Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Man This D Is Getting Old....


JerryK

Recommended Posts

JerryK Community Regular

Feeling fine this morning.....everything ok.

Bam 10:45 stomach rumbling hits and here it comes.

Only thing I can think is it's something in Chinese food that's doing this.

I seem to get sicker from eating Chinese food than anything else. I'm guessing

it's pretty pervasive in this cuisine...

Here's the question. If I have Celiac would it make my stomach tender so that

many things might make me sick...i.e. not just Gluten Intolerant but have trouble

digesting other things too?....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast
Here's the question. If I have Celiac would it make my stomach tender so that

many things might make me sick...i.e. not just Gluten Intolerant but have trouble

digesting other things too?....

The answer to that question is YES!

There's all sorts of gluten in Chinese food. Soy sauce is mostly wheat (you'd think it would mostly be soy - but no B))

CarlaB Enthusiast

First of all YES on the Chinese food!! If it has soy sauce, it's loaded with wheat!! Most soy sauce has wheat as one of the first ingredients. Many of the sauces will have wheat or soy sauce in them.

Secondly, you can have other problems. My Enterolab tests had come back with a high number for casein. I ignored it because I was feeling so much better gluten-free. It got to the point the past couple weeks that I've had terrible brain fog -- I feel high much of the time to the point that my family has to make things real simple for me. I also have had no energy; fortunately, I have six kids and am very good at delegating! I got off casein two days ago and am having terrible withdrawal from it. This is the same thing that happened when I eliminated wheat (not gluten) from my diet four years ago! I am so lethargic I have spent most of the day in bed. Oh, the d has been there, too. It's the fog bank that's bothering me though. I am not getting hidden gluten, I know this is from the casein. I just hope I finally get better and it's not something else, too.

Mango04 Enthusiast

Sorry if my post didn't make sense - I meant that gluten intolerance can definitely make you more sensitive to other foods. You could have additional food intolerances, or, when you gut heals, all that might go away.

JerryK Community Regular
First of all YES on the Chinese food!! If it has soy sauce, it's loaded with wheat!! Most soy sauce has wheat as one of the first ingredients. Many of the sauces will have wheat or soy sauce in them.

Secondly, you can have other problems. My Enterolab tests had come back with a high number for casein. I ignored it because I was feeling so much better gluten-free. It got to the point the past couple weeks that I've had terrible brain fog -- I feel high much of the time to the point that my family has to make things real simple for me. I also have had no energy; fortunately, I have six kids and am very good at delegating! I got off casein two days ago and am having terrible withdrawal from it. This is the same thing that happened when I eliminated wheat (not gluten) from my diet four years ago! I am so lethargic I have spent most of the day in bed. Oh, the d has been there, too. It's the fog bank that's bothering me though. I am not getting hidden gluten, I know this is from the casein. I just hope I finally get better and it's not something else, too.

Thanks for your kind responses. I keep thinking I don't have a problem then wammo...it's back!!

mouse Enthusiast

After your trip and testing, there is a gluten-free soy sauce. PF Changs has a gluten-free menu and they use the gluten-free soy sauce on those dishes. Don't forget to take the anti-D stuff on your trip. You don't want to spend all the time in the bathroom instead of enjoying the trip. I would just take it all the time and not wait for the D to hit.

JerryK Community Regular
After your trip and testing, there is a gluten-free soy sauce. PF Changs has a gluten-free menu and they use the gluten-free soy sauce on those dishes. Don't forget to take the anti-D stuff on your trip. You don't want to spend all the time in the bathroom instead of enjoying the trip. I would just take it all the time and not wait for the D to hit.

Thanks, you can bet immodium is at the top of my medicinal list. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Jerry, you still have time to get the test before you leave. You won't have the results back until after the trip so you won't have to worry about the diet on the trip. Then you could start your gluten free diet (if required) as soon as you get back home. The sooner you go gluten free (if you have celiac) the better the chance of less damage. Have fun on your trip!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.