Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk Alternative

kabowman

Recommended Posts

kabowman Explorer
kabowman
Posted

OK, my last two options locally for dairy/gluten free milk were: West Soy plain rice milk and Pacific Foods hazlenut milk are now OUT. They make me sick and everything else locally has soy or vanilla in them.

Any suggestions? My local store does not carry Pacific Foods Plain Rice milk - OH - I have some of Vance's but haven't made it yet so really, I have one more to try - but if that doesn't work, then what.

I am not worried about baking, I will just use water instead which I tried last night with my chebe bread and it didn't make me sick, yea!, I don't have to give up my bread. However, what can you suggest I use on cereals I eat occasionally to give hubby a break from making eggs every day.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
OH - I have some of Vance's but haven't made it yet so really, I have one more to try - but if that doesn't work, then what.

Nothing! Vance's is the bestest! :D

AndreaB Contributor
AndreaB
Posted

Here is a recipe I found online. The recipes I have in cookbooks includes cashews.

Rice Milk Recipe

Submitted to the Allergies Forum by MANGO333

1 cup hot, cooked rice (white or brown)

4 cups hot water

Pinch of salt (optional)

Sweetener to taste (if desired)

Vanilla to taste (if desired)

Put in blender (in batches if necessary). Process until creamy. Strain. Discard solids.

Store rice milk in jar in fridge. Shake before using. Keeps 3 - 4 days.

I personally didn't do well with the Vance's and got a headache after drinking it. :(

kabowman Explorer
kabowman
Posted
  • Author

Cool - thanks and should be a nice alternative to Vance's if I end up with problems to that too.

I used to make my own soy milk before I realized that I can't have soy.

jerseyangel Proficient
jerseyangel
Posted

I have to agree with Vincent--Vance's is really good. It has a consistancy closer to real milk. I'm very sensitive, and react terribly to rice and soy milks. I can use almond milk, but the flavor is a little too strong for use in many things. Vance's adapts well to any situation--try it :D

Green12 Enthusiast
Green12
Posted
I have to agree with Vincent--Vance's is really good. It has a consistancy closer to real milk. I'm very sensitive, and react terribly to rice and soy milks. I can use almond milk, but the flavor is a little too strong for use in many things. Vance's adapts well to any situation--try it :D

Patti :lol:

You just peeked my interest in trying Vance's. Knowing you are also a super sensitive and you do fine with it, I might give it a try.

jerseyangel Proficient
jerseyangel
Posted
Patti :lol:

You just peeked my interest in trying Vance's. Knowing you are also a super sensitive and you do fine with it, I might give it a try.

Julie--Yes, give it a try! I use it in recipes like scalloped and mashed potatoes, to make ice cream, cocoa, and dry as a creamer in my tea! I buy it 3 cartons at a time, and it lasts quite a while. (It comes dry and you reconstitute it with water). I sound like a commercial for them sometimes, but it really did fill a void for me in terms of what I can eat. If you haven't seen it, here is a link--

Open Original Shared Link

How've you been? :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

You can also make your own nut milks. Tons of recipes on the web.

Green12 Enthusiast
Green12
Posted
Julie--Yes, give it a try! I use it in recipes like scalloped and mashed potatoes, to make ice cream, cocoa, and dry as a creamer in my tea! I buy it 3 cartons at a time, and it lasts quite a while. (It comes dry and you reconstitute it with water). I sound like a commercial for them sometimes, but it really did fill a void for me in terms of what I can eat. If you haven't seen it, here is a link--

Open Original Shared Link

How've you been? :)

Thanks so much for this link!

ArtGirl Enthusiast
ArtGirl
Posted

I've used coconut milk for cereal and baking and it works well. YOu have to like the taste of coconut, though, which I do. I usually water it down because often the canned coconut milk is a bit too thick for my taste.

Also, I've used fruit juice on my cereal before. It's really pretty good this way. Certainly different.

kabowman Explorer
kabowman
Posted
  • Author

Thanks for all these great suggestions - I have been afraid to try my vance's because I am so sensitive. Thanks!!!! And if that doesn't work, I can make my own rice (I don't really have too many nuts left so I think we will stay away from those for now).

I am not a big fan of coconut but I wasn't a big fan of soymilk when I started with that either - it may just take me some time to adjust if it gets that far!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    2. knitty kitty
      0

      Vitamins I Take

    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run...
    5. pothosqueen
      - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748
    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      Mallorca Guide

      By hjayne19 · Posted

      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.