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Omg...i Might Be On To Something


Rachel--24

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CarlaB Enthusiast
I was wondering the same thing about me! Wouldn't it be great if you treated the Lyme and ended up fertile Myrtle (that's what we call my sis who supposedly has no estrogen and gets pregnant at the drop of a hat!).

OKay, Bev, I know your problem now .... it's something else, other than a hat, that has to drop to get pregnant! ;)

(Morgan, read the next line at your own risk)

Adam calls me Myrtle sometimes ... I can't even LOOK at him during the fertile time of the month ... He usually travels then! LOL


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AndreaB Contributor
OKay, Bev, I know your problem now .... it's something else, other than a hat, that has to drop to get pregnant! ;)

(Morgan, read the next line at your own risk)

Adam calls me Myrtle sometimes ... I can't even LOOK at him during the fertile time of the month ... He usually travels then! LOL

:lol::lol:

AndreaB Contributor
I was wondering the same thing about me! Wouldn't it be great if you treated the Lyme and ended up fertile Myrtle (that's what we call my sis who supposedly has no estrogen and gets pregnant at the drop of a hat!).

I hope that is the case with you as well. :)

CarlaB Enthusiast

So, what's the deal? I had a herx last week and today I am very weak ... Morgan tried to take me to work out, but I couldn't and had to come home. I sauna-ed, showered, now I'm lying in bed again ... usually on non-herx days I at least feel well enough to lie on the couch!

Could this have to do with my temperature being slightly elevated the past couple days? It's been a low-grade fever ... the early morning temp has been almost 99, and I know temps normally go up from there.

Maybe it's just because I started new meds a few weeks ago ...

AndreaB Contributor
Maybe it's just because I started new meds a few weeks ago ...

I don't know Carla. That could be it. Has anything else changed in your day, eating etc? Are there any viruse going around still that you may have picked up?

AndreaB Contributor

New avatar. Not real clear but my dad is one the end, then me, Mitch, brother and mom.

CarlaB Enthusiast
Has anything else changed in your day, eating etc? Are there any viruse going around still that you may have picked up?

No.

Beautiful picture.


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rinne Apprentice
I just want to say thank you ALL (every last one of you) for all the support you have given me. I know I had to step away for a bit and really think about it and listen to my own body and I'm glad i did, but I'm glad to be back.

I'm glad to find you here. :)

I read the page but cant recall what I wanted to respond to except Miamia was saying something about rice cakes feeding candida??

I did wanna say that lots of other things you're eating will also feed candida...like those chicken nuggets. If you get a particularly strong reaction to a certain food....like the rice cakes...its more likely you are reacting to something in the food. Yes...it would still feed candida but I doubt thats why you reacted.

Its mostly white starches (i.e. white rice, potatoes) that rapidly turn to sugar. My candida situation is pretty bad but I still ate potatoes, and dont forget the ice cream (with actual cane sugar and milk sugar), plus apples and popcorn. I was feeding the candida plenty but I did not get reactions to these foods because apparantly they were pretty safe as far as molds and chemicals.

However, a single bite of a rice cake and I'm reacting pretty noticeably...half of a rice cake has me pretty messed up for at least 2 days. :angry:

Its like this with alot of foods. The more I ate the ice cream and fed the candida...the more sensitive I became to molds and chemicals. I've come to learn that the reactions are not actually from "feeding" the candida. If candida is consistently causing a problem...its not going to cause dramatic symptoms after one meal or snack. Those reactions are occurring because having the candida means you get alot of sensitivities to various things.

You especially become sensitive to yeast and molds. If you eat something with vinegar...or drink wine (which is loaded with yeast).....you will react quite strongly and most likely feel bad for days.

I dont think the candida got especially happy with the rice cakes...I think its more likely you are sensitive to them.

I'm pretty sure my candida was feeling pretty darn good having 1-2 pints of chocolate ice cream everyday....I dont think my problems with rice and rice cakes comes from the candida consuming sugar. If that was the case I'd have been pretty miserable those 8 months I ate ice cream everyday. :blink:

If you can eat homemade pizza, chicken nuggets and other foods and be ok....then theres something about the rice cakes. If it had to do with feeding candida you would have the same problem with these other foods....because they feed candida as well.

Thats my guess. :)

I dont eat ice cream, popcorn or apples anymore....(yeah..I know....it about time I got smart about this :rolleyes: ) but I still do eat some potatoes and oatmeal...which are very starchy. I also had yams. :ph34r:

Anna told me to never eat the starches like potatoes by themselves...this is when they will rapidly turn to sugar. She said to always eat them with protein...which slows it down and allows less sugar for the yeast. There must be truth in it because if I eat the potato by itself...I get more head "fullness". If I eat it with meat...I barely notice anything after eating. :)

This would not work for me with rice cakes because I'm actually reacting to the rice cake itself....its nothing to do with it turning to sugar. Plus I always ate brown rice cakes...never white.

Interesting scientificness Rachel, I really appreciate the thoroughness of your posts. :)

Ditto!

Oh for pete's sake, lol. It's like my eyes have just been opened... :lol: I'm thinking my candida isn't a big problem because I've had no die off, cuz Scott said it didn't look bad in ART and because I haven't had any big reactions. DUH, Donna, what the heck are you thinking. :P This is exactly what is happening to me. Where's the head banging icon when you need it! :P

:lol: Me too.

Rachel-

I agree with you I think the rice cakes are the problem- because I am able to tolerate otherr things that I know are "bad" the thing is I react to so many things and am so underwight I can't see cutting these things out. I do best iwth a balance of carbs/protein/ veggies - too much of any one thing kills me. Thats why if I make pizza I add ground lamb and vegees- etc.

God if I was gonna have to be sick for three days I wish it would have at leastbeen over something good. I had an appt at the health center I go to and I feel a bit better .

Tomorrow I ahve my appt for cranio. therpy. I am really interested in exactly what it entails- Rinne- did you say you did this once?

Yes, it was very interesting and I did feel like it opened up some energy but I didn't think it was going to really work for me over all because of my dental work. That sounds strange but she said they work on opening up spaces in the mouth also and with my bridgework that is not possible. I also thought it was very expensive at $75.00 a session.

I put my homeopathic drops in glasses of hot water and let them sit for awhile....the alcohol evaporates. Dont know if that takes care of any gluten that might be present but I havent had any problems with my homeopathic drops at all. :)

Thanks Carla, that's a good solution, pun intended. :P

Here is the information on ovarian cancer, it is worth a read.

SIGNS OF OVARIAN CANCER (even in the absence of Ovaries) THIS IS A MUST TO READ TO THE END

An Eye Opener on Ovarian Cancer

I hope you all take the time to read this and pass it on to all you can . Send this to the women in your life that you care about.

Years ago, Gilda Radner died of ovarian cancer. Her symptoms were inconclusive, and she was treated for everything under the sun until it was too late. This blood te st finally identified her illness but alas, too late. She wrote a book to heighten awareness. Gene Wilder is her widower.

KATHY'S STORY: this is the story of Kathy West

As all of you know, I have Primary Peritoneal Cancer. This cancer has only recently been identified as its OWN type of cancer, but it is essentially Ovarian Cancer.

Both types of cancer are diagnosed in the same way, with the "tumor marker" CA-125 BLOOD TEST, and they are treated in the same way - surgery to remove the primary tumor and then chemotherapy with Taxol and Carboplatin.

Having gone through this ordeal, I want to save others from the same fate. That is why I am sending this message to you and hope you will print it and giv e it or send it via E-mail to everybody you know.

One thing I have learned is that each of us must take TOTAL responsibility for our own health care. I thought I had done that because I always had an annual physical and PAP smear, did a monthly Self-Breast Exam, went to the dentist at least twice a year, etc. I even insisted on a sigmoidoscopy and a bone density test last year. When I had a total hysterectomy in 1993, I thought that I did not have to worry about getting any of the female reproductive organ cancers.

LITTLE DID I KNOW. I don't have ovaries (and they were HEALTHY when they were removed), but I have what is essentially ovarian cancer. Strange, isn't it?

These are just SOME of the things our Doctors never tell us: ONE out of every 55 women will get OVARIAN or PRIMARY PERITONEAL CANCER.

The "CLASSIC" symptoms are an ABDOMEN that rather SUDDENLY ENLARGES and CONSTIPATION and/or DIARRHEA.

I had these classic symptoms and went to the doctor. Because these symptoms seemed to be "abdominal", I went to a gastroenterologist. He ran tests that were designed to determine whether there was a bacteria infection; these tests were negative, and I was diagnosed with "Irritable Bowel Syndrome". I guess I would have accepted this diagnosis had it not been for my enlarged abdomen. I swear to you, it looked like I was 4-5 months pregnant! I therefore insisted on more tests

They took an X-ra y of my abdomen; it was negative. I was again assured that I had Irritable Bowel Syndrome and was encouraged to go on my scheduled month-long trip to Europe. I couldn't wear any of my slacks or shorts because I couldn't get them buttoned, and I KNEW something was radically wrong. I INSISTED on more tests, and they reluctantly) scheduled me for a CT-Scan (just to shut me up, I think). This is what I mean by "taking charge of our own health care."

The CT-Scan showed a lot of fluid in my abdomen (NOT normal). Needless to say, I had to cancel my trip and have FIVE POUNDS of fluid drawn off at the hospital (not a pleasant experience I assure you), but NOTHING compared to what was ahead of me.

Tests revealed cancer cells in the fluid. Finally, finally, finally, the doctor ran a CA-125 blood test, and I was properly diagnosed.

I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER, AND YET THIS SIMPLE CA -125 BLOOD TEST HAD NEVER BEEN RUN ON ME, not as part of my annual physical exam and not when I was symptomatic. This is an inexpensive and simple blood test!

PLEASE, PLEASE TELL ALL YOUR FEMALE FRIENDS AND RELATIVES TO INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL PHYSICAL EXAMS.

Be forewarned that their doctors might try to talk them out of it, saying, "IT ISN'T NECESSARY." Believe me, had I known then what I know now, we would have caught my cancer much earlie r (before it was a stage 3 cancer). Insist on the CA-125 BLOOD TEST; DO NOT take "NO" for an answer!

The normal range for a CA-125 BLOOD TEST is between zero and 35. MINE WAS 754. (That's right, 754!). If the number is slightly above 35, you can have another done in three or six months and keep a close eye on it, just as women do when they have fibroid tumors or when men have a slightly elevated PSA test (Prostatic Specific Antigens) that helps diagnose prostate cancer.

Having the CA-125 test done annually can alert you early, and that's the goal in diagnosing any type of cancer - catching it early.

Do you know 55 women? If so, at least one of them will have this VERY AGGRESSIVE cancer. Please, go to your doctor and insist on a CA-125 test and have one EVERY YEAR for the rest of your life.

And forward this message to every woman you know, and tell all of your female family members and friends. Though the median age for this cancer is 56, (and, guess what, I'm exactly 56), women as young as 22 have it. Age is no factor.

A NOTE FROM THE RN:

Well, after reading this, I made some calls. I found that the CA-125 test is an ovarian screening test equivalent to a man's PSA test prostate screen (which my husband's doctor automatically gives him in his physical each year and insurance pays for it). I called the general practitioner's office about having the test done. The nurse had never heard of it. She told me that she doubted that insurance would pay for it. So I called Prudential Insurance Co, and got the same response. Never heard of it - it won't be covered.

I explained that it was the same as the PSA test they had paid for my husband for years. After conferring with whomever they confer with, she told me that the CA-125 would be covered.

It is $75 in a GP's office and $125 at the GYN's. This is a screening test that shou ld be required just like a PAP smear (a PAP smear cannot detect problems with your ovaries). And you must insist that your insurance company pay for it.

Gene Wilder and Pierce Brosnan (his wife had it, too) are lobbying for women's health issues, saying that this test should be required in our physicals, just like the PAP and the mammogram. PLEASE TAKE A MOMENT TO SEND THIS OUT TO ALL THOSE YOU CAN. BE IT MALE OR FEMALE, IT SHOULD NOT MATTER, AS THEY CAN FORWARD IT ALSO TO THOSE LOVED ONES THEY KNOW.

AndreaB Contributor

Thanks for the ovarian cancer article Rinne.

Something else to keep in mind.

dlp252 Apprentice

Thanks for that info Rinne!

Donna....they know alot about certain things...but Lyme is NOT one of those things. Neither is mercury. They're probably only a tiny bit more knowledgeable than the mainstream docs as far as that goes. Its just not what they specialize in and they dont use the proper tests to rule these things in or out.

The lab they use isnt nearly as qualified for testing as Igenix and they arent doing Western Blots. Since their lab doesnt do Western Blots...I'm pretty sure Dr. Carrie might not have ever even seen a Western Blot before....let alone know how to interpret it.

I could be wrong but thats my guess based on the testing I had done there.

I don't think you're wrong. I still love them there, but they are focused too much on my neck pain and my adrenals and stopped trying to find the cause of it all...I'm really glad I took it upon myself to go to Dr. S. I don't think HN would have referred me there. I really believe they think they can still help me.

I think I may want to get tested for hypercoagulation at some point....just to know if its an issue or not. Its one of those things that can stand in the way of recovery. Some people cant get better if they have hypercoagulated blood.

If anyone doesnt know what that is I've got a couple links.

Open Original Shared Link

Open Original Shared Link

Jins post about dark blood made me think about this again.

Hypercoagulation causes thickened and dark blood.

Lots of people on the Lyme board have hypercoagulated blood....it makes it harder to fight the bacteria.

Hum, I'll read the links. My blood was a bit darker during my fibroid phase, but has seemed pretty normal lately...course I'm not menstruating either, so it may not be noticable. When they draw blood, I always think it looks dark but no one has ever said anything about it...if I cut my finger, that is bright red.

OKay, Bev, I know your problem now .... it's something else, other than a hat, that has to drop to get pregnant! ;)

(Morgan, read the next line at your own risk)

Adam calls me Myrtle sometimes ... I can't even LOOK at him during the fertile time of the month ... He usually travels then! LOL

:lol:

So, what's the deal? I had a herx last week and today I am very weak ... Morgan tried to take me to work out, but I couldn't and had to come home. I sauna-ed, showered, now I'm lying in bed again ... usually on non-herx days I at least feel well enough to lie on the couch!

Could this have to do with my temperature being slightly elevated the past couple days? It's been a low-grade fever ... the early morning temp has been almost 99, and I know temps normally go up from there.

Maybe it's just because I started new meds a few weeks ago ...

Maybe your temp is elevated because you're herxing....I'll be it is the new meds...I don't always have reactions right away to things and sometimes with meds or supplements, it's almost like it builds up in me for a while before I react.

tabasco32 Apprentice

hi everyone

so i went to my naturopath yesterday. I weigh 91 pounds now. I can't digest meats and fats and things. She want's me to take whey protein for body weight but It turns my toungue white and gives me discharge. IT seems as though everything gives me discharge now adays. I feel like I literally am going to die. I wonder if my dentist could just pull these six teeth out so I can start detox. She also wants me to take a probiotic, raw milk that make me sick to my stomach, and coconut milk. She wants me to do a charcoal pill a day for constipation. I don't know if this is good or not. When they gave it to me at the dentist it gave me diarrhea. People I feel sooo sick. What should I do? Should I follow her advice. I also need to take a digestive enzyme. I don't know if this will work either. I lost 5 pounds in a week. I think I might die? Should I go to emergency? I feel they won't know what to do either.

PLEASE anyone with advice help me. I can't get this whey taste out of my mouth and my stomach burnnnss.

lisa

CarlaB Enthusiast

Lisa, I'm sorry you're feeling so bad. Just keep working on getting the teeth taken care of. Eat what you can best tolerate. Try not to feed the candida.

tabasco32 Apprentice
Lisa, I'm sorry you're feeling so bad. Just keep working on getting the teeth taken care of. Eat what you can best tolerate. Try not to feed the candida.

how am I feeding the candida? Whey doesn't feed it does it? My naturopath says it doesn't. What about raw milk, coconut milk or almond butter?

Rachel--24 Collaborator

Lisa,

I did feel like I was gonna die too....when I was at 94 lbs. and everything that I ate just caused intense burning, tingling and numbness all over. It was very scary....but I'm still here....and I weigh 110 now. It CAN get better so just hang in there.

I dont take anything that makes me feel bad or causes severe symptoms. If something is intolerable or is causing weight loss, severe depression, unbearable pain, etc. Just dont take it. I listen to my body FIRST...over any doctor or any test.

Right now you arent going to tolerate much. Some of your symtpoms will definately be from yeast die-off. It sounds like you have ALOT of yeast overgrowth. The whey protein could even be causing a flare up since it contains amino acids which help the body to detox. Your yeast symtpoms will flare up with even the smallest amount of detox.

Also...what is in your Why protein. There shouldnt be any added ningredients or sugar or anything else. My brand is Metagenics BioPure Whey Protein with natural immunoglobulins.

Here it is with a list of ingredients...

Open Original Shared Link

Is yours similar to this??? It should be completely natural.

Also...I wouldnt take the recommended doses of anything. I still cant take normal doses of anything....I start with a very small amount and try to ease my way into it....going very slowly.

Your body is extremely sensitive so if you just go dumping big amounts of detox supplements or immune strengthening supplements...or anything else...you will react. Thats how its been for me all along. It could be doing you some good but too much of anything right now isnt gonna be helpful.

Go very slow with anything that you try. Dont take the recommended doses...it'll be too much for your body to handle and if it causes die-off...you will feel pretty sick.

I dont know about the raw milk?? I avoid raw milk because of bacteria and other bad stuff....since my immune system is already stressed out. I would probably avoid dairy and especially milk.

I dont do well with enzymes but you might be different....its something you can try and see how your body responds. Do only small amounts and try to pay attention to any changes or worsening of symptoms....sometimes things take a few days to start causing problems.

Charcoal is good if you can tolerate it. I take charcoal...it will absorb some of the toxins in your gut and get them out of your body. It helps alot with detox. It will also absorb toxins produced by the yeast. If it bothers you too much...dont take it....but I would definately try it...and see if you can handle it.

If things get really scary...go to the ER if you need to. I've had to go a couple times myself. They didnt help me but its what I needed to do at the time.....cuz I was scared.

When are you suppossed to see the dentist??? Remember to make sure you get some detox supplements in you before and after the removal...its gonna protect you from further poisoning. Stress this to the dentist and to your Dr. so that they can give you some added protection.

I'm sorry you're having it so bad. :(

I was worried about you so I'm glad you posted. I know how it is...I've been there and I actually started calling people one night to say good-bye....I really thought I was gonna die. It was all very scary but obviously I'm still here. Its still rough but alot better than it used to be.

You'll get there too...just hang in there. ;)

Rachel--24 Collaborator
how am I feeding the candida? Whey doesn't feed it does it? My naturopath says it doesn't. What about raw milk, coconut milk or almond butter?

Milk will feed candida (lactose is milk sugar)....personally I would not drink the raw milk anyway...whether it feeds candida or not.

If you can tolerate almond butter...eat it....eat what you can tolerate that is not sugar and high carb white starches, processed foods, cheese, etc. I'm sure you know what to avoid on candida diet right?

If not I can post a list.

The whey could be causing some die off....which would produce the same yeast symptoms...like discharge.

Also because you've got so much yeast right now....anything can be a shock to your system. Candida damages your intestines so you've got leaky gut and alot of imflammation going on....even things that arent feeding the candida can still cause symptoms. You're going to be sensitive to alot of things....so thats why start out in small amounts and dont shock your system with too much of anything.

CarlaB Enthusiast
how am I feeding the candida? Whey doesn't feed it does it? My naturopath says it doesn't. What about raw milk, coconut milk or almond butter?

I just meant that eat what you can tolerate and try to choose foods that don't feed the candida. I didn't mean to imply you were feeding it. Rachel used to eat ice cream and popcorn regularly because they didn't upset her system ... they aren't the best choices with candida, but when it's that or feel sick all the time (and lose weight), I'd choose what Rachel chose -- eat what works for you, but work towards eating what is good for you, too.

Hang in there, we've all had times we thought we were going to die with this ... even though you're a long way from health, you're a long way from dying, too ... just keep making progress, even if it's just a little.

diamondheart Newbie
P.S. I have a question. Can Fibroids cause your menstrual blood to have a foul odor? The blood is also very dark at times. I am worried about this. I have never done anything to cause an infection. I have never been sexually active or anything. I also hurt and it feels like my uterus is swollen. I had a pelvic exam not too long ago. Shouldn't Fibroids have shown up if they were there?

Ooh, a topic I know something about :P ! Yes, fibroids can cause dark menstrual blood and foul odor. What happens when you get fibroids in your uterus is that the muscles in the uterus don't work as well with that fibroid in the way, and not all the blood may get out during your period. If you have dark blood in the beginning of your period, its blood that did not get out from the last period. If you have dark blood at the end of your period, it can be blood that hasn't been able to get out for several periods. A pelvic exam can miss fibroids. The best way to know if you have fibroids is with a transvaginal ultrasound. If you have fibroids, it will increase the size of your uterus. One way to describe the size of your fibroids is to say how big your uterus is if you were pregnant!

Other things can cause menstrual blood to be dark, like a tipped uterus or blocked blood flow to your reproductive organs. Lots of things can block the blood flow to your uterus, including stress! You have one main artery and vein that comes through your diaphram, and if you are stressed, your diaphram will contract and squeeze on that artery and vein! I do an abdominal massage to help with blood flow to the uterus. Actually, sexual activity will help with getting more blood flow to the uterus. Castor oil packs will help too and are also healing to the intestines! I've been trying to do more lately, but I have been lazy in the past. They really helped me when I was doing them more consistently a year and a half ago.

I would suspect that the Deprovera may be causing the dark blood. I think imbalances in your hormones can be a cause as well. For example, my acupuncturist said that this can sometimes happen after taking Clomid, which is what I took last month.

I have those squiggly floaters, too, not off to the sides like others have been talking about floaters. Mine look just like the spirochetes and cysts on Open Original Shared Link, though people on Lymenet say it's not possible that I'm seeing spirichetes ... all I can say is that I can even see that they are corkscrew shaped. When I saw the pictures on that website, I was CERTAIN I had Lyme.

My floaters stay in the same place like everyone is describing, but I also think they have moved around in that place ... they're shaped like two spirochetes and a cyst ... sometimes they look one way or another, but they're always in the same place. Whether they are spirochetes, I don't know.

Those pictures are scary! Sheesh, one more thing to worry about! I can only test my eyes when I'm looking at a bright blue sky, and it's cloudy now, so I can't test it out again.

Claire

diamondheart Newbie
When I read this last night it was about 9:30....and I was waiting for my cookies to finish baking. My mom saw your post and said "At least some people know when its time for bed!!" :rolleyes:

Yeah...I needed my cookies first. :P

I was tired but I WANTED ccokies more than I wanted sleep. :ph34r:

I soooo wanted cookies last night :ph34r: .

Well, I'm in one time zone ahead of you, so it's later here. I would have been baking cookies at 9:30pm if I'd had gotten started sooner (sorry Rachel's mom) :D !

I'm definitely doing it tonight, but I think I'm going to add some maple syrup since I don't have Candida. I'm kinda lukewarm about stevia <_< .

C

AndreaB Contributor

Lisa,

I don't have anything to add but hugs. :wub:

Mtndog Collaborator
OKay, Bev, I know your problem now .... it's something else, other than a hat, that has to drop to get pregnant! ;)

(Morgan, read the next line at your own risk)

Adam calls me Myrtle sometimes ... I can't even LOOK at him during the fertile time of the month ... He usually travels then! LOL

:lol: :lol: :lol: :lol: :lol: :lol:

Wait? What has to drop? :P:blink:

Lisa- Hope you feel better! Hugs!

AndreaB Contributor
:lol: :lol: :lol: :lol: :lol: :lol:

Wait? What has to drop? :P:blink:

:lol::lol::lol:

I'm not getting into this one. :P:lol::lol:

rinne Apprentice

Lisa, I'm sorry you are feeling so wretched, I think what Rachel and Carla said really hits the mark. I know when I was feeling like my entire GI tract was on fire and every day the scale went down a pound or half a pound I was really scared. I hardly ate at that point but I just ate what I wanted, if I actually wanted something. I ate strawberry ice cream occasionally and just eating it would make me feel better although the next day I might not feel so great for having eaten it it felt like it was a plus overall.

Almond butter, I have eaten vast quantities of it and I think it helped me keep some weight on, at one point I was starting to look very gaunt.

Claire, thanks for the scientificness.

Andrea, that is a lovely photo, your father has a kindliness about him.

No-one responded to my snarky remarks about my ex-doctor calling me, I'm not sure whether it got lost or if you are politely refusing to acknowledge my bad behavior. :ph34r::lol:

AndreaB Contributor
No-one responded to my snarky remarks about my ex-doctor calling me, I'm not sure whether it got lost or if you are politely refusing to acknowledge my bad behavior. :ph34r::lol:

Actually Rachel responded. I didn't really know what to say. The whole experience for you with him was definately not what was expected. I don't think he showed a very professional manner in the way he dealt with you.

morganb Newbie

So about a half an hour ago we had our little greys anatomy party! What a finale! You won't believe what happened! You won't believe who stayed, who left, or anything!

Haha, Mom went to bed a little while ago and told me that I should come on here and tease all you who haven't been able to watch it yet :)

tabasco32 Apprentice

thank you all for your help carla and rachel. I will buy some almond butter. I have one from whole foods but it taste rancid. Guess I need to take it back. My whey protein is immunopro. it is a proprietary native whey protein concentrate. Nothing added but I taste vanilla. She want's me to take 6 scoops a day but I think thats too much. What do you think I should take rachel. Should I just order the one you take? Nothing added and 60 bucks for a container of this stuff. but my naturopath gave it to me. Also how much charcoal should I take a day? 1,2, or 3? Probiotics, should I take any Rachel 1.5 billions kyo dophylis? My dentist does give me charcoal when he does my teeth. One down six to go. The mercury wont pull in my tissue from my teeth? Salmon anyone? She want me to have some omega fats also. thank you for your help. I can feel the stress on me real bad. I want to call my family and diieee.

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    • lmemsm
      This may make you feel better about cross-contamination: https://nationalceliac.org/celiac-disease-questions/do-i-need-new-designated-pans-plates-and-utensils/ https://theceliacscene.com/rethinking-cross-contamination-no-need-to-be-so-careful/ I use Tom's of Maine or a toothpaste that states it's gluten free.  I have allergic reactions to some toothpastes so some of the toothpastes in health food stores are usually safer for me. They're typically gluten free as well. Spices can contain cross-contamination from gluten.  There are a few lists online of spices that are safe for celiacs.  I also grow my own herbs and use them in place of store bought when I can.  I think Badia lists their spices as gluten free and Spice Lab has some gluten free too. Knitty Kitty has a great point about nutritional deficiencies and B vitamins.  I got a lot of aches and pains when I got off gluten.  I tried to replace wheat with other healthy grains like teff, buckwheat and sorghum.  Limiting one's diet too much and not getting enough vitamins, can make someone feel worse.  A lot of the gluten free foods in the stores are made with lower quality ingredients than the wheat varieties.  I try to replace all my foods with homemade options.  Then I know the quality of the ingredients and which vitamins I may be high or low in.  Probiotics or prebiotics can help with bathroom issues.  Better to get them in foods if possible and not pill form.  My doctors keep recommending magnesium too.  It's not supposed to be taken alone, but they don't seem to care about that.  It's easy for vitamin D to be low too.  That was another thing doctors told me to take.  Unfortunately, they didn't monitor it and it went too high.  Again, better from natural sources like food and sunlight.  However, supplementing can help if you're not getting enough.  Some sources say to take D with K2.  You may want to have iodine levels checked.  If you add iodine, make sure to get sufficient selenium for thyroid.  You can get iodine naturally in most seaweed.  Nori may also be one of the few non-animal sources for B12.  Brazil nuts are a good source of selenium and you only need a few a day to meet RDA.  Some brands of nuts specifically say gluten free.  Unfortunately, there are issues with Brazil nut production and they're much harder to find this year. The more you can vary your diet the better.  One study said aim for at least 30 different foods in a week.  You might want to try kiwi fruit.  There were some studies that said eating kiwi improved mood.  It also has a covering which most people don't eat, so that should protect what's inside from contamination. I've limited my diet quite a bit over the years because of migraines, so I know how uncomfortable it can be finding safe foods.  However, I'm afraid limiting diets like that may actually be causing more harm than good.  It's something I'm trying to work on.  I keep trying to expand the number of foods I eat and my recipe repertoire.  I made a list of brands of foods that I've found that are gluten free so I have a guide when I'm shopping.  
    • knitty kitty
      Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease.  My doctors didn't recognize nutritional deficiencies either.  I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having.   Poor absorption of essential nutrients is caused by the damage done to the intestines by Celiac Disease.  The gluten free diet can be low in essential nutrients, so supplementing to boost your absorption is beneficial.  New symptoms can develop or worsen as one becomes more and more deficient.   There's eight essential B vitamins that our bodies cannot make, so they must come from our food and supplements.  These eight B vitamins work together, like instruments in an orchestra.  They need to be supplemented together with essential minerals like magnesium.   Deficiencies in the B vitamins can have overlapping symptoms.  Some symptoms can be traced to specific B vitamins.  OCD can be traced to low Pyridoxine Vitamin B 6.  Yes, I had OCD and washed my hands until my skin cracked and bled.  ADHD symptoms can be traced to low Thiamine Vitamin B 1.  ADHD is something one is born with.  People who are born with ADHD have a metabolic problem with getting sufficient thiamine into their brain cells.  People who develop symptoms of ADHD later in life are more likely to be low in Thiamine.  The same symptoms appear if one is not getting sufficient thiamine from the diet.  Yes, I developed symptoms of ADHD.  These symptoms improved and disappeared after supplementing with Thiamine and the other essential nutrients. I was diagnosed with Type Two Diabetes.  99% of diabetics of both types are deficient in Thiamine because our kidneys don't re-absorb thiamine properly.  Thiamine is needed to make insulin and digestive enzymes in the pancreas.  Poor digestion (floating, undigested stools) can result with insufficient pancreatic enzymes.  The gall bladder (upper right quadrant) needs thiamine to make and release bile which also helps with digestion.  Constipation is also a symptom of Thiamine and magnesium deficiencies.  The thyroid is another organ that uses lots of Thiamine, too.  Low thyroid hormones can be due to insufficient thiamine, selenium, iron, and iodine.  Swelling of hands, face and feet are also symptoms of thiamine insufficiency.   Our bodies use thiamine to make energy so organs and tissues can function.  Thiamine cannot be stored longer than three weeks.  If our stores are not replenished every day, we can run out of Thiamine quickly.  If we do get some thiamine from our diet, symptoms can wax and wane mysteriously, because a twenty percent increase in dietary thiamine causes an eighty percent improvement in brain function and symptoms.  Thiamine interacts with all the other vitamins in some way.  Many other vitamins and their metabolic processes won't work without thiamine.  In Celiac Disease you are apt to be low in all the essential nutrients, not just thiamine, but thiamine deficiency symptoms may appear first. Talk to your dietician about eating a nutritionally dense gluten free diet.  Keep in mind that processed gluten free foods do not contain sufficient vitamins to be useful.  Processed gluten free foods are filled with saturated fats and excess fiber (that could explain your constipation).  Dairy products, milk and cheese can cause problems because Casein, the protein in dairy, causes the same autoimmune reaction that gluten does in some.  Your current restricted diet is dangerous to your health.  I followed the Autoimmune Protocol Diet (Dr. Sarah Ballantyne).  It's a Paleo diet that promotes intestinal healing.   Discuss with your doctors about correcting nutritional deficiencies as soon as possible.   Interesting reading... https://pubmed.ncbi.nlm.nih.gov/34165060/ https://pubmed.ncbi.nlm.nih.gov/21816221/#:~:text=Lipid-soluble thiamin precursors can,and attention deficit%2Fhyperactivity disorder.
    • max it
    • cristiana
      My chest pain has been caused by costochondritis, as well as times when iron supplements has given me such bad bloating it has put pressure on my back and chest, and reflux can do the same. Also, along the lines of Wheatwacked's suggestion above, is it possible you had an injury to your chest/ribs way back that is being set off by either some sort of gastrointestinal bloating/discomfort? I distinctly remember really hurting a rib over forty years ago when I misjudged a wall and thought it was just behind me but in fact it wasn't.  I fell badly against the wall and I think I cracked a rib then.  For some strange reason I didn't tell anyone but I think had I gone to hospital an X-ray would have revealed a fracture. I think that rib has not been right since and I am sure that bloating makes it worse, as well as heavy lifting.
    • Dora77
      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health Problems • Floating, undigested stools for over a year now. Dont think its related to celiac as it was like this since im 17 and not 13-16( i got diagnosed at 13). • Chronic back pain started gradually, worsens with movement, lots of cracking/popping sounds. Been ongoing for a year now. First noticed in the gym. • Abdominal bulge on the right side, not painful but seems to be getting slightly bigger. Doctor didn’t find a hernia on ultrasound, but it was done lying down (I’ve read those can miss hernias). Noticed it like 6 months ago, couldve been there longer. • extremely dry and mildly swollen hands (this started before I started excessive hand-washing), and bloated face. • Signs of inattentive ADHD (noticed over the past 3 years), now combined with severe OCD focused on contamination and cross-contact. • Growth/puberty seemed to started after going gluten-free. Before that I was not developing. Dont know if any of these are because of celiac as my dad doesnt have those and he is a lot less strict gluten-free then me. I also had pancreatic elastase tested four times: values were 46 (very low), 236, 158, and 306 (normal). Gastroenterologist said one normal value is enough and I don’t have EPI. Family doctor prescribed Kreon anyway (after I pushed for it), and I just started taking 1 capsule (10,000 units) with meals 2 days ago, but couldn‘t see effects yet because I’ve been constipated the last few days. Maybe because of thyroid. I don’t have Hashimoto’s. No thyroid antibodies. But I took levothyroxine for slightly low FT4 levels. My thyroid levels fluctuated between borderline low and low-normal. And recently lowered my dose so that may have caused the constipating. I probably didn’t need it in the first place, and am thinking about stopping it soon.   Current Diet Right now, I only eat a very limited set of “safe” foods I prepare myself: • Gluten-free bread with tuna or cheese • Milk and cornflakes • gluten-free cookies/snacks • Bananas (the only fruit I trust right now) I rarely eat other fruits or vegetables, because I’m scared of contamination. My dad, who also has celiac but doesn’t care about CC, buys fruits, and he might’ve picked them up right after handling gluten bread. That makes me feel unsafe eating them. Even fruit at stores or markets feels risky because so many people with gluten on their hands touch them.   My Home Situation (Shared Kitchen) We’re a family of 5. Only my dad and I have celiac. He eats glutenfree but doesn’t care about CC and sometimes (but rarely) cheats. My mom and siblings eat gluten bread at every meal. My mom is honest (so if i ask her to be cautious, she most likely would try to), but doesn’t seem to understand how serious celiac is. She: • Stopped using gluten flour • only cooks gluten-free meals (but they still heat up gluten bread and also cook gluten noodles) • Keeps separate butter/jam/jars for me • Bought me a stainless steel pan Bu we didn’t replace old wooden utensils, cutting boards, or other pans. The new they bought me pan was even carried home in a shopping bag with gluten bread in it, which triggered my OCD. It also has a rubber handle and I’m scared it might still hold onto gluten. Even if it’s washed well, it’s stored next to other pans that were used for gluten food/bread. Our kitchen table is used for eating gluten bread daily. My mom wipes it but not with soap. I’m scared tiny particles remain. If she made gluten-free bread dough on a board at the table, I’d still worry about cross contmaination contamination even with something under the dough and on the table as at one point the dough would probably touch the table. So I stopped eating anything she makes.   I know OCD is making it worse, but I can’t tell how much of my fear is real and how much is anxiety. Examples: • I wash my hands 20–30 times a day — before eating, after touching anything at home or outside, after using my phone/laptop. • I don’t let others touch my phone, and I’m scared to use my laptop because friends at school or my brother (who eat gluten) have touched it. And it annoys me a lot when others touch my stuff and feels like it got contaminated and is unsafe instantly. • I stopped eating while using my phone or laptop, afraid of invisible gluten being on them. • I wash my hands after opening food packaging (since it was on store cashier belts where gluten food is placed). • I avoid sitting anywhere except my bed or one clean chair. • I won’t shake hands with anyone or walk past people eating gluten. • At school, when switching classes, I wash my hands before getting out my laptop, again before opening it, etc. • I open door knobs with my elbows instead my hands   Job Concerns (Powder Coating, Sandblasting, Etc.) I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
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