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Guest Norah022

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Guest Norah022

I was just diagnosed with Celiac's Disease in May and have been gluten-free since the first week of June, however my father was diagnosed about 6 years ago so we have assumed I have had Celiac's for a few years.

In the past month I have had bites appearing on my body, we thought they were flea bites but we would find no source of fleas. They are little red bumps all over my arms, my torso, my legs. New ones appear everyday. In addition to this I have a rash across my upper chest (at the base of my neck) that has not gone away.

Could this be DH? Or does anyone have any idea what it could be? I am absolutely miserable!


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mouse Enthusiast

Nora, I really don't know. It might take awhile for someone to answer as the weekend is real slow for postings. My undiagnosed DH (visually told I had it, but no biopsy) was on my hands only and were pen point blisters that itched like mad. I would scratch them and fluid would come out. I know there are some on here that have had DH in other areas. Have you been getting cross contaminated by any chance. As our bodies begin to heal, we react much more strongly to even a crumb of gluten.

Guest Norah022

Well I've been using my family's toaster to toast my gluten-free bread so definitely getting cross-contamination there and I also work at a restaurant so it is possible there as well.

The small bite looking things definitely have liquid in them.

natalunia Rookie

Get your own toaster. I bought me a cheap basic one at Target for under $9.

My mom has DH, and I had not had it until I was gluten free and got glutened somehow.

I got glutened on Thursday and now I have a mouth full of ulcers, so you can see all kind of different things pop up that you may have not noticed before.

Guest Norah022

Well the reason i havent bought my own toaster yet is because when i go back to school which is 20 hours away I have to buy one out there...dont need 2 toasters floating around.

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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