Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Started gluten-free Diet - Is It Normal To Have...

Mabc

By Mabc
in Coping with Celiac Disease

Recommended Posts

Mabc Apprentice
Mabc
Posted

Hi, I just joined this forum. I was hoping someone could answer a question for me. I've just begun the gluten-free diet 4 days ago and some of my symptoms like weakness and fatigue have gotten worse. Is this to be expected? I suppose it could be due to other foods that I possibly unknowingly can't tolerate that I have now increased to fill the void. But I just wanted some comfort to know that this is to be expected.

BTW is all ketchups okay or not? I'm a little confused. Thanks for any info.

Mabc

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest schmenge
Guest schmenge
Posted

I don't know if I would say "expected" but I would say "not unusual." Everybody recovers differently. You may also find that some foods that did not bother you may now do so (lactose is common). Not sure about all ketchups. Most are, but you should always read lables.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi, I just joined this forum. I was hoping someone could answer a question for me. I've just begun the gluten-free diet 4 days ago and some of my symptoms like weakness and fatigue have gotten worse. Is this to be expected? I suppose it could be due to other foods that I possibly unknowingly can't tolerate that I have now increased to fill the void. But I just wanted some comfort to know that this is to be expected.

BTW is all ketchups okay or not? I'm a little confused. Thanks for any info.

Mabc

It can take a while to feel better. I know it can be hard but things should improve. You may want to take a sublingual B12 in addition to a regular gluten free vitamin to help with the energy. Also remember to be diligent about nonfood sources like lotions and shampoos etc. and make sure you have gotten a new toaster and replace wooden cutting boards and your can opener. Hope you feel better soon and welcome to the boards.

Oh and Heinz ketchup is gluten free, I don't knoiw about the others.

Lister Rising Star
Lister
Posted

its a rollercoster from what i can tell in the begining, i have only been gluten free for about 2 weeks. the first three days i acually felt way better and continued to improve for a week until this past wensday all the symptoms came back all at once, it can be really rough just hang in there hopefully it will all work out for you

Lisa Mentor
Lisa
Posted

As stated, check your shampoos, soap and anything that can get into your mouth.

to start you out, I use:

Dove shampoo

Dove Diod.

Dove Soap

Crest Toothpaste

There are other that are gluten free, but this is a quick fix. Ask someone on this site to send you the Delfi Forum Product list.........that will give you all sorts of gluten free products by brand name.

Learn as much as you can, and do searches on this site and you will learn and enormous amount of information about what is safe and what it is not.

Two weeks is just the beginning. Welcome to to forum. This site will be a life saver for you, just read, monitor and read somemore. Everything you need is here.

Good luck and keep posting. Lisa

kjw290 Newbie
kjw290
Posted
its a rollercoster from what i can tell in the begining, i have only been gluten free for about 2 weeks. the first three days i acually felt way better and continued to improve for a week until this past wensday all the symptoms came back all at once, it can be really rough just hang in there hopefully it will all work out for you

You can feel bad for awhle. I'm not sure how you found out you had celiac disease but in my case I lost alot of weight because of diarrhea, I took the b12 which helped also your body loses so much in so little time you have to build yourself up again. It seems like I was one of the luckly ones, they went right for the biopsy test. It's A very hard diet to follow, and the more I read on the effects of celiac disease the more I want to follow the diet strictly! hang in there, better days are coming! <_<

Canadian Karen Community Regular
Canadian Karen
Posted

Hi Guys!

Nini has an awesome newbie folder put together that includes the delphi list. PM NIni and she'll e-mail it to ya!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mabc Apprentice
Mabc
Posted
  • Author

Thank you so much!!!

I will keep on trying. It is hard, but I'm so grateful to finally have hope to have control over my symptoms.

Thanks

Mabc Apprentice
Mabc
Posted
  • Author

I was diagnosed with chronic fatigue syndrome in 1998, but years before that I was diagnosed with irritable bowel syndrome. I don't have the rash, I do have chronic 24/7 sinusitis and difficulty walking from weakness. I also have hypoglycemia.

I decided to try the gluten-free diet, though I don't have a diagnosis. If the diet helps, I will figure I have it. I'd rather have the diagnosis, but I've learned to not rely much on my doctors for help. Nothing against them, but evidently the doctors I've had just didn't want to do anything for me after deciding I had CFS and irritable bowel.

I recently found out my nephew had a rash and allergic to wheat, and both of my sons have ALWAYS had an itchy rash on their arms since they were very little. I don't know if it is THE rash, but both have severe constipation and fatigue. I stopped growing in 7th grade (maybe that's normal I don't know) and I'm very low weight even though I eat plenty. I got very very sick in 1998 and told the doctor that it felt like there was no food getting to any of my cells. I was extremely weak. I have a daughter who has been 35 pounds for 2 years (she's 5) and has tummy aches every day. She has also had anemia.

I realize it still may be that I don't have celiac, but I'm willing to try it and see what happens. I'm so sick and tired of being sick and tired! :blink: I am just learning everything and really happy to find this forum and would love to hear any thoughts.

Thanks for the help.

zip2play Apprentice
zip2play
Posted

OMG a 5 year old that has weighed 35 pounds for 2 years..... :unsure: Doesn't your doctor find that odd/horrible? I have a 4 1/2 year old and she weighs 45 pounds and she is tall and well w/n normal ranges.

It sounds to me your entire family has tummy issues! I certainly hope you get the answers you need!

MONICA

dionnek Enthusiast
dionnek
Posted
Hi Guys!

Nini has an awesome newbie folder put together that includes the delphi list. PM NIni and she'll e-mail it to ya!

Karen

how do I pm Nini? I'm new to this too.

judy05 Apprentice
judy05
Posted
Hi, I just joined this forum. I was hoping someone could answer a question for me. I've just begun the gluten-free diet 4 days ago and some of my symptoms like weakness and fatigue have gotten worse. Is this to be expected? I suppose it could be due to other foods that I possibly unknowingly can't tolerate that I have now increased to fill the void. But I just wanted some comfort to know that this is to be expected.

BTW is all ketchups okay or not? I'm a little confused. Thanks for any info.

Mabc

I think everyone feels a little worse in the beginning, I know I did. It took a whole summer for me. I lived on plain chicken, pork chops, mashed potatoes, applesauce, and bananas. It takes a while to get the gluten out of your system. For me giving up dairy made all the difference. It was almost a year to feel really good. It all depends on how long you were sick. I had another problem (GERD) which caused other problems. Keep up the good work, you will feel better with each passing day. Heink organic ketchup is not gluten free, I found out the hard way...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.