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What Makes You Happiest About Being Gluten-free?

Guest BERNESES

By Guest BERNESES
in Coping with Celiac Disease

Recommended Posts

debmidge Rising Star
debmidge
Posted

as per my husband Mike: I finally have a name for my health problem. I finally have a solution for my health problem. I am not crazy like the doctor said I was.

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Lisa Mentor
Lisa
Posted

I feel glad that I have a source in all of you and know where I can turn to get support.

I am glad that I don't have cancer, which is what I thought.

I am glad that my husband has realized that this is serious and talks to the waiter before I get a change to open my mouth (I think :huh: ). He has seen so supportive and helped me with trash bag with my favorite jeans in them :angry:

I am glad that I can heal myself, although the burden is high. I sometimes feel that I have handle on the diet and I get slack and it bites me in the a-- all the time - literally.

I am glad that I know what I am dealing with and I am in full controll.

I am glad that I know that Altoids have many uses. Shush, don't tell my husband. I am 51 and my husband is 66 - Karen can have all of mine. ;)

I am glad that we are together in this and we can joke and be friends. :)

Judyin Philly Enthusiast
Judyin Philly
Posted

I'm so glad I've lost 45 #'s without trying except for going gluten/soy free and mostly dairy...

Tried for years to get weight off and now I have a 'tool' to use

I'm so glad i don't have the horrid big "D" anymore. It was controling my life and that of my husbands.

I'm so glad i don't have the pain of fibromyalgia anymore.

I'm glad that if i keep feeling better, one of my life goals will be to return to Italy and Switzerland. With healing I believe my dream will become a reality. :)

I'm so so so glad I have this group of friends on the forum...You all are amazing. :):):):)

hugs and love

judy in philly

jkmunchkin Rising Star
jkmunchkin
Posted

I love not feeling sick every single day.

I love being able to make plans and actually not cancel because I feel so sick.

I love having more energy than I used to.

I love knowing that something really was wrong with me all those years and it's not just that I'm they "type of person" that never feels well.

I love having the power to make myself feel better.

And I love my support team here and in most of my family.

Rusla Enthusiast
Rusla
Posted

I love not having the big D anymore.

I love that I have lost 35lbs without doing anything and continuing I am continuing to lose. I love that I found this forum and I love all of you and what wonderful and funny things you all come up with. I love that when I see or smell glutenous food that, I don't crave it or even want it anymore. I love that even though I don't feel perfect, I do feel better than before and look forward to eventually being near perfect. I love that everyone on here is getting better and feeling better.

Laura Apprentice
Laura
Posted

I love it all. Love the sense of serenity and joy I have almost all of the time, and the lack of despair when things don't go well. I love that I had a cold this week and it sucked but I hadn't had one in months and I know just how much worse it could be. Shoot, because I'm something of a control freak, I even love having the excuse to always have dinner parties at my house rather than having to trust someone else's cooking.

luvs2eat Collaborator
luvs2eat
Posted

I'm not lovin' it so much. I'm resigned, but not lovin' that I can't have my favorite food... my homemade breads... ever again. My "big D" wasn't so bad and I didn't feel crappy. I didn't get to lose ONE POUND without trying desperately ... rather, I've GAINED weight I didn't need!!

So, now I'm on Weight Watchers, not eating the fav foods I CAN have because I have don't have enough willpower to keep from eating more than I should. I've become much more gluten sensitive, so that now the "big D" IS a big deal... and I'm still huge and still can't eat my homemade bread.

Oh, don't mind me... I'll go get some cheese to have with my whine.

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Judyin Philly Enthusiast
Judyin Philly
Posted

HI LOVE YOUR-----Oh, don't mind me... I'll go get some cheese to have with my whine. wine / whine/ what a hoot :lol:

Just a tip if you want....

I STOPPED losing weight when I added back lactose...(milk, cheese & ice cream ALL MY FAVORITE THINGS)..MORE THAN THE BREAD---WHICH WAS MY FIRST FAVORITE THING BEFORE ICE CREAM

THE SNACK THINGS AND GOOD THINGS THAT CAN KEEP US gluten-free I FIND IF I HAVE TOO MANY WILL STOP MY WEIGHT LOSS. IF YOU REALLY WANT TO LOSE WEIGHT, I'D TRY TO KEEP IT THE SIMPLE BASIC FOOD GROUPS...IT'S BEEN 10 MONTHS FOR ME..... iF YOUR GETTING THE BIG 'D' AND DIDN'T HAVE IT BEFORE THEN I BET THERE IS SOMETHING YOUR 'GUT' DOESN'T LIKE...ALSO, THE EXERCISE IS A BIG PIECE OF IT. HAVEN'T BEEN ABLE TO SWIM FOR A MONTH DUE TO MANY ISSUES BUT I MISS MENTALLY AND SO DOES MY BODY.

Please don't think I'm screaming at you with the 'caps' . People who know me on the forum know I can't see well and the caps are easier for me to see and so many of my posts are in caps.

good luck

judy in philly

mesmerize Apprentice
mesmerize
Posted

well this is my very first post here (i've been gluten free for about 2 months now)... but i just had to say that my absolute favorite thing is the effect it's had on my SKIN. i've had ridiculously sensitive skin and constant breakouts for as long as i can remember (i'm 25 now) and within days of going gluten free it was all GONE. i've had a couple very minor breakouts since then, but then it just clears right up again and looks better than ever. i also used to always have these tiny little bumps all over my face, like clogged pores or something. they've completely disappeared now, my skin is SO smooth. i don't know why this happened as soon as i went off gluten, and i don't care! i'm just happy it did! ;)

of course another nice bonus was realizing that pretty much ALL my health problems that have kept me in doctors offices for most of my life (IBS, graves disease, etc etc etc) can be at least partly attributed to this ONE thing. it's still just so amazing to me that not even one of the countless doctors/specialists that i saw throughout the first 25 years of my life ever thought to test me for this, until my new AWESOME doctor finally put all the pieces together. :D

judy05 Apprentice
judy05
Posted
I love jnkmnky's thread about the best advice you have ever gotten from this board, and I was thinking, you know, there really are a lot of positives about being gluten-free (and sometimes newbies don't see them).

Here's mine- I think my favorite things about being gluten free are that my depression may have been related to Celiac's. My whole life I could never figure it out. It just didn't "fit" and my doctor and therapist always said I was the clearest case for a biological depression they had ever seen. Turns out they were right- 18 years ago!

i love that I like Chebe pizza crust better than "real" pizza crust.

I love that's it's brought my relationship to a new level with my hubby.

I love that I eat healthier now than I EVER did before.

I love that I can still have a lot of my favorite foods.

I'm happy that I finally figured out why I got sick so often and can control it through my diet and not mounds of medicines.

I'm happy that I feel like I'm finally starting to heal- that waas scaary.

I'm happy that my energy is coming back!!!!!!

Hi everyone,

I love that I can drive my pickup truck without wearing sunglasses anymore

I love that I can't remember when I last had a cold (I used to get 3-4 a year)

I love that Spring is here and I'm not wheezing or sneezing, I can be outside again.

I love being rid of that awful brain fog and migraines.

I love being free from some really awful aches and pains, I had to take early retirement because of them.

klemmen Rookie
klemmen
Posted

:rolleyes: Hum, well after going gluten free I don't feel much better but .... what i do like about being gluten free and not feeling much better is that after ages of never having enough time to read, i now find me and the bathroom have become quite well aquainted with many books... :ph34r::lol::lol::huh: .sooo maybe it's made me more intelligent :rolleyes: . No erm it's made me more aware of the foods i eat...always thought i ate quite healthy on a veggie diet but when i started reading the labels :o tut tut all the extra rubbish inside....and it has given me an opportunity to learn to cook..not that i have taken up that one yet :rolleyes:

and i found this board and therefore would never have been able to read such an interesting thread such as Sex and Celiac :lol::lol: tooooo funny :lol:

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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