Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kitchen Organization


frances

Recommended Posts

frances Newbie

Forgive me if this has been covered before. I have a 3 year old that is gluten/corn/cowmilk intolerant. We have been at this for a while. I would love to throw everything out of the house that she is intolerant to but that hasn't happened yet.

It has been challenging to learn to cook for her but we are doing okay. I do all the cooking. I keep food, snacks, etc. in strategic places so that my husband knows what is acceptable for her to have. He doesn't know how to cook for her, and neither do any extended family members. She is only 3, so she is only responsible for her diet as a 3 year old would be. I am concerned that if something happened to me or I was out of commission for a time; that no one could step in and cook for her properly.

We live in a remote area - very difficult to find ingredients to cook with; or prepared foods that she can have. I have been putting together a notebook (with plastic sleeves) where I am putting labels from ingredients, convenience foods, etc. I am listing where I purchased the items, the cost, cross-referencing recipes, - generally how to use them. Am I reinventing the wheel?

Is there a resource already available that would help me catalogue ingredients and convenience items and provide the necessary information so someone else besides myself could understand what to purchase and how to prepare it? Am I nuts?

:unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Smunkeemom Enthusiast

I am currently writing my own database to do that, I have no clue if there is another one out there commercially available.

I have a notebook like you talked about (okay big confession I have 4)

I have been thinking lately about having a Saturday where I teach hubby how to cook all the gluten free stuff the girls eat, and go through labels with him to make sure he knows what he is looking for, but I haven't done it yet.

You might try putting everything in a spreadsheet on your computer, if you are an organization freak like me, it looks better than the notebooks.

frances Newbie
I am currently writing my own database to do that, I have no clue if there is another one out there commercially available.

I have a notebook like you talked about (okay big confession I have 4)

I have been thinking lately about having a Saturday where I teach hubby how to cook all the gluten free stuff the girls eat, and go through labels with him to make sure he knows what he is looking for, but I haven't done it yet.

You might try putting everything in a spreadsheet on your computer, if you are an organization freak like me, it looks better than the notebooks.

Smumkeemom:

Thank you so much! So I'm not crazy. We haven't met anyone in real life that is doing what we are doing - noone has a clue as to what happens to my daughter if we don't stick to this diet. It's just good to know that I am not the only one dealing with this.

I am planning to organize mine on the computer but haven't quite figured out how yet - my husband won't touch the computer so it will be for me.

Smunkeemom Enthusiast
Smumkeemom:

Thank you so much! So I'm not crazy. We haven't met anyone in real life that is doing what we are doing - noone has a clue as to what happens to my daughter if we don't stick to this diet. It's just good to know that I am not the only one dealing with this.

I am planning to organize mine on the computer but haven't quite figured out how yet - my husband won't touch the computer so it will be for me.

haha, you know, people do think I am crazy. I have a special sponge for my counter and a different one for my gluten free dishes and another for my gluten dishes and yeah, I am a nut.

(they are all color coded too)

I memorized the forbidden ingredients list in my sig (from celiac.com) and I have little "food folders" that go where my girls go, that has a page about celiac, and then a page of safe foods, and another of foods to NEVER even let them touch, then behind that it's got the gluten free menus for some fast food places (in case there is an emergency and they need food) they take them everywhere, I let them color the outside and put stickers on them LOL

yeah, I might be a nut, but my kids are always going to have info with them so they can eat right.

EDIT: I forgot about the fact that I carry a USB drive with all the info with me, so I can print it out if need be (of course I have to get ahold of a computer and printer) and also it's all on my palm pilot.... yeah, I told you.. people think I am a nut.

I am working on making my own dining cards.........

acousticmom Explorer
Is there a resource already available that would help me catalogue ingredients and convenience items and provide the necessary information so someone else besides myself could understand what to purchase and how to prepare it? Am I nuts?

:unsure:

When my son was diagnosed with celiac disease, I started working on a database like that. But I never finished it, since he's twelve and good at reading labels and helping cook, and hubby and extended family have been learning this stuff along with me. (After reading how many people deal with unsupportive families, I tell them all the time what a blessing they are!!)

Anyway, I've considered finishing the database and marketing it online, just not sure how many people are as nuts/anal as me! But it's such an overwhelming amount of info, and so hard to communicate to others. . .

Would such a tool be helpful if it were inexpensive? I'd love your thoughts.

Carol

Smunkeemom Enthusiast
When my son was diagnosed with celiac disease, I started working on a database like that. But I never finished it, since he's twelve and good at reading labels and helping cook, and hubby and extended family have been learning this stuff along with me. (After reading how many people deal with unsupportive families, I tell them all the time what a blessing they are!!)

Anyway, I've considered finishing the database and marketing it online, just not sure how many people are as nuts/anal as me! But it's such an overwhelming amount of info, and so hard to communicate to others. . .

Would such a tool be helpful if it were inexpensive? I'd love your thoughts.

Carol

I am almost done with mine, it should be commercially available by June of next year (gotta let people test if first)

I wonder though with so many people having other "food issues" if a gluten free one is enough? It seems like I really need to work on ones for all kinds of intolerances, but then my goal of June 07 would have come and gone before I could get it ready :(

acousticmom Explorer
I am almost done with mine, it should be commercially available by June of next year (gotta let people test if first)

I wonder though with so many people having other "food issues" if a gluten free one is enough? It seems like I really need to work on ones for all kinds of intolerances, but then my goal of June 07 would have come and gone before I could get it ready :(

It's hard to know where to stop, since so many food intolerances can be intertwined, with or without celiac disease. Best of luck!

Carol


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frances Newbie

Wow! Thank you both for your replies. I would be satisfied with a program of some kind for gluten if I knew that down the road there would be 'plugins' for other food issues. Or gluten/dairy and updates later. It seems complicated to me as I am not that computer savvy.

We do pretty good at avoiding gluten/cow milk. Corn seems harder to avoid - and getting harder all the time.

Smunkeemom Enthusiast
Wow! Thank you both for your replies. I would be satisfied with a program of some kind for gluten if I knew that down the road there would be 'plugins' for other food issues. Or gluten/dairy and updates later. It seems complicated to me as I am not that computer savvy.

We do pretty good at avoiding gluten/cow milk. Corn seems harder to avoid - and getting harder all the time.

good to know, thanks for the input.

angel-jd1 Community Regular

I know of one lady who had a toddler. She would label each safe piece of food with a stickey label. She might have a fruit leather and it would have a sticker on it that said "Gabby's Snacks". Her little girl knew that if it had this sticker, then it was safe and it was hers to eat.

A system like this would be helpful if you ever had to go somewhere, had a babysitter, or hubby was watching the little one. The toddler would know on her own that her snacks were safe if they had the sticker. Could be a little expensive to label the food, but if you only did this when absolutely necessary. Or even just kept a small stash of things labeled for when dad was "on duty", it could be helpful for all.

-Jessica :rolleyes:

taz sharratt Enthusiast

i kinda feel the same but its just me who is intolerant and everyone is fine so im allways wanting thier food or they are wanting mine.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.