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Omg...i Might Be On To Something


Rachel--24

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CarlaB Enthusiast
I was wondering the same thing about me! Wouldn't it be great if you treated the Lyme and ended up fertile Myrtle (that's what we call my sis who supposedly has no estrogen and gets pregnant at the drop of a hat!).

OKay, Bev, I know your problem now .... it's something else, other than a hat, that has to drop to get pregnant! ;)

(Morgan, read the next line at your own risk)

Adam calls me Myrtle sometimes ... I can't even LOOK at him during the fertile time of the month ... He usually travels then! LOL


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AndreaB Contributor
OKay, Bev, I know your problem now .... it's something else, other than a hat, that has to drop to get pregnant! ;)

(Morgan, read the next line at your own risk)

Adam calls me Myrtle sometimes ... I can't even LOOK at him during the fertile time of the month ... He usually travels then! LOL

:lol::lol:

AndreaB Contributor
I was wondering the same thing about me! Wouldn't it be great if you treated the Lyme and ended up fertile Myrtle (that's what we call my sis who supposedly has no estrogen and gets pregnant at the drop of a hat!).

I hope that is the case with you as well. :)

CarlaB Enthusiast

So, what's the deal? I had a herx last week and today I am very weak ... Morgan tried to take me to work out, but I couldn't and had to come home. I sauna-ed, showered, now I'm lying in bed again ... usually on non-herx days I at least feel well enough to lie on the couch!

Could this have to do with my temperature being slightly elevated the past couple days? It's been a low-grade fever ... the early morning temp has been almost 99, and I know temps normally go up from there.

Maybe it's just because I started new meds a few weeks ago ...

AndreaB Contributor
Maybe it's just because I started new meds a few weeks ago ...

I don't know Carla. That could be it. Has anything else changed in your day, eating etc? Are there any viruse going around still that you may have picked up?

AndreaB Contributor

New avatar. Not real clear but my dad is one the end, then me, Mitch, brother and mom.

CarlaB Enthusiast
Has anything else changed in your day, eating etc? Are there any viruse going around still that you may have picked up?

No.

Beautiful picture.


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rinne Apprentice
I just want to say thank you ALL (every last one of you) for all the support you have given me. I know I had to step away for a bit and really think about it and listen to my own body and I'm glad i did, but I'm glad to be back.

I'm glad to find you here. :)

I read the page but cant recall what I wanted to respond to except Miamia was saying something about rice cakes feeding candida??

I did wanna say that lots of other things you're eating will also feed candida...like those chicken nuggets. If you get a particularly strong reaction to a certain food....like the rice cakes...its more likely you are reacting to something in the food. Yes...it would still feed candida but I doubt thats why you reacted.

Its mostly white starches (i.e. white rice, potatoes) that rapidly turn to sugar. My candida situation is pretty bad but I still ate potatoes, and dont forget the ice cream (with actual cane sugar and milk sugar), plus apples and popcorn. I was feeding the candida plenty but I did not get reactions to these foods because apparantly they were pretty safe as far as molds and chemicals.

However, a single bite of a rice cake and I'm reacting pretty noticeably...half of a rice cake has me pretty messed up for at least 2 days. :angry:

Its like this with alot of foods. The more I ate the ice cream and fed the candida...the more sensitive I became to molds and chemicals. I've come to learn that the reactions are not actually from "feeding" the candida. If candida is consistently causing a problem...its not going to cause dramatic symptoms after one meal or snack. Those reactions are occurring because having the candida means you get alot of sensitivities to various things.

You especially become sensitive to yeast and molds. If you eat something with vinegar...or drink wine (which is loaded with yeast).....you will react quite strongly and most likely feel bad for days.

I dont think the candida got especially happy with the rice cakes...I think its more likely you are sensitive to them.

I'm pretty sure my candida was feeling pretty darn good having 1-2 pints of chocolate ice cream everyday....I dont think my problems with rice and rice cakes comes from the candida consuming sugar. If that was the case I'd have been pretty miserable those 8 months I ate ice cream everyday. :blink:

If you can eat homemade pizza, chicken nuggets and other foods and be ok....then theres something about the rice cakes. If it had to do with feeding candida you would have the same problem with these other foods....because they feed candida as well.

Thats my guess. :)

I dont eat ice cream, popcorn or apples anymore....(yeah..I know....it about time I got smart about this :rolleyes: ) but I still do eat some potatoes and oatmeal...which are very starchy. I also had yams. :ph34r:

Anna told me to never eat the starches like potatoes by themselves...this is when they will rapidly turn to sugar. She said to always eat them with protein...which slows it down and allows less sugar for the yeast. There must be truth in it because if I eat the potato by itself...I get more head "fullness". If I eat it with meat...I barely notice anything after eating. :)

This would not work for me with rice cakes because I'm actually reacting to the rice cake itself....its nothing to do with it turning to sugar. Plus I always ate brown rice cakes...never white.

Interesting scientificness Rachel, I really appreciate the thoroughness of your posts. :)

Ditto!

Oh for pete's sake, lol. It's like my eyes have just been opened... :lol: I'm thinking my candida isn't a big problem because I've had no die off, cuz Scott said it didn't look bad in ART and because I haven't had any big reactions. DUH, Donna, what the heck are you thinking. :P This is exactly what is happening to me. Where's the head banging icon when you need it! :P

:lol: Me too.

Rachel-

I agree with you I think the rice cakes are the problem- because I am able to tolerate otherr things that I know are "bad" the thing is I react to so many things and am so underwight I can't see cutting these things out. I do best iwth a balance of carbs/protein/ veggies - too much of any one thing kills me. Thats why if I make pizza I add ground lamb and vegees- etc.

God if I was gonna have to be sick for three days I wish it would have at leastbeen over something good. I had an appt at the health center I go to and I feel a bit better .

Tomorrow I ahve my appt for cranio. therpy. I am really interested in exactly what it entails- Rinne- did you say you did this once?

Yes, it was very interesting and I did feel like it opened up some energy but I didn't think it was going to really work for me over all because of my dental work. That sounds strange but she said they work on opening up spaces in the mouth also and with my bridgework that is not possible. I also thought it was very expensive at $75.00 a session.

I put my homeopathic drops in glasses of hot water and let them sit for awhile....the alcohol evaporates. Dont know if that takes care of any gluten that might be present but I havent had any problems with my homeopathic drops at all. :)

Thanks Carla, that's a good solution, pun intended. :P

Here is the information on ovarian cancer, it is worth a read.

SIGNS OF OVARIAN CANCER (even in the absence of Ovaries) THIS IS A MUST TO READ TO THE END

An Eye Opener on Ovarian Cancer

I hope you all take the time to read this and pass it on to all you can . Send this to the women in your life that you care about.

Years ago, Gilda Radner died of ovarian cancer. Her symptoms were inconclusive, and she was treated for everything under the sun until it was too late. This blood te st finally identified her illness but alas, too late. She wrote a book to heighten awareness. Gene Wilder is her widower.

KATHY'S STORY: this is the story of Kathy West

As all of you know, I have Primary Peritoneal Cancer. This cancer has only recently been identified as its OWN type of cancer, but it is essentially Ovarian Cancer.

Both types of cancer are diagnosed in the same way, with the "tumor marker" CA-125 BLOOD TEST, and they are treated in the same way - surgery to remove the primary tumor and then chemotherapy with Taxol and Carboplatin.

Having gone through this ordeal, I want to save others from the same fate. That is why I am sending this message to you and hope you will print it and giv e it or send it via E-mail to everybody you know.

One thing I have learned is that each of us must take TOTAL responsibility for our own health care. I thought I had done that because I always had an annual physical and PAP smear, did a monthly Self-Breast Exam, went to the dentist at least twice a year, etc. I even insisted on a sigmoidoscopy and a bone density test last year. When I had a total hysterectomy in 1993, I thought that I did not have to worry about getting any of the female reproductive organ cancers.

LITTLE DID I KNOW. I don't have ovaries (and they were HEALTHY when they were removed), but I have what is essentially ovarian cancer. Strange, isn't it?

These are just SOME of the things our Doctors never tell us: ONE out of every 55 women will get OVARIAN or PRIMARY PERITONEAL CANCER.

The "CLASSIC" symptoms are an ABDOMEN that rather SUDDENLY ENLARGES and CONSTIPATION and/or DIARRHEA.

I had these classic symptoms and went to the doctor. Because these symptoms seemed to be "abdominal", I went to a gastroenterologist. He ran tests that were designed to determine whether there was a bacteria infection; these tests were negative, and I was diagnosed with "Irritable Bowel Syndrome". I guess I would have accepted this diagnosis had it not been for my enlarged abdomen. I swear to you, it looked like I was 4-5 months pregnant! I therefore insisted on more tests

They took an X-ra y of my abdomen; it was negative. I was again assured that I had Irritable Bowel Syndrome and was encouraged to go on my scheduled month-long trip to Europe. I couldn't wear any of my slacks or shorts because I couldn't get them buttoned, and I KNEW something was radically wrong. I INSISTED on more tests, and they reluctantly) scheduled me for a CT-Scan (just to shut me up, I think). This is what I mean by "taking charge of our own health care."

The CT-Scan showed a lot of fluid in my abdomen (NOT normal). Needless to say, I had to cancel my trip and have FIVE POUNDS of fluid drawn off at the hospital (not a pleasant experience I assure you), but NOTHING compared to what was ahead of me.

Tests revealed cancer cells in the fluid. Finally, finally, finally, the doctor ran a CA-125 blood test, and I was properly diagnosed.

I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER, AND YET THIS SIMPLE CA -125 BLOOD TEST HAD NEVER BEEN RUN ON ME, not as part of my annual physical exam and not when I was symptomatic. This is an inexpensive and simple blood test!

PLEASE, PLEASE TELL ALL YOUR FEMALE FRIENDS AND RELATIVES TO INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL PHYSICAL EXAMS.

Be forewarned that their doctors might try to talk them out of it, saying, "IT ISN'T NECESSARY." Believe me, had I known then what I know now, we would have caught my cancer much earlie r (before it was a stage 3 cancer). Insist on the CA-125 BLOOD TEST; DO NOT take "NO" for an answer!

The normal range for a CA-125 BLOOD TEST is between zero and 35. MINE WAS 754. (That's right, 754!). If the number is slightly above 35, you can have another done in three or six months and keep a close eye on it, just as women do when they have fibroid tumors or when men have a slightly elevated PSA test (Prostatic Specific Antigens) that helps diagnose prostate cancer.

Having the CA-125 test done annually can alert you early, and that's the goal in diagnosing any type of cancer - catching it early.

Do you know 55 women? If so, at least one of them will have this VERY AGGRESSIVE cancer. Please, go to your doctor and insist on a CA-125 test and have one EVERY YEAR for the rest of your life.

And forward this message to every woman you know, and tell all of your female family members and friends. Though the median age for this cancer is 56, (and, guess what, I'm exactly 56), women as young as 22 have it. Age is no factor.

A NOTE FROM THE RN:

Well, after reading this, I made some calls. I found that the CA-125 test is an ovarian screening test equivalent to a man's PSA test prostate screen (which my husband's doctor automatically gives him in his physical each year and insurance pays for it). I called the general practitioner's office about having the test done. The nurse had never heard of it. She told me that she doubted that insurance would pay for it. So I called Prudential Insurance Co, and got the same response. Never heard of it - it won't be covered.

I explained that it was the same as the PSA test they had paid for my husband for years. After conferring with whomever they confer with, she told me that the CA-125 would be covered.

It is $75 in a GP's office and $125 at the GYN's. This is a screening test that shou ld be required just like a PAP smear (a PAP smear cannot detect problems with your ovaries). And you must insist that your insurance company pay for it.

Gene Wilder and Pierce Brosnan (his wife had it, too) are lobbying for women's health issues, saying that this test should be required in our physicals, just like the PAP and the mammogram. PLEASE TAKE A MOMENT TO SEND THIS OUT TO ALL THOSE YOU CAN. BE IT MALE OR FEMALE, IT SHOULD NOT MATTER, AS THEY CAN FORWARD IT ALSO TO THOSE LOVED ONES THEY KNOW.

AndreaB Contributor

Thanks for the ovarian cancer article Rinne.

Something else to keep in mind.

dlp252 Apprentice

Thanks for that info Rinne!

Donna....they know alot about certain things...but Lyme is NOT one of those things. Neither is mercury. They're probably only a tiny bit more knowledgeable than the mainstream docs as far as that goes. Its just not what they specialize in and they dont use the proper tests to rule these things in or out.

The lab they use isnt nearly as qualified for testing as Igenix and they arent doing Western Blots. Since their lab doesnt do Western Blots...I'm pretty sure Dr. Carrie might not have ever even seen a Western Blot before....let alone know how to interpret it.

I could be wrong but thats my guess based on the testing I had done there.

I don't think you're wrong. I still love them there, but they are focused too much on my neck pain and my adrenals and stopped trying to find the cause of it all...I'm really glad I took it upon myself to go to Dr. S. I don't think HN would have referred me there. I really believe they think they can still help me.

I think I may want to get tested for hypercoagulation at some point....just to know if its an issue or not. Its one of those things that can stand in the way of recovery. Some people cant get better if they have hypercoagulated blood.

If anyone doesnt know what that is I've got a couple links.

Open Original Shared Link

Open Original Shared Link

Jins post about dark blood made me think about this again.

Hypercoagulation causes thickened and dark blood.

Lots of people on the Lyme board have hypercoagulated blood....it makes it harder to fight the bacteria.

Hum, I'll read the links. My blood was a bit darker during my fibroid phase, but has seemed pretty normal lately...course I'm not menstruating either, so it may not be noticable. When they draw blood, I always think it looks dark but no one has ever said anything about it...if I cut my finger, that is bright red.

OKay, Bev, I know your problem now .... it's something else, other than a hat, that has to drop to get pregnant! ;)

(Morgan, read the next line at your own risk)

Adam calls me Myrtle sometimes ... I can't even LOOK at him during the fertile time of the month ... He usually travels then! LOL

:lol:

So, what's the deal? I had a herx last week and today I am very weak ... Morgan tried to take me to work out, but I couldn't and had to come home. I sauna-ed, showered, now I'm lying in bed again ... usually on non-herx days I at least feel well enough to lie on the couch!

Could this have to do with my temperature being slightly elevated the past couple days? It's been a low-grade fever ... the early morning temp has been almost 99, and I know temps normally go up from there.

Maybe it's just because I started new meds a few weeks ago ...

Maybe your temp is elevated because you're herxing....I'll be it is the new meds...I don't always have reactions right away to things and sometimes with meds or supplements, it's almost like it builds up in me for a while before I react.

tabasco32 Apprentice

hi everyone

so i went to my naturopath yesterday. I weigh 91 pounds now. I can't digest meats and fats and things. She want's me to take whey protein for body weight but It turns my toungue white and gives me discharge. IT seems as though everything gives me discharge now adays. I feel like I literally am going to die. I wonder if my dentist could just pull these six teeth out so I can start detox. She also wants me to take a probiotic, raw milk that make me sick to my stomach, and coconut milk. She wants me to do a charcoal pill a day for constipation. I don't know if this is good or not. When they gave it to me at the dentist it gave me diarrhea. People I feel sooo sick. What should I do? Should I follow her advice. I also need to take a digestive enzyme. I don't know if this will work either. I lost 5 pounds in a week. I think I might die? Should I go to emergency? I feel they won't know what to do either.

PLEASE anyone with advice help me. I can't get this whey taste out of my mouth and my stomach burnnnss.

lisa

CarlaB Enthusiast

Lisa, I'm sorry you're feeling so bad. Just keep working on getting the teeth taken care of. Eat what you can best tolerate. Try not to feed the candida.

tabasco32 Apprentice
Lisa, I'm sorry you're feeling so bad. Just keep working on getting the teeth taken care of. Eat what you can best tolerate. Try not to feed the candida.

how am I feeding the candida? Whey doesn't feed it does it? My naturopath says it doesn't. What about raw milk, coconut milk or almond butter?

Rachel--24 Collaborator

Lisa,

I did feel like I was gonna die too....when I was at 94 lbs. and everything that I ate just caused intense burning, tingling and numbness all over. It was very scary....but I'm still here....and I weigh 110 now. It CAN get better so just hang in there.

I dont take anything that makes me feel bad or causes severe symptoms. If something is intolerable or is causing weight loss, severe depression, unbearable pain, etc. Just dont take it. I listen to my body FIRST...over any doctor or any test.

Right now you arent going to tolerate much. Some of your symtpoms will definately be from yeast die-off. It sounds like you have ALOT of yeast overgrowth. The whey protein could even be causing a flare up since it contains amino acids which help the body to detox. Your yeast symtpoms will flare up with even the smallest amount of detox.

Also...what is in your Why protein. There shouldnt be any added ningredients or sugar or anything else. My brand is Metagenics BioPure Whey Protein with natural immunoglobulins.

Here it is with a list of ingredients...

Open Original Shared Link

Is yours similar to this??? It should be completely natural.

Also...I wouldnt take the recommended doses of anything. I still cant take normal doses of anything....I start with a very small amount and try to ease my way into it....going very slowly.

Your body is extremely sensitive so if you just go dumping big amounts of detox supplements or immune strengthening supplements...or anything else...you will react. Thats how its been for me all along. It could be doing you some good but too much of anything right now isnt gonna be helpful.

Go very slow with anything that you try. Dont take the recommended doses...it'll be too much for your body to handle and if it causes die-off...you will feel pretty sick.

I dont know about the raw milk?? I avoid raw milk because of bacteria and other bad stuff....since my immune system is already stressed out. I would probably avoid dairy and especially milk.

I dont do well with enzymes but you might be different....its something you can try and see how your body responds. Do only small amounts and try to pay attention to any changes or worsening of symptoms....sometimes things take a few days to start causing problems.

Charcoal is good if you can tolerate it. I take charcoal...it will absorb some of the toxins in your gut and get them out of your body. It helps alot with detox. It will also absorb toxins produced by the yeast. If it bothers you too much...dont take it....but I would definately try it...and see if you can handle it.

If things get really scary...go to the ER if you need to. I've had to go a couple times myself. They didnt help me but its what I needed to do at the time.....cuz I was scared.

When are you suppossed to see the dentist??? Remember to make sure you get some detox supplements in you before and after the removal...its gonna protect you from further poisoning. Stress this to the dentist and to your Dr. so that they can give you some added protection.

I'm sorry you're having it so bad. :(

I was worried about you so I'm glad you posted. I know how it is...I've been there and I actually started calling people one night to say good-bye....I really thought I was gonna die. It was all very scary but obviously I'm still here. Its still rough but alot better than it used to be.

You'll get there too...just hang in there. ;)

Rachel--24 Collaborator
how am I feeding the candida? Whey doesn't feed it does it? My naturopath says it doesn't. What about raw milk, coconut milk or almond butter?

Milk will feed candida (lactose is milk sugar)....personally I would not drink the raw milk anyway...whether it feeds candida or not.

If you can tolerate almond butter...eat it....eat what you can tolerate that is not sugar and high carb white starches, processed foods, cheese, etc. I'm sure you know what to avoid on candida diet right?

If not I can post a list.

The whey could be causing some die off....which would produce the same yeast symptoms...like discharge.

Also because you've got so much yeast right now....anything can be a shock to your system. Candida damages your intestines so you've got leaky gut and alot of imflammation going on....even things that arent feeding the candida can still cause symptoms. You're going to be sensitive to alot of things....so thats why start out in small amounts and dont shock your system with too much of anything.

CarlaB Enthusiast
how am I feeding the candida? Whey doesn't feed it does it? My naturopath says it doesn't. What about raw milk, coconut milk or almond butter?

I just meant that eat what you can tolerate and try to choose foods that don't feed the candida. I didn't mean to imply you were feeding it. Rachel used to eat ice cream and popcorn regularly because they didn't upset her system ... they aren't the best choices with candida, but when it's that or feel sick all the time (and lose weight), I'd choose what Rachel chose -- eat what works for you, but work towards eating what is good for you, too.

Hang in there, we've all had times we thought we were going to die with this ... even though you're a long way from health, you're a long way from dying, too ... just keep making progress, even if it's just a little.

diamondheart Newbie
P.S. I have a question. Can Fibroids cause your menstrual blood to have a foul odor? The blood is also very dark at times. I am worried about this. I have never done anything to cause an infection. I have never been sexually active or anything. I also hurt and it feels like my uterus is swollen. I had a pelvic exam not too long ago. Shouldn't Fibroids have shown up if they were there?

Ooh, a topic I know something about :P ! Yes, fibroids can cause dark menstrual blood and foul odor. What happens when you get fibroids in your uterus is that the muscles in the uterus don't work as well with that fibroid in the way, and not all the blood may get out during your period. If you have dark blood in the beginning of your period, its blood that did not get out from the last period. If you have dark blood at the end of your period, it can be blood that hasn't been able to get out for several periods. A pelvic exam can miss fibroids. The best way to know if you have fibroids is with a transvaginal ultrasound. If you have fibroids, it will increase the size of your uterus. One way to describe the size of your fibroids is to say how big your uterus is if you were pregnant!

Other things can cause menstrual blood to be dark, like a tipped uterus or blocked blood flow to your reproductive organs. Lots of things can block the blood flow to your uterus, including stress! You have one main artery and vein that comes through your diaphram, and if you are stressed, your diaphram will contract and squeeze on that artery and vein! I do an abdominal massage to help with blood flow to the uterus. Actually, sexual activity will help with getting more blood flow to the uterus. Castor oil packs will help too and are also healing to the intestines! I've been trying to do more lately, but I have been lazy in the past. They really helped me when I was doing them more consistently a year and a half ago.

I would suspect that the Deprovera may be causing the dark blood. I think imbalances in your hormones can be a cause as well. For example, my acupuncturist said that this can sometimes happen after taking Clomid, which is what I took last month.

I have those squiggly floaters, too, not off to the sides like others have been talking about floaters. Mine look just like the spirochetes and cysts on Open Original Shared Link, though people on Lymenet say it's not possible that I'm seeing spirichetes ... all I can say is that I can even see that they are corkscrew shaped. When I saw the pictures on that website, I was CERTAIN I had Lyme.

My floaters stay in the same place like everyone is describing, but I also think they have moved around in that place ... they're shaped like two spirochetes and a cyst ... sometimes they look one way or another, but they're always in the same place. Whether they are spirochetes, I don't know.

Those pictures are scary! Sheesh, one more thing to worry about! I can only test my eyes when I'm looking at a bright blue sky, and it's cloudy now, so I can't test it out again.

Claire

diamondheart Newbie
When I read this last night it was about 9:30....and I was waiting for my cookies to finish baking. My mom saw your post and said "At least some people know when its time for bed!!" :rolleyes:

Yeah...I needed my cookies first. :P

I was tired but I WANTED ccokies more than I wanted sleep. :ph34r:

I soooo wanted cookies last night :ph34r: .

Well, I'm in one time zone ahead of you, so it's later here. I would have been baking cookies at 9:30pm if I'd had gotten started sooner (sorry Rachel's mom) :D !

I'm definitely doing it tonight, but I think I'm going to add some maple syrup since I don't have Candida. I'm kinda lukewarm about stevia <_< .

C

AndreaB Contributor

Lisa,

I don't have anything to add but hugs. :wub:

Mtndog Collaborator
OKay, Bev, I know your problem now .... it's something else, other than a hat, that has to drop to get pregnant! ;)

(Morgan, read the next line at your own risk)

Adam calls me Myrtle sometimes ... I can't even LOOK at him during the fertile time of the month ... He usually travels then! LOL

:lol: :lol: :lol: :lol: :lol: :lol:

Wait? What has to drop? :P:blink:

Lisa- Hope you feel better! Hugs!

AndreaB Contributor
:lol: :lol: :lol: :lol: :lol: :lol:

Wait? What has to drop? :P:blink:

:lol::lol::lol:

I'm not getting into this one. :P:lol::lol:

rinne Apprentice

Lisa, I'm sorry you are feeling so wretched, I think what Rachel and Carla said really hits the mark. I know when I was feeling like my entire GI tract was on fire and every day the scale went down a pound or half a pound I was really scared. I hardly ate at that point but I just ate what I wanted, if I actually wanted something. I ate strawberry ice cream occasionally and just eating it would make me feel better although the next day I might not feel so great for having eaten it it felt like it was a plus overall.

Almond butter, I have eaten vast quantities of it and I think it helped me keep some weight on, at one point I was starting to look very gaunt.

Claire, thanks for the scientificness.

Andrea, that is a lovely photo, your father has a kindliness about him.

No-one responded to my snarky remarks about my ex-doctor calling me, I'm not sure whether it got lost or if you are politely refusing to acknowledge my bad behavior. :ph34r::lol:

AndreaB Contributor
No-one responded to my snarky remarks about my ex-doctor calling me, I'm not sure whether it got lost or if you are politely refusing to acknowledge my bad behavior. :ph34r::lol:

Actually Rachel responded. I didn't really know what to say. The whole experience for you with him was definately not what was expected. I don't think he showed a very professional manner in the way he dealt with you.

morganb Newbie

So about a half an hour ago we had our little greys anatomy party! What a finale! You won't believe what happened! You won't believe who stayed, who left, or anything!

Haha, Mom went to bed a little while ago and told me that I should come on here and tease all you who haven't been able to watch it yet :)

tabasco32 Apprentice

thank you all for your help carla and rachel. I will buy some almond butter. I have one from whole foods but it taste rancid. Guess I need to take it back. My whey protein is immunopro. it is a proprietary native whey protein concentrate. Nothing added but I taste vanilla. She want's me to take 6 scoops a day but I think thats too much. What do you think I should take rachel. Should I just order the one you take? Nothing added and 60 bucks for a container of this stuff. but my naturopath gave it to me. Also how much charcoal should I take a day? 1,2, or 3? Probiotics, should I take any Rachel 1.5 billions kyo dophylis? My dentist does give me charcoal when he does my teeth. One down six to go. The mercury wont pull in my tissue from my teeth? Salmon anyone? She want me to have some omega fats also. thank you for your help. I can feel the stress on me real bad. I want to call my family and diieee.

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    • knitty kitty
      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
    • Scott Adams
      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
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