Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Infants' Food Allergies Less Common Than Parents Believe


Guest nini

Recommended Posts

Guest nini

Open Original Shared Link

as most of us have come to learn a lot of food intolerances or sensitivities cannot always be confirmed by quantifiable test results... This study, In my opinion, does more harm to Parents who are learning to trust their instincts as opposed to relying on test results...

discuss...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
During the course of the study, infants whose parents reported symptoms of food hypersensitivity underwent open food challenges. If these challenges suggested food hypersensitivity, the children then underwent double-blind, placebo-controlled food challenges, which are considered the "gold standard" in diagnosing food hypersensitivity.

Nini, what is wrong with that test? Sounds like a darn good test to me.

Guest nini

the particular one that they did for this study? maybe nothing... my point was that parents should not be discouraged from trusting their instincts versus testing that may or may not confirm parental instinct...

ravenwoodglass Mentor

I read this article also. My main concern with it is they seem to be mainly testing histamine or allergic reactions more than intolerance. As many of us know there is a big difference in symtoms and reaction time between the two. They used skin prick tests for confirmation of reaction and intolerances do not show up this way.

jerseyangel Proficient
I read this article also. My main concern with it is they seem to be mainly testing histamine or allergic reactions more than intolerance. As many of us know there is a big difference in symtoms and reaction time between the two. They used skin prick tests for confirmation of reaction and intolerances do not show up this way.

That is what went thru my mind, too. How many of us have been through the skin prick type testing, only to find we are not *allergic* but most definately intolerant to a particular food! The article and study were fine, but I think that Nini is right in that allergy testing is not always the last word.

Editing myself here--I re read the article (again) and it says they did 2 types of food challenges, and they uncovered more intolerance than the allergy testing. I hope I got it right this time :blink: . I can be dense! That is really good news--

VydorScope Proficient

THats not what I get when I read it it clearly, to me, states they tested via the FOOD CHALLENGE and thats what most of you use here. The skin prck got exactly 1 sentence in the entire aritcle, it was just an aside. Seems to me their testing was very valid, in this case.

shai76 Explorer

Our ENT and pediatric gastroenterologist agree that testing is unecessary, and we should go by how we feel our son reacts to the food, not by tests. They say he could turn out allergic to everything on the tests and then we would have a problem, or it could turn out he is allergic to nothing but he could still have reactions to foods. So they ask us to keep him on an elimination diet for as long as possible. However, I am thinking of asking for a RAST test again because it would be nice to have a starting point of where to begin with reintroducting things into his diet. He has had accidental exposure here and there, so we know he is still allergic to milk and corn, and soy intolerant. I'm definitly not giving him nuts at all for a few more years.

Also, That would be hard to put a one year old through skin prick testing. I wouldn't do it. Most of the time they draw the blood and do the RAST for such young children. They can test for more that way, and the child does not have to sit through all those pricks, then wait, then more pricks, then wait. And they can be dangerous. I had an anaphelectic reaction once to skin prick testing, so I can't do it ever again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast
THats not what I get when I read it it clearly, to me, states they tested via the FOOD CHALLENGE and thats what most of you use here. The skin prck got exactly 1 sentence in the entire aritcle, it was just an aside. Seems to me their testing was very valid, in this case.

I interpreted it differently. The article seems to state that if a food challenge suggests an allergy, but a skin prick test (or other clinical testing method) proves otherwise, then the child should not be put on any sort of restricted diet, for fear of inadequate nutrition. The article does not address the fact that a food intolerance, rather than an allergy, could be causing illness. I don't agree with the article. If I stop eating casein becasue I believe it makes me sick, and then I get a skin prick test that clinically proves I'm not allergic to milk, should I definitely assume that I should continue to eat casein? Um...no, because I have a casein intolerance, which can't neccessarily be clinically proven.

AndreaB Contributor

Interesting article.

I know that my infant son is extremely sensitive to ANY gluten that I ingest. He will break out with eczema. He's been eczema free since I cut out Rice Dream milk. I still have to do away with the gluten shampoo's ecetera. I plan on having him go through enterolab when he's old enough to get a sample from. :blink: I would be curious to see how he would come out in an allergy test. I'm not to keen on giving him gluten though, especially with how he reacts through the breastmilk. Maybe I can have everyone tested for allergies at some point. Very expensive since we have to pay for it out of pocket. :unsure:

shai76 Explorer

I also found the article too short and inconcise to really show the public the seriousness of adverse reactions to food. For example, living without wheat and dairy won't kill anyone, even if they are not allergic or intolerant to it. But articles like this tend to give people the impression that their sisters kid who is casein and gluten intolerant is not really allergic so her mom is just being fussy and paranoid. It's giving people a little bit of information instead of showing them the whole picture. The old saying is true that a little bit of knowledge is more dangerous than none at all.

AndreaB Contributor
I interpreted it differently. The article seems to state that if a food challenge suggests an allergy, but a skin prick test (or other clinical testing method) proves otherwise, then the child should not be put on any sort of restricted diet, for fear of inadequate nutrition. The article does not address the fact that a food intolerance, rather than an allergy, could be causing illness. I don't agree with the article. Many people misunderstand food intolerances becasue they have no idea these are different than allergies. If I stop eating casein becasue I believe it makes me sick, and then I get a skin prick test that clinically proves I'm not allergic to milk, should I definitely assume that I should continue to eat casein? Um...no, because I have a casein intolerance.

Good point.

I had allergy testing done and found out I had an allergic reaction (IgG) to wheat, spelt, rye, gluten and gliadin for the gluten products. I was o.k. for barley and oats. Enterolab says I am intolerant to gluten. Soy allergic and intolerant. Dairy I have allergic reaction but am not intolerant.

I didn't understand the difference until I started reading more on this board and got my enterolab results back.

Mango04 Enthusiast

Yeah, I think that if an average person is reading that article, and the person suspects that his/her child could possibly have a "food allergy", then, if anything, they might decide that taking their child off of the possibly offending food would not be the best thing to do because A) they are risking not providing their child with adequate nutrition and B.) the extensive testing they would need to go through to prove the allergy would just be too complicated, and they shouldn't put the child on the restricted diet until the allergy is clinically proven. Just my take. The article definitely does not provide enough information for such a serious subject. It could definitely be misleading. I think it's incorrect too. Aren't there thousands of kids who suffer from illness due to undiagnosed food sensitivities? I never thought there was an abundance of kids on restricted diets for no reason. Maybe the wheat and dairy industries paid a lot of money to get this article written lol.

Guest nini
I also found the article too short and inconcise to really show the public the seriousness of adverse reactions to food. For example, living without wheat and dairy won't kill anyone, even if they are not allergic or intolerant to it. But articles like this tend to give people the impression that their sisters kid who is casein and gluten intolerant is not really allergic so her mom is just being fussy and paranoid. It's giving people a little bit of information instead of showing them the whole picture. The old saying is true that a little bit of knowledge is more dangerous than none at all.

this is precisely the point I was trying to make...

Yeah, I think that if an average person is reading that article, and the person suspects that his/her child could possibly have a "food allergy", then, if anything, they might decide that taking their child off of the possibly offending food would not be the best thing to do because A) they are risking not providing their child with adequate nutrition and B.) the extensive testing they would need to go through to prove the allergy would just be too complicated, and they shouldn't put the child on the restricted diet until the allergy is clinically proven. Just my take. The article definitely does not provide enough information for such a serious subject. It could definitely be misleading. I think it's incorrect too. Aren't there thousands of kids who suffer from illness due to undiagnosed food sensitivities? I never thought there was an abundance of kids on restricted diets for no reason. Maybe the wheat and dairy industries paid a lot of money to get this article written lol.

maybe they did! lol!

There study methodology seems to be sound, however they are only looking at allergies and intolerances, allergies can't always be proven... and intolerances can change in some cases... of course not where gluten is concerned, but the article is too misleading to the general public. If my sister read that same article she would think that I am an overproctective, hypochondriac mother that is depriving my child of the nutritional value of gluten.

AndreaB Contributor
There study methodology seems to be sound, however they are only looking at allergies and intolerances, allergies can't always be proven... and intolerances can change in some cases... of course not where gluten is concerned, but the article is too misleading to the general public. If my sister read that same article she would think that I am an overproctective, hypochondriac mother that is depriving my child of the nutritional value of gluten.

Nini,

My mother would be another one that would say this diet is not necessary and we are overreacting due to this article if she saw it. My children and I have no obvious symptoms (yet). We caught this early thanks to my infant son. My oldest son does have mild malabsorption which we would have never known.

My mom now thinks this diet will be much harder for her to try and feed us than the vegan diet that we were on before these allergies. :P:D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.