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Omg...i Might Be On To Something

Rachel--24

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confusedks Enthusiast
confusedks
Posted

Sherry,

I don't know if I would test poorly for Mepron because she seems to have an issue with prescription drugs. It's a good question. I am not really too worried about what she said because I really trust my LLMD and his NP. I will take into consideration some of the things she said, but I'm not going to stop taking Mepron or Zith because I didn't test well for them.

Also, she said that she could get rid of my insomnia by me taking these little pellets...well, I didn't fall asleep without Ambien last night, so I don't know. I'm also not willing to lose up to 12 days of sleep, which is how long she said it would take.

My sleep issues are only because I am not able to do enough to get tired enough. I have never had insomnia, and I know that once I have more energy to do more things, I will be able to sleep better. :)

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AndreaB Contributor
AndreaB
Posted

Wasn't getting updates again. I don't know what it is about updates for this thread.

Sherry,

Sounds like you had a very busy, tiring day. That's a lot of traveling!

confused Community Regular
confused
Posted

Ok I bit the bullet and ordered humaworm. I was talking to hubby about it and he was like order me some, i almost fell off my computer chair lol. Then while talking we decided to order it for the whole family. I cant wait to get it and try it.

I also got my foot pads today, and will start using them tonight.

paula

tabasco32 Apprentice
tabasco32
Posted

Happy B day Carla. What are you like 36, 37? ^_^

Hi everyone.

Yeah Julie I still have my amalgams. About 6 of them and I know this is one reason I taste metal so bad. That is actually maybe a good thing since it warned me about the rust coming in from outside my window.

About the foot detox pads, did you know that Avon sells them now? My mom was showing me the avon catalog that she orders from. :rolleyes: They really do have detox foot pads that you can order. I don't know if I would order them from Avon..

So for the rust I have been taking bentonite clay, vegetable binder and zeolite hp from nutramedix.

I really want to try the zeolite from waiora. I have been to several conferences and the product seems promising about how thier zeolite can pull many toxins and metals from the body.

There zeolite has been cleared of toxins and metal, where most zeolites have many toxins and metals on them already. I don't know, have to see...

CarlaB Enthusiast
CarlaB
Posted
Happy B day Carla. What are you like 36, 37? ^_^

:lol: Thanks! Actually, I turned 45! :PB)

confusedks Enthusiast
confusedks
Posted
:lol: Thanks! Actually, I turned 45! :PB)

LOL! :lol:

CarlaB Enthusiast
CarlaB
Posted
LOL! :lol:

Yeah, very funny. :D

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Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Mia, I just finally ordered my detox foot pads yesterday. I'm really not all that excited to try them because I think I'm probably gonna react to them.

I only ordered the minimum (20) and I'll see what happens. Once I saw the ingredients on the pads my excitement faded pretty fast. Its all stuff I know my body cant process very well. I just dont know how much of it will be absorbed into my system and if it'll be enough to cause problems.

I know that the castor oil from the packs I tried last year was enough to totally cause all kinds of symptoms after about 15 minutes over my mid-section. Way too much salicylate I think. :blink:

I hope its not the same problem with the foot pads but they do contain salicylates. :(

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Duplicate. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Duplicate. :)

confused Community Regular
confused
Posted

Rachel were did you order them from? I will post in the morning how i did with mine. I really hope i dont react to them.

I looked for the ones from avon and i cant find them, do you remember how much they are.

paula

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I got my molybdenum in the mail today. :)

I cant try it until next week because I have to stop taking minerals 4 days prior to my bloodtest on Monday. I got impatient and bought a lesser quality brand of it at the health store but I only took one because as soon as I swallowed it I started reacting. :rolleyes:

Hopefully that wont be the case with this stuff.

Kassandra....did you send an email about the appt. with the practitioner who did muscle testing or did you post about it? I didnt see any posts...if you sent an email...can I have one? :)

If you dont mind coming to the bay area once every 3 months maybe you can try to see Amy. She's great...I think you'd really like her. I dont feel that she's anti-abx or prescription meds...she wanted me on Alinia for parasites rather than any of the herbal treatments....which I didnt test well for.

She has me on prescription drugs for chelation rather than some of the other options...because thats what I test well for.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel were did you order them from? I will post in the morning how i did with mine. I really hope i dont react to them.

I ordered the ones recommended on Scott's site.

Open Original Shared Link

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So for the rust I have been taking bentonite clay, vegetable binder and zeolite hp from nutramedix.

I really want to try the zeolite from waiora. I have been to several conferences and the product seems promising about how thier zeolite can pull many toxins and metals from the body.

There zeolite has been cleared of toxins and metal, where most zeolites have many toxins and metals on them already. I don't know, have to see...

I've heard some good things about zeolite. Do you think its helping you Lisa?

Cool that you're getting out there and learning all this stuff. I wanna go to a conference too! :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Even though most people I talk to are pretty understanding and even interested in some of this stuff...in the beginning noone really "gets it". Its all new to them....most of us wouldn't have a clue if we hadnt gotten sick. Well...I know I wouldnt....I'd still be living off Big-Macs (and loving it!). :D

I wouldnt have heard of any of the things we discuss here.

Theres a customer who shops at my store. Nice guy...gave me a rose on Valentines Day...asked me out a couple times. I declined and told him I'm pretty much doing my own thing...not looking to date anyone. I said I have health issues I'm working on, etc. etc.

He ended up asking me about my health...and mentioning herbal treatments. I didnt want to go into any detail about my problems...just said that I got really toxic and cant tolerate foods, herbal treatments, etc. But thanks for the suggesstions. :)

He said he understood what I was talking about...that he was working on detox too....with some herbal stuff. Lots of people say they understand but they really dont...they dont get the whole picture until I really explain it to them.

Today he came in and asked when we're gonna go out for...water?? :lol::lol:

Anyways, he handed me a paper with some stuff he thought might be helpful for me. He had written down some stuff about EDTA chelation, zeolites and some other stuff. All stuff having to do with heavy metals and detox. :blink:

That totally impressed me!! :o

Ok...I'm still not trying to date anyone but I did appreciate that he had taken the time to write that stuff down for me. It was sweet. :)

I guess he must have some understanding even with what little info. I gave him. I'm not used to meeting people who already have some knowledge about any of this....except for the ones I meet in the doctor's office. :P

Also shocking that I didnt have to go into great detail for someone to really understand what I'm taking about when I say I'm toxic and cant eat anything. :lol:

AndreaB Contributor
AndreaB
Posted
Today he came in and asked when we're gonna go out for...water?? :lol::lol:

Anyways, he handed me a paper with some stuff he thought might be helpful for me. He had written down some stuff about EDTA chelation, zeolites and some other stuff. All stuff having to do with heavy metals and detox. :blink:

:lol: :lol:

That's pretty neat! I'm surprised too. :huh:

confusedks Enthusiast
confusedks
Posted
Kassandra....did you send an email about the appt. with the practitioner who did muscle testing or did you post about it? I didnt see any posts...if you sent an email...can I have one? :)

If you dont mind coming to the bay area once every 3 months maybe you can try to see Amy. She's great...I think you'd really like her. I dont feel that she's anti-abx or prescription meds...she wanted me on Alinia for parasites rather than any of the herbal treatments....which I didnt test well for.

She has me on prescription drugs for chelation rather than some of the other options...because thats what I test well for.

Sure, I'll send you an email. I don't know if I'm really interested in seeing yet another Dr right now. I have heard GREAT things about Dr Amy, but I just think I need to stick it out a little bit longer with my Dr's. I could see going to see Dr Amy if I don't make any progress, but for now that's not the case.

Also, $$$$$. LOL! These things get so expensive!

ShadowSwallow Newbie
ShadowSwallow
Posted

Happy Belated Birthday Carla! :wub: :wub: :wub:

CarlaB Enthusiast
CarlaB
Posted
Happy Belated Birthday Carla! :wub: :wub: :wub:

Thank you Birdy!

Rachel, that guy sounds very cool, I think you should go out for water ... I mean, it's just .... water ....

tabasco32 Apprentice
tabasco32
Posted

rachel, I haven't tried the waiora zeolite but I am wanting to. I am on nutramedix zeolite but I don't think thier's would be quite as good.

confusedks Enthusiast
confusedks
Posted
Rachel, that guy sounds very cool, I think you should go out for water ... I mean, it's just .... water ....

:lol: :lol: I agree Rachel! I was going to say you could get herbal tea, but I think even that bothers you! :huh:

mftnchn Explorer
mftnchn
Posted

Yep, I think a guy that is willing to go out for water sounds like someone worth checking out--friendship anyway.

I asked today at the local pharmacy about detox foot pads, and she knew what they were. Said they were Chinese not Japanese! So I'll keep looking.

Sherry

miamia Rookie
miamia
Posted

My foot pads are by health marvels- www.healthmarvelsdetoxpatch.com

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
My foot pads are by health marvels- www.healthmarvelsdetoxpatch.com

Same here.

CarlaB Enthusiast
CarlaB
Posted

Rachel, I don't know if you're interested in this or not, but IGeneX has a new test .... if you have an equivocal result and had band 30 or 31 show up, they can run this test to see whether that band is from borrelia or not.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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