Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finding Money For Endoscopy Test

oaktownboy

Recommended Posts

oaktownboy Newbie
oaktownboy
Posted

my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mmaccartney Explorer
mmaccartney
Posted
my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one

Why won't they cover it??? If a doctor that is part of their "plan" deems it as medically necesarry, aren't they required to cover it?? (Mine did, but I still had to cough up 20% of the cost as I have an 80/20 plan....)

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Call, complain and B**** like heck. Then write a letter stating that, should there be a significant problem that worsens because they won't cover the necessary testing your doctor requested, you will hold them responsible and will report it to all the news statios and your newpaper. That should do it. Trust me.

floridanative Community Regular
floridanative
Posted

tiredofdoctors is right. Raise total cain until someone gets a grip and lets you have the test. I have come to find out that there is not much worse in our culture than insurance companies. They are the driving force behind all the bad medicine we are all experiencing - from everything to sinus infections to Celiac disease being misdiagnosed.

For my biopsy I was told I had a $250 co-pay but then I switched docs to have the test. New doc says I only have a reg. specialist co-pay. Both my insurance company and the hospital where I had the test say I don't have to pay anything upon arrival, and I only have the $35 co-pay to the doc. This did not seem right so I called my insurance company again and they said since I'm now having the test in the hospital, I had no co-pay. So now three months later I get a bill for $250 co-pay. Oh and of course I have already paid the doc $35 and I had to have the test at 1 pm when I felt like jerking my iv out to drink it and was starving. All this to save $250.....which of course I didn't save and apparently, this way I'm paying $285 when you include the doc's co-pay. How people who own insurance companies sleep at night - I'll never know!!!!!!!!!!!!!!!! :angry:

cultureslayer Rookie
cultureslayer
Posted

IF it's just to confirm the diagnosis, I've skipped it. I work in a medical field and I don't trust doctors. They give me enough crap when I'm awake, no way they are putting me under for anything less than major surgery.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

As far as being put to sleep, they didn't give me enough "juice" -- I was awake for the endoscopy and the colonscopy -- including polyp removal. I kept moaning to try to tell them that I could feel it -- they saw me watching it on the television screen :huh:

When it was over, I quoted exactly what the doctor said. The one nurse looked at the other and said, "She wasn't out NEARLY as much as we thought she was." DUH . . . . Didn't the sounds I made each time he cut give them a hint????? <_<

cultureslayer Rookie
cultureslayer
Posted

Yeah, I am one of those people that require an exceptional amount of anesthesia (my body processes it quickly obviously). I could definitely see that happening to me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

That was the THIRD time it has happened to me. One time, it was when I was medically paralyzed, and I couldn't move anything to tell them that I was AWAKE! Yuck. I really didn't like that too much.

cultureslayer Rookie
cultureslayer
Posted

Ugh. I always tell them (even when I'm going in for a filling) that I'm hard to anesthetize and will take more than they think I should. It's also hard to get Drs to take me seriously when I complain of any pain because I don't take motrin. It takes about 1.5 to 2x the max suggested dose to do anything worth taking a pill for, and at that point I start to feel strange. Otherwise it just takes the edge off of light soreness.

CMCM Rising Star
CMCM
Posted
my insurance will not cover the test and i need to know if there is any state or federal money available for tests like this one

Is there a particular reason for an endoscopy, other than wanting "to know for sure"??? Why not just handle it yourself by going thru Enterolab....get the full panel gluten sensitivity test for $369 and you'll find out if you have antibody reactions going on, malabsorption, casein sensitivity, and a gene test is thrown in as well. Together with the knowledge you get from this easy to do test, you can then follow the diet for awhile to see how you do. Ultimately, the treatment for this is the diet and the doctors, after spending a ton of your money on all this often-vague and inaccurate testing, will just tell you to go on a gluten free diet and that's that. They're rarely any help in that part of things. For myself, I saw no reason whatsoever to support an inept and clueless medical system with lots of my hard earned $$$.....far more than the $369 I spent at Enterolab, that's for sure. I learned what I wanted to know very easily and cheaply. If you read this board thoroughly, you will find a LOT of people who went the traditional clueless doctor route and spent a LOT of money, time and continued suffering, only to eventually in desperation go to Enterolab to get their answers. By the way, you can bet $$ that your doctor will know nothing about Enterolab. Doctors aren't very cutting edge in most cases. If they haven't personally had experience with a condition, then in their minds it might not exist. Go to www.enterolab.com and do some reading....lots of information there about their testing and ideas about celiac disease.

oaktownboy Newbie
oaktownboy
Posted
  • Author

i have been on the gluten free diet for a couple months now and i keep getting worse and worse. my intestinal problems continue..i have no hope left..that's why i need the test..

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.