Omg...i Might Be On To Something

[CarlaB]

Thanks, Donna, looks like I'll be okay.

[tom]

...but AHH!! What about those of us who are crazy busy and don't have time to make "full meals" all the time??

Hi Kassandra,

It is tough. There are only a few things I eat that don't require any prep.

And I see that you can't some of my no-prep foods, like almond butter.

Is hummus ok for you? ~1/4 of the store-bought types are ok for me. No vinegar, no citric acid, canola oil etc etc. Bah canola! What a cheapskate company, not using olive oil! It should be EVOO to taste right!

Brown Rice Tortillas. Smoked Salmon (cold smoked, like lox, so no sugar), avocados w/ red onion & dressed w/ evoo, freshly-squeezed lemon juice & a lil garlic is great. Combining all of the above wrapped in the tortilla, usually also w/ red bell pepper and using the hummus as a spread makes one faaaan-TAS-tik wrap!!! <drool>

My cereal now is a puffed brown rice that really is good! Especially compared w/ the puffed millet <birdfood!!> that I ate for almost 2 yrs.

But my hazelnut milk wouldn't work for you, and I canNOT recommend soy ANYthing to ANYone anymore!!

Freezing chicken dishes works well for me, at least maximizing the one cooking session.

Good Luck!!!!!

[tom]

Good morning lovely ladies and man (Tom)

Hi Julie!!

You've spent so much more time here than I have it seems weird that I don't know u at all.

I only got here in early June.

Hehe "Ladies and man" made me think 'ladies and gent' which led to a laugh from the days of the majority gender of R'ville saying "men don't get to vote" and Donna, LOL , calling me a Suffragent!! (Still lmao Donna - good one!)

So Julie. . .. uhhhh welcome *back* to R'ville?

[AndreaB]

Next step will be to not take any antibiotics one week a month, and see if I can still stay free of symptoms.

Hope all goes well with the week off!

So, it is a drag...but you eventually get used to it and you eat so MUCH healthier. Don't think of it as you losing out on something or missing out...think of it as you getting to a healthier place :-)

Welcome!

Insomnia update ... I woke up at 1:30, didn't get back to sleep till 7! Woke up again at 9. At least I got that valuable 7-9 sleep!

I didn't sleep well last night either but I wasn't awake for that long. I think I got to sleep sometime between 4 and 5.

Sorry about Chloe. Must not be fun going through a cold and a flare.

Jin,

I thought I'd clicked reply to your post. Anyway the pumpkin seed butter is actually pretty good. Tastes vaguely like a mellow version of peanut butter. I forget the brand but it came in a black tub, it's organic and was $17 at Whole Foods. Our Wild Oats doesn't carry it.

[dlp252]

Hehe "Ladies and man" made me think 'ladies and gent' which led to a laugh from the days of the majority gender of R'ville saying "men don't get to vote" and Donna, LOL , calling me a Suffragent!! (Still lmao Donna - good one!)

And, by-the-way, you STILL can't vote! Your days as Suffragent are NOT numbered.

[tom]

And, by-the-way, you STILL can't vote! Your days as Suffragent are NOT numbered.

We Shall Overcome!!!!

And to backtrack a bit, as a decorative toenail aficianado and long-time subscriber to Toenail Ornaments Extraordinaire, I can testify to any and all that Donna's bejeweled tootsies are quite praise-worthy!!!

And Donna, well done recap of the gist of 1400+ pages!

Also . .. ..future roommate John flies back from Chicago today.

Aaaaaaaaaand, <sniff>, I'm so proud of you AND Julie for catching that Johnny Unitas reference!! Even today's greatest QBs are barely comparable. (Uh oh - perhaps an overstatement - Favre's best yrs come to mind)

Saw your pageloading problem mentioned again. . ... . .. .. You need a 'computer guy' and I'm volunteering.

I'll make it run better than ever in ANY program and I think make this pageloading thing go away.

[dlp252]

And to backtrack a bit, as a decorative toenail aficianado and long-time subscriber to Toenail Ornaments Extraordinaire, I can testify to any and all that Donna's bejeweled tootsies are quite praise-worthy!!!

Currently Magenta with even more jewels.

Aaaaaaaaaand, <sniff>, I'm so proud of you AND Julie for catching that Johnny Unitas reference!! Even today's greatest QBs are barely comparable. (Uh oh - perhaps an overstatement - Favre's best yrs come to mind)

I dunno....Joe Montana is a personal favorite of mine.

I'll make it run better than ever in ANY program and I think make this pageloading thing go away.

Why does this scare me?! :lol:

[Green12]

Ok...so preparation for this LED pretty much sucks!

When the treatment involves foods...those foods have to be avoided for 52 hours before...and then for the 25 hour detox period as well. HEINOUS!!!

Since I only eat like 5 or 6 foods to begin with .....and I have to avoid half of them....I'm pretty much gonna starve the next few days!!

Either that or I'm forced to eat bad things.

Its a looooong way till Sat. night.

My mom is gone and I'm on my own through the whole detox period.

Oh Rachel, I am so sorry

I can empathize, reminds me of all the multiple rounds of NAET treatments I went through. All of the foods with the components that were being cleared had to be avoided for 25 hours, needless to say there was not a lot of eating going on 2 or 3 days out of the week. I ate a lot of steamed cauliflower and on occasion unenriched white rice, both basically devoid of nutrients and things that would effect the desensitizing process of NAET.

Good luck, you will be in my thoughts

Hi Jin, thanks for filling me in. I'm sure I missed quite a lot of information sharing and conversation in 7 months Andrea was such a dear, and her mother hen self, to check in with me and give an update on everyone.

Whatever the explanation of parasites, I'm still not going to let them have any power of me

Carla, sorry about the rough night My colon hydrotherapist suggested we use oil of oregano in a tea, like a few drops in hot water, yuk tasting for sure, but good healing stuff. She also applied it topically to the abdomen and then a hot towel and hot water bottle over it during treatment, it would absorb in through the skin and do its thing that way too, just a little something extra hitting those beasties from every angle

Tom, thanks for the welcome back. Yes, Donna has contributed a lot to the Rachelville vocabulary. I got very ill and had to take a break, but I am feeling pretty good now and able to participate.

Ami, glad you had a good first appt with the dentist.

Kassandra, hope you are getting lots of ideas for your restricted diet

Good afternoon to everyone else!

[CarlaB]

Julie, I'm glad to hear you're doing better now ... how are you? You haven't talked much about what you've been doing, how you're feeling, etc.

Thanks for the tips on the oregano oil. It's so wicked, I mix it with some water, about one ounce, and take it like a shot. There's really no way to sip on it. On the stomach sounds like a good idea, too.

I'm not going to let the parasites have power over me either. If you have sushi or other raw fish, you have to eat the wasabi and pickled ginger, both are anti-parasitic.

[tom]

I dunno....Joe Montana is a personal favorite of mine.

Oh yes, undeniably an all-time great!

But I was limiting the comparison to guys who are suiting up for TODAY's practice.

Why does this scare me?! :lol:

Don't be afraid!! We mean u no harm!!

<enter your password and no one gets hurt! I even turn around for that part!!>

I've never bought a 'computer' per se.

~15 yrs ago, bought enough parts to build PC #1, and have been building my own ever since.

Just being a friendly volunteer . . . .to any celiac w/ a PC in arm's reach.

Laptops at the WG coffeehouse are preferred.

[ami27]

I have a new approach. I spoke to the doctor who the dentist referred me to and they want to run some tests to determine the protocol first. After speaking to the nurse she seems to think I'm having thyroid problems, adrenal stress, possibly other hormone issues along with the heavy metal toxicity. So I'm going to see them on Monday to start the testing. I will then go back in three weeks when all test results are back to determine the treatment plan. I feel much better about this approach. She also mentioned that maybe not all of the work the dentist wanted to do would be necessary. She said that nickel would not be of concern once the mercury is out. So they have a dentist there who will to free xrays and exams so I could use their dentist who is also a mercury free dentist. Here's a link to the clinic Open Original Shared Link I haven't had a chance to look over it completely yet, but they seem be very knowledgeable in getting your body back in balance. She sent a list of tests they want to do: fasting chemistry panel, hormone 24 hour urine, adrenal stress 24 hour urine, thyroid panel serum (free t3 & free t4), thyroid antibodies, fibrinogen, highly sensitive c reactive protein, lipoprotein, EKG, heavy metal challenge & fecal heavy metal. I think this is a much better approach than my previous plan. I will know where I stand and the best way to proceed to get healthy. I have more research to do when I get home. I'm off now to take my youngest son to soccer practice. Thanks for all the great advice and information.

Ami

[CarlaB]

Ami, that sounds like a very good approach. It also sounds like you are comfortable with it, which is important as well.

Some updates on me --

I did a peak test for Amoxy to see how much is in my blood an hour after taking it ... they increased my dosage significantly.

This all seems to be working ... I'd say I'm 80%, my intestines are doing much, much better on these herbs/probiotics for the dysbiosis, and I only drop down to 50% during a herx. That's a far cry from where I was in January.

Today I was just noticing that I feel like I'm becoming more lucid ... if that makes sense. I am just now understanding all I've been through the past four years with my health. Not that I didn't know what was happening, but I had just been going through the motions ... now I see it more clearly, I think more clearly. I don't know that it's possible to say this and make sense. My brain seems to have come home.

Also, I got a prescription for Ambien today ... hopefully, Adam and I will both be able to get some sleep tonight! My insomnia keeps him up, too.

My next appt. with the Dr. (not the PA) is Sept. 11 in person.

[AndreaB]

I have a new approach. I spoke to the doctor who the dentist referred me to and they want to run some tests to determine the protocol first. After speaking to the nurse she seems to think I'm having thyroid problems, adrenal stress, possibly other hormone issues along with the heavy metal toxicity. So I'm going to see them on Monday to start the testing. I will then go back in three weeks when all test results are back to determine the treatment plan.

Ami, I like the sounds of this. I'll be waiting to hear how it goes on Monday.

This all seems to be working ... I'd say I'm 80%, my intestines are doing much, much better on these herbs/probiotics for the dysbiosis, and I only drop down to 50% during a herx. That's a far cry from where I was in January.

That's great news Carla! Can't wait to hear about the doctors appointment next month. That'll be here before you know it!

[Rachel--24]

Oh Rachel, I am so sorry

I can empathize, reminds me of all the multiple rounds of NAET treatments I went through. All of the foods with the components that were being cleared had to be avoided for 25 hours, needless to say there was not a lot of eating going on 2 or 3 days out of the week. I ate a lot of steamed cauliflower and on occasion unenriched white rice, both basically devoid of nutrients and things that would effect the desensitizing process of NAET.

Good luck, you will be in my thoughts

Thanks Julie.

Its actually worked out pretty well. I seem to be eating plenty of stuff.

I'm eating pumpkin seeds ...which I used to eat tons of 2 years ago...I normally cant eat them anymore because they seem too moldy. This time I bought some that are still in the shell and lightly roasted and I'm not noticing any moldiness.

Also eating tons of figs. Antiparastic but definately not antifungal....anyways...I'm not having problems so far.

Got some turkey and some lamb...ate some goat cheese...I can still eat my peas and potatoes. I've been eating some kind of flaxseed garlic cracker type thingy. I got some goat milk. I think I might actually survive the next 2 days.

I've also been taking garlic again. I havent done well with it in the past....major head symptoms. Now I've got my toxin binders and that seems to do the trick. I also dont chew it much in my mouth cuz that seems to cause more symptoms....instead I chop it up...barely chew it...and swallow it down with water. Still taking my GSE as well.

Not that anyone really wants to know this but I'm expelling the worms and things.

I think thats pretty much the main culprit for my chronic C problems. I think they've been setting up road blocks.

Yeah...I do remember that with NAET you have to avoid the things you were treated for. I never had to do anything like that with BioSET. Its not too much fun.

LED isnt so much about desensitization though....its more of a detox thing but the Dr. did say there is one aspect of it that is similar to what they do with BioSET. I'm assuming that as well as getting the body to detox this stuff....they are also trying to "reset" the immune system to not respond abnormally to the substances that are being treated.

There isnt much info. about that part of LED in any of the reading I've done.

OK....In less than 24 hours I have racheled 3 bags of figs!! I'm leaving in a few minutes to get more.

Sherry...good to hear from you!! Great news that the symtpoms are subsiding and good luck with the milk...I'll keep my fingers crossed for you!

Ami,

I like you're new plan! Sounds like a good approach and I'm all for getting as much testing as possible.

Dont forget about the gut and the infections though. Mercury goes hand-in-hand with the infections...especially in the GI tract....and those infections go hand-in-hand with food intolerance. These are the things that really put a heavy burden on your system and they're a big part of the adrenal fatigue so many people suffer from.

Dont know if I've posted this here yet or not (see what happens when I post on more than one board )....so this might be a repeat.

"A Few Words on the GI Tract"

It is imperative to understand that the reservoir for many of these co-infections is the gastrointestinal (GI) tract. It typically contains eight to twelve pounds of living organisms. Many of these in the chronic Lyme patient are parasites and abnormal bacteria, fungi, viruses and mycoplasmas, which set up housekeeping in the gut and spread from there periodically to the other tissues.

In terms of sheer numbers, the GI tract is home to 100,000 billion microorganisms at any one point in time. Considering that the average person has approximately 10,000 billion mammalian cells in their body, one could say there are 10 times more of

[Rachel--24]

My computer is having the same funky page loading problem as Donna....AGAIN....so yeah...I'm not able to catch up on all posts.

Carla...good news! Glad you are making progress....now if only you and Donna could get some sleep!

[tom]

Today I was just noticing that I feel like I'm becoming more lucid ... if that makes sense. I am just now understanding all I've been through the past four years with my health. Not that I didn't know what was happening, but I had just been going through the motions ... now I see it more clearly, I think more clearly. I don't know that it's possible to say this and make sense. My brain seems to have come home.

Hmmmmm who *does* that remind me of?? . . . . . . . .

It IS possible to say what u said and make sense.

I

Am

SO

Very

Happy

For

You

:)

I'm on my way to the Whole Foods celiac/gluten-free meeting. It's been on hiatus most of the summer.

I have no idea what the topic is, or who the speaker might be - I just want to meet more celiacs!!!

[Rachel--24]

Ok...more interesting worm stuff.

Did I post this here already?? Sheeesh...I dunno....I'm lost. Maybe I should just stay in Rachelville.

Oh...I "borrowed" this from LymeNET. It's from Dr. Klinghardts experiences re: parasites..

Probably the most overlooked area in medicine is the worms in people. That

[Rachel--24]

This article explains it all so well that I think I might print it....and just give it to people instead of always trying to explain to people exactly all thats going on with me.

---------------------------------------------------------------------------------------------

Mercury & Related Issues - The Domino Effect

According to Dr. Bruce Shelton, MD (H), Di.Hom, director of the Allergy Center in Phoenix, Arizona, "Mercury amalgams are as close as you can get to the center of the illness universe, their use in dentistry has set us up for most of the health problems we see today."

In his practice, Dr. Shelton frequently observes a domino effect of illness that begins with mercury toxicity.

He reports that 90% of his patients who come in with allergies have an over-growth of the yeast-like fungus, Candida Albicans. This overgrowth can be due to heavy metals in the body, principally from mercury in the teeth, continually draining in minute amounts into body tissues."

"The next stage" he says of the domino effect, "is that patients in this predicament typically develop leaky gut syndrome. If we do not totally digest and absorb our foods before they are broken to basic chemicals, then we have a 'leaky gut.'

[AndreaB]

Wow Rachel! Thanks for the posts.....duly copied over.

That's great that you are able to eat more! Can't wait until you're back on Saturday night/Sunday.....I know you'll still be on through tomorrow before your appointment.....just looking ahead.

I go up to Bellevue again on Monday so I can give Amy an update if I see her. Maybe I can find out if she knows when she's coming down next.

[Rachel--24]

I go up to Bellevue again on Monday so I can give Amy an update if I see her. Maybe I can find out if she knows when she's coming down next.

It looks like she's coming around the 15th but its not set in stone yet. They havent mailed out the letters yet...they wont start scheduling until the letters are mailed out. I called about it today.

I'm also scheduled to see Anna on Tuesday.

I WAS scheduled with Dr. S next Friday but they wanted me to switch to either early tomorrow or next Wednesday. None of these are doable for me cuz of work and LED....I was gonna have to cancel my appt. with him anyway. So I wont be seeing him until later on...after LED treatments...I'm gonna work with this Dr. for awhile...since he's doing Kinesiology/LED.

[Green12]

Today I was just noticing that I feel like I'm becoming more lucid ... if that makes sense. I am just now understanding all I've been through the past four years with my health. Not that I didn't know what was happening, but I had just been going through the motions ... now I see it more clearly, I think more clearly. I don't know that it's possible to say this and make sense. My brain seems to have come home.

Carla, it makes perfect sense, it's like the clouds are parting (my favorite phrase) and everything is just clear, like looking at the world through a new pair of glasses. I'm very happy for you I hope you and Adam get some sleep tonight!

I'm doing much better, thanks for asking. My angioedema outbreaks got really bad and I developed anaphylaxis along with them. I literally felt like I was on death's door. They would really knock me down and kept me from functioning, I was in very bad shape. I couldn't take anything for them, I wasn't responding to anything, it was a nightmare. I haven't had a breakout in the last 5 or so weeks and that is a miracle.

I've been working with my acupuncturist with weekly treatments and I'm taking Chinese herbs and a few other supplements like probiotics black walnut/wormwood combo, but I am trying to focus on getting a lot of things from my foods, and yoga and meditation, things that balance.

The clouds have definitely parted for me and I am feeling great for the first time in a very long time

Oh, and I am completely off casein now, HUGE difference it has made in my life.

Rachel, I am so thrilled to hear you are able to eat more things. You've come a long way. Figs, my favorite.

Thanks for all of the information you posted, intersting stuff and such a part of the overall picture of chronic illness, another piece of the puzzle.

Details about the cute guy? You remember my fascination with the hotties?!?!?!

Ami, I agree that sounds like the perfect approach. Good luck with next Mon, and do keep us posted.

[AndreaB]

So I wont be seeing him until later on...after LED treatments...I'm gonna work with this Dr. for awhile...since he's doing Kinesiology/LED.

I'll be waiting for further updates. This is just all so exciting that so many are starting to see improvements.

The clouds have definitely parted for me and I am feeling great for the first time in a very long time

I'm so, so happy for you! I'm also happy to be back in more regular correspondence.

Casein......bad stuff for lots and lots of people. I won't go back to it either......even though cheese is awfully good......it's awfully bad to eat (IMO).

I don't remember if you can eat coconut but there is a frozen treat (don't know if it's outside of OR/WA yet) that is called Coconut Bliss. YUMMY!!!! Whole Food up in Seattle WA area carries it but I don't know if the whole chain does or not. We found it at a health food store near us.

[CarlaB]

Yeah, I'm with ya', Julie, totally dingoed everything when the talk changed to cute guys, or cut guys, as you said.

Thanks for the well-wishes. Tom, it does sound like you described on your soy-free diet. I've been feeling so good lately, I thought I'd share. I'm actually feeling the best I've felt in years ... I still say 80% because I know it will be better than this.

I still have a lot of off and on joint pain and some muscle aches in my back. That doesn't even bother me ... the fact that my brain is here on most days and that the crushing fatigue has lifted is so much more important than the aches and pains.

Rachel, very interesting stuff. Especially the information on what's living in our digestive tracts. When I was on Cipro, I REALLY started to get better. I hated to get off it! It was killing the bad bugs in my GI tract (plus it kills borrelia). The herbs are starting to work now, but it took them a few weeks. Obviously the gut has been key for me.

The one odd thing is, when I removed my amalgams and chelated years ago, my Lyme went into remission. That's odd because it's the opposite of what your quote said. I guess everyone is different.

Well, off to see how the Ambien works.

[Green12]

Yeah, I'm with ya', Julie, totally dingoed everything when the talk changed to cute guys, or cut guys, as you said.

OMG! That really was a typo...must go back and fix..........

Glad you are at 80%

Andrea, thanks . I'll have to look for that Coconut Bliss, what is it a bar of some kind? Do you know the ingredients by chance?

[CarlaB]

Glad you are at 80%

I'm glad you're feeling better, too. Next week will be a different story ... herx time.

I think your typo was a Freudian slip. Cut, cute guys are great.