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Omg...i Might Be On To Something

Rachel--24

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CarlaB Enthusiast
CarlaB
Posted

Oh, please share the recipe!

It's not that I love this fudge so much .... it's that it never upset my stomach, it's high in fat (for Mepron and Malarone), and concentrated calories. :)

In fact, I had my braces tightened today, so I'm having fudge and a raspberry/whey smoothie for dinner. :)

I get my braces OFF Feb. 7th, did I already post that? Can't help it if I did. LOL.

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confusedks Enthusiast
confusedks
Posted

That's SO EXCITING Carla! I remember the day I got my braces off...omg...amazing!

The recipe for fudge balls:

2 cups almond butter

2 cups dates, pitted and soaked

1/2 cup carob powder (I used cocoa powder and it worked out fine)

1. Put dates in food processor and blend until smooth

2. Add other ingredients and process until mixed well together

3. Roll into bite-sized balls and refrigerate until hard(ish)

They are really good! I cut the recipe in half because, well, I don't NEED the fat or calories...lol. I also put them in the freezer for about 30 min. then put them in the fridge. They are REALLY good!

Kassandra

tom Contributor
tom
Posted
In fact, I had my braces tightened today, so I'm having fudge and a raspberry/whey smoothie for dinner. :)

I get my braces OFF Feb. 7th, did I already post that? Can't help it if I did. LOL.

1) fudge & raspberries yum!! :wacko:

I should really check out that agave nectar.

Oh, .. . and raspberries.

2) that's my birthday!! It'll be a Happy Toothday too! :) :)

Edit: P.S. How could I forget??

ANDREA!! I just booked my PDX xmas flight!!

I'm there Dec 19-28. Waiting to hear which days my nephews will be w/ their dad, then hoping one of those days is a good one for us to meet up! :o:) :) :)

Judyin Philly Enthusiast
Judyin Philly
Posted

Hi Rachel

I've been trying to PM you and your mail box is full so sent to your email address.

Just a heads up. ok?

AndreaB Contributor
AndreaB
Posted
I get my braces OFF Feb. 7th, did I already post that? Can't help it if I did. LOL.

Woo Hoo! Only 2 more months! :D

The recipe for fudge balls:

Ooooohhhhh, that sounds good! I've copied it over.

ANDREA!! I just booked my PDX xmas flight!!

I'm there Dec 19-28. Waiting to hear which days my nephews will be w/ their dad, then hoping one of those days is a good one for us to meet up! :o:) :) :)

We'll make sure a day works out. :)

ShadowSwallow Newbie
ShadowSwallow
Posted

Nyxie,

Don't worry about coming in here overwhelmed. That's what we're here for. :wub:

Rachel,

That's AMAZING NEWS!!!!!! :lol::wub:

Kassandra,

It seems like insurance companies don't believe that ill people have enough problems and feel compelled to add some more. :angry:

Carla,

Hooray for getting the braces off!!!

Today I saw my counselor and he did some emotional NET things so I now have a lot of my energy back. :) Got all of my #1 priorities done today (of course there were only three things :P). Woohoo!! :lol:

Ridgewalker Contributor
Ridgewalker
Posted
Sarah,

Thyroid/surgery overview...

:blink: Well that sure doesn't make it easy to make a decision, does it? :( I don't blame you a bit for being so frustrated!!!

I agree with Donna's comment about the bananas ... I have no trouble with them at all, but hubby, who's not intolerant to anything, can get sick from bananas .... especially if they're a little green.

Ezra too-- well he does fine if they're good and yellow, but if they're even a little green, forget about it. He'll get terrible diarrhea!

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AndreaB Contributor
AndreaB
Posted
Today I saw my counselor and he did some emotional NET things so I now have a lot of my energy back. :) Got all of my #1 priorities done today (of course there were only three things :P). Woohoo!! :lol:

Woo Hoo indeed! :D

confusedks Enthusiast
confusedks
Posted

Ditto to what Andrea said...!!!!!

Kassandra

CarlaB Enthusiast
CarlaB
Posted

Thanks, Kassandra, for the recipe. I love dates .... but I try to avoid dried fruit because of the mold and high sugar. :( LOL, it's kind of funny since I don't have any real intolerances anymore, that you have something I can't have. ;) I'm okay with things like dried fruit, fruit juice, or peanut butter for a day or two, but after a couple days, it causes fatigue.

Well, same thing happened last night ... the school even called to say they were delayed due to weather .... they have a system that calls everyone .... they called at 5:30 AM and I fell back to sleep anyway. :) Must be the laser, huh? I'm going to have to email the nurse I bought it from and ask .... she'd probably like the feedback anyway, right? I hate to bother her ....

mftnchn Explorer
mftnchn
Posted

Wow, Carla!

I am impressed that a laser might do what nothing else would do besides Ambien. Wish it was possible to try laser before investing in it, wonder what one treatment would cost?

I am down with a back problem, seems like my massage yesterday started it, so I went back and now it is so bad I am having trouble moving. Supposed to travel home tomorrow by bus. :(

Kassandra, the insurance is unbelieveable. 3000 on every illness? And how to they define a separate illness? Why can't the doctors office teach you the flushing? That's seems strange that you have to have HHN. Its not that complex I don't think, right?

Donna, weird about the Humaworm, but I am thinking that it is likely one of the ingredients. Maybe I will have that problem too. I'll get mine at the very end of December.

Also, since 70 percent of the parasites are too small to see, maybe you actually are getting rid of stuff and detoxing. How long have you been on it now?

Carla, congratulations on the one year....I passed my seventh since diagnosis and starting abx in Oct. Boy I hope that I can successfully get off them. I am holding my own on the 4 days a week regimen so that's good.

CarlaB Enthusiast
CarlaB
Posted
Wish it was possible to try laser before investing in it, wonder what one treatment would cost?

If you were anywhere near here, you could try mine. ;) It takes 3-5 minutes ... it's like scanning your whole body with a laser pen, LOL.

Also, since 70 percent of the parasites are too small to see, maybe you actually are getting rid of stuff and detoxing. How long have you been on it now?

About three weeks. It could be ... it's so strange that it was the same day I tried the laser though .... I've been on the Humaworm for three weeks.

Carla, congratulations on the one year....I passed my seventh since diagnosis and starting abx in Oct. Boy I hope that I can successfully get off them. I am holding my own on the 4 days a week regimen so that's good.

That's great! I hope you can get off them, too. I'm hoping by this time next year I can be switched over to herbs. :)

dlp252 Apprentice
dlp252
Posted

Kassandra,

OMGosh, YAY for the nurse giving it to the insurance company.

It just never ceases to amaze me! They won't pay for preventative care, but end up paying out MORE money when something goes wrong.

I'm glad the PICC line flush didn't hurt!

Your fudge ball recipe sounds great. I may try it some day, but like Carla, I have to be mindful of the mold thing, so it may be a while.

I get my braces OFF Feb. 7th, did I already post that? Can't help it if I did. LOL.

YAY!!!!

Birdy,

Yay on the energy...can I have some, lol!

Carla,

Uggg, I'm back to NOT sleeping. This was the third night in a row that I've awaken and not been able to get back to sleep. Last night it was midnight. At about 1:00 I got up and took more sublingual liquid melatonin, but that did nothing. I think I dozed off finally around 3:30...I have to get up at 4:00, so didn't do me much good, lol. Stupid insomnia. :angry: Stupid work. :angry: Stupid bugs. :lol:

Sherry,

Sorry you're down with your back...hope you can travel in comfort!

I've been on the Humaworm for 11 or 12 days now. Yeah, I've been trying to think what ingredient in the Humaworm could cause this...my digestive tract is definitely up in arms about something. While I'm laying there in the middle of the night my intestines are really noisy and I have that intense burning in my stomach area. I also have a lot of gas during the later part of the day.

I have also had a return in the last 3 days of the really bad sunburn feeling all over my skin. I haven't had much of this for the last 3-4 months and when I do it's usually just a small spot, but in the last 3 days, the burning skin has been really bad and it's all over my body. Hurts when my clothing touches my skin. :( My doctor said this is a lyme symptom, but I've also heard it connected to metals and to molds, lol. The humaworm could be killing stuff off that affect any one or more of those things, lol.

AndreaB Contributor
AndreaB
Posted
I am down with a back problem, seems like my massage yesterday started it, so I went back and now it is so bad I am having trouble moving. Supposed to travel home tomorrow by bus. :(

I hope your back feels better by tomorrow for your trip home. :( That's awful.

Congrats on holding your own for the 4 day regime! :)

I have also had a return in the last 3 days of the really bad sunburn feeling all over my skin. I haven't had much of this for the last 3-4 months and when I do it's usually just a small spot, but in the last 3 days, the burning skin has been really bad and it's all over my body. Hurts when my clothing touches my skin. :( My doctor said this is a lyme symptom, but I've also heard it connected to metals and to molds, lol. The humaworm could be killing stuff off that affect any one or more of those things, lol.

I would think the humaworm is killing off stuff and causing the flare ups. :(

I guess that's a good and a bad thing at the same time.

You see Doc S in 1 1/2 weeks so maybe he'll have an answer and be able to put you on something to help more.

Sorry about the insomnia. :( I don't know how you guys function without much (or very interrupted sleep).

confusedks Enthusiast
confusedks
Posted

Carla,

Hmmm....maybe that's why I didn't feel so good yesterday. The fudge balls could have been the reason, I'll have to experiment and see. That's great you're falling asleep better. I am also, but I think it's because I am more anemic from the stupid PICC line insertion because I kept bleeding...they said I lost quite a bit of blood. <_<

Sherry,

I don't know how they classify each illness. As far as the doctors office teaching me how to do it, they can't really because they don't have the supplies to send me home with. They only have enough to do the patients who go in, not enough to send me home with some.

I hope your back gets better soon and your bus ride isn't too uncomfortable.

Donna,

I can't imagine not sleeping for any length of time. Read what I said to Carla. My sleep isn't great again, but it's definitely been better since the PICC line was put in.

Kassandra

dlp252 Apprentice
dlp252
Posted
I would think the humaworm is killing off stuff and causing the flare ups. :(

I guess that's a good and a bad thing at the same time.

You see Doc S in 1 1/2 weeks so maybe he'll have an answer and be able to put you on something to help more.

Sorry about the insomnia. :( I don't know how you guys function without much (or very interrupted sleep).

Yep, I'm going to ask Dr. S for some ambien. I'll only take it for weeks like this where I KNOW I have stuff going on every night or had several nights in a row where I haven't slept, and on Tuesday nights after ensemble rehearsal. I'm getting home from our performances around 8:15, but since I go to bed at 9:00, I'm thinking it is just late enough to disturb my regular patterns. But it's also been so stressful at work and the whole performance thing is stressful because it's really DISORGANIZED and for some other issues with the choir as well!

The burning skin does sound like a flare...I also plan to ask Dr. S about the cholestyramine to help with getting rid of the toxins.

Donna,

I can't imagine not sleeping for any length of time. Read what I said to Carla. My sleep isn't great again, but it's definitely been better since the PICC line was put in.

Sheesh, maybe I need to lose a little blood, lol. Seriously though, I WAS sleeping better until this week, so I'm hoping it's just the stress and that maybe after this week I'll get a little closer to the way it was (i.e., I was waking up several times a night, but falling back to sleep rather quickly, even after getting up to go to the bathroom).

miamia Rookie
miamia
Posted

hey all-

I have not posted in a while. Umm...so i don't know what to update on. Pretty much the same stuff- as far as chelation goes. I am still not doing the glutathione but the nurse really wants me to try to slowly introduce and see if i can handle it that way. I am nervous about it though. But she suggested coming in on a day when i don't have DMPS and having it by itself so I can really gage my reaction.

Ok I finally got the humaworm!!! So I am in the club now. I started to take it ,but only yesturday. I was gonna put it off but i feel so bad anyways i figure why not give it a try. Yesturday i had an appointment with the woman who does my muscle testing. I brought the humaworm and i tested really well for it. So knock on wood my body obviously wants it but can it handle it? WE will see soon I guess.

I also had her test me for the MSM , which i have been taking, and i tested well for that too. But man the humaworm was really strong , it was nuts.

Ok so I had my celiac disease-57 redone- not so good- do you guys remember how anything under 60 is too low and you should be much higher that that. Well I had a 24. YIKES!!!

I had My ignenix test redone. I am waiting for the results. I am curious if anything will ahve changed now that I ahve been doing the chealtion and moving all these metal around and out. I know mercury can hide lyme or not hide but prevent it from fully showing its ugly head.

I guess thats all for now.

Miamia

miamia Rookie
miamia
Posted

Oh Julie-

I did send you a PM but i also wanted to say I have had alot of problem with numbness in the hands etc. I wake up and parts of my body feel asleep but not parts i was leaning on. It actually gets painful when the numbness wears off I get sore. So I think something is very off with my circulation (or I might be sleep sumo wrestling )

CarlaB Enthusiast
CarlaB
Posted
Uggg, I'm back to NOT sleeping.
I love the Ambien! I was so hesitant to start taking it, but I find that if I don't need it (like in the middle of the night), I have no desire to take it. I don't feel like I'm addicted, even though I take it every day .... if that makes sense. I feel it will be easy to get off once the reason for my insomnia is gone.

hey all-

I have not posted in a while. Umm...so i don't know what to update on.

But man the humaworm was really strong , it was nuts.

Well, I'm excited to hear how you feel after taking it for a while! Sounds like you need it!

dlp252 Apprentice
dlp252
Posted

Mia, I can't believe your C.D57 score went DOWN!!! It was 26 before!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Mia, I can't believe your C.D57 score went DOWN!!! It was 26 before!

From what I understand....this doesnt really mean she is worse. The number will go up and down throughout treatment. Its not until the infection is really beginning to be controlled by the immune system that you will see the numbers shoot up into higher ranges. In the meantime the results can probably vary from week to week...or even day to day.

I dont think Mia is doing anything to treat Lyme yet...just some days she will be doing better than other days.

Mia, try not to push your body too hard. If you feel bad already and then start to feel worse on the Humaworm...dont feel like you need to continue. If your body cant deal with the toxic load....its not necessarily helping you to kill the bugs. You need to be able to detox it all.....its better to not exceed what your body can handle at one time...just like with chelation.

My Dr. always reminds me that these treatments are cumulative. chelation can pull out metals, killing bugs spills metals and releases toxins, different supplements do different things...saunas and other treatments can release toxins. It all adds up and can easily exceed what your body can handle.

AndreaB Contributor
AndreaB
Posted
Sheesh, maybe I need to lose a little blood, lol. Seriously though, I WAS sleeping better until this week, so I'm hoping it's just the stress and that maybe after this week I'll get a little closer to the way it was (i.e., I was waking up several times a night, but falling back to sleep rather quickly, even after getting up to go to the bathroom).

Sounds like the stress is really disrupting things right now. When's your performance?

hey all-

I have not posted in a while. Umm...so i don't know what to update on.

I kind of wonder in the chelation is bringing out the lyme more. I'll be curious to see you Igenex results.

Hope the humaworm goes as well as you tested for it.

dlp252 Apprentice
dlp252
Posted
Sounds like the stress is really disrupting things right now. When's your performance?

Just about every night this week. :P Tuesday was dress rehearsal, Wednesday was the first performance, then last night, tonight, tomorrow afternoon and Sunday afternoon. We perform once more on the 19th at night.

I'll be going home early today. My neck is KILLING me today, so I asked my boss if I could leave when my co-worker gets here at 1:00. She said yes, so I'll go home for a little while, relax with my warmy bags on my neck and see if that helps calm everything before I have to go out again. Not having to work tomorrow will probably help too.

AndreaB Contributor
AndreaB
Posted
She said yes, so I'll go home for a little while, relax with my warmy bags on my neck and see if that helps calm everything before I have to go out again. Not having to work tomorrow will probably help too.

Hope the warmy bags help you. I think it would help that you'll not be working on the weekend and that most of the performances will be over this weeked too.

tom Contributor
tom
Posted
Just about every night this week. :P Tuesday was dress rehearsal, Wednesday was the first performance, then last night, tonight, tomorrow afternoon and Sunday afternoon. We perform once more on the 19th at night.

Those aren't ALL at Christmas in the Park are they?

Pssssst what time on the 19th?

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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