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About The Blood Test...

starlight1221

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starlight1221 Newbie
starlight1221
Posted

Background: I have IBS, I have had problems my whole life and was diagnosed through colonoscopy. I get heartburn to some breads, and pretzels, mini-wheats, and triscuits give me gas. There's also an ingredient in *some* pizzas, not all, that give me diaherra (sp?) in less than 20 minutes. I can tell if the pizza is going to do it the second I stick it in my mouth, but I'm thinking that's a spice or oil I have an issue with because all restaurant pizzas have gluten.

Anyway, I got tested for celiac a couple months ago because I was doing some checking on crohn's cause my aunt has it and I noticed only 2 things give you mucus in the stool: IBS and celiac. My doc called and said I was fine.

Flash forward to 2 weeks ago, after I took 2 tums for some non-bread related heartburn (I usually only take 1), I had the worst stomach pain in my entire life (thought my intestine ruptured), so I went to the doc to see what the issue was. They ran a blood panel, poked and prodded, everything came back negative, and I'm fine now. But when I was there, they let me see the paperwork of the celiac test, and it turns out 1 of the 5 was slightly positive (norm is 13 or something and mine was 48).

So now I'm wigging out again, cause I see that some of you guys have had only one thing show up positive and you still have celiac.

I wasn't paying attention to the names, but I'm pretty sure it was one of the gliadin (sp?) ones. That would make sense with what I've read on the Elisa testing for IBS and the gas problems I have with some wheaty stuff. Right?

I'm pretty sure it WASN'T the tTg or the anti-endomysial antibody. From the articles on celiac.com here: https://www.celiac.com/st_prod.html?p_prodi...-42106543483.e8 and here: https://www.celiac.com/st_prod.html?p_prodi...-42106543483.e8 , the way I understand it, you ONLY have anti-endomysial antibodies if you have celiac. So if both my tTg and anti-endomysial antibody were negative, I'm pretty certain to not have celiac, right?

What I'm basically asking is, if it was in fact the IgG gliadin test that was slightly positive, would it be safe to assume that since the IgA gliadin, the tTg, the anti-endomysial antibody, and whatever the 5th one is were negative that I just have a slight wheat sensitivity?

Also, my skin prick test at my allergist showed a low positive to oat. I have never had a reaction to oat that I know of, but could a slight allergy/intolerance to oat give a positive IgG gliadin response?

I have personal reasons why I do not want to try an elimination diet unless I actually have celiac and why I refuse to have a biopsy, which is why I need these questions answered. I know I *should* do them, but at this point in my life I emotionally cannot handle it. The worst thing to ever happen to me (and I've had chemotherapy, anaphylaxis, and panic attacks/depression) was when a tube was stuck down my throat and I refuse to let that happen to me again unless I'm asleep, and when they put me out I violently vomit for hours, so the biopsy's a no go. I also pretty much can't tolerate anything but wheat and dairy without heartburn or nausea and I don't want to buy (and can't afford to buy) all new gluten-free foods when my IBS is actually under control for the first time in 20 years.

Thank you so much for any help you guys can give me. I will be seeing my doc next week and I'm going to see for sure which one of those tests showed a positive.

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