Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gig Moving Feet W/o Wheat Seattle Walk


tarnalberry

Recommended Posts

tarnalberry Community Regular

This morning, at 9am (approximately :P ), my husband and I joined in with a bunch of other local celiacs for the GIG awareness walk "Moving Feet Without Wheat". We've got one of the organizers on here, and I'd *love* it if she could tell us a bit more of how it went, from an insider's perspective. From a participants perspective, I can say the following:

* We had great weather for a 5k walk/jog/run! Overcast and cool, but the rain from the night before held off.

* Lots of friendly people in bright red shirts so you knew who to say "Hi! Almost there!" to around the lake we were circling.

* A pretty good turnout at the food fair. My husband decided that he liked! the Glutino pretzles and the Kinnikinnik animal crackers and Mona's cake mix. That's a miracle!

* A camera guy from the local news station (who did, unfortunately, not look too happy at having to do 'the fluff piece').

* I helped put a guy at the Food Fair at Kinnikinnik's table trying to put together a Seattle gluten-free beer festival get in touch with the woman from Madison Market who's trying to get folks to go in with her to the distributor to get gluten-free beer.

It was a great morning chance to get out there and do a little something for the cause.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Tiffany, that sounds great!

mouse Enthusiast

I am glad your walk went great. What Lake did you walk around?

tarnalberry Community Regular
I am glad your walk went great. What Lake did you walk around?

Green Lake, in north-ish Seattle. (Well, north-ish to me, but I'm a transplant, and don't know the neighborhoods. ;-) )

Becky6 Enthusiast

Glad it went well! Belle and I had great weather for "Making tracks for Celiacs" at Boom Island in Mpls. They had great samples and Belle enjoyed a Dilly bar at 9am! LOL She loved meeting other kids who were just like her and was happy she could eat everything there!

burdee Enthusiast
Green Lake, in north-ish Seattle. (Well, north-ish to me, but I'm a transplant, and don't know the neighborhoods. ;-) )

TIFFANY: I was sooo looking forward to meeting you ... I wish you would have introduced yourself to somebody and asked for me ... I was the one with the red and white flower kerchief on her head who led the walk after Wayne Havrelly's tv speech kick off. I organized that entire GIG Celiac Awareness walk. We set up at 7am for rain with that 'rain emergency' white canopy. Obviously we had no rain, but I'm so glad we used that canopy which made the registration area sooo obvious and professional looking. All in all, I believe the walk was a huge success ... about 300 people. Not sure about the $$ raised for GIG ... at least $3000, but I didn't see sponsor donation funds raised. I know big prizes were awarded for funds raised, but I won't talk to GIG until tomorrow.

I think I gave you my phone number in a pm. Give me a call sometime and we'll do gluten-free/DF/SF lunch or something or just walk around Greenlake. I live 3 blocks away and walk that lake almost every day. :lol: For you 'foreigners' :lol: Greenlake is due north of 'downtown' Seattle. I suspect we will hold that annual walk at the same time and location next year ... if GIG wants me to organize the whole thing again. Did you like the red shirts and logo? My husband and I designed those over dinner one night. :)

SUE

tarnalberry Community Regular

I thought about trying to find you, but didn't know what you looked like, and everyone was busy, so I didn't want to interrupt anyone. I'm a little shy around people I haven't met in RL yet, ironically enough. :ph34r:B)

I enjoyed the shirt. When we went to Home Depot after the walk, I could see the clerk eyeing my husband's shirt, trying to figure out if he should 'just ask him'! :-) (He didn't. :( ) I overheard one person say they wished the shirts said celiac disease on the front. Eh... I liked the fact they were nice and simple! Plus, there were a bunch of sponsers I hadn't heard of, which suprised me!

If there's one next year:

1) I volunteer to help.

2) If you make it even half an hour later, you may get more people. I might have been able to get about five more people there with me, except for the hour. (Yeah, I know lazy people. :P Nah, they're just night owls.) If that's even an option.

If you're in that area, I presume you've been to the Sunlight Cafe, then, on the other side of the freeway on 65th? They've got food we can eat!!! :-)

I'm pretty busy this summer (realized that when I tried to figure out when I was going to go camping with friends), but I will try to give you a call in a couple weeks after the next flood of events goes past. :-)

Fab job, Sue. You rock!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

I went to the Walk for Peace and Healing right after the Celiac walk. (Honestly, I was too tired and brain fogged to get to Seattle on time for the first walk - I live in Bellingham.) But the shirts were great; there were still some folks hanging about in them. I especially liked seeing the little kids running around.

Thanks to you guys. By next year I'm sure I'll have enough juice in the old blood stream to make it down on time. If you need more volunteers, or need someone in Bellingham to get folks down for the event, let me know.

burdee Enthusiast

Hi Tiffany:

Thanks for your feedback. Today I'm doing 'Monday Morning Quarterbacking' about what went well and what I can improve about the walk. I may change the shirt color for variety, but choose another bright, visible color like coral. I've already considered a slogan which will incorporate 'celiac' in the words.

I enjoyed the shirt. I liked the fact they were nice and simple! Plus, there were a bunch of sponsers I hadn't heard of, which suprised me!

THANKS FOR COMMITTING IN WRITING TO HELP WITH NEXT YEAR'S WALK! :lol: We'll talk more about what you can do when we meet for lunch. I pass the Sunlight Cafe on my walk to Whole Foods at least once a week. Can they accomodate gluten/dairy/soy free limitations? I would LOVE to find another nearby spot for lunch on days my hubby and I walk to Whole Foods. I worry that Whole Foods will kick us out when we arrive hungry and eat too many of their free samples. :lol: I'm not sure we could schedule the walk later and still get parking to set up in the morning. At 7:15am there were only a few spots close to the patio where we had to carry all the registration booth schtuph. However I will consider your suggestion. Many people did arrive after the group left to walk about 9:15am. We were late because the TV announcer and I were gabbing and lost track of time. :blink:

If there's one next year:

1) I volunteer to help.

2) If you make it even half an hour later, you may get more people. I might have been able to get about five more people there with me, except for the hour. (Yeah, I know lazy people. :P Nah, they're just night owls.) If that's even an option.

If you're in that area, I presume you've been to the Sunlight Cafe, then, on the other side of the freeway on 65th? They've got food we can eat!!! :-)

DITTO with the busy schedule, but maybe the 4 of us (you, me & the 2 hubbies) can meet for lunch on a Saturday or Sunday at Sunlight? Lemmeno ... I'm so sorry I missed you at the walk. We WILL do lunch! :)

SUE

I'm pretty busy this summer (realized that when I tried to figure out when I was going to go camping with friends), but I will try to give you a call in a couple weeks after the next flood of events goes past. :-)

Fab

Hi 'Bully4U':

Did you come to the walk with the Bellingham GIG group or on your own? Do you attend a support group? The Bellingham leader occasionally attends my SnoCoCeliac support group meetings. So I connect you if you don't already attend. Thanks so much for the walk feedback. I don't want to ask people to drive all the way from Bellingham to arrive before 7:30am to set up registration or help with food fair tables. HOWEVER, I would appreciate someone to help transport or attract more from the Bellingham area. PM or email me after you read this message and we can talk more ...

BURDEE

jenvan Collaborator

Way to go Tiffany--sounds great!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,861
    • Most Online (within 30 mins)
      7,748

    Priscilla Buxton
    Newest Member
    Priscilla Buxton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.