Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing

JKJ

Recommended Posts

JKJ Newbie
JKJ
Posted

I'll try to be brief! Family dr. when told of my long spell of D last summer and my self-diagnosis - sent me to a gastroenterologist writing "Celiac Screen" on the form. Gastro Dr. sent me in for a celiac screen blood test - but I have no idea what that consisted of. (I will ask on my follow up ) - it came back negative after being on gluten for only 4 weeks following 3 months of gluten free. Scheduled me for colonoscopy - I mentioned that from all I had read, that would show nothing about Celiacs Disease. He answers "I can tell if there is celiac damage from a colonoscopy. So I went after eating wheat for two months - Had it done today - 3 polyps removed --- also told I have diverticulosis -- - My question to the panel? IS Celiacs disease EVER found with a Colonoscopy - -(or was it just a ploy to getting me in for a colonoscopy , finally :)

That's what I'm suspecting :) Do dr's really play such games :)

I have NEVER seen Colonoscopy mentioned for Celiacs. Should mention that the many weeks of D. were stopped after FOUR days! However -- since going back on wheat/gluten I have not had such a bad time - altho' I do "go" more often. I also suspect some depression. shhhh - I don't tell many people that! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

Celiac CANNOT be diagnosed by colonscopy. It's good to get those polyps out, but you still need an endoscopy.

richard

Lister Rising Star
Lister
Posted

yeah not for celia, but my doctor wants me to have one also (not sure why im only 20 what could be wrong down there) how did the procedure go was it bad? i am not sure if i am having one yet but im still nervius about it

jerseyangel Proficient
jerseyangel
Posted

I had both done, too. The doctor wanted to rule out other things like Chron's and microscopic colitis.

It was really not that bad--the prep the day before is the worst part. I was asleep for the whole thing and woke up feeling fine. Not at all as bad as I thought it was going to be! Not to worry :D

CarlaB Enthusiast
CarlaB
Posted

I had both. Wasn't as bad as I thought it would be. Felt fine afterward, just tired. Since I'm normally so busy, it was actually nice to be able to spend the day in bed!! The prep is the worst part.

Devsmom Newbie
Devsmom
Posted
I'll try to be brief! Family dr. when told of my long spell of D last summer and my self-diagnosis - sent me to a gastroenterologist writing "Celiac Screen" on the form. Gastro Dr. sent me in for a celiac screen blood test - but I have no idea what that consisted of. (I will ask on my follow up ) - it came back negative after being on gluten for only 4 weeks following 3 months of gluten free. Scheduled me for colonoscopy - I mentioned that from all I had read, that would show nothing about Celiacs Disease. He answers "I can tell if there is celiac damage from a colonoscopy. So I went after eating wheat for two months - Had it done today - 3 polyps removed --- also told I have diverticulosis -- - My question to the panel? IS Celiacs disease EVER found with a Colonoscopy - -(or was it just a ploy to getting me in for a colonoscopy , finally :)

That's what I'm suspecting :) Do dr's really play such games :)

I have NEVER seen Colonoscopy mentioned for Celiacs. Should mention that the many weeks of D. were stopped after FOUR days! However -- since going back on wheat/gluten I have not had such a bad time - altho' I do "go" more often. I also suspect some depression. shhhh - I don't tell many people that! :)

My son had both test done after beeing wfdf for 3 months. He had been sick for 5 years.

The endoscope did NOT show anything but the

COLONSCOPY SHOWED BLUNTED VILLI !!!!

So I do not agree with th other post- it is possible to see the very end

My son went gluten free after colonoscopy, blood & enterolab testing.

Hope that helps to know

Devsmom

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,839
    • Most Online (within 30 mins)
      7,748
    Sarah C37
    Newest Member
    Sarah C37
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.