Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg I Might Actually Have celiac disease..

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Yesterday I ate an Apple Fritter for breakfast, just to see what would happen. A couple hours afterwards, I started feeling fatigued and groggy, sort of like not getting enough sleep. O.K. no big deal..this happens..

felt better after lunch.

In the afternoon I felt better after my noontime run. I decided against discussing the possibility of celiac disease with

my dentist again. No way can I have it! I feel fine, I'm just being a hypocondriac...ect...

In the evening...bam it hits me, cramps, diarrhea, bloating... the works :wacko: . I can only attribute this to what

I had for breakfast.

How can it have taken me 45 years to make this connection?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

It can take a long time to figure out gluten sensitivities because gluten is in so many processed foods. It reminds me of the saying if you want to hide a tree, put it in the forest. There are so many variables to the rate of digestion. (exercise, bulk matter of the food, amount of liquid in stomach) Don't feel bad you didn't figure out what a doctor should have screened you for.

L.

Guhlia Rising Star
Guhlia
Posted

The same way it takes doctors (MEDICAL DOCTORS) 11 years to diagnose people! You're fortunate that you figured it out. Many go undiagnosed for life and end up with horrible complications from the disease. Are you planning on getting tested?

JerryK Community Regular
JerryK
Posted
  • Author
The same way it takes doctors (MEDICAL DOCTORS) 11 years to diagnose people! You're fortunate that you figured it out. Many go undiagnosed for life and end up with horrible complications from the disease. Are you planning on getting tested?

Yes, my symptoms and my dental defects make me believe I need to be tested. I understand they test you for antibodies. What tests should I make sure they run on me? If the antibody test comes out positive on me, do I have to have a biopsy? I think I'd like to pass on that....

ravenwoodglass Mentor
ravenwoodglass
Posted
Yes, my symptoms and my dental defects make me believe I need to be tested. I understand they test you for antibodies. What tests should I make sure they run on me? If the antibody test comes out positive on me, do I have to have a biopsy? I think I'd like to pass on that....

Ask them to run a complete Celiac Panel and also to do a B12, folate and iron check. Then go gluten free as soon as the blood is drawn. Many have a false negative on the blood tests so regardless of the results you will want to at least try the diet. And yes those pictures in the other post sure do look like 'celiac teeth'. I have had 8 crowns and more to go. Both my DS and I were constantly harrassed by our past dentist for not taking care of our teeth when we care for them the same as the reccommend. I bet you love that new smile, I know I love mine just not the process to get it.

KaitiUSA Enthusiast
KaitiUSA
Posted

You should definitely get tested....doctors are just crazy sometimes when it comes to celiac. Takes them forever, especially if you do not have the supposed "classic" symptoms

Ursa Major Collaborator
Ursa Major
Posted

Jerry, I completely agree with everything that has been said already. You should definitely be tested for celiac disease! And if that makes you feel better........I figured out I have celiac disease last year, at the age of 52! I did see many doctors with 'obvious' celiac disease symptoms (obvious to people who actually know about celiac disease, unfortunately, most doctors don't), but none of them clued in. Especially because I wasn't wasting away (even though as a kid I was a stick figure), but was gaining more and more weight.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JerryK Community Regular
JerryK
Posted
  • Author
Jerry, I completely agree with everything that has been said already. You should definitely be tested for celiac disease! And if that makes you feel better........I figured out I have celiac disease last year, at the age of 52! I did see many doctors with 'obvious' celiac disease symptoms (obvious to people who actually know about celiac disease, unfortunately, most doctors don't), but none of them clued in. Especially because I wasn't wasting away (even though as a kid I was a stick figure), but was gaining more and more weight.

Thanks everyone for your responses. I will try to motivate myself to discuss this with my dr. I'll load up on apple fritters right before the test :blink:

marciab Enthusiast
marciab
Posted

Jerry,

How about testing with plain macaroni or spagetti noodles ? Apple fritters have a lot of other ingredients besides flour that could have contributed to your symptoms. Anything fried tears me up ...

And I completely agree with the others about being tested prior to going gluten free. Even if the tests come back negative, you'll feel better that you were tested. But, from what I have read, no one really knows until they go on a strict gluten free diet whether or not they are celiac.

Hang in there ... I've been at this 10 months and I have so much to learn.

Marcia

tarnalberry Community Regular
tarnalberry
Posted
Thanks everyone for your responses. I will try to motivate myself to discuss this with my dr. I'll load up on apple fritters right before the test :blink:

You have guidance from another health professional! Your doctor isn't going to just ignore that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

      trents: Why some can tolerate european bread but not american bread. I take 600 mcg a day. Right in the middle of the safe range. Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the...
    2. trents
      - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers?
    3. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger...
    4. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide. Both linked to cancers. Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers. A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor. Sourdough...
    5. jenniber
      - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,127
    • Most Online (within 30 mins)
      7,748
    PiscesSillyac
    Newest Member
    PiscesSillyac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.