Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance


GlutenFreeAl

Recommended Posts

Strawberry-Jam Enthusiast

I *think* I may be soy intolerant. My most obvious symptom is a depression that comes out of absolutely nowhere. I get ANGRY or I despair for no reason. I want to hurt myself or inanimate objects.

I used to feel like this every night--go to bed depressed, then wake up fine in the morning. After going gluten-free, that stopped, except for three major times. those three times I could trace it back to soy oil, soy lecithin, and cross-contamination from a facility that also uses soy.

The soy oil by far gave me the worse reaction. Immediate stomachache, smelly, painful gas, reflux, headache/depression/fatigue that lasted several days. The soy lecithin and soy CC only gave me neurological symptoms of depression, headache, and fatigue, although it's possible I can blame some gas on it too. And possibly acid reflux.

  • 3 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply
jcmi10236 Newbie

How can you know if its the gluten or /and the soy? Most of the time they are both in a product. I am suspecting soy also. What product can I try thats just one or the other?

I react to soy much the same as to gluten. And in fact, soy can destroy the villi as well.

mushroom Proficient

You might try some tofu, or some edamame beans.

  • 7 months later...
cyoshimit Apprentice

I recently confirmed my intolerance to soy. My heart rate slowed, fatigue, shortness of breath, headaches, dizziness. Its been 8 days since I ingested soy. It is pretty dibilitating. I have to eat a small snack or meal every couple of hours to supplement my energy. I am also loading up on b-vits, c-vit, & calcium to replenish what I can what my body isn't absorbing. I am slowly losing my patients with myself over my recovery time. Life was good and active then it came to a halt with this soy reaction. no work & no school.

Anyone have similar experiences? Tips? Or how long it took you to recover?

Bubba's Mom Enthusiast

I recently confirmed my intolerance to soy. My heart rate slowed, fatigue, shortness of breath, headaches, dizziness. Its been 8 days since I ingested soy. It is pretty dibilitating. I have to eat a small snack or meal every couple of hours to supplement my energy. I am also loading up on b-vits, c-vit, & calcium to replenish what I can what my body isn't absorbing. I am slowly losing my patients with myself over my recovery time. Life was good and active then it came to a halt with this soy reaction. no work & no school.

Anyone have similar experiences? Tips? Or how long it took you to recover?

A reaction can last days, weeks, or longer, depending on how much you consumed, and your state of health in general.

It's pretty miserable, but seems to just need to run it's course?

You might try adding coconut oil to your diet? It feeds your brain just like glucose and has anti-inflamatory/healing properties. A dose of at least 2-3T per day has helped me. I add it to my morning coffee, use it like I would butter on cooked veggies, and use it to cook with. I really like the organic extra virgin Nutivia brand, which I buy online.

Look it up. You might be surprised how beneficial it is in your diet.

Some people find that taking a long soaking bath in epsom salts helps pull toxins from the body too.

Good luck. I hope this passes soon for you.

  • 2 weeks later...
Carebear Apprentice

Does anyone else find that they react to soy flour much worse than tofu etc? Soy flour (in biscuits/cakes etc) has a really quick reaction with me - I get some similar reactions to my coeliac ones - bloating/gas etc, but I think things like tofu/gluten-free tamari are OK...

I've seen that soy has a high risk of cross contamination in the fields as it is grown in rotation with wheat. If you're bothered by soy flour, maybe that could be the problem? I wish I had those at home test strips...

  • 2 weeks later...
Maryw88 Apprentice

For those of you that are also reactive to soy, what do your reactions look like?

I'm starting to suspect that I'm reacting even stronger to soy than I am to gluten, and DANG does soy hide in a lot of places!

Does anyone have a soy-free chocolate recommendation? I can handle giving up wheat pasta, but CHOCOLATE?? <_<

For me soy brings almost immediate gastro reactions. MISERY! Mostly very unpleasant gas and stomach cramping. I am more reactive to soy than gluten. Its really difficult to find gluten-free goodies that don't contain soy. I mainly stick to whole, natural foods that I prepare myself. For gluten-free foods my favorite is udi's. Great breads, cookies, and other goodies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,040
    • Most Online (within 30 mins)
      7,748

    marlee h
    Newest Member
    marlee h
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.