it really is a place where infections can settle in and affect virtually any area of your body.

You dont necessarily have to feel pain in the jaw...it can just become a systemic illness. Its not the infections themselves that cause disease....its the toxins they produce. The toxins make the body totally acidic...and unhealthy and we get chronic illness.

I'm wondering if that puts me in the 30%...according to Scott, my main problem was the lyme?????? definitely :unsure: He said he saw metals, but they seemed to be taken care of by the chlorella and other supplements. He said candida didn't seem to be a big stressor, probably because I've been doing the diet and starving the little guys out and using some natural anti fungals. Thyroid was my major organ affected and that was due to lyme??? :unsure: I'm just dumbfounded by this whole saga, lol. :lol:

The thing with ART is that the stuff that shows up are obviously putting alot of stress on your system...and its showing that. Ususally one session will not show *everything* that is going on....its something you do repeatedly and as layers are removed...others tend to reveal themselves.

Everything that showed up in my sessions is not gonna be the end of it...other things are gonna show up for sure. Thats how it works....with chronic illness the stuff piles on top of each other...one infection leads to another..etc. They dont all reveal themselves at once. Sometimes Lyme wont show up for a person until alot of other layers have been addressed...and then there is Lyme.

Thats my understanding of ART...it works in layers.

I would probably die from shock if I dont have cavitations. <_<

Current Use of Term

dlp252 Apprentice
Man....I am so nervous about this. :unsure:

I don't blame you, it's scarey stuff!!! I wouldn't be surprised if I've got this going on too. I had my first root canal in 1996...that's the area in my jaw that really hurts when it acts up. I mentioned both to my old dentist and to Dr. A that there is pain in the gum when I floss...this isn't the normal gum pain when you don't take care of your teeth, it's different and weird and its in the gum, not the root and I'm wondering now if that root canal isn't starting to fail and cause problems.

Then there's the stupid wisdom teeth which were extracted sometime in the late 60s or early 70s and am POSITIVE they didn't know or care about anything like this back then. :lol:

AndreaB Contributor

With some fancy footwork we may be able to swing me getting everything done by the dentist in eastern WA. He's a biological dentist and has been removing amalgams safely for 28 years. I didn't ask about his protocol as he's a biological dentist and I figured they were on the up and up with procedures.

If I have cavitations I don't know how much that would be and it would be above what I've already guessed so I may have to pick and choose what I have done.

I've made an appointment for the end of August so we'll know more in 6 months.

Rachel,

Cavitations sound scary and I would think I have them as well but haven't had the "straw that broke the camels back" so to speak.

AndreaB Contributor
Then there's the stupid wisdom teeth which were extracted sometime in the late 60s or early 70s and am POSITIVE they didn't know or care about anything like this back then. :lol:

I wouldn't think that was something they were concerned with either. Doesn't appear that they are today either. :angry:

dlp252 Apprentice
No you dont have to already have Lyme at the time that teeth are extracted and cavitations start forming.

Lyme and (the other critters) can find their way into the places which are most desireable for them. Basically the weakened and most toxic areas of your body. So in my case...if I have cavitations....especially where the wisdom teeth were...I think it was just an inviting place for Lyme to hang out.

Oh, and I just want to say in advance (or I guess in this case after the fact, lol) that I'm sorry if I am being clueless...thanks for always answering me with patience and tack. :lol: I just feel like my brain isn't working right now.

I've made an appointment for the end of August so we'll know more in 6 months.

Oh yay...something exciting to look forward too. Who'd a thought we all could get so excited about going to the dentist. :lol: (or is it just me :lol: )

CarlaB Enthusiast

TMJ pain is another symptom of Lyme ... I guess this explains why. Now, my TMJ problems are because I had a terrible bite, part of my bone is worn away, but I'm sure the Lyme didn't help at all and took advantage of the situation making it worse.

Fortunately, all the TMJ work I've had over the past two years has fixed it. We're still working on my teeth, but they seem to be starting to come together better. I'll have to zoom in on myself in the avatar picture ... my teeth look SO different from when we started! So does the whole lower part of my face.

I'll ask my LLMD about cavitations. I'm hoping that since I had Lyme issues before the wisdom teeth were pulled, and in fact, my Lyme symptoms went away soon after they were pulled, that I don't have a problem with them. Especially since my symptoms went away for several years after they were pulled.

AndreaB Contributor
Oh yay...something exciting to look forward too. Who'd a thought we all could get so excited about going to the dentist. :lol: (or is it just me :lol: )

I get excited about everyone's appointments as well.

This one for me is taking care of my amalgams which is something my doctor had written down for me to take care of. :)

AndreaB Contributor
TMJ pain is another symptom of Lyme ... I guess this explains why. Now, my TMJ is because I had a terrible bite, part of my bone is worn away, but I'm sure the Lyme didn't help at all and took advantage of the situation making it worse.

I don't know about TMJ. Could that be part to do with cavitations? Maybe your doctor would know.

CarlaB Enthusiast
I don't know about TMJ. Could that be part to do with cavitations? Maybe your doctor would know.

Mine was a structural problem due to a bad bite. But I don't think it's a coincidence that the pain finally started bothering me enough to go to the trouble to fix it at the same time my Lyme symptoms started appearing.

TMJ problems are a symptom of Lyme, I would guess because of the tendency of bacteria to live in the jaw.

diamondheart Newbie

Just popping in to say hi. Been a little preoccupied with reading novels and other stuff. Other stuff: just had my IUIs today and yesterday. I'm feeling very positive about it as the timing was very good. I'm going to be a nervous wreck the next two weeks before we find out the results. If you don't know what an IUI is, you'll just have to google it :P .

Digestive wise, I had PPP (practically perfect poop). The only thing I'm doing for my digestion right now is eating the home brewed kefir, also referred to as milk beer! It's good stuff for the gut, I'm convinced!

Hasta, Claire

Rachel--24 Collaborator

Seems like pieces are starting to really come together for me today....

Except I couldnt get through to the Dr.'s Ofice...the one I wanna send my x-rays to. :(

Anyways...cavitations seem very likely given the amount of toxicity I've experienced and also the fact that it feels like an infection.

It really does...there is always imflammation in my head....my glands are always swollen. No matter what I eat...or dont eat...no matter what ...that imflammation persists.....like it would if I had an infection. <_<

Then I read this....it was an article about whether to remove amalgams first...or address cavitations first.

Another consideration in amalgam removal with someone who may have cavitations is the effect it could have on the microbial population of the oral cavity.

While I

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      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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