Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab

mart

Recommended Posts

mart Contributor
mart
Posted

Hi. I've some of the Enterolab tests for my son. He's been gluten-free for about 9 months, was doing great but is now having stomachaches again. Also having leg pains again. This had resolved after a few weeks going gluten-free, but now ??? I'm 100% sure he's eating gluten-free (he's terrified of getting glutened). Out of desperation, I've ordered the tests that can tell me about possible gluten in his system, malapsorption and dairy intolerance. Are these accurate tests, or did I just throw away $500? <_< Any advice on what we can expect? Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I haven't tried Enterolab, but have only heard good things about it.

After initially feeling a lot better, and all my pains going away, I started having a lot of pain again after being gluten free for four months. That is when my other intolerances showed up! Now that my villi had healed quite a bit, my intestines weren't just absorbing the things I could tolerate again, but also the ones I was intolerant to. When I figured out all my intolerances and started avoiding the offending foods, I got better.

So, my guess is, that he might be gluten free, but has other intolerances that cause these problems. Dairy is a likely culprit, but there are many other things that are common problem foods (especially soy).

Matilda Enthusiast
Matilda
Posted

..

KaitiUSA Enthusiast
KaitiUSA
Posted

I have not done Enterolab but I have heard good things about it.

terps19 Contributor
terps19
Posted

I have done Enterolab. Just started on the recommended diet 9 days ago. Tests showed gluten and casien intolerance (soy, eggas and yeast were negative), both genes for celiac disease, and no damage done to intestines. I too was warry of the tests but a lot of people have nothing but good things to say about it

monicaleestudios Newbie
monicaleestudios
Posted

I just got results back from Enterlab and basically it just tells you if you are gluten intolerent which if you were sick before a gluten-free diet and now after a gluten-free diet you are not sick...you may have concluded that. I was eagerly waiting for the results and managed to get on a phone with a woman who know Dr. Fine and also know Dr. Peter Greene? who just wrote a comprehensive book on Celica Diease (the Hidden Epidemic). She likes Dr. Fine but had indicated tha there was just not solid scientific backing on stool testing. (meaning: Is everyone who is tested diagnoised with gluten intolerence?) IS there anyone you have heard of that has gotten a negative result back from the lab?

Sorry if I sound negative...I am a bit frustarated now! I am having the same issues with actually KNOWING whether it is an intolerence or Celiac...for insurance reasons and my child's pediatrican questioning me, doubting me.

I am bravely or stupidly going back to a GI that did and endoscopy on me with negative results 3 years ago, hopefully I can question him without going "Hey, buddy! Did you do that endoscopy right?"

[

GravStars Contributor
GravStars
Posted
I just got results back from Enterlab and basically it just tells you if you are gluten intolerent which if you were sick before a gluten-free diet and now after a gluten-free diet you are not sick...you may have concluded that. I was eagerly waiting for the results and managed to get on a phone with a woman who know Dr. Fine and also know Dr. Peter Greene? who just wrote a comprehensive book on Celica Diease (the Hidden Epidemic). She likes Dr. Fine but had indicated tha there was just not solid scientific backing on stool testing. (meaning: Is everyone who is tested diagnoised with gluten intolerence?) IS there anyone you have heard of that has gotten a negative result back from the lab?

Sorry if I sound negative...I am a bit frustarated now! I am having the same issues with actually KNOWING whether it is an intolerence or Celiac...for insurance reasons and my child's pediatrican questioning me, doubting me.

I am bravely or stupidly going back to a GI that did and endoscopy on me with negative results 3 years ago, hopefully I can question him without going "Hey, buddy! Did you do that endoscopy right?"

[

Yea, there was an earlier thread about if anyone tested negative from Enterolabs. I have heard of a couple so far.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748
    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.