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Omg...i Might Be On To Something

Rachel--24

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Judyin Philly Enthusiast
Judyin Philly
Posted

andrea.............yes --be oh so glad and oh so very --AFRAID TO EVER THINK OF GOING THERE :ph34r: I DON'T THINK I'LL EVER RECOVER :blink:

THANKS FOR THE NOTE TOO

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Rachel--24 Collaborator
Rachel--24
Posted
  • Author
JULIE...I JUST SPENT MEGA BUCKS TODAY WITH GI SPECIALIST WHO ...SAID "I CAN'T HAVE LYME CAUSE I HAVE 'D' AND ONLY LYME'S PATIENTS HAVE THE CONSTIPATION"... :ph34r:

:huh:

Where do these Dr.'s come up with this stuff?? :unsure:

I think they sometimes just make stuff up as they go along....if you had constipation...the Dr. would have reversed it and said "People with Lyme dont get constipation...they get diarrhea." :rolleyes:

Puhleeeeze....tell that GI to get informed before making stupid statements. <_<

Tell him/her to take a "Lyme Out" and read this :P ....

Open Original Shared Link

A number of people develop problems with their digestive tract and people with Lyme can battle acid reflux, diarrhea, bloating, cramps, partial to full blockages, and pain.

The bladder and reproductive organs are not spared and menstrual problems may surface in woman, while swollen testicles and pelvic pain may cause problems for men.

There is often brain "fog," memory problems, confusion, difficulty thinking, and speech difficulties. Extreme fatigue may be a constant problem, along with muscle spasms and joint pain. The heart and lung problems found in Lyme patients can range from palpitations and shortness of breath, to heart block and respiratory failure.

Depression, severe anxiety, insomnia, and mood swings are common. The list goes on and on.

The most important thing to remember is to consider Lyme even though a tick was not seen, or as rash did not appear, or a blood test comes back negative, especially if someone seems to have bizarre or seemingly unrelated symptoms, atypical diseases of any kind, or a disease that does not respond to standard treatment.

The standard blood tests often used to detect Lyme antibodies are missing approximately half of the cases of Lyme Disease.

Lyme, according to the Center for Disease Control, is a clinical diagnosis and negative tests should NOT rule out the disease. A lab specializing in Lyme Disease and co-infections should be used for the best chances of aiding the clinical diagnosis.

JUDY....THANK GOD I DID NOT VISIT THE POOP SITE. :o

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Hey Lisa...

I cant remember if you said wether or not you're taking any garlic??

If you can tolerate garlic...its a very good thing to take.

Its an antifungal....also anti-parasitic. Its very good for the liver and immune system as well.

Its very effective against candida.

I used to take Kyolic aged garlic capsules a couple years ago...then switched to fresh garlic.

I cant tolerate fresh garlic at all anymore...not sure if I'm intolerant now or just too much candida and hypersensitivity to mold.

Anyways tonight I bought Kyolic liquid aged garlic. Its good stuff.....highly recommended in one of my candida books.

I'm starting out slow....took 3 drops in warm water....so far so good. :)

I hope it works out and I dont react....garlic is really beneficial. If you havent tried it yet...I would recommend it. It will kill off some of that yeast....just dont overdo it.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Donna.....what about you?? Are you taking any garlic??

Sooo....I'm getting all the stuff I'm interested in taking.....I'll be bringing all of it to my ART session this weekend.

I'm trying everything ahead of time to see how well I'm tolerating it...then see what ART says.

The only one I'm totally not bothering with is the milk thistle.....the reaction was heinous. Its probably the brand but I see no reason to bring it to ART....I'm bringing it back to WF. :P

I also bought another brand of chlorella (this would be my 3rd attempt :rolleyes: ). I'm pretty scared of the stuff now but I'm giving it another try.....I'll just be sure not to rachel the stuff this time around. ;)

Oh...and no saunas after taking chlorella. Sauna + chlorella = "tossed cookies" :o

I cant wait for ART. :D

When I send you guys my update I'll include what all supplements I had her test and what she says about them. :)

WOOHOO.....is it almost Sunday yet?? :lol:

AndreaB Contributor
AndreaB
Posted
Oh...and no saunas after taking chlorella. Sauna + chlorella = "tossed cookies" :o

:lol::ph34r:

WOOHOO.....is it almost Sunday yet?? :lol:

I can't wait either. :D

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Andrea.....I'm almost going to bed now. :ph34r:

AndreaB Contributor
AndreaB
Posted
Andrea.....I'm almost going to bed now. :ph34r:

You've been staying up pretty late these days. :P

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rinne Apprentice
rinne
Posted
....

JULIE...I JUST SPENT MEGA BUCKS TODAY WITH GI SPECIALIST WHO ...SAID "I CAN'T HAVE LYME CAUSE I HAVE 'D' AND ONLY LYME'S PATIENTS HAVE THE CONSTIPATION"... :ph34r:

WELCOME TO OUR WORLD OF 'CONTRADICTION'S'

HI JUDY, SENDING :wub:

BAD DOCTORS :ph34r::angry::(

I'm SSSSSSOOOOOOOOOOO glad I didn't go there. :ph34r:

Me too. :lol:

:lol::ph34r:

I can't wait either. :D

What's on Sunday? :unsure: Is that your appointment with Dr.Amy? Did I dingo something? :lol:

I'm busy with home projects, I painted the second bedroom, now office, ceiling, walls, floor and that all sounds like a lot until you find out that the room is only 7 x 9 feet. :lol:

I am back on the salt, just a half teaspoon of the Himalayan salt each morning in a large glass of water, no vitamin C just yet although I am going to try it again. It is helping, I definitely notice an increase in my energy and it tastes good to me.

I really think it is important to pay attention to how food tastes to us. I remember my acupuncturist saying to me that our bodies are very precise and will communicate to us what is good for us and what isn't, the problem is that we are so used to over-riding our bodies that we don't hear what they are saying. The gist of it is, I made the new peanut butter rinne bars and people seem to like them and I know they taste good but they taste bad to me, I can almost hear my taste buds telling me I am stupid for eating it. I get a particular pain with nausea from peanuts and soy.

Does anyone have the experience of a variety of pains according to the foods consumed? Each time I've used fresh cilantro (and I am taking Chlorella) I've gotten a pain in my mid back on both sides that is different from the other pains I have. I've backed off on it, I'm thinking it is more potent than I can handle right now but the idea of the Cilantro oil on the wrists sounds interesting.

AndreaB Contributor
AndreaB
Posted
The gist of it is, I made the new peanut butter rinne bars and people seem to like them and I know they taste good but they taste bad to me, I can almost hear my taste buds telling me I am stupid for eating it. I get a particular pain with nausea from peanuts and soy.

I don't eat those anymore so I can't help......loved, loved, loved peanut butter though.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Does anyone have the experience of a variety of pains according to the foods consumed? Each time I've used fresh cilantro (and I am taking Chlorella) I've gotten a pain in my mid back on both sides that is different from the other pains I have. I've backed off on it, I'm thinking it is more potent than I can handle right now but the idea of the Cilantro oil on the wrists sounds interesting.

Definately...certain things cause certain reactions in me.

The pain in your back...could it be your kidneys??

The thing about mercury is that for some reason the kidneys are usually the organ which accumulates the most mercury. If someone is mercury toxic the kidneys can be loaded with mercury.

Whenever I tried eating eggs, other foods high in sulfur and especially when I got on NDF...I experienced ALOT of lower back pain.

The first time I saw Dr. Amy she said my body wasnt ready for the NDF yet.

She said in one way it was a good sign that mercury was definately wanting to come out with the NDF.....that my body was wanting to release the metals...but because my kidneys are already overloaded it got "backed up" in my kidneys....causing pain and redistribution.

She told me to stop taking NDF and she started me on the treatment with charcoal, liver support, minerals, etc...to prepare my body for chelating.

I can easily recognize the feeling now...and I really pay attention (now that I know what it means) and when I start to feel that pain I back off of the things which can be mobilizing the mercury...and drink LOTS of water to flush out the kidneys.

To me it actually FEELS like stuff is backing up inside me...it aches and I can feel pressure there. To me it means the toxins arent getting through.

Its good you're paying attention. I agree its probably the cilantro and you may be mobilizing mercury that you're not able to excrete.

This is what Klinghardt had said re: mercury detox.....it always sticks in my head...

"The only way out....is the way through."

It took me awhile to fully comprehend the meaning of these words....but yeah....the only way that mercury is coming out is to go through the pathways...the gut, the kidneys, etc...the organs all need to be able to cope with the mercury coming through...they need to be clear and functioning well.

If these organs are fully loaded with mercury and other toxins...and then you attempt to pull mercury from intracellular areas with something like cilantro....you may very well end up with redistribution...which is never a good thing when it comes to merury.

From what I understand you have to clean up the extracellular mercury....clean up the organs...mop up the mercury in the gut with chlorella. Get all these areas cleaned up and then you can chelate from the brain and intracellular areas and be able to excrete the mercury with less chance of redistribution.

Otherwise its like you're taking out mercury that may be safely stored away for now...and trying to pull it through a body which is totally cluttered with no clear pathway for the mercury to get through...and when it cant get through you run the risk of having it settle in more dangerous places...particularly the brain.

Its definately serious stuff....so yeah.....pay attention to your body and dont push something that is telling you "No".

I know you're feelings about Dr.s....and I do think there are many things we can go about on our own....I'm not sure chelation is one of those things though. You really have to know whats going on with your body...mineral deficiencies, liver and kidney function....so many things are important when it comes to moving mercury around.

Heck.....my Dr. still wont even allow me to take the "challenge" test...he takes it very seriously and he wont proceed until he's sure my body can handle safely excreting what the chelator pulls out.

AndreaB Contributor
AndreaB
Posted

Rachel,

Didn't you tell me you were going to bed!!!!?????

An HOUR ago!!! :angry::lol:

I just came back on hoping Jin would be posting soon. She's usually on late and she had her appointment today.

rinne Apprentice
rinne
Posted

Hi Rachel, yes I was thinking it was my kidneys, each time I've eaten the cilantro - not the first day but definitely the second day. It feels just the way you described, as if something is backing up, the whole area gets very stiff and sore.

I'll pay attention and I do take the mercury issue seriously. Maybe if Dr.Huffy gives me a refund I'll look for another doctor, he was a $4,000.00 expense. Not that I think there is much chance of that. :lol:

I know the chlorella, garlic, salt, ginger, taheebo tea, epsom salt baths, castor oil packs, coffee enemas....are all helping, it feels like day by day I am improving.

Another question, charcoal? You are taking it, yes? So it is okay to take if you tend toward constipation? I am like you, I get toxic and retain the toxicity. :(

rinne Apprentice
rinne
Posted
Rachel,

Didn't you tell me you were going to bed!!!!?????

An HOUR ago!!! :angry::lol:

I just came back on hoping Jin would be posting soon. She's usually on late and she had her appointment today.

:lol::lol::lol:

Hi Andrea, I was just thinking that about Rachel too but since she had so kindly responded to my question I didn't want to scold her. :lol:

I hope Jin's appointment went well but I have so little faith in doctors :( that I wouldn't be surprised to hear another idiot story.

AndreaB Contributor
AndreaB
Posted
I hope Jin's appointment went well but I have so little faith in doctors :( that I wouldn't be surprised to here another idiot story.

I know. I'm beginning to get that way, and I think I have a pretty good doctor.

She was seeing a naturopath so that is a little better anyway. :)

Murph Newbie
Murph
Posted

Oops never mind :)

NoGluGirl Contributor
NoGluGirl
Posted

Dear Mia,

I am irritated at your doctor! More should be done to improve your health! I do not blame you for being annoyed. You may just have to find another, more ambitious doctor. We love you too, by-the-way! ;)

Dear Murph,

Actually, I eat fairly healthy for the most part. The only stuff that I eat that is bad for me is the candy or a sweet all day. I got sick from the fruit in its own juice even! :o WTH? I tend to do alright if I eat a little fresh fruit, but not too much.

My stomach has been cramping and I have been queasy because of it. :(

I am glad you appreciate women for who they really are! A lot of women are so unhealthy now. They never eat. That is dangerous. I could never be one of them! I love food!

Dear Rachel,

I appreciate the information on the castor oil packs! Claire was not able to do it yet. She has been busy. The coffee enema information was fascinating as well. You mentioned garlic also. I have read it is great as an enema to get rid of worms! It flushes them out!

I actually am not as thin as I was when I was younger. I looked anorexic, though. I got down to 84 pounds. I wore a size 4, but that looked too small for my frame. I am kind of muscular.

Dear Donna,

I love your new avatar! It is even better than the last painting you did! The scene is so peaceful. This is like being on a nice beach next to the ocean. You can practically hear the seagulls!

I know what you mean with the weightloss and boobs. I am losing weight now, and my boobs are shrinking! I always seem to lose the weight in the wrong spots. My trouble area is my lower body. I have a larger butt, hips, and thighs.

Dear Carla,

I am sorry your herx is so difficult. Amoxy is one of the few antibiotics I tolerate. Dad does not want me to take it, because he is deathly allergic to it. He is afraid I will be too. The trouble is, it is one of the few that does not irritate my body, particularly my G.I. tract severely.

I was laughing about what you said about the boobs and weightloss. It is the same with me! I am pear-shaped. I lose all the weight on top when I need to reduce the bottom half. Hopefully, I will figure out how to fix that. I am okay with what I have, too. I do not want large boobs. They are hard on your back.

As far as politics go, I have the best voting plan of all! I am not Democrat, Republican, or Independent. I just vote for the best-looking candidate. Why? They are politicians. Technically, that makes morals exempt right there. I figure, they are all lying through the skin of their teeth anyway, so since I do not want to have to stare at an eyesore when they are on television all the time, I vote for the best-looking! :lol:

Dear Bev,

It is sad Lyme takes so many lives. I understand people wanting to commit suicide to end the pain. I have been there a lot myself. Yesterday was a "Please Kill Me" day. I was feeling pretty bad. Lyme is a scary foe. I have had many times where I feel I am just going to die. I fear it a lot.

I love your new word! It is important that we scientificate together! :) We love you to Bev! It is nice to have such friends, isn't it? Everyone cares about each other. Rachelville is sort of like a gluten-free Perfect, like in that Wal-Greens commercial!

Dear Susie,

Your magnolia painting is beautiful! I wish I had money, because I would buy it! 100 hours of work certainly was worth looking at! Flowers are not easy to do, either. There is a lot of detail involved. I need to start posting my art on here.

I agree about the words. I get driven crazy by people mispronouncing things. If they say something differently than I am used to, it bothers me! I have no idea why. It just does!

Dear Rinne,

The fruit issue is so odd. At least we know why the chocolate agrees with us more. It probably is healthier anyway. There may be less sugar in the chocolate than in the fruit. Meanwhile, I am gradually reducing my intake of sugar.

Dear Nikki,

I am the same way about words! People are terrible with how they pronounce things! It is enough to drive you crazy! I pronounce things differently than some people. I have an accent. Most of the West Siders in our town do. We sound more like Kentuckians here, but the people on the East Side do not talk this way.

Dear Julie,

Welcome to the thread! It sounds like Candida is a good possibility. Bacterial dysbiosis is likely as well. Your situation certainly sounds familiar. I would not be surprised if Lyme exposure is a factor for you, either. It is more common than originally thought. More and more cases are coming out of the woodwork!

Dear Lisa,

I know how scared you are. I have been there, and still get that way. You have a right to share your feelings. It is alright to ask questions. We all will help you in any way we can!

Dear Andrea,

I am glad I did not go to that site, either! That is so disgusting! I suppose morbid curiousity is something we dearly pay for at times. :lol: It is kind of funny at the same time. I must say, the musical "Scrubs" episode was hilarious.

Especially the song "Everything Comes Down to Poo."

Dear Judy,

I am so sorry to hear about your G.I. doctor being so dumb. What an idiot! I know this is a huge let-down. I cannot even count how many times I have been there. I left so many doctors' offices in tears, I never expected much from them anymore.

Dear Everyone,

Well, I got on here quite late because I finally got to sleep some after I got home. My doctor's appointment was at 3pm. I got my shot and talked to her. She wants me to stay on the strict gluten-free diet. She was also surprised to learn about yogurt not setting well. She thinks it is probably because it is fermented.

I told her about the Lyme. She is not an LLMD, but says she was surprised there were any in New York due to the strict laws. My doctor, to my amazement, is aware of the antibody tests not being very accurate, and how the Western Blots do not always show anything. I also mentioned my Thyroid. I had bloodwork for a CBC, anemia, and my Thyroid. I was stuck twice! :lol:

I then asked her if she would be willing to do the Lyme testing. She said she would like to check out the lab first. I told her about IgeniX. She is going to get back to me. If she approves, she will help me get the bloodwork done! :) Keep your fingers crossed for me! Thank you guys for supporting me, and caring, too. It means so much! :wub:

Sincerely,

Jin

tabasco32 Apprentice
tabasco32
Posted

Jin I hope you feel better and get answers because it is scary when you think you are going to die. Sometimes you say I can't do this nnooo mooorrree and want to give up, like me but I know thats not an option so the show must go on. I think it is mostly the pain and fatigue and sensitivity to me. Going to urinate 20 times a day get to be irritating and a drag to. Bloating is the worst. I hate that feeling the most too. well I have insomnia and I don't work so I am here just rereading post

Rachel their are many minerals on that page. Do you take all of them? WHich ones do you take?

Take Care

lisa

Mtndog Collaborator
Mtndog
Posted
As far as politics go, I have the best voting plan of all! I am not Democrat, Republican, or Independent. I just vote for the best-looking candidate. Why? They are politicians. Technically, that makes morals exempt right there. I figure, they are all lying through the skin of their teeth anyway, so since I do not want to have to stare at an eyesore when they are on television all the time, I vote for the best-looking! :lol:

Now THAT is a plan! maybe we should apply that to IDIOT doctors too (I still like my doctors BTW but have seem my fair share of eejits too!). If the doctor is evalauted as an eejit, then you have grounds to fire him/her unless they are good looking. Then you can just not listen to anything they say and observe their "good lookingness". as the wise sage Zoolander said, it's all about being "really, really really good looking" :P until you lose your friends in a freak accidental gasoline fight :lol: :lol: :lol:

We need to get Lynne (tiredofdoctors) on this thread as she just got fired by her doctor!

She can't get fired, she quit!

Mia- I hope you feel better.

Susie- I love that painting! When are you going to start selling. You're holding out on us!

Judy- Am so sorry about your doctor's appt yesterday! I read about it on DS.....what the heck????????????

andrea- My God, we are so lucky to have you. You REALLY are the mother hen of rachelville! :wub: :wub: :wub: :wub: :wub: :wub: :wub:

Rinne- PB rinne bars? YES!!!!!!!!!!! Someday!

I'm sure I'm forgetting someone or something. Off to my Lyme appt in 15 minutes.

Oh- my cousin is graduating from high school and her party is this weekend. I emailed her mom to say I wasn't sure if I was coming and told her about Lyme and starting antibiotics this week. she emailed me back and told me my aunt, her mom and my cousin's son were all diagnosed with it this year. Let me tell you-

My aunt (who is in her late 60's but looks about 50) is the most beautifully coiffed, dressed, elegant woman you will EVER see. I am 100% sure she has NEVER set foot in anything more wild than her backyard or a patch of grass!!!!!!!!!!!! Is that crazy or what? so now there are 4 known Lymies in my family!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel their are many minerals on that page. Do you take all of them? WHich ones do you take?

Lisa....nooo....thats just the only other page I could bring up.

I dont take anything on there except the Comprehensive Minerals.....its the 6th bottle on the page....it says "Comprehensive Minerals" right on the bottle. Costs around $8.50.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Didn't you tell me you were going to bed!!!!?????

An HOUR ago!!! :angry::lol:

:lol:

Yeah.....but I think I said I'm almost going to bed now. :P

Sheeeesh....I need more sleep. :ph34r:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
My aunt (who is in her late 60's but looks about 50) is the most beautifully coiffed, dressed, elegant woman you will EVER see. I am 100% sure she has NEVER set foot in anything more wild than her backyard or a patch of grass!!!!!!!!!!!! Is that crazy or what? so now there are 4 known Lymies in my family!

GOOD LUCK TODAY BEV!!! :wub::wub:

I think Lyme is an epidemic which isnt getting enough attention. One of the LLMDS's at my Dr.'s office had stated that about 90% of people on the East coast have been exposed to Lyme. Obviously you dont have to go traipsing through the woods to get it nowadays.....and many babies are born with it. :(

I think I will be more surprised when someone who's chronically ill doesnt show up positive for Lyme!! :unsure:

I think people probably assume we are all the crazy Lymies from the OMG thread.... :lol::lol:

It really is an epidemic though....and not just in this thread. :P

Jin....I'm glad you're appt. went well. I hope your Dr. orders the test for you. I'll keep my fingers crossed for you. :)

Judyin Philly Enthusiast
Judyin Philly
Posted
:huh:

Where do these Dr.'s come up with this stuff?? :unsure:

I think they sometimes just make stuff up as they go along....if you had constipation...the Dr. would have reversed it and said "People with Lyme dont get constipation...they get diarrhea." :rolleyes:

JUDY....THANK GOD I DID NOT VISIT THE POOP SITE. :o

THANKS RACHEL..ALWAYS APPRECIATE YOUR SUPPORT AND LINKS.

,

Dear Judy,

I am so sorry to hear about your G.I. doctor being so dumb. What an idiot! I know this is a huge let-down.

I told her about the Lyme. She is not an LLMD, but says she was surprised there were any in New York due to the strict laws. My doctor, to my amazement, is aware of the antibody tests not being very accurate, and how the Western Blots do not always show anything. I also mentioned my Thyroid. I had bloodwork for a CBC, anemia, and my Thyroid. I was stuck twice! :lol:

I then asked her if she would be willing to do the Lyme testing. She said she would like to check out the lab first. I told her about IgeniX. She is going to get back to me. If she approves, she will help me get the bloodwork done! :) Keep your fingers crossed for me! Thank you guys for supporting me, and caring, too. It means so much! :wub:

JIN. THANKS SOUNDS LIKE YOU HAVE A WINNER HERE

We need to get Lynne (tiredofdoctors) on this thread as she just got fired by her doctor!

She can't get fired, she quit!

Mia- I hope you feel better.

Susie- I love that painting! When are you going to start selling. You're holding out on us!

Judy- Am so sorry about your doctor's appt yesterday! I read about it on DS.....what the heck????????????

andrea- My God, we are so lucky to have you. You REALLY are the mother hen of rachelville! :wub: :wub: :wub: :wub: :wub: :wub: :wub:

Rinne- PB rinne bars? YES!!!!!!!!!!! Someday!

I'm sure I'm forgetting someone or something. Off to my Lyme appt in 15 minutes.

so now there are 4 known Lymies in my family!

BEV..STILL PRAYING FOR YOUR APT

LYNNE...SO SAD...DR'S CAN'T DO THAT AGREE :ph34r:

SUSIE Q LOVE THE PAINTING TOO. I HAVE THAT ONE FRAMED

ANDREA..ALWAYS WATCHING OUT FOR US.

LOVE YOU ALL

J

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I know the chlorella, garlic, salt, ginger, taheebo tea, epsom salt baths, castor oil packs, coffee enemas....are all helping, it feels like day by day I am improving.

Yeah...these are all good things to clear out the toxins. :)

I agree that your body isnt ready for cilantro right now.

I'm glad that you're getting improvement from all the detox stuff. :D

About the charcoal....I'm gonna ask Dr. Amy about the constipation when I see her. Yup my appt. is this Sunday morning....bright and early. :)

I wish you could see Dr. Amy...or someone like her....I know you would like her.....you would probably like Dr. S too. :)

No...I dont think Dr. Huffy is gonna reimburse you. :angry:

I do rememeber how excited you were to see him...and how we all were anxiously awaiting your posts. Stupid Dr. :angry:

Can I send him a letter too??? :angry::angry::angry:

I think I'm always expecting to hear idiot stories too......its cuz we've been through alot and I guess we're just jaded now. :(

Its really only the mainstream Dr.s that I feel this way about...there are also alot of eeejit alternative Dr.'s......I guess I have more faith in the integrative Dr.'s and LLMDS's now. I dont hear too many idiot stories coming from appt.s with these guys. No doubt there are some dumb ones out there though. :rolleyes:

I think overall we've had really good luck with LLMD's in this thread. :)

miamia Rookie
miamia
Posted

Jin-

glad the doctor went well and you are gonna have tests done and take steps toward improving your health

Rachel-

thanks for the info on coffee enemas and glut.

Donna and Susan I love the art work- I might have to post some of mine too!!

Bev-

thanks for checking in with me. I think i am finally bouncing back a little from the hormones and diflucan . I still don't feel great but compared to last week I am in a much better place.

Tomorrow I go in for a mayan abdominal massage- Yikes-

dlp252 Apprentice
dlp252
Posted

A lyme out! :lol:

Bad doctors indeed!!!! :angry:

Waiting anxiously for Bev's doctor appointment info! :P

Donna.....what about you?? Are you taking any garlic??

Sooo....I'm getting all the stuff I'm interested in taking.....I'll be bringing all of it to my ART session this weekend.

I'm trying everything ahead of time to see how well I'm tolerating it...then see what ART says.

...

WOOHOO.....is it almost Sunday yet?? :lol:

I'm excited for your appointment too! But, why was I thinking it was Saturday really early?! :lol: Okay, so SUNDAY, I'll be waiting anxiously to hear. :P

I'm not taking garlic yet...I AM trying to add fresh garlic to my dinner...but I'm cooking it, so I'm thinking it's not beneficial that way. I'm going to try the one you mentioned...sounds good.

I've almost got all the supplements that Dr. S and Scott and Anna have given me added in now...Scott wants me to up the dose on a couple, and I need to increase my chlorella dosage...once I get that all done, then I'll start some extra stuff like the garlic. I want to be sure that I'm adding stuff slowly enough so I can tell what's doing what or what's causing what, so I'm not changing dosage or adding things more often than every 4 days.

I still need to get alpha lipoic acid...and there were two more things on Dr. S's list, but now I can't find the list. :(:lol: Oh well...

I love your new avatar! It is even better than the last painting you did! The scene is so peaceful. This is like being on a nice beach next to the ocean. You can practically hear the seagulls!

I know what you mean with the weightloss and boobs. I am losing weight now, and my boobs are shrinking! I always seem to lose the weight in the wrong spots. My trouble area is my lower body. I have a larger butt, hips, and thighs.

Thank you...one of my "Bob Ross" paintings, :P:lol: I carry all my weight in my legs. The rest of my body is fairly normal but I carry a lot of fat on my legs...they're all dimply. YUCK! :lol:

LOVE your method of voting...it's as good as any other method! :lol:All politicians are alike (at least the ones we've seen so far)...doesn't matter which party they belong to. Might as well have a good looking one. :P

Your appointment sounds encouraging and hopefully your doctor will like Igenix!

Now THAT is a plan! maybe we should apply that to IDIOT doctors too (I still like my doctors BTW but have seem my fair share of eejits too!). If the doctor is evalauted as an eejit, then you have grounds to fire him/her unless they are good looking. Then you can just not listen to anything they say and observe their "good lookingness". as the wise sage Zoolander said, it's all about being "really, really really good looking" until you lose your friends in a freak accidental gasoline fight

:lol: Hum, not sure I can put up with eejits even if they ARE good looking though. :P

Wild about your other family members!

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      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
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      Awaiting dermatitis herpetiformis confirmation following biopsy

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me...
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      how much gluten do I need to eat before blood tests?

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      how much gluten do I need to eat before blood tests?

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    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      how much gluten do I need to eat before blood tests?

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for...
    5. catnapt
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      how much gluten do I need to eat before blood tests?

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    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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