Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Symptoms Diseapering

Lister

Recommended Posts

Lister Rising Star
Lister
Posted

So my doctor is almost positive i have a form of colitis. He wants me to have a colonoscopy done after he gets the results back from my stool culter( testing for parasites) if that comes back positive he is going to help me get rid of the worms and what not then he still wants to have a colonoscopy done because he is convinced that i have colitis (since my stools are still very green contain black specks, unabosrbed food, and lately have been coverd with a incrediably large ammount of a white mucuse like substance) but some of my symptoms have gone away

My stomic is hardly ever bugging me now besides when i feel i may need food it starts to do the gurgle thing and what not so i eat something and withen 10 minutes it goes away for over 4 hours. So my stomic pains are pretty much gone (only like random pinchs and what not but not nearly as bad as they where even 2 days ago) could this meen that he is wrong about the colitis or can they unforuntaly just flare up whenever they want to?? my left side is still very tender like to the tuch it hurts, but im hoping this is all caused by bacteria/parasites could it??? or do my symptoms that i have still probably meen colitis. Im really hoping to prove the doctor wrong and only have parasites and maybe gluten sensativity. So the only thing left to work on is more normel looking stools, brain fog, hunger(i never get hungry i just eat when my stomic starts to hurt) and slight nausua. any insite on to what you may think would be appretiatied. I want the truth not stuff thats going to make me calm down if it happens to be bad truth o well i need it. Im just not getting any answers from my doctor and its been a month and so im searching hard to find them.

edit-- also how do they test for gluten sensativity? does he just desided i have it or is there a acuall test

edit-- also the white stuff seems to be more in the morning expeshaly my first of the day so im thinking maybe these are eggs or something but its probably like stomic lining :(

edit-- i forgot to add about the fatigue- its only 2pm and i feel like im ready for bed all the time, gah i have been gluten free for about 3 and a half weeks now when will these things end

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 69
  • Created
  • Last Reply
Becky6 Enthusiast
Becky6
Posted

I was diagnosed with micropsopic colitis 10 years ago. They did a colonoscopy and found irritation in my colon. The medicine did nothing and made it wose. Now that I am gluten free I feel great. The colonoscopy was very uncomfortable and knowing that I had colotis really helped nothing. Good luck.

Lister Rising Star
Lister
Posted
  • Author

i dont think he even has thought of microscopic colitis as beeing a possabitly he keeps trying to drill Chrons and ulceritive colitis into my head. I am a 20 years old things like this shouldnt be coming up for atleast another 10 years dam me and my fast food life style i was once living

Guhlia Rising Star
Guhlia
Posted

Hey Lister, has your doctor mentioned candida at all? Aside from the parasites (which could be causing some of your symptoms, candida could also cause most of those same symptoms. It can also present itself as gluten intolerance. I'm only suggesting this since you had said earlier in the week that you tested negative for celiac. It might be worth while looking into it.

Lister Rising Star
Lister
Posted
  • Author

i was just about to post that lol how funny. I just did the quiz from candida free, and i scored fricking 197 it says you pretty much definatly have it as a male if you score over 180 and i did by 17 points maybe even more i let myself go with less points on stuff that i probably should have made 9 instead of 6, i am going to bring this up to my doctor on monday when he calls and see what he thinks, but he is beeing a fricking jerk so i dont even think he will bother listning

(example of doctor beeing a jerk) he is the on call doctor right now so he gets paid to answer phone calls. I called at 7am yesi know this is slightly early so i was not expecting a response for atleast a couple of hours. it hit 11 and still no call so i had him paged again. he called me back and said that he perpsly did not call me back and then he told me never to call him again unless i start compulsavly vomiting or crapping lots of blood. Now i do belive it his JOB to answer calls from patiens when he is on call not to give me crappy answers like that.

but yeah that definatly sounds like me hmmmmmm (is candida a risk to your health or just cause lots of symptoms?) wow i really hope it is candida that would be great to finally feel normal again its been so long i can barly remember what it feels like.

Lister Rising Star
Lister
Posted
  • Author

should i rule out everything else first with a colonoscopy or just ask my doctor about candidia and see what he thinks??

ravenwoodglass Mentor
ravenwoodglass
Posted
(example of doctor beeing a jerk) he is the on call doctor right now so he gets paid to answer phone calls. I called at 7am yesi know this is slightly early so i was not expecting a response for atleast a couple of hours. it hit 11 and still no call so i had him paged again. he called me back and said that he perpsly did not call me back and then he told me never to call him again unless i start compulsavly vomiting or crapping lots of blood. Now i do belive it his JOB to answer calls from patiens when he is on call not to give me crappy answers like that.

.

Lister, you doctor is an on call doctor for emergencies, that is what he meant by the blood or vomit statement. From what you have listed here as going on yesterday and today 'emergency' does not really apply. While I am the first to doctor bash, I've had some doozies, this was not out of line. He may have been up all night putting someones intestines back in after an accident or something. It is his job to answer emergencies when he is on call and I'm sure if you have an emergency he will be there for you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lister Rising Star
Lister
Posted
  • Author

yeah but hes not that kind of docter he just sees people and tells them whats wrong. he was jsut really snappy about it he could have been nicer about it. plus i have already had some problems with him. When i first started to see him he thought i was a hypo and did not even want to see me, until i had a ER visit now he takes me seriusely----- i need to learn how to spell

GravStars Contributor
GravStars
Posted
i was just about to post that lol how funny. I just did the quiz from candida free, and i scored fricking 197 it says you pretty much definatly have it as a male if you score over 180 and i did by 17 points maybe even more i let myself go with less points on stuff that i probably should have made 9 instead of 6, i am going to bring this up to my doctor on monday when he calls and see what he thinks, but he is beeing a fricking jerk so i dont even think he will bother listning

hey lister, can you post the link to that candida quiz?

Lister Rising Star
Lister
Posted
  • Author

Open Original Shared Link

this one is really long but i figure the longer the quiz the more extensive.

and then here is a short one that also tells you how to do the spit test

Open Original Shared Link

GravStars Contributor
GravStars
Posted
Open Original Shared Link

this one is really long but i figure the longer the quiz the more extensive.

and then here is a short one that also tells you how to do the spit test

Open Original Shared Link

thanks a lot

Mango04 Enthusiast
Mango04
Posted
seriusely----- i need to learn how to spell

You should teach yourself how to spell.

Open Original Shared Link

(I'm a dork. I like reading grammar books and stuff). I mean, if you can learn so much about celiac disease in a short period of time, I think you're capable of learning how to spell. Sorry, that was random and did not answer any of your questions, but I couldn't help it :)

GravStars Contributor
GravStars
Posted

hmm, i just tried the spit test (even though i didn't just wake up) and almost right away there are mucousy strings floating around in the water and its turned cloudy. my symptoms seems to match up more with gluten intolerance than candida though, but maybe i should looks into this.

Lister Rising Star
Lister
Posted
  • Author

candida can cause gluten intolerancy thats why im looking into it

Lister Rising Star
Lister
Posted
  • Author

going to pray and keep my fingers crossed about my test results tomorrow and hope i do have canidia that would be sweeeeet

this is making me feel alot better, it makes me not worry about chrons or uleritive colitis since this all could just be parasites and canidia shouldnt get my hopes up to much or i could get very bumbd if its not

Lister Rising Star
Lister
Posted
  • Author

also i had a question. how do you tell if your hungry?? i have not had a appetite for a month now and have ot wait until my stomic starts to physicaly hurt for me to know, anyone have some hints or tips

Guhlia Rising Star
Guhlia
Posted

I would bet that it has something to do with your parasitic infection. If I were you, I would eat small amounts every 3-4 hours. That should keep you from getting hunger pains. Also, be sure that you're fulfilling an appropriate caloric intake for your size.

Lister Rising Star
Lister
Posted
  • Author

god im so good at making myself depressed over things i cant controle :(

i keep thinking about what if its not parasites what if its not canidia. what if it is chrons or ulceritive i meen i know i sound like a little whinny kid because i know alot of you are already going thru these things or have worse things, its just i never had health problems until this month and i am not getting better, besides for my stomic finaly not growling/poping. Im still really tender though like besides for my arm and chest-hurt to tuch

my left side is still inflamed like i cant tuch it very hard or else it stings i really hope this can be caused by parasites or canidia....... i know i know i really do whine alot, im just so depressed lately its the only thing i do. oh and i keep getting spasims coming from my small intestine and my colon not sure what thats all about

Becky6 Enthusiast
Becky6
Posted
i dont think he even has thought of microscopic colitis as beeing a possabitly he keeps trying to drill Chrons and ulceritive colitis into my head. I am a 20 years old things like this shouldnt be coming up for atleast another 10 years dam me and my fast food life style i was once living

I was 18 when I was diagnosed and they thought I had a form of colitis so they did the colonoscopy. From what I was told they don't usually know what type until they do a biopsy. Hopefully they can figure it out.

Lister Rising Star
Lister
Posted
  • Author

yeah i just hope it turns out its just canidian instead of colitis but he seems pretty convinced it is colitis, but i also have not talked to him yet about canidian

jeez 18 huh, wow so what does it do to you? long term health complications from it? or just like stomic problems here and there?

anyone know a callorie intake for male 20 year old weight 187

DingoGirl Enthusiast
DingoGirl
Posted
You should teach yourself how to spell.

Open Original Shared Link

(

I totally agree....since he posts so frequently......

Lister Rising Star
Lister
Posted
  • Author

:(

everyone done making fun of my spelling? :(

penguin Community Regular
penguin
Posted
:(

everyone done making fun of my spelling? :(

You're just a product of the American educational system. If they taught kids properly on how to read phonetically in public schools, everyone would be able to spell. Programs like microsoft word don't help.

DingoGirl Enthusiast
DingoGirl
Posted
You're just a product of the American educational system. If they taught kids properly on how to read phonetically in public schools, everyone would be able to spell. Programs like microsoft word don't help.

Sorry.....Chelsea is absolutely right. In California, the biggest disaster ever to hit the educational system was the Whole Language approach and "invented spelling" - - - a true horror.

Guess we've gotten off-topic a bit here.... :blink:

Lister Rising Star
Lister
Posted
  • Author

to continue off topic, the reson i can not spell is because instead of letting me attend class's i was thrown into lrc programs and into suspensions and into special class's where they just let us play all day- this was all the way thru middle school, once entering highschool i realized how slow they had made me

back onto topic, the more i think about it the less i think i have chrons (its what the doctor thinks i have) i meen i dont even have D i had it for the first 2 1/2 weeks before going gluten free then it changed back and forth between normel and C, and C is not a part of chrons chrons causes chronic D and thats not a problem for me. hmmmm i think my doctor may need to do more reaserch before scaring his pationts

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back u...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.