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Rachel--24

Omg...i Might Be On To Something

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Remember Donna got tagged with Fibro even though they knew it wasn't that.

Any Dr. who ever tries to tag me...or pin me....or label me with any of those things is getting punched....thats all I gotta say. B)

I just dont even wanna hear it....no matter if they consider it a symptom...or a syndrome....just dont even go there with me.

I understand what Patti's Dr. is saying....and what Dr. S. is saying in Donna's case....as long as they're still looking for the cause is all that really matters. :)

However, In *most* cases these "syndromes" are NOT treated as symptoms...they are treated as a disease (as Carla pointed out)...and they are treated with pain meds or other prescription drugs.

Andrea...that teenager I told you about...she's seeing the BEST Dr.'s from STANFORD (insert rolly eyes here)....and guess what??....shes totally crippled with arthritis, brainfog, digestive problems, etc.

What do they do for her??? They give her drugs...to try to mask the symptoms. What do they tell her is wrong with her??.....Fibromyalgia....she's stuck with it...at 16!! :blink:

And yeah...they *accept* this diagnosis.

Oh...and they did ask about Lyme....the brilliant Dr.'s at Stanford said "NOPE.....not Lyme....Fibromyalgia". :rolleyes:

My Dr. (Dr. S.) said that Stanford NEVER diagnoses Lyme....NEVER. He said in most cases these guys (mainstream Docs) arent ordering tests from Igenix (we know that).....and even when they DO see a positive test....they dismiss it.....because they dont believe it. Sooo....these people end up with Fibro diagnosis....instead of getting treated for Lyme. :(

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Laura-

thanks for checking in- I miss hearing from you!!!

Bev-

Thanks for the update. I am so happy youa re getting treatment and it seems like good treatment!!

Andrea-

sorry to hear T is having a rough time

Today I had an appt at my health center. I am feeling really worn out. I have been trying to get in touch with my docotr but I missed his call and than when i called back he was gone. I canceled my abdominal massage appt. for tomorrow becasue I feel really exhausted and the idea of anyone even touching my stomach sounds more like torture than a treat. I am just feeling really down and frustrated. I think I need to just get into bed with a castor oil pack and my hot water bottle. I hate going to bed so depressed but It hink its the best thing.

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Sheesh, and I felt guilty eating a WHOLE banana today. :P:lol:

I dont feel too guilty about it....its behind me now...cant change it....might as well just savor the memory. :D

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Ok, here's the updated list with Bev added.

Rachel Rhonda Mia Carla Laura Charlie Donna Bev

18 kDa '- '- '+ '+ '- '- '- '+

22 kDa '- '- '- '- '- '- '- '-

**23-25 kDa '- '- 'IND '+ '- '+++ '+ 'IND

28 kDa '- '- '- '+ '- '- '- '-

30 kDa '+ '- '++ '+ '++ '- '- '+

**31 kDa '- 'IND 'IND '+++ '- '++ '+++ 'IND

**34 kDa 'IND 'IND IND 'IND '- IND '- 'IND

**39 kDa 'IND 'IND 'IND 'IND IND IND '- '+

**41 kDa '++ '+ '+++ '+++ '+ '+++ '++ ++

45 kDa '- '- '+ '- '- '+ '- '-

58 kDa '+ '+ '++ '+ '+ '+ '+ '++

66 kDa '+ '- '- '- '- '+ '- '+

73 kDa '- '- '- '- '- '- '- '-

**83-93 kDa '- '- 'IND '++ '- IND '- '+

I need to figure out a way to make this more readable......

So these are just the IgG results right...I'm trying to make a spreadsheet too. :P

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One hint of motherly advice----sleep. Even though I've been doing better lately, I'm getting in bed many nights early....asleep by 9.....getting up at 7 or after. I feel kind of pathetic some days doing that, but I need the sleep and its helping. So don't feel bad about it, or naps, etc.

Thanks Laura....I'm not doing so good with resting my body. :ph34r:

Definately something I need to put more focus on. ;)

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Today I had an appt at my health center. I am feeling really worn out. I have been trying to get in touch with my docotr but I missed his call and than when i called back he was gone. I canceled my abdominal massage appt. for tomorrow becasue I feel really exhausted and the idea of anyone even touching my stomach sounds more like torture than a treat. I am just feeling really down and frustrated. I think I need to just get into bed with a castor oil pack and my hot water bottle. I hate going to bed so depressed but It hink its the best thing.

Aw Mia, I'm so sorry! However, getting in bed with a hot water bottle doesn't sound half bad. I'm so sorry you had to cancel that appointment!

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IBS

I- i don't know whats wrong-

B- but I am a doctor

S- so I am going to tell you you have this and you'll believe me

:lol:

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I am just feeling really down and frustrated. I think I need to just get into bed with a castor oil pack and my hot water bottle. I hate going to bed so depressed but It hink its the best thing.

Miamia....

Just settle in....relax....get the castor oil pack...think positive thoughts....read something funny or just think good thoughts about your upcomimg appt. Everythings gonna be ok...tomorrow is a new day. :)

Get some rest....think of all the Rinne Bars we're all gonna eat once we get better. :D

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Wow there was a lot of ice cream talk a couple pages back.

I haven't had real ice cream in at least 2 1/2 yrs. And for a long while a good buddy was manager of the Ben & Jerry's a block away! I left a lotta free ice cream on the table there.

I might have to scroll past ice cream talk as quickly as I do the occasional womanly issue here! LOL

Well, I *did* sometimes have the fruit-sweetened varieties of SoyDelicious fake stuff, which really wasn't bad.

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Makes me wonder if before xrays they'd call a slightly fractured arm Painful Arm Syndrome.

Seems some doctors figure they can give it a name and shout "NEXT!".

:lol: slightly redolent of Soup Nazi!

I think I want Rinne Bars instead. Rinne send me 50 please. :P

:lol: Yes Rinne, 50 here also, and 50 more of the Much Ado about Nothing Bars. ;) (Donna you are a silly goose!)

One pint is still my limit ... a pint of Haagen Dazs, my favorite ... well, a pint of raspberry/chocolate chip by Graeters is a favorite, too. Graeters is a local chain ... the chocolate chips stay soft in the ice cream ... don't know how they do that.

OMG soft chocololate chips in the ice cream......*sigh* How indeed - I am envious -

on the topic of ice cream, must mention my favorite - - Double Rainbow French Vanilla. OMG - - - very soft and creamy and nice and moist, excellent smooshing qualities, I like it better than Haagen Dazs. I eat some every night, and manage to actually do something in between a Carla, and a Rachel. :P

Hi Laura! Nice to see you. You are so right about sleep - - it is just so restorative and so important on many levels. Rachel, you must get more SLEEP!! Anywho, as to your inquiry on the job hunt....well. I had a complete and total sobbing meltdown in the parking lot of the grocery store today, one more thing happened that broke the camel's back THIS week.....you guys don't even WANT to know about my day, trust me. :( Sat there weeping heavily for 5 minutes....and then my best friend called, and I said, through weepy sobs, I think I have found us a job......and I started telling her about it (the job actually exists and they want pairs of people to apply, but I was just kidding) and we laughed, choking laughter that prohibits words, for about six solid minutes.......I was laughing and crying all at once, the kidn of laughter that even prohibits sound from emerging at times......there was a man looking at me, like this -----> :huh: as my car door was open and leg propped up, and I think he might have even wondered for a second if he should call for help, which made me laugh even harder......so then I went shopping at pretty much the hugest and most heinously overwhelming grocery store I have ever been to (Winco Foods, and I was a virgin until today - uh, shopping there, that is) and I had mascara smeared, just a tiny bit, under my eyes, and had the look of a hollowed out ghost, and yet needed food.....

the horror....

the injustice...

THE TRUE HEINOSITY OF IT ALL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :(

Today was a day I just wanted to collapse and be taken care of. And that's exactly what I"m going to do now......only there's just the little weasel dog to care for me....she is terribly worried as I have cried much today, so she will hold my hand.

Yes, it comes in a box so it's not real obvious to the whole store what you're buying ... it's near the other unmentionables ... pregnancy tests, condoms, etc.

Oh great...I NEVER go down that aisle. :P

:lol::lol::lol: Yup, me neither

My Dr. (Dr. S.) said that Stanford NEVER diagnoses Lyme....NEVER. He said in most cases these guys (mainstream Docs) arent ordering tests from Igenix (we know that).....and even when they DO see a positive test....they dismiss it.....because they dont believe it. Sooo....these people end up with Fibro diagnosis....instead of getting treated for Lyme. :(

unspeakably heinous. Perhpas we should start a letter campaign? a barrage from Lymies and Lyme lovers.

IBS

I- i don't know whats wrong-

B- but I am a doctor

S- so I am going to tell you you have this and you'll believe me

oh my gaaaaaaaaaaaaaaaaaaaaaawd, did you make this up, you clevah girl???? :lol:

Wow there was a lot of ice cream talk a couple pages back.

I haven't had real ice cream in at least 2 1/2 yrs. And for a long while a good buddy was manager of the Ben & Jerry's a block away! I left a lotta free ice cream on the table there.

I might have to scroll past ice cream talk as quickly as I do the occasional womanly issue here! LOL

Well, I *did* sometimes have the fruit-sweetened varieties of SoyDelicious fake stuff, which really wasn't bad.

You are quite funny, tom murph. Always nice to have a bit of testosterone around to provide another view, ya know.

Andrea - - mean grandma! Next time, you must hang up on her. Harrumph. Well, I know you are too kind for that, but sheesh. poor Talitha.

I am truly spent, adn I dingo'd everything else.

I am so tired, I have some slight job plans but I have endured a headache and neckache all day that might actually kill a lesser human, or at least a small farm animal. :huh: I am going to bed in minutes. (yes, I do lean to the dramatic side when not feeling well :lol:)

BEV - -- - so excited about your appointment and treatment.

love to all and pink kissy faces here.

xoxo

p.s. pages and pages and pages ago, Jin said "well LA DEE FRICKIN DA" which about made me spit out my juice, and I believe it was the late great Chris Farley who first said it...

Oh, Colin Firth for President, Matthew for VP - - or it could be Dr. McDreamy for either.....

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Start TODAY keeping a journal. You can even do it on an excel spreadsheet. I put the date, and then what my day was like. I include everything I take/time frame. I also describe symptoms, if any, etc. It has helped me tremendously to track how things are going..differentiate from a bad day and a good day, and a bad day and a flare day, etc. If you'd like, I'll send you mine so you can see it. Its really really helpful for me. At first, it was a pain---now, its worth it!

That sounds like a really good thing to do.

Hope you feel better in the morning.

Love and hugs. :wub:

Sheesh, and I felt guilty eating a WHOLE banana today. :P:lol:

See how good you did! :P

Or "Much Ado about Nothing Bar"

:lol::lol:

Yup....I'm definately going to bed very soon....I dont think I'll make it much longer even if I tried.

That means if I see you've been on late tonight you're in trouble. :P:lol:

He said in most cases these guys (mainstream Docs) arent ordering tests from Igenix (we know that).....and even when they DO see a positive test....they dismiss it.....because they dont believe it. Sooo....these people end up with Fibro diagnosis....instead of getting treated for Lyme. :(

That is so sad. :( :( :(

I canceled my abdominal massage appt. for tomorrow becasue I feel really exhausted and the idea of anyone even touching my stomach sounds more like torture than a treat.

Sorry you missed the doctor. I hope you feel better tomorrow. I'm here if you need an ear. Try to look forward to the appointment next month and work on getting your rest in the meantime.

So these are just the IgG results right...I'm trying to make a spreadsheet too. :P

Actually they are whatever showed the highest mark (either IgG or IgM).

I was separating them out to begin with but I started combining them to save space.

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IBS

I- i don't know whats wrong-

B- but I am a doctor

S- so I am going to tell you you have this and you'll believe me

:lol::lol::lol:

I might have to scroll past ice cream talk as quickly as I do the occasional womanly issue here! LOL

:lol::lol::lol:

.....you guys don't even WANT to know about my day, trust me. :(

Yes, I do.....pm me when you feel up to it. :)

Get thyself to bed with your ice cream (so proud of you for not Racheling it) and your little Annie to take care of you.

Hope your headache is gone by morning.

:wub:

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jenny,

do you have health insurance? if you do, you should be able to do a number of tests through a standard doctor... you can have your blood tested for vitamin levels, hormone levels, serotonin, etc. as well as thyroid testing... you may find some levels that could benefit from supplementation and improve to some extent upon boosting any deficient levels...

there's other simple tests you can do that might benefit you for the time being like the candida spit test and a ph test using ph strips... I haven't done either test so I can't vouch for them but it's something that you could check out and won't cost you money...

and as you've been doing, you can see improvement in symptoms without necessarily directly treating an underlying condition... this is what I was doing for the past 15 months until I finally got a diagnosis of lyme disease through a positive blood test with Igenex last month... I saw improvement in a number of areas through dieting, taking supplements, a mostly regular sleep schedule, and exercise and physical activity the past few months as I was again able to do so... so continuing along the same lines of what you're doing now might be your best option while saving up money to do some further testing...

at this point, I would recommend doing no further food intolerance testing because I think your food intolerances (for the most part at least) are likely the result of a compromised system from some unidentified root cause(s)... I'd be inclined to think for a couple reasons (cost, accessibility, diagnostic efficacy, and likelihood to play a part in your situation) that the Igenex IGG and IGM Western Blots would be the best test to run when you get the money... the cost would be $190 though you might also have to pay out of pocket for a doctor depending on what doctor you are able to get to authorize and draw the blood for the testing...

it might also be beneficial for you to do a general parasite test and these are relatively cheap (if I recall right, I don't think you'd be paying more than $150 and it might be less than that)... you can get a candida test done along with most parasite tests as well.. I did these tests through a nutritionist who used a couple labs for the tests..

in regards to lyme disease and ticks, I don't even remember getting bit by a tick (except for once as a kid)... seems to be the case for a respectable percentage of people who test positive for lyme...

and as for not being able to take vitamins now, it might just be that the ones you've tried aren't as hypoallergenic as some others... some of the better vitamins might cost a bit more but won't have a lot of the filler ingredients and additives in other vitamins... I was hit or miss with different vitamins last year as I was trying to find ones my body agreed with and I seem to do good with the brand "Pure"... don't know what brands are sold at stores in your area...

oh, and carla, thanks for breaking up her post... I also have trouble reading posts that aren't broken up into small paragraphs...

Oh, it is tricky to be away from this thread: it grows sooo fast.

Thanks for your suggestions. I'll print the post out so I'll remember them.

We owe like $1700 in bills already, so I am not wanting to see any doctors for now. I need to find a doctor though. This last week I have been bad. I had that salad one week ago and I have had stomach aches every day since. Slowly getting better. Nasty heartburn. Bloating almost all the time.

I pretty much feel I can't eat anything and my stomach gets unhappy. The last week I have been eating very little: just some fresh spinach, ham, chicken, Very Berry bars and bananas. Some water melon. This is what I eat every day. It is terrible. I almost cry when I see people being able to eat regular food. My stomach hates so much and then add on the allergies. AAAAAAAAAAAAAAAAAaaaaaaaaaaaaa!!!!!!!! (sorry)

I feel like everything around me has legumes, dairy or gluten...not much left after that. I am allergic to most fruits and some of the veggies give me bad stomach ache from gas. Sigh. Eating and food is no fun. I am so limited it isn't even funny. My brain can't deal with it.

I did well this spring really. Things felt better, I wasn't as tired as I was before christmas. Not at all.

I doubt I have Lyme disease (would that give heart burn and stomach ache? I don't seem to have the symptoms that I have read it should have online...but who knows.) or Candida. I eat like no sugar, so I dunno how the candida would have grown..

I dunno.. I have been staring to doubt the EnteroLab tests, although I have goten TONS better not eating gluten and dairy and it hasn't been more than 6 months or so.

I try to keep a diary on what I eat, but I react to the strangest things some times. And I can eat one thing and do well on it one day and get sick feeling on the same thing the next. I hate not being able to eat more than like 5 things. It is making me angry. It's like my stomach isn't made to eat food or something.

I hate seeing doctors too. They never believe me. I have had several of them telling me the stupidest things. >:oC

On the bright side one of my co-workers sees a good homeopathic/naturpath doctor that takes insurance (not sure if they take mine). I should go and see him. I guess he is very open minded...but I have heard that before.

Our insurance isn't very good and we make very little money for now. It will get better, but we have those bills sitting...so I am trying to just wait for a while.

I have tried a couple of different vitamins. Kirkman Labs allergy friendly ones were the last ones I tried.. They do not make me sick but I get blood sugar drops like crazy several times a day when I take vitamins since my stomach got bad. I start shaking and I feel I more or less have to eat constantly so I gave that up for now. I am sure I should eat some type of vitamin though.

I asked about checking my vitamin levels at the doctors office I have gone to. They aren't good with stomachs by the way. They just told me it was really expensive to have that done and that if something is wrong it will show up on regular blood work. I was in the middle of some other health issues, what I pay for now with those bills, so I let it rest for now. I should go to another doctor for the stomach stuff anyways.

Sorry about my angry thread. I am just having one of those days when things feel really hard dealing with this.

My stomach feels like it has been digesting glass off and on this past week... Grr..

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.....

I think it's one thing to be told you have IBS and sent on your way, and another when the term is used more to describe a symptom. I mean, there's no doubt that my bowel is irritible.

That's exactly it.

....

Rinne---i'm so happy you are a regular again. Its so good to read about the rinne bars :)

...

And it is wonderful to find you here. :wub: I hope you can get some rest.

...."Much Ado about Nothing Bar"

:lol:

....

Today I had an appt at my health center. I am feeling really worn out. I have been trying to get in touch with my docotr but I missed his call and than when i called back he was gone. I canceled my abdominal massage appt. for tomorrow becasue I feel really exhausted and the idea of anyone even touching my stomach sounds more like torture than a treat. I am just feeling really down and frustrated. I think I need to just get into bed with a castor oil pack and my hot water bottle. I hate going to bed so depressed but It hink its the best thing.

Sorry it was such a hard day, I hope getting to bed with hot water bottle and castor oil pack helps.

Thanks Laura....I'm not doing so good with resting my body. :ph34r:

Definately something I need to put more focus on. ;)

GO TO BED :P:lol:

.....

Sorry about my angry thread. I am just having one of those days when things feel really hard dealing with this.

My stomach feels like it has been digesting glass off and on this past week... Grr..

No need to apologize, we all really understand what it is like to have no relief from pain. :( Rant away. :)

I haven't heard anyone else mention digesting glass but that is exactly what I felt like last spring and certain foods really triggered it like quinoa, OMG I felt like I had eaten ground glass. I felt it pass through every part of my system. I felt like I was going insane, I wanted to crawl out of my body and I haven't eaten quinoa since. Metamucil also did the same thing. I know now that grains of any sort are a problem for me.

During that time I ate a diet that would be good for an ulcer patient, no fresh vegetables, no salads - they are harder to digest , nothing with a skin - also harder to digest. I peeled apples and avoided green peas.

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That's exactly it.

No need to apologize, we all really understand what it is like to have no relief from pain. :( Rant away. :)

I haven't heard anyone else mention digesting glass but that is exactly what I felt like last spring and certain foods really triggered it like quinoa, OMG I felt like I had eaten ground glass. I felt it pass through every part of my system. I felt like I was going insane, I wanted to crawl out of my body and I haven't eaten quinoa since. Metamucil also did the same thing. I know now that grains of any sort are a problem for me.

During that time I ate a diet that would be good for an ulcer patient, no fresh vegetables, no salads - they are harder to digest , nothing with a skin - also harder to digest. I peeled apples and avoided green peas.

:)

I have been wondering if it could be an ulcer...or a gall stone that I passed. I have some thick stuff in my gall bladder according to an ultrasound a couple of years back. It's in my family. I had pain like this another time and blood tests showed nothing..and then the Celiac possibility came up so I was thinking it wasn't a gall stone, just the Celiac making it hurt. I have had these time periods before when I have had pain for a couple of weeks. I assumed it was the Celiac.

I am jealous of people that feel well. That can eat chocolate, ice creme and potato chips, candy and hot dog with a bun...Of people that can travel with no worries of getting sick from food, that can go to restaurants...

Anyways...I really should go to that doctor and get some tests done. I wish I could go see one of them cutting edge doctors and just step in to his/her office and get taken care of. hehe Knowing they will find what it is and help make it better. ;)

Anyone besides me scared of trying new foods? I hate getting sick, so I dread trying new stuff because of it.

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carla and rachel.

They say you are suppose to feel a squirt of bile come from your liver or the coffee isn't strong enough. I called my naturopath and she doesnt want me doing the enyma because she said that it will take my energy away? I am going to do it anyway but she said if I do, don't do it to strong to dilute it and make it weak at first and see how I do. SHe also said about getting organic coffee. I think that the girl knows her stuff. I have been taking the whey protein about one fourth teaspoon a day., not to much though. Its been o.k. some discharge with it. Not like last time 2 scoops, that was too much for me. I yelled at my mother and father today. They are divorced. Finally talked to my dad. He doesn't believe me about the illness. He thinks its in my head. I told him that yeah, and maybe diabetes and sleep apnea are all in his head. He got quiet and after that wanted the number to the dentist, he says the guy who wants all the money to talk to him about arrangement. THe problem is my dad has money. He is just tight with it and would rather spend it on my stepbrothers and sister. I told my mom if I don't get these teeth out I will stay sick and probably die. I told her to take out a loan. she said her husband which is my age wont like that idea. I told her she is a hypocrite just like my dad. WHO CARES WHAT HER HUSBAND THINKS. I told her I hate living here with them. She says she doent feel comfortable in her own house because of thing that bother me, like food and chemicals she has to sacrifice. People I am so depressed and stressed. Sorry I need to vent today. They don't really help much or research. They just watch me get sicker and I am tired of it. Somedays it's just to much. \

:( lisa

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I feel like I am digesting glass all the time all the time. But I think maybe it is the whole flaxseed I have been drinking. NO more for me. My intestines may be to inflammed for that right now

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I know why though...it was because I ate 3/4 of a bag of my moldy sunflower seeds last night. :ph34r:

I had only planned on eating like 2 or 3....but yeah I cant "Carla" anything.....I racheled it. I think instead of eating only 2 seeds...I ate all but 2. :rolleyes:

Do you grow them or buy them? I have had a hard time finding non-cross/contaminated ones.

I was told www.sunbutter.com is an okay place, but they have soynuts in their stuff... I e-mailed them but haven't heard back. I am desperate for sun flowers seeds. ;):blink:

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I have been eating very little: just some fresh spinach, ham, chicken, Very Berry bars and bananas. Some water melon.

Mmmmmmmm ham. I haven't had ham or bananas or watermelon etc for ~2yrs.

A banana is one of the sweetest fruits there is. And all melons are off-limits if u think u have candida. The first fruits to reintroduce are apples pears and some berries. (Wish I remembered which)

One thing that worked great for me was almond butter. The single ingred kind. Whole Foods house brand (365) is great. (Also less expensive than any other I've seen) Used to mainly just eat it straight from the jar or sometimes on quinoa flatbread I made (crepe-thin). There's gotta be SOME kind of goofy flour u could use. ;)

Now I often put it on apple slices too.

Have u tested avocado? Mmmm I've come to love those!

Also, I'm curious what was in the salad that caused so much trouble. Wondering if maybe it was more the dressing's fault?

And Jenny I can totally relate to the "It's like my stomach isn't made to eat food or something."

I used to say it's like I'm allergic to digestion when every damn thing eaten has a reaction.

And no offense but u claim to not be having much sugar and I must disagree w/ bananas and watermelon and berry bars which I'm *sure* are sweetened. A banana might be as sweet as a teaspoon of table sugar.

It's hard but u can eat w/out sweeteners.

And hey! I forgot Alaska! I've been there plenty! My brothers have lived in Anch, Palmer, Wasilla, the Kenai, Valdez, Juneau, Yakutat . . Hmmmm is that it?

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If you guys can make shorter paragraphs ... say three lines ... that would make it easier for me to read. I know some of the other Lymies have the same problem. I just can't go from line to line, so I end up skipping the long paragraphs. Thanks. :rolleyes:

The posts don't need to be shorter ... just broken up more.

Carla....julie will like her ;)

Oh, I'll use the new Rachelville phrase ... La di frickin da! :lol: ... or is that too sarcastic? :P

I doubt I have Lyme disease (would that give heart burn and stomach ache?

I can read the first couple lines of a paragraph! Yes, I have a lot of stomach trouble including heartburn, from the Lyme Disease. That's why I ended up searching for answers on celiac.com. ;)

Most of the time I've had flare ups, it's been primarily GI issues along with fatigue. More recently I did develop more Lyme-like symptoms ... but for 30 years it was fatigue and GI issues during a flare.

I don't know that you have it, but don't dismiss it. You need a thorough doctor who will test you for everything.

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Mmmmmmmm ham. I haven't had ham or bananas or watermelon etc for ~2yrs.

A banana is one of the sweetest fruits there is. And all melons are off-limits if u think u have candida. The first fruits to reintroduce are apples pears and some berries. (Wish I remembered which)

One thing that worked great for me was almond butter. The single ingred kind. Whole Foods house brand (365) is great. (Also less expensive than any other I've seen) Used to mainly just eat it straight from the jar or sometimes on quinoa flatbread I made (crepe-thin). There's gotta be SOME kind of goofy flour u could use. ;)

Now I often put it on apple slices too.

Have u tested avocado? Mmmm i ve come to love those!

Also, I'm curious what was in the salad that caused so much trouble. Wondering if maybe it was more the dressing's fault?

That is true: banana is very sweet. Didn't think of that.

I am allergic to apple, pear, peach, cherries, almonds, tree nuts, plums, carrot, strawberries.

Do bad on Kiwi and get really nauseas on avocado (probably the fact that it is oily).

Quinoa makes me nauseas.

:( :(

The salad had fresh organic spinach, red sweet pepper and cucumber. That's it. All I can think of is that I forgot to wash the sweet pepper before I ate it. I have had that stuff a bunch of times before and never felt anything.

I have been eating egg every day for a while before this happened. Maybe that is a reason... I am clueless.

After I ate I felt my stomach starting to hurt and it kinda moved around in there. Hurt at Solar Plexis for a while and on my right side. I had pain for days, but not as strong as the first day. My intestines has been unhappy ever since. I have been drinking Caraphate every day. It is my miracle drink.

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If you guys can make shorter paragraphs ... say three lines ... that would make it easier for me to read. I know some of the other Lymies have the same problem. I just can't go from line to line, so I end up skipping the long paragraphs. Thanks. :rolleyes:

The posts don't need to be shorter ... just broken up more.

Oh, I'll use the new Rachelville phrase ... La di frickin da! :lol: ... or is that too sarcastic? :P

I can read the first couple lines of a paragraph! Yes, I have a lot of stomach trouble including heartburn, from the Lyme Disease. That's why I ended up searching for answers on celiac.com. ;)

Most of the time I've had flare ups, it's been primarily GI issues along with fatigue. More recently I did develop more Lyme-like symptoms ... but for 30 years it was fatigue and GI issues during a flare.

I don't know that you have it, but don't dismiss it. You need a thorough doctor who will test you for everything.

Sure, I'll break it up more. I forgot.

I am not ruling Lyme disease out. I am gonna ask to get tested when I see a doctor.

Strange that the Lyme disease give you heartburn... Things never stop to amaze me when it comes to peoples health and my own, of course.

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People I am so depressed and stressed. Sorry I need to vent today. They don't really help much or research. They just watch me get sicker and I am tired of it. Somedays it's just to much. \

:( lisa

Lisa,

Wow...thats alot to deal with on top of being sick. :(

How frusterating that you're family isnt giving you the support you need. I would feel angry too.

I agree that your health needs should come first. I hope your dad starts taking things seriously and after talking to the dentist hopefully he can be more understanding and helpful.

My mom really has done alot for me and I probably sometimes take it for granted. Her and her hubby took all the chemicals out of the house since I'm now staying with them during the work week. He changed his deoderant....she uses my shampoo, conditioner and soap...the "safe" stuff.

She has a housecleaner and the cleaning lady only uses the chemical-free stuff in this house. I buy it at whole foods and thats all the cleaning lady uses. They've made alot of sacrifices and sometimes my mom will point it out...saying that lots of other moms wouldnt do all this.

Its hard for me to imagine what it would be like if my mom didnt do so much for me....I know everything would be much more difficult for me. It makes me really sad to hear that you're going through all this with your family.

Things are hard enough....you dont need all that extra stress and worry.

My mom didnt take things too seriously the first couple years....it wasnt until I lost alot of weight and wasnt holding down food....I wasnt looking too healthy and one day she just looked at me and kind of "woke up". Ever since then she's been nothing but supportive.

Hopefully your mom wakes up too. Its not easy to go through something like this w/out alot of support. I feel for you....I know I felt when I didnt have all the support I have now....it was scary and lonely.

No matter what happens...you DO have us...we care and we understand. :wub: ..and of course you can vent anytime you feel the need.

We all have those kind of days....which is why this thread has become sort of a second home for alot of us...because I know for me, everyone here helps me get through those bad days. :)

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And Jenny I can totally relate to the "It's like my stomach isn't made to eat food or something."

I used to say it's like I'm allergic to digestion when every damn thing eaten has a reaction.

And no offense but u claim to not be having much sugar and I must disagree w/ bananas and watermelon and berry bars which I'm *sure* are sweetened. A banana might be as sweet as a teaspoon of table sugar.

It's hard but u can eat w/out sweeteners.

And hey! I forgot Alaska! I've been there plenty! My brothers have lived in Anch, Palmer, Wasilla, the Kenai, Valdez, Juneau, Yakutat . . Hmmmm is that it?

Yep, those are little and bigger places up here. :) I live in the biggest town; Anchorage. My husband is born and raised here I am originally from Sweden myself. I have been here for over 5 years now though. Feels like home, most of the time.

So how did you make your stomach like food again? ;)

I wish I could eat other fruits. I am so tired of Banana. :P I wouldn't be able to eat any fruits if I removed bananas and melon from my diet. I tried Raspberries for a while, but they are too sour for now.

Hehe Yes, the berry bars probably are sweetened too. I am eating much more sugar than I thought. :P:blink:

Not sure there will be anything left to eat soon. I'll be eating spinach only..

There is a brand of ham called Hormels Natural. It is gluten free and free of most stuff. I am super sensitive and it works well for me.

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