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- knitty kitty replied to Jane07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3any advice would be helpful
@Jane07, welcome to the forum! Have you been checked for nutritional deficiencies? Malabsorption of essential nutrients is common in Celiac Disease. Supplementing with vitamins and minerals that are commonly low in the newly diagnosed can help immensely with recovery. Vitamin D is frequently low. Vitamin D helps regulate the immune system and... -
- knitty kitty replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
What would a diagnosis tell me?
Welcome to the forum! A blood test for Celiac looks for the amount of antibodies your body is producing in response to gluten. An endoscopy looks at the damage done by the antibodies attacking the villi lining the intestines. When you have a cold or infection, antibodies are made that attack the foreign invader. In Celiac Disease, our immune... -
- cristiana replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12UK Member Looking For Help - Recent Test
@LeeRoy83 Hello again. Picking up on something else you said re: the shock that you may be a coeliac. It may has come as a shock to learn that coeliac disease is a possibility, but if that is the case, although it can be at times a bit of a nuisance not to be able to eat gluten anymore, it has been my experience that most of my friends...- 1
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- trents replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
No. That is, unless the dietician themself has a gluten disorder or is managing a close family member who does and therefore is immersed in it daily so as to be up on the nuances of eating gluten free. Otherwise, they just give you very general information which you can get online. -
- trents replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
UK Member Looking For Help - Recent Test
Yes, a very cryptic and uninformative lab result report indeed! But it does seem like this is typical for the UK. It's almost like the "professionals" in that healthcare system don't want you to try and figure anything out for yourself.
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By knitty kitty · Posted
@Jane07, welcome to the forum! Have you been checked for nutritional deficiencies? Malabsorption of essential nutrients is common in Celiac Disease. Supplementing with vitamins and minerals that are commonly low in the newly diagnosed can help immensely with recovery. Vitamin D is frequently low. Vitamin D helps regulate the immune system and calm it down. The eight essential B vitamins help repair and maintain our body's health. Magnesium, calcium, zinc and other minerals are necessary, too. Vitamin C helps, as well. Benfotiamine, A form of Thiamine, has been shown to promote intestinal healing. Are you still consuming dairy? Eliminating dairy may bring some improvements. Have you tried the low histamine Autoimmune Protocol diet? Developed by a Celiac, Dr. Sarah Ballantyne, the AIP diet can improve symptoms while healing. -
By knitty kitty · Posted
Welcome to the forum! A blood test for Celiac looks for the amount of antibodies your body is producing in response to gluten. An endoscopy looks at the damage done by the antibodies attacking the villi lining the intestines. When you have a cold or infection, antibodies are made that attack the foreign invader. In Celiac Disease, our immune system recognizes gluten as a foreign invader and launches antibodies against it. However, the gluten particles resembles the same structural components in our body cells. As a result, the anti gluten antibodies attack our own cells, causing damage like flattening villi in the intestines and also potentially attacking vital organs like the thyroid, the pancreas, the brain, and the heart. Gluten itself does not stay in the body for years. The anti gluten antibodies stay in the body for years. Our bodies remember gluten and continue making antibodies against gluten which continue to damage our bodies for years. Eventually, if not triggered by gluten ingestion for two years or longer, our bodies may go into remission and stop producing the antibodies and thus end the inflammation and damage. You should be afraid. You should be very afraid. Consuming gluten accidentally or intentionally can start the while cycle over again from the beginning. And getting to that state of remission again can take years. A dietician or a nutritionist can advise you on how to start and sustain a gluten free diet while meeting your nutritional requirements. We need essential vitamins and minerals to heal and maintain our health. The gluten free diet can be lacking in essential nutrients unless we eat mindfully. A nutritionist can teach us which foods will help us meet our nutritional requirements, and help us correct nutritional deficiencies with vitamin and mineral supplements. -
@LeeRoy83 Hello again. Picking up on something else you said re: the shock that you may be a coeliac. It may has come as a shock to learn that coeliac disease is a possibility, but if that is the case, although it can be at times a bit of a nuisance not to be able to eat gluten anymore, it has been my experience that most of my friends and acquaintances who have it have adapted to it well, and are thriving. Although statistically it affects 1 in a 100 people, I know more than that, strangely, so I can see first hand how the diet can make a big difference for most people. In the UK we are blessed with a wonderful selection of gluten free food on sale in the shops, which seems to be ever-increasing, well labelled food packaging making it easier to determine if food contains gluten, a fabulous charity called Coeliac UK who provide a lot of very helpful information, including a gluten free food app and guide that you can take shopping with you, and good follow-up care provided by the NHS. But that's for another day - IF you have indeed got Coeliac Disease. Do meet up with your GP, take a list of questions to ask, and then if he wants you to take the coeliac diagnosis a step forward do let us know if we can be of help - we can walk with you every step of the way. Cristiana
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No. That is, unless the dietician themself has a gluten disorder or is managing a close family member who does and therefore is immersed in it daily so as to be up on the nuances of eating gluten free. Otherwise, they just give you very general information which you can get online.
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Yes, a very cryptic and uninformative lab result report indeed! But it does seem like this is typical for the UK. It's almost like the "professionals" in that healthcare system don't want you to try and figure anything out for yourself.
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