Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Vent


CarrieBoo

Recommended Posts

CarrieBoo Rookie

The health system where I live in Canada is irritating me...I had my blood test over a month ago and have not recieved the results. I tried phone and noone returns my phone calls (however, the dr. said if it were negative I would not recieve a phone call). I would be very surprised if it were negative, however I haven't recieved a phone call!! I have been eating gluten free and feeling great, then when I have something that makes me ill (stomach pain, body aches, headache, nausea, etc. etc. ) I later realize that it did/may have contained gluten...then for the next few days it seems that I get bloated/gassy/sick after whatever I eat (gluten-free). It somewhat obvious to me then that I should avoid gluten, however for some reason I know it would make me feel better if I had an official diagnosis.

I cannot get in to see my doctor for another month (there is almost always this long of a wait)! BUT I can't wait this long feeling sick! I recently had my ADs increased cause of some of my symptoms (exhaustion and depression) but they haven't seemed to do much for me...I am so irritated and depressed that almost everything I eat makes me feel sick, and for days...sorry for the self-pity, I am just so tired...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamatide Enthusiast
The health system where I live in Canada is irritating me...I had my blood test over a month ago and have not recieved the results. I tried phone and noone returns my phone calls (however, the dr. said if it were negative I would not recieve a phone call). I would be very surprised if it were negative, however I haven't recieved a phone call!! I have been eating gluten free and feeling great, then when I have something that makes me ill (stomach pain, body aches, headache, nausea, etc. etc. ) I later realize that it did/may have contained gluten...then for the next few days it seems that I get bloated/gassy/sick after whatever I eat (gluten-free). It somewhat obvious to me then that I should avoid gluten, however for some reason I know it would make me feel better if I had an official diagnosis.

I cannot get in to see my doctor for another month (there is almost always this long of a wait)! BUT I can't wait this long feeling sick! I recently had my ADs increased cause of some of my symptoms (exhaustion and depression) but they haven't seemed to do much for me...I am so irritated and depressed that almost everything I eat makes me feel sick, and for days...sorry for the self-pity, I am just so tired...

I could have written this post! Not that it's going to make you feel much better knowing that. I have an appt with my GP on Wednesday and I just *know* that it's going to take forever to get a biopsy scheduled = My dd is on a gluten-free diet because I couldn't wait for the delay in getting in to see a Ped.Gastro... and because I've been eating very little if any gluten I was positively doubled-over in pain yesterday after eating regular macaroni. Runs, pains, chills, fog and exhausted.

It's so frustrating and I'm almost positive that gluten-free would make me feel so much better but I just hate to self-diagnose.

I hope you can get some answers soon. Poor you :o(

mamatide (also in Canada)

nikki-uk Enthusiast

Hey,it's not just your health system.here in the U.K it's not much better!!

It took 12 weeks for me to get my son's blood results back (they were borderline)

So I asked for a paediatric G.I referral-and I finally got one for November.(that's an 8month wait!)

Time lapsed since I first asked for a blood test so far 15months!

I might add I've made loads of phone calls in between to try and speed things up!

My Mum's intuition is that he's got it,and I just want to get a proper diagnosis for him,but I get the feeling that as my son's not wasting away and unconscious from dehydration the medics don't take me very seriously <_<

Anyway,-I hope you get some answers soon-didn't mean to hijack your rant!! :)

jerseyangel Proficient

Carrie, Mamatide and Nikki--I'm so sorry that you have to go through those long wait times. It's not enough that you or a loved one is sick, and you're desparate to find out why--it is so unfair the way you have to wait so long for an appt. You are all in my thoughts :)

CarrieBoo Rookie

Thanks for the support!

Time lapsed since I first asked for a blood test so far 15months!

WOW Nikki, I mean I know the health system is a busy place but this is way too long, especially with celiac since it can lead to malnutrition, among other things!! I would have thought the UK have a better health system than Canada....don't look that way now. Since ours is funded by government it doesn't recieve enough money to hire the staff and purchase the equipment that are desperately needed, hence the long wait times for everything.

Perhaps my test results havent been recieved yet, but I've called a few times and noone is returning my calls...frustrating.

penguin Community Regular

Makes you wish you could be in the French health system, eh?

At least you aren't in the states where you can see any doctor instantly, but you'll pay out the nose for it.

CarrieBoo Rookie

Funny, I actually just got the call from my Dr...So it seems I have a normal blood test for celiac...since I have reactions to gluten items he suggested gluten-free until I go see him the end of the month...so what now...I get no answers, but hopefully can follow the diet without getting sick again...thanks for listening


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Felidae Enthusiast
The health system where I live in Canada is irritating me...I had my blood test over a month ago and have not recieved the results. I tried phone and noone returns my phone calls (however, the dr. said if it were negative I would not recieve a phone call). I would be very surprised if it were negative, however I haven't recieved a phone call!! I have been eating gluten free and feeling great, then when I have something that makes me ill (stomach pain, body aches, headache, nausea, etc. etc. ) I later realize that it did/may have contained gluten...then for the next few days it seems that I get bloated/gassy/sick after whatever I eat (gluten-free). It somewhat obvious to me then that I should avoid gluten, however for some reason I know it would make me feel better if I had an official diagnosis.

I cannot get in to see my doctor for another month (there is almost always this long of a wait)! BUT I can't wait this long feeling sick! I recently had my ADs increased cause of some of my symptoms (exhaustion and depression) but they haven't seemed to do much for me...I am so irritated and depressed that almost everything I eat makes me feel sick, and for days...sorry for the self-pity, I am just so tired...

That's crazy. Blood tests only take about 48 hours before we get the results here. That's a huge discrepancy between the provinces. Suprise, suprise!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,020
    • Most Online (within 30 mins)
      7,748

    Ericaa
    Newest Member
    Ericaa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.