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Omg...i Might Be On To Something


Rachel--24

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confusedks Enthusiast

One other thing, does anyone know why I would have really dark brown, almost black stools? :huh: I have been really bloated (even while I was on my crazy, strict diet) and I noticed my stools have been REALLY dark brown. What is going on NOW??

Kassandra


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mftnchn Explorer

Kassandra,

My husband had a motorcycle in the early 90's and has a titanium hip. He has had another repair on it as well as the first repair didn't take too well (too much damage in the hip bone). The bone grew very well into the titanium from the first on the leg portion, and the second time, the hip bone grew well into it as well. He hasn't had any problems from the titanium, and it has kept him active with only a few limitations.

Of course our first choice would have been not to have needed this! ;) Your situation sounds very serious and severe. I hope you'll find the wisdom you need to make a choice.

Just a thought, could you check first whether you have a sensitivity? I like the idea of wearing titanium earrings to see if there is any problem currently.

Ami, my first thought was getting sick from the paint fumes. I try to avoid that as much as possible as I have had some pretty rough symptoms following paint exposure.

Jin, I traveled first to central/western China, and now am in Beijing for a few days.

Rachel thanks for the bit about cilantro--I was forgetting that it wasn't a binder. I need to watch that.

Susie--that's important self care! I'll enjoy hearing further when you have the time and energy.

mftnchn Explorer

Still reading a few pages back....

My update: I took the spirulena for 2 days and then had symptoms, but I don't know if it was that. I'll check it again. I still have dips occasionally and it isn't always easy to figure out from what--too many variables. I am keeping a basic record, just need to take a look and see if any pattern shows.

Interesting that I have been able to cut back on both Vit C and magnesium. I'm doing about 4000-5000 mg ascorbic acid, and 750 mg magnesium. That's less than half the mag I was taking mid summer, and at least a third less Vit C. So I think this is likely further confirmation of celiac and gradual gut healing.

Went most of this week sans antibiotics, and did relatively okay, but some mild joint symptoms. Then a lot of symptoms after dinner Thursday, sneezing, sinus, bloating, fatigue, etc. Better after ecoffee on Friday but then the fatigue was quite a bit worse later in the day and the evening. Can't figure out what I ate or if the food had nothing to do with it. I was around other people who were eating gluten, though I was quite careful. It could have been a glutening???

I'm restarting the ABX a day early, just in case it is lyme related.

Still traveling but will try to lurk if I can.

mftnchn Explorer
Just curious, sort of a poll :D who here never/rarely comes down with a cold or flu when exposed?

I have had periods like this, where I seldom caught colds. Also since 2000 and doing lyme treatment, the ecoffee really seemed to keep colds from happening or being more than very mild. I would have one start, and after ecoffee symptoms would clear almost.

Last year I caught a lot of colds, maybe 6-8. Doctor gave me vitamin A emulsion to use, and a couple of other herbs to take every other day if the colds come back. Have had a couple this year--but it seems more normal.

mftnchn Explorer

Welcome, Matilda.

Some good ideas already. Hopefully the doctor will do a broad spectrum of checks, like all the chemistry and metals, check for lyme, parasites of all types (this is very important and the lab used is extremely important), fungus and mold and other bad bacteria in the intestines.

Have you tried elimination diets? You haven't mentioned soy. That has been shown in research to cause blunting of the villi similar to gluten in some people.

mftnchn Explorer

Kassandra,

Black, "tarry" stools are typical when there is intestinal bleeding somewhere higher up. If you see red blood that is coming from the end of the system--like in the rectum.

I also find eating chocolate or a lot of cookies with dark molasses, that it will darken the color of my stool.

miamia Rookie

Hey alll...

I have been meaning to post but i keep getting behind and then end up just reading.

Julie and Rachel-

you guys posted alot of interesting info on the metals and candida etc.

I had a really interesting appt. yesturday with my doctor. Its the first "real" appt. we had in a long time. We went over everything All the tests i have had done since I first started to see him, all my symptoms, etc.

Well I won't go over everthing but we talked about the main things I need to address right now- Parasites, metals and my weakened immune system (which showed up one some tests)

So here is the plan-

For the Parasites which we both agree are a huge if not the main problem- The problem with parasites is identifying which one you have if you have one and take something that addresses a different one the one you have can remain unaffected. So I am getting three prescriptions filled and I am going to take all three to the women i am seeing for the muscle testing and have her test them. When she tested the black walnut and two other things she had for parasties they did not affect the parasites. So maybe one of these 3 will be affective. The really cool thing is when i got out of the appt. I called the women and she actually has hours on Sunday so I am getting the scripts filled today and will be able to bring them to her tomorrow.

So thats parasites

For the metals - For the next 5 chelations I am going to switch form the calcium EDTA to DMPS. WE want to see how my body will react to that and see if addressing the mercury will help me. After the 5 treatments we will do the urine test adn see what my levels are.

When we were going over my results he was saying how he has never seen someone with so many metals elevated. Usually someone just has mercury or just lead but so many of metals are elevated. I asked him how this happens he says its just my bodies inability to detoxify at all. How nice is that?

For the immune problems-

he wants me to re try colostrum - which i had tried at one point. I was tested for this and i tested ok for it.

he also wants me to add a new probiotic. He knows money is tight for me and that i keep buying stuff and realizing i can't take it. So he gave me samples of 2 of them so I could test them without wasting money. I thought this was really cool.

For detox he wants me to keep up with the colon therapy ( he has recommende this new women he realy wants me to work with. He also really wants me to do castor oil packs at night.

This week i Went for my first ionic foot bath(i will definitly write more about this later- Rachel i think you would love it) . HE wants me to keep doing these.

So that is the basic update. I will write more later.

Miamia


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ami27 Apprentice

OMG I took a test this morning that shows I'm pregnant. It was immediately positive. I took a second one and the same thing :o We were going to try after my treatments, but now this. I'm worried what effects the IV chelations could have?? I don't have an after hours phone number for my doctor or at least I haven't ever tried to call them after hours. I guess I will call the office and see what the recording may say. Does anybody here have any idea?

CarlaB Enthusiast

Ami -- CONGRATULATIONS!!!! I don't know the answer to your question, but I'm sure your doctor will. :)

I'm looking for advice.

My main problems now are fatigue and episodes of sudden weight loss.

Matilda, I would ask for a three day stool test for bacteria and parasites. It sounds like it could be bacterial dysbiosis.

I have both bacterial dysbiosis and Lyme Disease. The Bartonella coinfection of the Lyme also causes those GI symptoms.

Good luck, keep us posted!

Carla,

Thanks for the free advice! :D That's exactly what I was thinking of doing. I also think a lot of the fatigue is worsened by my back. It has gotten way worse since school started and I think it's because of all the walking and backpack carrying, etc. It is really limiting at times, but whatever! I actually am getting copies of x-rays and I was going to somehow email a copy to my dad (he lives in New Zealand), so I'll maybe post a link to them if anyone is interested in my "CURVY" spine! (My physical therapist called me wedgie! :lol: because my vertebra are no longer rectangles...they are triangles) Sorry, rant!

:)

Kassandra

Wedgie, LOL :lol:

Sounds like you have a great plan.

One other thing, does anyone know why I would have really dark brown, almost black stools? :huh: I have been really bloated (even while I was on my crazy, strict diet) and I noticed my stools have been REALLY dark brown. What is going on NOW??

Kassandra

You're taking iron, right? Cut back for a couple days and see if it goes away. I get that way when I've got enough iron and I'm still supplementing.

CarlaB Enthusiast

Mia, glad you're making progress ... :), I know it's slow.

BTW, I put a picture of my house up on my personal page for a few hours. We were talking about my new kitchen on the funnies thread.

confusedks Enthusiast

Carla,

I'm NOT taking iron. I haven't been because my stomach has NEVER tolerated it well. I stopped maybe 8-9 months ago. Even my hematologist told me to stop because it wasn't helping (pre-celiac dx.) I will wait a couple more days to see if it's still happening.

Kassandra

Rachel--24 Collaborator
OMG I took a test this morning that shows I'm pregnant. It was immediately positive. I took a second one and the same thing :o We were going to try after my treatments, but now this. I'm worried what effects the IV chelations could have?? I don't have an after hours phone number for my doctor or at least I haven't ever tried to call them after hours. I guess I will call the office and see what the recording may say. Does anybody here have any idea?

I dont have any immediate answers for you....hopefully the Dr. will know how to proceed. I've read that DMPS should not be used during pregnancy but I'm not sure of other chelators.

If chelation continues there would need to be careful monitoring of the minerals in your body...since those get depleted with chelation.

I have never looked into this. Normally, I think it would be best to completely stop with the chelation but I'm not sure whats the best thing to do in a situation where the person has just had the amalgams removed?? Your body will automatically be dumping mercury now that the amalgams are gone.....this is especially true 3-9 months after the removals.

I dont want to be an "alarmist"....just an informist (if thats a word :huh: ). You would obviously want to protect the baby from mercury exposure as much as possible because babies are extremely vulnerable to mercury.

Do you know how far along you are?? I know that amalgams should not be touched during pregnancy...they should not be put in or taken out. Hopefully yours were removed prior to your pregnancy and the mercury from that exposure hopefully cleared out from the chelation following the procedure.

I hope you can get ahold of your Dr. and that he can ease your mind and tell you what would be the safest way to proceed (or not proceed) throughout your pregnancy.

Let us know what he says. I'm happy for your pregnancy news but sorry it came earlier than what you had planned.

I have a friend who is very knowledgable about this stuff and I will ask her what she thinks.

Since its possible the baby might be exposed to higher levels of mercury than normal...I would also try to find a Dr. who can help you make the best decisions for your child after you give birth. You might want to be extra cautious about the vaccinations and things like that. You can work it out so that the exposure is lessened and you can hold off on some of the vaccines until your child reaches 2....which might be safer.

I hope you get some good answers. :)

Rachel--24 Collaborator

Kassandra,

I had very black stools a few years ago. It was when I was really sick and not digesting most of my food. I was told it might be blood so I went to the urgent care since I was really weak at that time.

It wasnt blood in my case....it was most likely because I had been eating oreos and it was coming out looking the same way it went in. :ph34r:

Green12 Enthusiast

Ami, congratulations.

I can't remember if you are taking any supplements during your chelation, but definitely don't take them until you talk to your doctor. I am sure he will tell you not to continue with the IV treatments since it is not recommended for pregnant or breast feeding women.

(*edit- posted after I read what Rachel posted, she brings up some very important points to be discussed with your dr. ask lots of questions and keep us posted as to what he says)

Mia, good to see you post!

Sounds like you have a great plan put into motion. I hope the muscle testing helps to find the right product to do the job, that's great your dr is working with you on the finances and giving you samples to be tested.

Check in again soon!

Kassandra, have you been eating a lot of chocolate? I agree with Sherry (I think it was Sherry that said this), chocolate makes my stools dark/almost black.

If you haven't been eating chocolate or ingesting anything that would make them dark (ie supplements with dark herbs), it might be a good idea to run this by your doctor, it could signify blood in the stool and you just want to rule that out.

Sherry, could it be the travel causing the fatigue?

Janet and Matilda, hi. You both are dealing with a lot. Others gave you great suggestions and advice, keep us posted.

I've done nasal irrigation with my neti pot the last two days. I guess I expected a lot of crud to be broken up and come out...not so much. Maybe it takes a while? I can breathe easier though, and it seems a little clearer up in that area. I'm going to keep doing it daily for a while and see what happens.

Pau D'Arco tea, definitely a bowel mover. In that link I posted a couple pages back it said that it does move the bowels without causing D, so if anyone needs help in that area Pau D'Arco tea might be something to try.

Rachel--24 Collaborator

Mia,

I have to say that I just get so happy reading your posts recently. :)

You have come a long way with the new Dr. and with everything you're doing. You may not notice it but I can tell in your posts that you are feeling better about everything. You're not confused anymore. :)

It makes a huge difference when we know whats going on and are doing something about it...the stress of not knowing and the confusion is not good for us. I'm glad that you moving forward now and no longer stuck in the same place! :)

The plan sounds like a good one. If you have a huge parasite problem...you might experience alot of die-off from that. Remember that the parasites carry alot of the metals so you might want to take stuf to absorb them...as well as other toxins. Doing that should make it easier on your body....you wont feel as bad going through it.

I think its normal to have alot of metals stored if you are mercury toxic and not excreting well. Whether its genetic or caused by the disturbances in your body once the mercury is blocking things all of the other metals comer in behind it. If the pathways are blocked we accumulate everything. That was my understanding from all that Dr. K. has written about it.

Alot of times people arent showing high levels of every metal in their test results though...alot of times the body isnt releasing everything at once. The chelator is pulling out certain metals first...but eventually all of it comes out. Its probably not very common to see the results showing everything elevated all at the same time.

Rachel--24 Collaborator
I've done nasal irrigation with my neti pot the last two days. I guess I expected a lot of crud to be broken up and come out...not so much. Maybe it takes a while? I can breathe easier though, and it seems a little clearer up in that area. I'm going to keep doing it daily for a while and see what happens.

Julie,

What do you put in the neti pot??

I want to try it but not sure what you use...salt water or what?? :unsure:

Judy sent me a link with a video....maybe I should actually watch it. :P

Green12 Enthusiast
Julie,

What do you put in the neti pot??

I want to try it but not sure what you use...salt water or what?? :unsure:

Judy sent me a link with a video....maybe I should actually watch it. :P

They sell. apparently, all kinds of nasal irrigation formulas, and there are other things you can put in the water (antibacterials, etc.), but I thought I would go with the salt first.

Just a simple saline solution (1 cup warm water and 1/4 tsp good quality sea salt) It is recommended you use a good quality water source too, ie filtered and not tap.

The method is pretty easy to get a hang of, you just lean over the sink and tip your head to the side, put the opening of the neti pot to the top nostril and let the solution slowly flow in. It is a strange feeling at first (like when you are swimming and the water goes up your nose). If it comes down your throat and into your mouth just adjust the angle of your head and tip your forehead lower than your chin. If you are doing it right the solution fills your nasal cavity and then the water should flow out the other nostril.

Rachel--24 Collaborator

Thanks Julie!

I think I'll go back and buy the little pot. I have some Himalayan salt so I can try it with that. :)

AndreaB Contributor

Grrrr!

I was in the middle of a post and lost it.

Quick recap.....Mia.....so excited for you and the progress with your new doctor. I can't wait for further updates when you're able. :D

Ami,

Don't fret about what has been done. Definately get ahold of the doctor who's been doing the treatments and talk to him/her.

With my last one I had 4 crowns done (still have amalgams underneath) within a month of pregnancy and had a root canal done my last trimester. He has many food intolerances and a problem with metals mainly but they are all managed with the supplement/detox program we are on. I don't know yet whether he has any long lasting effect from the treatments. He doesn't talk yet but he understands and is otherwise just like any other toddler.....getting into everything. :P

His 2 month vaccinations are what threw him over the edge. He had residuals or reactions to all his vaccinations, almost. That was picked up during the ASYRA testing. He's been cleared of the initial stuff that came up. Please, if you do decide to vaccinate, wait until your child is 2 years or older and find someone in your area (are you in California?) that does the ART/ASYRA/LED treatments to help with detoxing. I don't know how young you can start but probably after one year. Seth was about 1 3/4 years but the treatments are pretty easy to get through.

dlp252 Apprentice
I'm looking for advice.

Well, since I'm late to the party and you've already received great info, I'll just say hi! HI! :P

One other thing, does anyone know why I would have really dark brown, almost black stools? :huh: I have been really bloated (even while I was on my crazy, strict diet) and I noticed my stools have been REALLY dark brown. What is going on NOW??

I get this from time to time too...haven't figured out why sometimes it's almost black and sometimes it's really light. I DO think food is a major contributor in my case.

Interesting that I have been able to cut back on both Vit C and magnesium. I'm doing about 4000-5000 mg ascorbic acid, and 750 mg magnesium. That's less than half the mag I was taking mid summer, and at least a third less Vit C. So I think this is likely further confirmation of celiac and gradual gut healing.

Great that you have been able to cut back!

I had a really interesting appt. yesturday with my doctor. Its the first "real" appt. we had in a long time. We went over everything All the tests i have had done since I first started to see him, all my symptoms, etc.

Well I won't go over everthing but we talked about the main things I need to address right now- Parasites, metals and my weakened immune system (which showed up one some tests)

Oh Mia, I agree with Rachel, you're posts are so wonderful to read lately! Sounds like a really good plan!

OMG I took a test this morning that shows I'm pregnant.

CONGRATULATIONS!!!

BTW, I put a picture of my house up on my personal page for a few hours. We were talking about my new kitchen on the funnies thread.

LOVE the house!!

Pau D'Arco tea, definitely a bowel mover. In that link I posted a couple pages back it said that it does move the bowels without causing D, so if anyone needs help in that area Pau D'Arco tea might be something to try.

Hum, I think the Vitamin D I've been taking has pushed me towards the C side...maybe I'll go back to my Pau D'Arco, lol.

I think I'll go back and buy the little pot. I have some Himalayan salt so I can try it with that. :)

My WF had three or four different colors I think....not a pink one in sight! :lol:

dlp252 Apprentice

Okay, here's the info on the neurotransmitters:

Neurotransmitters are the chemical part of your body

CarlaB Enthusiast
:o:o:o What's with the porno ad???? :o:o:o
dlp252 Apprentice

Had a BioSET appointment today...we did 3 or 4 full panels of allergies. Not surprisingly my big glass was overflowing and had to have a second glass for the vials. She had a glass vase on her desk and I joked (sort of in the middle of the testing) and asked if that was for people like me who have really full glasses...didn't realize I might really NEED it, lol. :lol:

The really bad part is that these are affecting so many things that my list went off the computer screen page. I've NEVER had that happen before. I've had a full list, but never had it scroll to another page, lol. She sounded astonished at the whole thing. :P

So more allergies next week, and I have to do the bowls of water thing that Rachel did a few months ago. I meant to bring that with me today but completely forgot about it until yesterday, and then couldn't remember how long I was supposed to leave the bowls out. So I got the scoop today and will do it this week and take it in next weekend. They'll be testing to see if my environment is an allergen.

She also retested my neurotransmitters since my report was so off balance.

dlp252 Apprentice

Porno ad???? Huh? Did I miss something?

confusedks Enthusiast

I have not had any chocolate or any dark food at all in at least 2 weeks or so. I think I need to see my doctor, but he is usually so dismissive its annoying! And I know I need to find a new one, but HOW?? It's so hard to get good referrals. I did tell my mom and she actually said I really don't look well, so maybe she'll go with going to the doctor since she came up with the idea! ;)

Kassandra

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      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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